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        New Message Board Archives >> 2003 Posts >> Neuro visit
        
(Message started by: Callico_Kid on Apr 7^th, 2003, 12:07am)

Title: Neuro visit
Post by Callico_Kid on Apr 7^th, 2003, 12:07am

I need some advice please. My wife was able to finally get me an appointment with a neuro from Loyola who supposedly is familiar with CH. He was referred to us by a friend who is an ICU nurse in neurology. She talked with him about my case and he wanted to see me before my cycle ends. (I think I may be going chronic, been dealing with them since last March.)

The primary thing he seems to be interested in is testing me for Apnea. I have read a few articles about Apnea on here, but it doesn't seem to me to be a contributing factor. Is this something I should pursue?

I know that often people have been advised to print out material and take it with them when the see the Dr. Is there anything in particular I should take along, or do I wait to see how well versed he is on CH?

Presently I am taking no meds. I have used Fiorinol a few times when I needed some relief. (It did little more than take off a little of the edge.)

What else do I need to do to prepare myself for the meeting with the Neuro? I want to be able to talk with him intelligently and not just be a guinea pig. I have no insurance, so I don't want to do any unnecessary tests or take a lot of expensive meds that don't work.

Please pardon this ramble, but I know so little I don't even know what questions to ask. Thanks for all of the help you have been already.

jc`

Title: Re: Neuro visit
Post by don on Apr 7^th, 2003, 12:16am

Without question I would priny out the med pages from here and the OUCH site.

Title: Re: Neuro visit
Post by andy on Apr 7^th, 2003, 1:47am

Bummer, no insurance, me either. Just ask the doc for some samples of imitrex or whatever hes got that might work for you. Since i had no insurance my neuro charged me $35 per visit. About 1/3 of what he normally gets for insurance claims. Go figure!!! He gave me a stat pen and about $400 worth of imitrex (4 boxes) Nasal spray too! I think we should have a PROTEST against the insurance companies!! NO, Bad Idea, too many protestors around here already (you know who you are, so STFU) Samples,Samples,Samples I hope i helped a little, Andy