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Title: Another Clusterheadache site..... Post by DaveHar on Apr 8th, 2003, 8:53pm National Clusterheadache Foundation http://www.clusterheadache.org/ This one was founded in 2000 I do not know if anyone knows of this one |
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Title: Re: Another Clusterheadache site..... Post by tanner on Apr 8th, 2003, 9:08pm ok, just checked out the link. anyone left handed out there? tim |
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Title: Re: Another Clusterheadache site..... Post by Frank on Apr 8th, 2003, 9:24pm I did some poking around to see who they are. The medical director for the National Clusterheadache Foundation is Dr. Alexander Mauskop, M.D. from the New York Headache Center in NYC. So Don.... is Dr Mauskop on the Convention invitee list? |
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Title: Re: Another Clusterheadache site..... Post by don on Apr 8th, 2003, 9:45pm Did anyone take the survey? Is it spring 2002 yet? |
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Title: Re: Another Clusterheadache site..... Post by Charlie on Apr 8th, 2003, 9:52pm I'll pitch in when they "launch the survey in Spring 2002" Hope they're legit. Charlie |
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Title: Re: Another Clusterheadache site..... Post by Ueli on Apr 8th, 2003, 9:57pm Not much happening on that site, see http://reports.internic.net/cgi/whois?whois_nic=clusterheadache.org&type=domain Last Updated On:27-Mar-2002...... :-/ |
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Title: Re: Another Clusterheadache site..... Post by Mastifflvr28 on Apr 8th, 2003, 10:01pm Hope no one "donates" to that one... Mast |
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Title: Re: Another Clusterheadache site..... Post by Ree on Apr 8th, 2003, 10:02pm OUR SITE IS BETTER!!!!! <3 ree http://www.snowcrest.net/kitty/hpages/hpic/tim3s.gif I THINK SO TOO... Turtle Tim |
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Title: Re: Another Clusterheadache site..... Post by Frank on Apr 8th, 2003, 10:18pm I wonder when that site was created if their goal isn't something similar to OUCH? To increase awareness of clusterheadaches and find a cure for the beast? Instead of putting their website down for trying to do the same thing we are trying to do here... how about a nice "hello from clusterville" email? |
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Title: Re: Another Clusterheadache site..... Post by fubar on Apr 9th, 2003, 12:04am Wouldn't it also make sense that it is very possible the owner of that site is a member here? I think the site is quite well done. I'm not saying I would donate yet (if I could), but I think it is well done. It can only help our cause if the information remains credible and any donations are used to help us find a cure (as stated). -Fu |
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Title: Re: Another Clusterheadache site..... Post by Mastifflvr28 on Apr 9th, 2003, 12:14am at least they got some good links Mast |
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Title: Re: Another Clusterheadache site..... Post by don on Apr 9th, 2003, 12:56am Frank IMHO that site has cobwebs hanging all over it. Last Updated On:27-Mar-2002 21:13:23 Thanks Ueli. |
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Title: Re: Another Clusterheadache site..... Post by Mikey on Apr 9th, 2003, 3:34am Yeah, Don, Ueli they are in no hurry at all are they? Mikey, ;D |
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Title: Re: Another Clusterheadache site..... Post by catlind on Apr 9th, 2003, 7:02am I'll do some research on Dr Mauskop No promises though :) My list of invited speakers is of people involved in NEW cluster information, I don't want someone preaching to the choir :) Cat |
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Title: Re: Another Clusterheadache site..... Post by K. on Apr 9th, 2003, 11:41am I went to that site and was reading the info on cluster headaches. WTF? Some of the stats it mentioned for who gets CH: Most CH occur in men, overweight people and that CH has never been diag. in left handed people. I must be a freak then because I'm female, I'm thin AND I'M LEFT HANDED! Geez. Karen |
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Title: Re: Another Clusterheadache site..... Post by Ted on Apr 9th, 2003, 12:03pm I never heard that CHs mainly hit fat people who are only right handed, but the majority of people who do get it are male, so that part is correct. It might not have been updated in quite a while but it was sure nice to see someone concerned (or affected?) enough to put it together. |
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Title: Re: Another Clusterheadache site..... Post by brain_cramps on Apr 9th, 2003, 12:19pm on 04/09/03 at 11:41:37, K. wrote:
I knew there had to be a couple of you out there. ;) :D I found some of the *&(^% on there to be bordering on hilarious. grant 8) |
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Title: Re: Another Clusterheadache site..... Post by BobG on Apr 9th, 2003, 1:03pm Fat clusterheads? Go to Bob P's picture and and look and decide for yourself. Left or right? A quick search for "handedness" got this.. From http://www.clusterheadaches.com/wwwboard/messages/15833.html Glenn A. Miller……lefted handed, CH right side BeeK…..left handed, CH on right SteveB…right handed, CH on right Nancy…….right and right John Perez……left handed and CH on right David Chalfant …right and right Margi’s Mike is confused Rick B……left handed, right pained Bob Kipple…both and both Derek……right and right Phil D…right handed and right CH’d Ted……ambidextrios and CH right LP…..left and left Bob Kipple…right handed and CH mostly on right. |
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Title: Re: Another Clusterheadache site..... Post by Ted on Apr 9th, 2003, 1:37pm on 04/09/03 at 13:03:20, BobG wrote:
That threw me off. I'm right handed and my attacks can hit the right or left side (I guess that's where I'm ambidexterous) and couldn't imagine why I'd write that. Then I checked the e-mail address of the Ted on that thread and saw it wasn't me. That Ted also predates me here by a few months. |
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Title: Re: Another Clusterheadache site..... Post by brain_cramps on Apr 9th, 2003, 1:46pm on 04/09/03 at 13:03:20, BobG wrote:
Any comments, Margi? ;) :D grant 8) |
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Title: Re: Another Clusterheadache site..... Post by Ree on Apr 9th, 2003, 7:39pm YA LETS SEND THEM SOME NICE EMAIL...you guys!! OUR SITE IS BETTER.!! I could have found any of that information in a medical book... we have the real deal here people... with experience from all walks of life... did you see that there huh huh huh...?? thought so... http://lamar.colostate.edu/~jmb/web_dir/turtles/ani_gif/ppturt.gif |
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Title: Re: Another Clusterheadache site..... Post by rumplestiltskin on Apr 9th, 2003, 8:47pm The site smells funny to me....Here's a couple links ...send us money!!! On OUCH's list of Docs... Harold Solomon listed him as a Cluster Doc. Hey Harold!!! Are you out there? Here he is selling a book http://www.abundant-health4u.com/store/migraines-det.html Here he is selling Migra-lieve http://www.naturalhealthmed.com/ Quote:
He's a research biggie? shrooms? I'm not the one to do it but here is the research request form.http://www.centerwatch.com/professional/pro257.html#8 More from him: I found the following at this site: http://www.geocities.com/wstarron/capsaicin24.htm Like magnesium. See your doctor about this one. A study at the New York Headache Center found that a shot of magnesium can relieve severe migraine or cluster headaches within 15 minutes. The shots worked only for people with low magnesium levels, but there's a 50-50 chance you're one of them, says Alexander Mauskop, M.D., who directed the study Oral supplements don't have the same effect, but daily doses may prevent migraines. Dr. Mauskop recommends 500 milligrams of chelated (check the label) magnesium, divided into two or three doses through the day. Here he is throwing a party: Conferences 15th Annual Symposium on the Treatment of Headaches & Facial Pain New York Eastside Marriott, New York, USA April 13, 2003 Contact: Alexander Mauskop, Director, NY Headache Center, 30 East 76th Street, New York, NY 10021, USA; Tel: +1 212 794 3550; Fax: +1 212 794 3550; Email: nyheadache@aol.com. Busy lil beaver...he's all over the web. love and peace den |
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Title: Re: Another Clusterheadache site..... Post by don on Apr 9th, 2003, 10:47pm Quote:
Trust me that is not a preventative. |
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Title: Re: Another Clusterheadache site..... Post by maggie_may on Apr 10th, 2003, 11:37am That site is a little off, but it's good that other people out there are aware of what CH is all about and how it may affect us. I was also surfing around and found this site - http://www.chhelp.org Looks interesting - they do have a questionnaire up and some other things too. Might be helpful reading. maggie |
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Title: Re: Another Clusterheadache site..... Post by don on Apr 10th, 2003, 11:54am IMMEDIATE RELIEF http://tinyurl.com/98km |
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Title: Re: Another Clusterheadache site..... Post by catlind on Apr 10th, 2003, 12:13pm Actually there are several other sites out there that discuss clusters, www.clusterheadaches.net , hmm this one disappeared, the .net one that is. www.chhelp.org , and a host more that have specialty sites. Here's one that discusses hyperbaric O2 for clusters. There is alot more out there than there was even a year ago. http://www.oxytherapy.com/oxyfiles/oxy00145.html Cat |
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Title: Re: Another Clusterheadache site..... Post by Slammy on Apr 11th, 2003, 10:27am on 04/09/03 at 00:56:29, don wrote:
Isn't that around the last time you had sex? ;D Slammy 8) |
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Title: Re: Another Clusterheadache site..... Post by don on Apr 11th, 2003, 1:16pm Do you mean with an actual person ? Yes. |
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