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        New Message Board Archives >> 2003 Posts >> Got support?
        
(Message started by: jonny on Apr 4^th, 2003, 9:00pm)

Title: Got support?
Post by jonny on Apr 4^th, 2003, 9:00pm

Who is your best supporter?

Do you have a supporter?

Do you have the support of your family, friend, lover.....anyone?

If you are lucky enough to have a supporter are they sympathetic?

Supporters do not get enough credit here so im going to change that.

Tell me and the rest of this family about your supporter, If you dont have one we will fill that void as much as we can.

Now talk to me!!!!!!!

...............................................jonny

Title: Re: Got support?
Post by Drk^Angel on Apr 4^th, 2003, 9:05pm

I have a supporter... And they provided me more support than I could ever have hoped for during my last cycle... That support is CH.com! Thank y'all for all your support, and I'll be there whenever you need me to repay the favor.

PFDAN.............................. Drk^Angel

Title: Re: Got support?
Post by Wendy1 on Apr 4^th, 2003, 10:10pm

I have support.... But my BEST and MOST LOVED SUPPPORT is my ch.com buddies. I don't know many of you, but I've been here every time I have a cycle since the board's been up. There have been many times I just don't think I can do it again, and there you all are. I love ya man!

Title: Re: Got support?
Post by suzy617 on Apr 4^th, 2003, 10:19pm

I'd have to say that CH.com is also my best supporter. I feel nobody else really understands the pain we go thru and I try not to go into too much detail with my friends because its just aggrevating when you hear, I get bad headaches too, etc., etc.
My son is always there for me also but I try to avoid him also because I dont like him to see me in pain.
So guess you all are just stuck with me.... ;)

suzy

Title: Re: Got support?
Post by brain_cramps on Apr 4^th, 2003, 10:32pm

I have 1 'supporter'. Its the thought than when I'm back in cycle, all of these GREAT PEOPLE will be here.

grant
:D :D :D :D :D :D

Title: Re: Got support?
Post by Callico_Kid on Apr 5^th, 2003, 12:00am

I have to agree with the others responding that my best support comes from here. Even when I just was visiting the site anddidn't register (shame on me) y'all were such a great encouragement to me.

My wife and kids try, but they have no clue. My youngest daughter, age 7, draws me pictures when I get hit the hardest. She will draw a picture of me curled up holding my head crying with a picture of her away from me crying too. I have carried the first picture she drew of me over a year ago in my wallet, and pull it out and look at it when I get hit especially hard at work.

I also have a group of people at church who pray for me and care about me and that helps. I shared Simon's letter with my Pastor and he in turn has shared some of what I go through with the church. That really helped when I got hit during a service recently.

You folks here at ch.com are the best! thanks Jonny! Good thread.

jc

Title: Re: Got support?
Post by cootie on Apr 5^th, 2003, 1:21am

Hey I'm a supporter.....not always been the best startin out ......took me a while....neither one of us knew what was goin on.....it was rough back then......now.....I just set out the meds.....set out what he wants....and leave him da fuck alone........team effort but it works...we gots a plan Pam

Title: Re: Got support?
Post by totka on Apr 5^th, 2003, 3:54am

You all are my supporters.
It's too long to explain but in my opinion a good supporter is clusterhead too.

Title: Re: Got support?
Post by Edna on Apr 5^th, 2003, 10:53am

WOW jonny, what a question. thanks

my supporters started YEARS ago with my mom, dad, sisters, and brothers.....back then no one knew it was ch......and ANY one of them would have done whatever I needed.......fetch a towel, fan, ice pack, pillow, medicine.......OR just make sure I wasn't bothered if that's what I wanted

my husband and three kids were added as supporters along the way..........from the time they were toddlers......my kids all knew how to answer the phone, NOT open the door, lower the TV, avoid my bedroom, catch me a cold ice pack, give me a back rub, lay with me, cry with me........ :( :(........whatever it took, cuz "mom had a bad headache"..........THEY even learned the difference between the visit (bad headache) and just regular headaches........they are my angels!!!!!!!!!!

and MY HUSBAND........strong through it all.......and the one who DEMANDED about 10-12 yrs. ago that we go to whatever lengths it took (during the worse attack I had ever had) to GET HELP...........he's now getting me ready and equipped with O2..........

AND...THAT

is ONLY possible because of some of the most GENEROUS, SELFLESS, GIVING, CARING friends I've met here..............my clusterbuds..........I'd name you all, but would HATE to offend anyone by omitting them, and furthermore, don't particularly like making anyone feel as though they aren't worthy of such praise only because I don't yet know them as a personal friend! SOOOOOOOOO..........some of you should check your mails ;D

sorry jonny, you asked LOL

wishing pf moments to every sufferer..........and warm hugs for every supporter

EDNA (needabuddy..........BUT having many now) :-*

Title: Re: Got support?
Post by ave on Apr 5^th, 2003, 12:04pm

Totka, I am sorry to disagree, but
there are a great many supporters out there who don't have clusters but suffer along with us and give great support.

They care about us, you know. They love us. They know how horrendous the pain must be. And they suffer if they can't help us.

I find it hard that you deny all that.

My own partner-in-life does exactly what I want him to do. He does NOT bother me, he NEVER has said stupid things like take an aspirin. He knows that I worry about him, even in the midst of my clusters (till they rise above a certain leve) so he does his best to tell me I need NOT worry, he can manage. Best of all, he always has a smile for me to drag me out of that slough of despond.

He is the best.

and yes, I do love all my cluster buds, but he will be first with me, always.

Title: Re: Got support?
Post by JDH on Apr 5^th, 2003, 2:10pm

You're right Jonny, the supporters of clusterheads don't get enough credit. God knows they go through some crazy shit right along with us.
My very best support comes from my wife of 20 years and best friend Sue. She's the one who's been there for me from the begining. She's driven me to the er in the middle of the night, gotten icepacks for me when I'm getting hit and there's no meds around, went out at all hours to pick up my scripts and best of all, she hates the beast as much as I do. I'm very lucky to have her on my side.
She can tell just by looking at me that I can feel it coming on and she knows to leave me alone when the nailgun is going off in my head.
My 1-A support comes from right here. This place and you guys are the best. Even though there are many varied opinions among us, we all have something in common and we support each other when needed.

pfdan's to all,
Jim

Title: Re: Got support?
Post by CHILDINSIDE on Apr 5^th, 2003, 5:32pm

I have many supporters, but just a few that really try to understand. My husband tells me to go lay down before it gets worse. He tries, but he is one of those that thinks a pill from the dr. can cure anything. My baby boy feels my head when he sees my hanging to my knees, and says "Yep you got a headache, i will be quiet, and play in my room." My youngest daughter just wants to hang over me, and panic enough for the both of us. My oldest daughter does count down for me, gets me ice, and calls my biggest supporter of all, my mom. my mom sits quietly with me and prays for the pain to stop, or gets ice, or what ever i need. If they gave awards for hanging in there to keep me from hurting myself, she deserves it. She keeps her cool, and helps all those around me to keep it together. She knows it kills me to see what i put my family through when i get hit. THANK GOD FOR MOMS. GOOD POST JONNY childinside

Title: Re: Got support?
Post by CHILDINSIDE on Apr 5^th, 2003, 5:34pm

;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-*

ps, i forgot to thank all of you. you are all wonderful suppoters of my questions, and understanding of what the BEAST puts us all through.
childinside

Title: Re: Got support?
Post by Linda_Howell on Apr 5^th, 2003, 6:10pm

My only supporter died 2 and 1/2 yrs. ago. Since then I only have you guys. When I get on-line and read someone saying something wonderful to a newcomer, then I , too get support. When I've been up all night and I am so tired and depressed that I don't think I can make it through another day of this shit......Don or Slammy or Bob or you will write something hilarious that makes me think......well, maybe ONE more day.

Before he died, I never gave my supporter the credit he deserved for putting up with me and my chronic H.A.'s
If I could change anything it would be that. To let him know how I appreciated all the crap I put him through.

The nights HE didn't sleep either.
The missed parties, dinners, etc.
making countless trips to refill 02 bottles for me.
The frustration of not being able to help.
Driving me around the block in the dead of winter in 20 degree weather, so I could hang my head out the window for the cold air. At 3:00 am

You supporters are awesome. Hope someone has told you that lately. LindaH

Title: Re: Got support?
Post by Jill on Apr 5^th, 2003, 7:39pm

It wasnt until I read Linda's post (as well as others) that I realized how lucky I am - in a sense.

When this nightmare began, I didnt know or realize what one on one support was - to have someone right next to me, that I could touch, to care for me, cry with me and to help me battle the beast.

What I did have was you all on this site - more than just names but not the faces that I have now. I had any one of you to email, chat with or even to call when the days got too rough for me. I had some of you to meet, to help me out with meds and doctors, to just encourage me to keep fighting that 'one more day.' I can never thank you enough for everything that you have done for me - even to just say Thank you is not enough. I really hope that you all realize how important you are too each and everyone of us - and I mean that.

Now, through some drastic measures in life and a move that was three thousand miles away, I have found more support than I could have ever dreamed of. Now that I have 'opened' to my family and to friends, I have found support that I never thought was possible. Still thanks to all of you.

Now I have parents that back me, understand as much as they can and try to help in whatever way possible - no matter how far away we are. Now that they know what it is going on, now that you all have also helped them to understand this disease and welcomed them with open arms, they are there like never before.

I could only focus on the friends that I have lost over the past year but now I realize all of the friends that I have gained - both at home and here. I am sorry that I never recognized it before but I am so glad that I have now.

I think that no matter how many supporters you may have, there will always be that one that stands out and who's actions mean the most to you. That one person, to me, is Marty. He welcomed me into his home, saving my life in the process and never thought twice about it. He welcomed me, the clusters (though they are unwanted) and all the baggage that I brought with me and never said a word about it.

I could go on, thanking him a hundred times and all of you for all that you have done but I wont. I know that you know what you mean to me and I love each one of you.

With that said, I just want to say that Linda is right - we should take the time right now, this very instant to really thank our supporters. We should tell them how much it means to us to fight this beast hand in hand, with them never giving up on us. We should tell them that we will never forget all of those times that they drove us to the ER, stayed up with us all night, took the punishment of just trying to help out - all of those times that we may have lashed out at them in our times of frusteration. Now is the time because you never know what later might bring.

That is really all I have to say, alot I know but still. Thank you all!

Jill

Title: Re: Got support?
Post by jonny on Apr 5^th, 2003, 7:55pm

Jill,

If I had a hat it would come off to you.

Excelent post!!!!

................................jonny

Title: Re: Got support?
Post by Jarvis on Apr 5^th, 2003, 8:03pm

wonderful posts! Jonny, I'll join you and lets tip our hats to marty too.

Title: Re: Got support?
Post by jonny on Apr 5^th, 2003, 8:13pm

on 04/05/03 at 20:03:36, Jarvis wrote:

wonderful posts! Jonny, I'll join you and lets tip our hats to marty too.

You asking?

Title: Re: Got support?
Post by Kirk on Apr 5^th, 2003, 8:50pm

Two
My loving and always caring wife of 33 Years Carrie. Who has done more then anyone should ever be asked of, and all you on this board.
Ya bunch of weird sickos. Or is that me?
No matter love ya all

TTFN

Title: Re: Got support?
Post by Linda_Howell on Apr 5^th, 2003, 9:54pm

Yep. It's you Kirk.

Love ya........LindaH

Title: Re: Got support?
Post by DaveHar on Apr 5^th, 2003, 10:22pm

Who is your best supporter?

I have two that fit this Leesa ( the love of my life) and then this board and the family I have in it.

Do you have a supporter?

Yes as I stated above.

Do you have the support of your family, friend, lover.....anyone?

I did not have any real support until I found this site. My ex did not know as I did not know what was going on with me so she could not help and that was not her fault. For as much hate that lays between us I have to give her the credit that was due. She was a great supporter in the beginning. Then I found Leesa threw this site and HSG and I have the support of LOVE and total understanding. I also have the support of two other very special women in here that I have to give credit to. Jackie and Linda. They halped me in ways that I never knew possible. THANK YOU BOTH!

If you are lucky enough to have a supporter are they sympathetic?

Yes and I would not trade Leesa for anything or anyone. Not even to be pain free for the rest of my years.

I also want to make one last statment.

I know I am not here much anymore and I do not paticipate as much as I use to. For that I want to appoligize. CH.com family I am honestly sorry! But please know this. If any of you need me I will do all I can for you. ANY OF YOU!!!! This family of supporters has helped me and I thank you for that from the bottom of my heart.

Dave

Title: Re: Got support?
Post by Ree on Apr 6^th, 2003, 11:08pm

Linda H. I hope I dont embarass you in saying this here but... you sweet woman... your supporter that you lost the one that has passed, he knows how you feel... probably always did know. Ch is the toughest horror that I have ever witnessed. To see someone you love go through it and stick it out... He knew you loved him. He knew you couldnt help the agonizing pain and suffering you were going through and... although i didnt know this man Im sure he loved you dearly as everyone else does here... You cannot imagine the support you give lovingly each day just in coming here and sticking it out, all the while going through what you go through with the beast. Never have I ever heard you feel sorry for yourself. You are a supporter to so many and Im sure from the Heavens above your lost love is proud of the woman you are... love ya Ree

Title: Re: Got support?
Post by Linda_Howell on Apr 6^th, 2003, 11:34pm

Thank you Ree,

Do you mind if I cry for a second? o.k. whew!

That over now.....

I came here over 4 yrs. ago to understand WTF I was going thru. Since then I met so many people. You have all taken over where my supporter left off and I thank you from the bottom of my heart.

Then of course there's always:

Danny-boy

02-dog

and now......

Opie

but I thank all the rest of you for my sanity, and my life, for w/o you I wouldn't be here.

me

Title: Re: Got support?
Post by Aussie on Apr 7^th, 2003, 1:24am

Never had a supporter, probably due to the fact that I have always been a nocturnal sufferer. Whenever I have been in relationships, I have always managed to crawl out of the sack and disappear, this suits me as I can’t handle being around others when I’m getting clobbered. Never mentioned my CH’s to family nor friends, I sort of feel that everyone has their own shit to deal with.

My only real supporter is my 5 year old German Shepherd who is always there, he still thinks it’s a fun game to play when I’m rolling on the ground in pain, but the sensation of having his sharp teeth embedded into your arms and legs is always a distraction from the exploding head.

This site and the people on the boards are all bloody beaut, the supporters here that aren’t sufferers are a true credit to humanity. This site has been my only real outlet for CH discussion with other people and continues to be a great source for help.
Another ripper post Johny.

Steve

Title: Re: Got support?
Post by miCHel on Apr 7^th, 2003, 2:29pm

Supporters?

Just by knowing to leave me alone when I have a crisis and to keep the kids away from me, my girlfriend is by far my best supporter. She understands I hate being around people when hit by CH. Oh yeah! She's also the one who found this site for me. It truly changed my life (which i've wanted to end numerous times when in cycle because I could see no light at the end of the tunnel - with no treatment and no advice). No more of that!

But when I started coming here, I got the best info and, as important, I got support from people who truly understood what I was going true. As Mastercard would say : Priceless! People who I had never met were taking the time to answer questions that had probably been answered hundreds of time on this site. You guys are truly amazing!

miCHel

Title: GOOD POST!!
Post by ZAIRA on Apr 7^th, 2003, 3:47pm

Hi Jonny and all,

my best supporter (besides my family) has been, till the beginning of my CH, my neurologist, the first one who diagnosed me the CH.
He was very nice with me, I was 14 and when I was discouraged he always was present to comfort me. I shared with him the first attack, the first injection of Imitrex, my rage towards the beast that I couldn’t accept... Nowadays he’s my best friend, he contacts me, he call me, he’s my second Dad... ;D

And then, I can’t forget you, marvellous creatures.... all has changed, you are greatly helpful for me... my best friends!

No one has transmitted me what you do: know that other people fight every day against the same beast... it makes a great difference...

Thank you people!!

Good life, Zaira ;)