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        New Message Board Archives >> 2003 Posts >> Pheochromocytoma and cluster headaches
        
(Message started by: Mental_Fatigue on Apr 1^st, 2003, 9:40pm)

Title: Pheochromocytoma and cluster headaches
Post by Mental_Fatigue on Apr 1^st, 2003, 9:40pm

Hello,

First let me apologize for the long post, but the information may be of help to some sufferers.

I am a 40 year old male registered nurse who began to experience severe unilateral headaches about 2 years ago. Initially the pain was my only significant symptom.

Analgesics, including narcotics were completely useless. All the morphine did was turn me from a person in severe pain to a sleepy person in severe pain.

I was treated for cluster headaches with prednisone with some improvement.

However, several months ago I began to experience palpitations and blood pressure spikes associated with the episodes. Initially my headaches began before the spike in bp. Then the spike in bp and palpitations were noticable before the headache.

I had some blood and urine tests for pheochromocytoma ( a rare tumour, generally of the adrenal glands), which were negative.

My symptoms persisted and eventually I had an mibg scan (a nuclear medicine scan) which showed a left adrenal mass.

It is certainly possible that others out there may have symptoms of cluster headaches which may be due to pheochromcytoma. It may be worth mentioning to your doctor.

Please post any information about this correlation here. Thanks.

Title: Re: Pheochromocytoma and cluster headaches
Post by catlind on Apr 1^st, 2003, 9:45pm

Thanks for the info mental, it's always good to know about possible other diagnoses.

You used a big word though, and I can't even pronounce it to mention it to my doctor LOL.

I am in no way laughing at you, or demeaning you, that word just intimidated me. Tell us more about this condition?

Cat

Title: Re: Pheochromocytoma and cluster headaches
Post by don on Apr 1^st, 2003, 9:50pm

Would it be possible that after 26 years of this shit that I might have that long word and I can dig the little nugget out?

Wouldn't that condition become quite noticable after a period of time?

Your info could be extremely valuable to a new sufferer and may possibly save them a lot of grief.

Would it or could it apply to long time sufferers ?

Title: Re: Pheochromocytoma and cluster headaches
Post by catlind on Apr 1^st, 2003, 9:56pm

Quote:

Pheochromocytoma is sometimes part of a condition called multiple endocrine neoplasia syndrome (MEN). People with MEN often have other cancers (such as thyroid cancer) and other hormonal problems.

I JUST KNEW IT!!!!!!!!!!!! MEN are a dangerous and damaging health condition!!!!!! WebMD said so!!!!!! ;)

Cat

Title: Re: Pheochromocytoma and cluster headaches
Post by don on Apr 1^st, 2003, 10:00pm

I coulda told you that.

Title: Re: Pheochromocytoma and cluster headaches
Post by Lori on Apr 2^nd, 2003, 4:48pm

on 04/01/03 at 21:56:39, catlind wrote:

I JUST KNEW IT!!!!!!!!!!!! MEN are a dangerous and damaging health condition!!!!!! WebMD said so!!!!!! ;)

Cat

LOL!!!! Now THAT is funny!!!!!!!!! Thanks! ;D

Title: Re: Pheochromocytoma and cluster headaches
Post by cbolony on Apr 2^nd, 2003, 6:41pm

http://content.health.msn.com/content/healthwise/27/6699.htm?lastselectedguid={B7F18B8A-5BA8-43FC-B950-5FA349C6A692}

Title: Re: Pheochromocytoma and cluster headaches
Post by K. on Apr 2^nd, 2003, 7:28pm

on 04/01/03 at 21:56:39, catlind wrote:

I JUST KNEW IT!!!!!!!!!!!! MEN are a dangerous and damaging health condition!!!!!! WebMD said so!!!!!! ;)

LMAO! ;D ;D

Karen