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Title: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 4:23pm In a car in bumper to bumper traffic with a 10? On a plane sitting next to an old lady that wont shut up and you have a 10? In an office meeting with a 10 comming on fast? What is yours?, everyone has one dont they? Mine? Sitting at a memorial service for my best friend. He killed himself and while I was at the service it ramped up real fast. There was no way I was going to leave and I didnt, tears rolling down my cheeks ( I lucked out on location) I suffered through 45 mins. What say you? ................................jonny |
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Title: Re: What is your worst CH horror story? Post by suzy617 on Mar 28th, 2003, 4:29pm That really sucked for you Jonny. I can honestly say that since most of mine happen while in bed, I am safe that way. Just this last cycle though was out on my usual friday night having a beer and it hit but lucky for me was with all people who knew me so they just let me rock away till the imitrex kicked in. Ok, its friday, so you know where I'm going now.... ;D suzy |
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Title: Re: What is your worst CH horror story? Post by echo on Mar 28th, 2003, 4:35pm Small arms fire exchange in an alley between my partner and I and several perps. Had a CH clamp down within seconds. Must not have felt it comming due to addrenilin (sp). Right eye watering so bad I couldn't see, had to shoot left handed, but only had coverage for right handed shooting. Decided WTF, I feel like dying anyway, reloaded full clip (14), stormed the perps at a run shooting left and holding my right eye. Partner thought I was nuts, perps freaked. Outcome in my favor. Had to visit the department shrink for awhile after that. |
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Title: Re: What is your worst CH horror story? Post by cathy on Mar 28th, 2003, 4:38pm :'(....as a supporter I'd have to say the worst one I've seen Wes have was last November, I'd gone to pick him up from his brothers house...(he'd been there working on a car)...when I got there he was already 1/2 hour into a kip 10 no meds as he was then still undiagnosed...he was in the garage going mad...don't know which was worse watching him or trying to calm his brother down, noone until then except me had seen him go through this...it lasted over 2 hours...hope to god it never happens again!!!! btw...think each and every ch hit is a horror story in itself... :'( Wishing you all PFDAN's Cathy :'( |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 4:38pm LMMFAO.....Like you read about....LOL ;D Fuckin Echo....LMMFAO .................................jonny :D |
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Title: Re: What is your worst CH horror story? Post by Slammy on Mar 28th, 2003, 4:41pm on 03/28/03 at 16:35:03, echo wrote:
Wow Echo! I realize the Telcom business is tough, but I didn't realize Sprint was so hostile! ;D One of my worse horror stories was when I was umpiring a college baseball game between Arizona St. and Stanford behind the plate. I felt a real bad one come on, and there was nothing I could do about it...... my eye was just blazing behind my mask, and it was one of the longest 30 minutes of my life! Slammy 8) |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 4:43pm Excelent discription Slammy....it was the longest 45 mins of my life. A pain in my head and my heart at the same time. .............................jonny |
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Title: Re: What is your worst CH horror story? Post by echo on Mar 28th, 2003, 4:47pm Hey Slammy -- could you see the ball or did you just guess Strike or ball by the noise of the crowd. Yep -- next layoff we issue vests! |
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Title: Re: What is your worst CH horror story? Post by kim on Mar 28th, 2003, 4:47pm I've had lotsa horror episodes. Once at work (while I was pretending to everyone that things were FINE ::) .......) Manhattan - went out for lunch with a bunch a people.....had mexican food and 2 margaritas...........we all went back to work and then the theme from JAWS set in...........I tried so hard to hide it, but you know what happened. It was not pretty. The Margaritas ...........anyhow, got sent home in a limo with a puke bag........ ::) :D One of the many times I got hit at rush hour in the City. All I could focus on was getting to my train. Got to the train. Attack hit 10 -- and then I realized that I was sitting in the BAR CAR with heavy smoking, gambling commuters - ya jes hadda be there ::) Working with the President of National Cash Register............he was dictating a mediation plan to me to be distributed to the union and the representatives...........I was sitting there taking the dictation while tears poured outa my eye (I kept sticking my toungue up against my upper back teeth - the pain!)............had to prepare a package for each union rep while the guy was standing over me. I don't know how I did it. But ---- I DID IT!!!! My clusters hit late at night and early in the am.....but then at peak cycle they hit rapid fire all day long.....After 25 years, I got lotsa stories :D :'( |
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Title: Re: What is your worst CH horror story? Post by TomM on Mar 28th, 2003, 4:47pm This past Tuesday. Kip8/9 while driving and cutoff by a guy who then flipped me off after the anti-locks kicked in. Read about in "Did Something Stupid". Good question jonny. TomM |
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Title: Re: What is your worst CH horror story? Post by brain_cramps on Mar 28th, 2003, 4:58pm Like the others, after 20yrs I gotta million of em. This last cycle, I had an unusually long KIP-10. It must have started around 1AM and went for 6hrs. At 7AM, I decided maybe fresh air would help and went for a walk (yeah I know I'm crazy...) Anyways there I am, curled up in a ball on the sidewalk bawling like a baby as people are walking by on their way to work. Just a little humiliating!!! grant |
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Title: Re: What is your worst CH horror story? Post by Slammy on Mar 28th, 2003, 5:06pm on 03/28/03 at 16:47:32, echo wrote:
LOL! nope Echo, I just said " Sounds like a strike!" and ring it up! ;D btw... I opened up the strike zone reeeallly reaalllly big! If it didn't bounce, it had a chance! :D Slammy 8) |
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Title: Re: What is your worst CH horror story? Post by fubar on Mar 28th, 2003, 5:10pm The worst horror of these attacks is having them in front of your kids, knowing they feel helpless, frightened and worried. The time you know they need you the most, you're least able to help. Horror. -Fu |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 5:13pm Fubar, EXCELENT..................in the worst way!! Ive been there, Bro. .................................jonny |
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Title: Re: What is your worst CH horror story? Post by 9erfan on Mar 28th, 2003, 6:49pm I've had many horror stories but one that I can think of right now is getting hit with a KIP 10 while "strapped down" in the MRI machine! :-[ This was the 3rd time they tried to do an MRI on me....found out I was claustrophobic the 1st 2 times. So this time they were trying an "open MRI"..yeah, right!Open, my A*S*S! It's just wider across the shoulders but still just as close to your face. So I was already in a panic because I didn't want to be in there and then the 10 started! Those who have had the MRI know about that damn clanging sound that goes on the entire time!!! I had tears running down my face the whole time, I really wanted to die at that point. The ony reason I didn't make them stop the test is because I didn't want to start all over again...just get it over with!! I made the nurse stay in the room with me and keep her hand on my leg so I knew she was there because I thought I might run out air (that's how claustrophobic I am) and no one would hear me struggling! :'( :'( Not a fun 45 minutes! :'( Virginia |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 6:55pm They didnt give you music Virginia? I had Pantera cranking while in the MRI. ......................................jonny |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 28th, 2003, 7:20pm Hmmm worst CH horror story. I'd have to say that was right after my hysterectomy to fix the damn headaches. Woke up from 6 hours of surgery with no pain medication because I had an epidural that was supposed to work and didn't. Woke up in extreme pain and continued to get worse. Got hooked up to a morphine pump, and finally started to feel some relief from the surgery, and started to feel really nauseated. Called the nurse, but she said I couldn't have any more anti nausea meds. K 9 hit. Shit hit the fan. I got up and got to the bathroom by myself, and after puking for several minutes was able to ring for the nurse who walked in and found me in tears banging my head on the concrete wall. After they got me back in bed and checked to see how much damage I had done to the surgical site, they gave me another shot of anti nauseant and upped my morphine. All the while asking me if it was my stomach that hurt, and not believing me that my head hurt more than my stomach. Fun Fun. Kids, do not try this at home! Cat |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 7:25pm Ya ya ya, you were just trying to get more morphine you junkie.......LMMFAO ;D ...........................jonny |
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Title: Re: What is your worst CH horror story? Post by BruceD on Mar 28th, 2003, 7:26pm OK, worst day (and probably best too)... It was about 4 1/2 years ago when I was at work and one of those nighttime skull crushers hits me. I had just about finished up a presentation for a client when my eye started to water. I tried to work through it but nothing helped so I finished the meeting and headed to the bathroom. It was then that I noticed that my pupil in my right eye was about half the size of the left. That really freaked me out and I then made the stupid decision to drive myself to my doc to see if I'm dying! I got into my truck and drove along while banging my head on the side window. Well, I honestly have no idea how I actually managed to drive there without killing myself (and others) but by the time I got to the doc office the HA was just ending. It was that day that my GP (first time I went to her) diagnosed my CH. Of course she was a little dramatic and said ... "I think I know what's up but let me check on something..." then she walked out of the room. Well after what seemed like 2 or 3 hours (probably 5 minutes) she returned and said "You have cluster headaches" I was thinking that she was calling my wife and the morgue because I was going to drop dead right there. Oh well, that's probably the worst time (and most relieving one too) BruceD |
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Title: Re: What is your worst CH horror story? Post by fubar on Mar 28th, 2003, 7:28pm I opted for some Tantric, Filter and some good old Zeppelin. The operator let me bring a CD. He stopped during the scan to ask what the hell was one song... it was Dread Zeppelin. For those who don't know, Dread Zeppelin is band that plays Zeppelin songs, to a reggae beat, with an Elvis Presley impersonator as the lead singer. -Fu |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 28th, 2003, 7:28pm Oh sure, everyone else gets a warm and fuzzy from you and I get called a junkie! Sheesh, the agony of it all! LOL Note to self: Morphine causes SEVERE nausea, do not touch LOL Cat |
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Title: Re: What is your worst CH horror story? Post by Not4Hire on Mar 28th, 2003, 7:39pm ...gotta be the *first* one.....when i thought i was having a stroke....drove myself to the ER (insanity...don't try this without professional drivers on a closed course) ...and the X-ray tech told me that they *checked my cranial contents and didn't find anything*.....HA-effin-HA......never been THAT scared....or felt so alone..... |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 7:44pm Quote:
You just fucking killed me Bro......LMMFYBO ;D LMAO :D ................................jonny |
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Title: Re: What is your worst CH horror story? Post by Roxy on Mar 28th, 2003, 7:45pm My first attack in front of my children. It was this Christmas. I always try to stay hidden from them, but my trex nasal spray (all I had at the time), was in the kitchen. Made it in there, grabbed the spray and couldn't get the damn package unwrapped, all coordination seemed to have left me. Ended up on my knees, banging my head, crying.....the whole bit. They didn't know what to do......daughter was crying, son was panicking, oldest son was trying to call a damn ambulance. Husband was yelling at me, trying to get my attention (which was a total impossibility). He had never seen an attack that bad, I've always hidden them from him too. They were all yelling something at me…..and I was useless. Couldn't even explain and comfort them. Then there was the time I was stuck in a hotel room in Mexico at 2am. Woke all the neighbors. Hadn't been diagnosed yet, so didn't know trex would work. Kills me to think of all that trex available down there….and I didn't have a clue. Then there was the night I flashed my son's fraternity brothers. That was a horror for him and me!!! :-/ |
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Title: Re: What is your worst CH horror story? Post by 9erfan on Mar 28th, 2003, 8:14pm I couldn't even do the headphones in the MRI machine...made me feel even more closed in! What a loser! >:( not4hire, I"ve done that drive to the ER by myself before...luckily I only lived a mile from the hospital at the time. but once there, the nurses wouldn't let me drive home after the meds so they called a cab...well, if you've ever tried to call a cab in Overland Park, KS...forget about it...you'll be waiting all night. so when the nurses weren't looking I snuck out of there and past the security guard and drove myself home.... the things we will do!! V. PS: good thread jonny! |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 28th, 2003, 8:19pm on 03/28/03 at 20:14:08, 9erfan wrote:
I try to keep it intresting, V...............Thank you .......................................jonny |
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Title: Re: What is your worst CH horror story? Post by Marc on Mar 28th, 2003, 8:29pm It's difficult for me to define "worst" - Like Fubar - going down hard in front of my kids hurt my heart the most - Being trapped on an airline flight hurt my head the most - Walking off the stage while giving a lecture to people who paid to be there hurt my pride the most No matter how you slice it, they could all have the label "worst" Marc |
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Title: Re: What is your worst CH horror story? Post by Wendy1 on Mar 28th, 2003, 9:16pm NO, NO .... this is the best.... I am on the Dan Ryan Freeway at noon in Chicago (I am not kidding), on my way to my appt. at the Diamond H/A Clinic (4 hrs from my home). STUPID ME .... I had a bologna and cheese sand (MAJOR processed food), I get an 11+ in about 2 mins. Here I am trying to load my torodal in the inj. syringe (hoping to God no one sees me) and trying to pull my pants down to inject my thigh, while driving 60. (Believe me I am not making this up). I get to the clinic (valet thank God), first time at their new location and I am riding up and down the elevator wanting to rip out my eye, trying to find this joint while 'Miss Helpful' Conceirge is on the phone. She says "do you need help". I burst into tears, and scream WHERE THE HECK IS THE DIAMOND CLINIC!!!! When I walked into the office, I was bawling, in beastly pain, I could not believe this was happening. They took me right to O2. End of story. |
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Title: Re: What is your worst CH horror story? Post by don on Mar 28th, 2003, 10:35pm KIP 10 in a movie theatre. No trex with me. 35 minute drive home in a freaking convertable, my wife at the wheel in a panic.. I t was like sitting in a NASA wind tunnel with the tazmanian devil on crack controlling the fan. |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 29th, 2003, 9:27am Don, you crack me up ROFLMMFAO!!!!!!!!!!!!!!!!!!!!! Cat |
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Title: Re: What is your worst CH horror story? Post by Frank on Mar 29th, 2003, 9:37am I've got lots of them. Here's two: * Sitting under my desk at work with the door closed screaming in pain... my boss heard me and walked in. Horrified, he decided to call 911... (fortunately I managed to talk him out of it). * The worst one... was following my wedding, my new in-laws took us out for the reception dinner. About halfway through dinner I got hit with a "10". This was before I had been diagnosed with clusters and I didn't have any meds. Since this was my wedding day and I didn't think it would be PC to get up and leave the table, I sat there holding my head and suffered through it. Somehow my wife understood and we are still married 13 years later. |
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Title: Re: What is your worst CH horror story? Post by thsa/simon on Mar 29th, 2003, 10:05am Gee, I guess I live a boring cluster life. My worst experience was after one year of marriage I was stationed in Hawaii (yeah, sucks to be me) and woke one morning with a cluster and started banging my head against the concrete wall. My darling wife had NEVER seen my clusters and to be honest, Im not sure I had ever told her about them. That was a long 3 hours trying to calm her down while beating my brains outs. After 20 years of these, thats the best I can do. simon |
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Title: Re: What is your worst CH horror story? Post by Sean_C on Mar 29th, 2003, 11:43am jonny, Whats up bud, I'm feelin' for ya on the memorial, trapped and panickin I'm sure, but tryin' to look normal at the same time. I had a simililar experience last summer when the guy we were workin' with hung himself in the shops chemical room first thing in the morning, because his X wouldn't take him back. Long story! Well on a brighter topic, lets see, hmmm my worst CH? or CHes? Where do we begin, we've had so many they all suck!! How about when we were mis-diagnosed, seen all the specialist, and we were all diagnosed as in perfect condition? And you shake your head and say no fn' way am I normal. LOL, and they looked at you like you were a nutcase, and they told your mother that maybe you need a shrink, LOL. Alright I guess my worst time I was in a bad position, with a 50 was when I was with my wife, girlfriend at the time, at my house. I'm mis-diagnosed remember and she's never ever ever ever seen Mr. Hide, my Psycho personality who visits me, and I don't want her to. We had been out to eat, Chinese I believe, and had a couple of cocktails of course, and went home to watch a movie. We were on the couch, and BAM, I thought "oh my god" he's here!!! I waited for a few seconds then BAM!!! BAM!!! BAM!!! I looked the other way and said I need to go in the other room for a minute, I'll be back in a few minutes. She still doesn't know whats goin' on, and I thought to myself she's not ready to meet Mr. Hyde. She doesn't want to meet him, he's not a nice guy! She'll think I'm a freak, and I really like her, my god please don't do this now, please I thought. I went in the bedroom and turned off the lights, pulled the shades and ran over and unplugged the alarm clock, you know how bright that thing is right? I stood their pushing my head against the wall pushing my hand so hard against right temple and my fingers into my eye that you would think my eye was going to be crushed. The pain is getting intense now, Mr. Hyde is definitely here I said quietly to myself, I begged him to go away, but he's really starting to get aggravated now, and he's stabbing my eye with an ice pick, almost coming through I swear, in an attempt for me to let him out, and his fist is clutching my nose in an attempt to suffocate me, but I refused to relent, and pushed harder on my head. And again, he submitted more pain for disobeying him by taking his shot gun and blowing repeated continuous blows to my right side temple, I can feel him in there trying to force his way out, but I held pressure to keep him from coming out with all my might. By now, and only probably 5 minutes into it I'm pacing, and shaking uncontrollably, and of course I'm chanting :"please go away" "please go away" "please go away" and as he begins to reach into my ear drum and pull all of my inner ear guts into his nest I get pissed. By now I'm beamin' , I can tell I'm out of control, because I'm talkin back to him. I'm callin him everything in the book, and tellin him I'm gonna kill him. Without question I'm panickin!! I stop and think for a second and suggest to myself "I'll rip my eye out, then it will stop" " I'll just rip my FN eye out" that's why I'm f'd up, its my f'n eyes fault!!! Then she walks in, and says where are you and turns on the light!!!!!!!! I'm in the corner shaking, blocking the light with my hands and arms. Turn of the light I said nicely. What she said quietly? TURN OFF THE FN LIGHT I SAID, TURN OFF THE FN LIGHT WHAT ARE YOU FN STUPID, TURN THE FN LIGHT OFF!!!!!!!!!!!!!! She looked in horror and just stood there. I lunged at the light switch and told her to go away and began to pace. You just don't get it, I'm messed up I said. Go away!! Instead she stayed and paced with me in complete confusion and asked what was wrong in a quiet voice nervously? I told her I don't know shakingly. Now I can't take it anymore and this is when I begin to talk to GOD. She must be freakin now I thought. I beg god to take me!! I chant "PLEASE GOD TAKE ME NOW" PLEASE GOD TAKE ME NOW" "PLEASE GOD TAKE ME NOW" that's all I can do. She asks me if I want to go to the hospital, and I run to the car with a pillow case rapped around my face! We drive to the E.R. and the second I walk in the nurse says get security theirs another one here thats been in fight! My eye was almost swollen shut. My wife says no, I think he's having an anurism! I just agreed and begged for help. they took me into the ward and BANG, it was gone. He's gone I said to the nurse. Thank god he's gone I said. The nurses and DR.'s did there thing and as always sent me on my way, there was nothing wrong with me, and told me to see my Primary Dr. as we all know. Its a long story, but thinkin back its one of the few I remember like it was yesterdays. Atleast now we know what it is and have Meds to help a little bit. Thank god for Imitrex and O2. Stay cool jonny, Sean |
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Title: Re: What is your worst CH horror story? Post by totka on Mar 29th, 2003, 11:44am I had four KIP 9-10 in a night so I was out of Imigran. And at 6 am arrived a 10 again. I had prescription. My neighbor drove me to the all-night pharmacy. The druggist told me that he has no Imigran but if it's urgent he can find it by tomorrow. |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 29th, 2003, 11:51am OMG Sean!!!!!!!!!!!!!!!!!!!!!!!! Can we put that one in the pamphlet?? Can we put that one on the buttons?? That is incredibly chilling! It captures the state of mind so accurately it's frightening. Thank you so much Sean for posting that. I'm putting that one in the keepers. Cat |
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Title: Re: What is your worst CH horror story? Post by jimbo on Mar 29th, 2003, 11:55am While in college, I had sex with Madonna (Oh I'm sorry jonny, you said HORROR story not sleeper story) ;D OOPS! Mine is once when I was grocery shopping for the wife and the store is crowded as hell, and wouldn't ya know it, an instant kip 10 just as I was checking out. I said to myself "Fuck it" and left all the stuff at the counter and ran out. Unfortunately, security thought I stole something and chased my pain- ridden ass through the parking lot. It's amazing how fast a CH can run with a 10 Seeya, Jimbo |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 29th, 2003, 12:40pm on 03/29/03 at 11:51:52, catlind wrote:
Cat, Sean lives in Plymouth, thats where my shop is. He works one exit up the highway from where I live, I talked to him on the phone a few weeks back.....He is one cool dude and a true clusterhead......LOL I think I can get his ass to the convention, Hell!!, I was the first clusterhead he ever talked to ;D ......................jonny-staying cool!! :D |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 29th, 2003, 1:34pm Rock on Jonny!!!!!!!!!!!!!!!!!! you make sure to drag his ass to the convention ;) check out my site: http://home.twcny.rr.com/clind One of these days I'll change your link too jonny LOL Cat |
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Title: Re: What is your worst CH horror story? Post by 2late on Mar 29th, 2003, 1:47pm one of my worst was 2 years ago, poker run, about 40 miles from home, kip 8 or 9, no trex, ridin' my scoot wich has straight drag pipes home lookin' outta one tear soaked eye. longest trip of my life & my scoot has a ton of miles on it. i really feel for people who go thru this in front of their kids, if my wife wasn't home i alway's had my oldest son around to hold down the fort while i locked myself away. ..........Jack |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 29th, 2003, 2:33pm The worst heartbreak in my world with CH's is when this adorable face asks: "Mommy does you head huwt?" http://home.twcny.rr.com/clind/AydenPiper.jpg Cat |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 29th, 2003, 2:40pm AWWWWWWW!! ........................jonny |
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Title: Re: What is your worst CH horror story? Post by Jill on Mar 29th, 2003, 4:35pm I wasnt going to post here because I didnt believe that I could find just one story that could be described as my worst CH story. It didnt seem that running out of class with a Kip 10, being ridiculed by my peers and my professor would justify the pain. That time when I got hit so extremely hard while driving to school and almost ran into a tree didnt seem to come close to the pain that I was feeling. Even the time that I was on the airplane, middle seat between the big man that just wouldnt stop snoring (and drooling) and the other guy that wouldnt shut up and the beast would give me no mercy for almost the entire flight, no, that cant even be considered. I could go on but I wont. The worst CH, to me when I first read this, was the last year - getting hit everyday with no breaks. Getting hit everyday, harder and harder as each new sun rose. The emotional pain, the exhaustion, all of the black eyes and bruises of the last year - all of that was the worst CH pain. However, today is another story - I have found my horror story. It is one that may not seem to you like horror but, to me, it is. This morning, all of a sudden I get hit with a bad one (they are all bad ones these days). I am not going to go into the details of the attack because we all know too well what they are like - we dont need to rehash it. I will say that I battle the beast with the help of someone else, I grasp on to them because I dont think that I can fight alone. It may not be the most pleasant experience for that person as bruises land on both of us and I am sure that it is an exhausting job holding me back from the banging and all but I am thankful for it. Okay, sorry, back to this morning. I was fighting as I normally do - whatever normal is - but somewhere along the lines, I drew blood on the one person that I would never want to hurt. I made him get up and walk away from me because I was too violent, too mean. Why does this sound so bad, like a horror story? Because I hurt the one person that I would never dream of causing harm to, I drew blood - granted it was not that much - on someone that was just trying to help, someone that I want to help me and someone that I need. :'( But it doesnt end there - after the hit was over, I came to realize what I did and all of reality set in. I really came to realize how bad things were and broke down - something that I have not done since it began and I mean really broke down. I realized that I am tired, frusterated and more worn down than I think that I have ever been before. Scared to be left alone, scared to fight the beast again and scared that this will go on forever. Just this one hit had the power to bring this out of me. I am not sure how this sounds to anyone else, maybe you had to be me to understand but this was a CH horror story for me. I hurt someone else, I came to realize - in a deeper sense - the life that I am living - horror? I say so. :'( Thanks for letting me share this, I needed that - sorry that it took so many words to do so. I am sorry for everyone elses stories, it never ceases to amaze me what the beast can do to us all. Jill :-[ :'( >:( |
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Title: Re: What is your worst CH horror story? Post by jonny on Mar 29th, 2003, 4:53pm Thanks for sharing, Jill, the longer the better.....Im sure someone will get something out of your story. Thats why I started this thread. .............................jonny |
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Title: Re: What is your worst CH horror story? Post by Jill on Mar 29th, 2003, 7:15pm Thank you Jonny... Jill |
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Title: Re: What is your worst CH horror story? Post by catlind on Mar 29th, 2003, 7:28pm Jill, Your story is valuable. I think that all CH'ers live in fear of that very thing happening, hurting the people around us that are trying to help us and love us. The pain we suffer is unbearable to say the least, and yet we bear it, not only do we bear it, we somehow manage to beat it. Our supporters, whoever they may be, go through a hell us sufferers can't imagine. I personally cannot imagine what it was like or is like for my husband to stand there and watch me in tears begging and pleading "please help me, please help me". It would wrench my soul in two to see my child or spouse in that kind of agony. And when we are hurting, we cannot use our rational judgement. Tonight, I got hit, out of nowhere, a solid 8. I was driving home with 3 kids in the van. I made it home - barely. Once I got in the house I went straight for the maxalt and O2 and my daughter set about her job and made me a hot black coffee. My little one, above, came over to help mommy with her oxygen, he sits and squeezes the bag for me. Because I was already too far into the attack, my knee jerk reaction when he came to my lap and put his hands to my face to squeeze the bag, was to grab his arm and yell through clenched teeth, NO. In that same instant, I realized what I was doing and grabbed him up and started saying over and over again "I'm so sorry baby, I'm so sorry". As I cried from the pain, I added horror to my tears. I had just taken the arm of a 2 year old and wrenched it away from me like it was an attack on my person, and viciously yelled at that poor innocent face. My heart broke. I guess me telling this in public, (I'm extremely ashamed of myself for it) is so that you can realize you are not alone. I can't say for sure, but I am willing to bet that you and I are not the only ones to lash out destructively to our supporters and loved ones. The sun will shine again, and with the help of our family here we have a network of support that will help us all find a brighter day. In the infamous words of Den, Walk in the Sunshine Cat |
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Title: Re: What is your worst CH horror story? Post by Not4Hire on Mar 29th, 2003, 8:12pm Quote:
....one is the MOFO...and one is our haven...thanks Cat.... n4h |
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Title: Re: What is your worst CH horror story? Post by thsa/simon on Mar 29th, 2003, 8:34pm Jill, And sadly, its not always the CH that drives us over the edge. I remember one cluster of attacks back in 1999. I was put on high dose prednisone. Talk about a personality change. I was sitting in the driver's seat of the car waiting for my wife to come out of the grocery store and my daughter of 3 years old was singing in the back seat. I was not having a cluster at the time, but I remember that I was still going through shadows and sleep deprivation and all the rest of it. I absolutely came unglued on her, for just singing. Although I didnt touch her, it really woke me up that so very little made me go nuts. Am not a fan of the prednisone, but it did help with the headaches. Sometimes, I read all these stories and feel I am not a true clusterhead. I am one of the lucky ones that only has to battle the beast every few years. I only have to deal with a few hundred of these things to the thousands some of you see every year. It leaves me speechless. simon |
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Title: Re: What is your worst CH horror story? Post by Aussie on Mar 30th, 2003, 6:53pm Worst Ch story - At the age of 24 joined the Specials from the regular army. One of the training ( torture exercises ) to supposedly control claustrophobia was to be rolled up in a 8 foot square piece of carpet with your arms by your side. This was done in the middle of the day, at its hottest, and you were rolled up wearing only your jocks. The secret was to not to fight it, you couldn’t anyway, but if you screamed or shouted out or cried, they would leave you longer, maybe up to 8 hours. The norm was 2 hours. So I just closed my eyes, breathed slowly, and relaxed. Forgetting that this is the time the beast always finds me. So there I was, kip 7 – 8, rolled up in carpet, unable to move, boiling hot, itchy, hard to breath and unable to scream. My absolute worst Ch experience. On a more humorous note, my last cycle, just prior to finding this site, was hit with a 7-8 and rising, placing the bag of frozen pees on my head wasn’t working, so I stuck my whole head into the chest freezer. After a couple of minutes, I tried to remove my head, however my ear had stuck to one of the freezing elements. Walked around with a bandaged ear for the following week. Steve |
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Title: Re: What is your worst CH horror story? Post by 9erfan on Mar 30th, 2003, 8:09pm Steve- I love that story, the 2nd one not the 1st ;D ! The first one would've freaked the HELL out of me!! The 2nd one just shows the extreme measures we will go to...I could just imagine you with your ear stuck in the freezer! I remember a few years ago when I lived in KS and I had just gone chronic, every night when I would get home from work I would just go straight to my dark bedroom and go face down on my pillow with an ice pack on my neck. One day at work one of my friends was giving me a neck massage while I was having a h/a and she feels something rough on my neck. She pulls up my hair and there's a big black scab of skin....it was the middle of summer and I had given myself frost bite from falling asleep every night with ice packs on my neck. Happened twice that summer! Jill & Cat, most of us here have all lashed out at our supporters at one time or another when we were at our breaking points and felt like we were going to lose it! Jill, you're supporter understands.....Cat, you're supporter is probably too young to understand now but he loves you anyway (no matter what) and he will understand in time.... I can't even imagine what the people who love us are going through when they see us in KIP 10's. :-[ I know it crushes them... :-[ Jonny, again I say thank you for this thread...this is the kind of thread that just reminds us how we are all going through the same things. We're in this together, and the people on this board are the only ones who truely understand this horror! Unfortunately, I could relate to every horror story on here to some degree... V. |
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Title: Re: What is your worst CH horror story? Post by Wendy1 on Mar 30th, 2003, 10:18pm I had to post again.... I think this thread is all a 'spot' for our heartstrings.... this is good therapy for all of us. But the kid thing, yeah that is tough. But my daughter is now almost 15 and the older they get, the more they understand. No, they cannot help me, but just having someone beside you that can at least sit with you and let you know you're not alone. They know basically that there is not a thing they can do but be there for me. I hate to see my kids and husband watch me suffer, but I figure I am and will always be there for them, and so I am getting over the guilt of having them sit at least close to me until the h/a starts to subside.... then I tell them, OK, you can go back to bed, I'm going to be ok. These things are horrible and we deserve whatever support we can get. |
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Title: Re: What is your worst CH horror story? Post by fubar on Mar 31st, 2003, 1:39am Wendy, You're right. It's not nearly as bad now when they see me begin to have one. The thread was about the worst horror, and in my memory, that was the worst. -Fu |
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Title: Re: What is your worst CH horror story? Post by Sean_C on Mar 31st, 2003, 8:55am Hi Cat & Jill, I'm totally with you guys on the lashing out thing and we all wish we could control the beast within but when the pain gets so excruciating, we lose our better judgement, and we feel awful for sure. Believe me we're not alone. Every veteran CH has done this I'm sure. I have a 4 year old daughter, and a 1 year old son, and their love is, believe it or not unconditional, as mine to them. My four year old came home from pre-school the other day with a small plastic pole with sparklies on it with a star on the end, she made it at arts & crafts. I told her it was beautiful, and asked her what it was, naturally? She said its a magic wand daddy!! I said really? And what are you going to wish for? And she said with the most sincere look, I going to make a wish that your headaches go away forever. LOL. I looked at her and said, please do it now, she did, I picked her up and said I think its working, she looked so excited, and we both gave each other a big hug. I guess the moral of the story is, its unconditional love that we have and if you think you you might have hurt someone, just let them know how you feel about them, and comunicate with them about the clusters again, hopefully they will understand. God knows we do here. gotta go, May your nights be peaceful, and your days be long. Love ya, Sean |
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Title: Re: What is your worst CH horror story? Post by Roxy on Mar 31st, 2003, 10:59am For the first time since all this started in my life, I lashed out verbally.....and ugly....at a loved one last night. I've always been able to contain myself during the hits....leave the room, go outside, just basically run. But, last night, it got ugly. I'm just glad it was my husband rather than my kids. When Greg is home, and it's a night hit, he always gives my shots. I'm afraid he thinks, with my impatience for the shot to work.....I'll end up overmedicating. Last night, the shot was not working, it had gone way past the time that it usually kicks in, and I just lost it. He wouldn't give me another one, and I was unable to function well enough to fill the syringe myself. I turned on him like a b*tch out of hell....and he just stood there and took it, like the good man he is. He laughed about it later, but I didn't. The things I said, to me, were unforgivable and ugly. I know I was in pain, and thinking that nasty thought that the trex wasn't going to work for me anymore......but, that's not an excuse or a good enough reason. These things are bad enough in and of themselves.....add guilt to that and it just becomes a killer to handle. Tracey BTW: Let me clarify, he was totally justified in not giving me the shot. It would have been the fifth one of the night...and, it did finally kick it, it was just a killer ch, and it took longer to work. |
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Title: Re: What is your worst CH horror story? Post by CJohnson on Mar 31st, 2003, 3:22pm Two words : cunnilingus interruptus. -Curtis |
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Title: Re: What is your worst CH horror story? Post by cootie on Mar 31st, 2003, 4:25pm Since I'm a supporter my worst expirience was bein screamed and grunted at......and listen to the screams and cryin and banging around in the next room the duration and then the silence...I knew it was over....for now. Good thread jonny....I just got "totally" captivated the past hour reading here......not easily captivated Pam |
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Title: Re: What is your worst CH horror story? Post by snuffster on Mar 31st, 2003, 10:08pm One of my worst, or maybe because it was recent was on Friday. I'm a Marketing Director for a radio station. Each year we do a huge Home & Garden Event. I plan and execute all aspects of the event. Friday was load-in. I get nailed with a Kip 9.5 at 9:30AM. No Imitrex because my insurance company hates me. I'd taken a Fuerinal as the shadows came, but no effect. I was dealing with getting 80 booths loaded in with about 200 people asking me questions, and the damn HA lasted 6 hours, which is a long time for me. My left eye was almost shut all the way, and what you could see behind the tears was just bright red. If one more vendor said "You have bad allergies?" I was going to kill them. I must have been quite the site, walking around answering questions as I was trying to push my thumb through my forehead. Great Thread Jonny! |
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Title: Re: What is your worst CH horror story? Post by jonny on Apr 2nd, 2003, 8:06pm Bump There are more that need to post to this ;D |
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Title: Re: What is your worst CH horror story? Post by Nathan on Apr 2nd, 2003, 8:43pm i dont know if this is considered a horror story or "most embaresing moments" but...... i was at chuck e cheese with the wife and my step daughters (age 5 and 7 at the time), my wifes ex husband, her father and his girlfriend. everybody was having a good time when i felt it comming on i tried to tough it out, fight it off, the usual but it wasnt gonna happen. 5 min later i was at a good solid 8 and my wife saw the pain i was in and told me to go to the car and do my oxygen (i dont do it in front of people nor do i carry the tank inside places like this). by the time i got to the car i was at full blown 10, just to find out i left my o2 tank at home! i laid down in the back seat of the car, writhing in pain, squeezing the side of my head and trying to press my eyeball back through the socket. at some point i bagen beating my self in the head and kicking the car door with my feet, anything to distract from the pain. the horror story of all this? keep in mind this way in the middle of a very crowded parking lot of a chuck e cheese. while i was doing my little dance i was aware of several people, kids in tow walking by the car seeing and hearing all of this. at one point i heard a small child ask his parent "what wrong with that man?" the parent shushed him. "why is he doing that?" the kid asked again but by this time they were out of ear shot so i didnt hear the parents responce. this isnt really a horror story for me, i have had many, MANY 10's before with no o2 handy, i just wonder how many other children besides that one saw me and if i scared the crap out of any of em!! |
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