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        New Message Board Archives >> 2003 Posts >> Interesting description of CH
        
(Message started by: brain_cramps on Apr 12^th, 2003, 2:39pm)

Title: Interesting description of CH
Post by brain_cramps on Apr 12^th, 2003, 2:39pm

http://tinyurl.com/9e8b

This is a 16 page .pdf describing CH. I found it pretty interesting.

for what its worth,
grant

Title: Re: Interesting description of CH
Post by Joanie on Apr 12^th, 2003, 3:52pm

Thanks Grant.......lots of good information in plain English that my supporters can read!

Joanie

Title: Re: Interesting description of CH
Post by cathy on Apr 12^th, 2003, 6:32pm

Thanks for that I thought this was extremley informative and well worth reading....!!!!

The only bit that made me laugh was the bit that said most clusterhead sufferers had a very low sex drive...hmmmm they obviously never used any of you guys in the study... ;D

Cathy

Title: Re: Interesting description of CH
Post by amber on Apr 12^th, 2003, 6:49pm

Cathy LOL

like, where did they take their sample from ;)

amber

Title: Re: Interesting description of CH
Post by Opus on Apr 12^th, 2003, 7:16pm

Before recomending it you need to study it carefully. It has some big errors like O2 relaxs blood vessels to stop CH.
Opus :P

Title: Re: Interesting description of CH
Post by brain_cramps on Apr 12^th, 2003, 7:22pm

on 04/12/03 at 19:16:25, Opus wrote:

Before recomending it you need to study it carefully. It has some big errors like O2 relaxs blood vessels to stop CH.
Opus :P

Thx, Opus.

That's why I said "for what it's worth". (didn't catch that about the o2 though. :-X)

In general, I thought it was pretty good. (but... I haven't done any meds for years)

grant 8)

Title: Re: Interesting description of CH
Post by Opus on Apr 12^th, 2003, 7:42pm

Brain,
What I should have said is before any of us recomend it to an un learned person ex Doctor, we should study it carefully. Thanks for bring it to our attention, It may help someone, at least it recomends CH.com.
Opus :P

PS also the quiting smoking when a cycle starts is crazy and may turn it into the endless cycle from hell.

Title: Re: Interesting description of CH
Post by brain_cramps on Apr 12^th, 2003, 8:02pm

on 04/12/03 at 19:42:17, Opus wrote:

Brain,
What I should have said is before any of us recomend it to an un learned person ex Doctor, we should study it carefully.

I definitely should have read it closer. (still waiting wor the 'Ueli-stamp-of-approval' ;))

on 04/12/03 at 19:42:17, Opus wrote:

PS also the quiting smoking when a cycle starts is crazy and may turn it into the endless cycle from hell.

I usually cut down a lot, but quitting altogether? My 'stress rate' would go through the roof. >:( :o

grant 8)

ps. Any comments anyone else? Ueli?http://uselessgraphics.com/Owl2.gif

Title: Re: Interesting description of CH
Post by Wendy1 on Apr 12^th, 2003, 8:08pm

Yes, this is one of the more 'interesting' descriptions.

Still looking for someone who can correctly describe the pain.... is it just me or does it seem like all the words I've seen to describe the pain seem..... well, not quite severe enough. Ummm Suicide is close, but, well... does ne one agree???

Title: Re: Interesting description of CH
Post by Roxy on Apr 12^th, 2003, 8:20pm

on 04/12/03 at 20:08:21, Wendy1 wrote:

is it just me or does it seem like all the words I've seen to describe the pain seem..... well, not quite severe enough.

For me Wendy, there are no words that can describe the pain. It is indescribable, and I don't think there are words in any language that have that ability.

Title: Re: Interesting description of CH
Post by eyes_afire on Apr 12^th, 2003, 8:30pm

Thanks for showing the article, Grant. It brings up several good points for discussion.
Since you asked for more comments ;D...

My 2 main concerns with the article are:

1. They seem to sometimes mixup migraine and cluster symptoms. I haven't read of too many here getting a tingling sensation or visual disturbance. I'm not saying that it couldn't happen, just that it's not the norm for CH.

2. They seem to perpetuate the idea that CH is seasonal. I would counter, that CH is not seasonal but rather it is cyclical.

Also, CH is bad enough to decrease drive for life, much less drive for sex. After going thru all the meds, all the lack of sleep, all the obsessing, all the pain, would it be any wonder that a clusterhead would not have thier 'next score' on the forebrain? Kinda boils down to Maslow's Hierarchy Of Needs.

Good job Grant, it's good to discuss what kind of info is out there concerning our cursed condition.

Title: Re: Interesting description of CH
Post by Marc on Apr 12^th, 2003, 8:33pm

Rox,

I would have to steal a line from the infamous Hub and describe the pain as "Exquisite".

I used to chuckle at that description - until I really understood it.

Marc

Title: Re: Interesting description of CH
Post by kissmyglass on Apr 12^th, 2003, 8:35pm

The only way I can think to describe the pain is taking a downed wire ( like with sparks shooting out the end & it's flopping all over the place) taking that wire & sticking it up my nostril & holding it there for an hour. Thats what my attacks feel like....

Kev

Title: Re: Interesting description of CH
Post by brain_cramps on Apr 12^th, 2003, 8:36pm

on 04/12/03 at 20:33:39, Marc wrote:

I would have to steal a line from the infamous Hub and describe the pain as "Exquisite".

About as pure as pure can be!!!

Title: Re: Interesting description of CH
Post by cluster0557 on Apr 12^th, 2003, 8:36pm

The article seemed a bit off to me.

The part that really got me is Cronic Daily Headache.

I guess my daily Cluster fall into that broad bucket too.

What the heck happend to Hemicrania Continua Diagnosis and the related Icepicks that go with it?

What I loved most is that of all the drugs mentioned only my friend Imitrex and Verapamil do anythjing for me.

I guess since I have been cronic for 18+ months then nothing applies. And I had hope. :P

Title: Re: Interesting description of CH
Post by Marc on Apr 12^th, 2003, 10:41pm

Brain - you're right, pure works for me......

Marc

Title: Re: Interesting description of CH
Post by Mark C on Apr 12^th, 2003, 10:52pm

Pure....Perfect.....Pain

Title: Re: Interesting description of CH
Post by Charlie on Apr 13^th, 2003, 5:37am

It seems as though you have a three-pronged fish hook running back and forth around small areas of a particular nerve behind the eye making sure it has found the best spot to inflict pain. After a time, one of barbs breaks off and the hook retires for maintenance so it can it return later and work at maximum efficiency. It takes time for the repair so it leaves quickly, and at the same time allowing the nerve to recoup so it can fully appreciate the next round in a few hours. After a time, the hook fatigues to the point of being irreparable and can no longer do its job. Sadly, sooner or later, replacements are usually found.

Charlie

Title: Re: Interesting description of CH
Post by totka on Apr 13^th, 2003, 2:13pm

Thanx Grant,

What are you up to? No hungarian translation!? ;)
It will be a full-day program to read tomorrow.