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        New Message Board Archives >> 2003 Posts >> If U have CH I have a ?
        
(Message started by: jonny on Mar 8th, 2003, 3:56pm)
Title: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 3:56pm
We  Know we are all different in how this thing fucks with us and how meds work for us, we all have pain in different areas, temple, jaw, eye, neck and so on.

My question is where is the most excruciating pain when your being hit?

You may have pain in several areas but where is the pain the worst?

I just posted on the med board that if the most pain is not in the eye itself then its probably not CH (I covered my ass with "Im no Doc) ;D

What say you?

Me? its the eye for sure and ive had plenty of time to figure that one out ;D

....................................jonny
Title: Re: If U have CH I have a ?
Post by 2late on Mar 8th, 2003, 3:59pm
behind my right eye everytime!                 ..........Jack
Title: Re: If U have CH I have a ?
Post by Lenny on Mar 8th, 2003, 4:03pm
The "EYE"................
Title: Re: If U have CH I have a ?
Post by andy on Mar 8th, 2003, 4:10pm
Its like being poked in the eye from the inside of your head with an icepick!                                                  ...... andy
Title: Re: If U have CH I have a ?
Post by cathy on Mar 8th, 2003, 4:21pm

on 03/08/03 at 15:56:21, jonny wrote:
My question is where is the most excruciating pain when your being hit?
....................................jonny



Wes say's it depends on where the pain concentrates during the attack it is normally his right eye, but he say's it can also be his temple...it just depends...it varies... ???

Now for me as a non CHeader I would have to say it depends on where Im being hit at the time... ;D

Cathy & Wes
Title: Re: If U have CH I have a ?
Post by arby on Mar 8th, 2003, 4:36pm
Starts at my temple, stabs through my eye, then turns around about ten times then just stays there!!!!!!!  Sometimes returns to stabbing (the classic ice-pick) before the beast leaves.

arby
Title: Re: If U have CH I have a ?
Post by suzy617 on Mar 8th, 2003, 4:39pm
Always in my right eye down to my cheek bone.

suzy
Title: Re: If U have CH I have a ?
Post by cbolony on Mar 8th, 2003, 5:01pm
Left Eye
Title: Re: If U have CH I have a ?
Post by Tim_w on Mar 8th, 2003, 5:06pm
Jonny
Always behind left eye!!!
                                   Tim_w
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 5:11pm
Ok, so far the eyes have it.

Keep it coming folks.

..........................................jonny
Title: Re: If U have CH I have a ?
Post by Prense on Mar 8th, 2003, 5:18pm
Right eye
Title: Re: If U have CH I have a ?
Post by Karla on Mar 8th, 2003, 5:22pm
Well after being diagnosed as having ch by 4 neuros and 3 general practicianers I thought I knew what I had but now Jonny makes me wonder.  Hmmm.  I have been told I don't have hortons syndrom with my ch.  Meaning my eye does not turn red or droop, etc.  So I don't know if that makes a difference or not.  I also do not have severe eye pain.  I have some pain there but my most severe pain is located in the top/back portion of the right side of my head.  However, I also have some nasty pain located from my ear, to my eye, to my check.
Title: Re: If U have CH I have a ?
Post by Roxy on Mar 8th, 2003, 5:25pm
Left eye.
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 5:27pm
Karla sweetie,

Im not trying to diagnose anyone just trying to get a feel for where the worst pain is with most of us, like I said we are not all the same wether it be pain or meds.

.....................................jonny
Title: Re: If U have CH I have a ?
Post by Karla on Mar 8th, 2003, 5:32pm
Hey Jonny,
SMOOCH
:-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-*
Title: Re: If U have CH I have a ?
Post by tanner on Mar 8th, 2003, 5:32pm
mine seems to me to be directly behind my left eye. as if it's deeper then the eyeball. same thing? tim
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 5:36pm
Karla, its been awhile since I got a SMOOOOCH, thank you.

Tim, yes its the same thing, bores into your brain, right?

..................................jonny
Title: Re: If U have CH I have a ?
Post by netniet on Mar 8th, 2003, 5:36pm



Right eye ;)

net-
Title: Re: If U have CH I have a ?
Post by Charlie on Mar 8th, 2003, 5:51pm
Always behind my left eye. It felt like it was just behind the top of the eye behind the socket, and a little toward the nose. It never seemed to vary.

Charlie
Title: Re: If U have CH I have a ?
Post by MOB on Mar 8th, 2003, 5:53pm
The Heart   :(

Everytime my four year old daughter cries when she looks at me crawling on the floor sobbing !

Best Wishes,

Michael (MOB)
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 6:00pm

on 03/08/03 at 17:53:21, MOB wrote:
The Heart   :(

Everytime my four year old daughter cries when she looks at me crawling on the floor sobbing !

Best Wishes,

Michael (MOB)


Sorry to hear that MOB but that is reality with us and it sucks.

Thanks Mob for sharing.

...........................................jonny
Title: Re: If U have CH I have a ?
Post by Mr.Happy on Mar 8th, 2003, 6:12pm
First, take an ice pick (or other electrical conductor), insert it into the pupil of the eye, and push (no feeling yet..........just virtually insert). Next, take another virtual pick, and insert it into the temple and push. Withdrawl both picks (no pain yet) until they are separated by about 1/2". Take Hot Electrodes, and hook up to each pick (polarity not included). Hit ON switch. Turn up volume (UP is the only choice for now), till infinity is reached. Effects expand from that area, and vary from time to time, Praise Wotan. Turn volume down later.
Proper meds compromise everything.


Quote:
where is the most excruciating pain when your being hit?

She works from 7-5 daytime hours.


Quote:
if the most pain is not in the eye itself then its probably not CH

Phew. Reckon I only have CWS (Chronic Wife Syndrome). Praise Wotan again, and serve the virgins.........

_Pick_ a winner,
RJ
Title: Re: If U have CH I have a ?
Post by suzy617 on Mar 8th, 2003, 6:26pm
LMAO!  I just love when Mr. Happy is around!

;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

suzy
Title: Re: If U have CH I have a ?
Post by Lori on Mar 8th, 2003, 6:49pm
Behind the left eye and of course it seems to at times fork out to the ear and sometimes to my jaw. Sometimes I get the sharp jabs..like an ice pick is being plunged into my head along with the rest of the awful pain. Sometimes I can tell a cluster is coming on when I start getting pain in the back of my neck on the left side. I don't always have the pain in the neck..maybe half the time.

I have a question about the ice pick jabs..does everyone get these with their ch?

Have a  :D night!
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 7:00pm
Ok, so far only two people dont get it.

Where is the worst pain?....not it goes here or there.

Where is the most unimaginable pain to any human?....to you?

Screw all the other pains, put it this way where do you apply pressure with your hand (Thats where it hurts)

.............................................jonny
Title: Re: If U have CH I have a ?
Post by Lori on Mar 8th, 2003, 7:08pm
Hello????? I said behind the left eye! And yes, then I continued to go on to explain what I usually experience..why couldn't I do that after answering your initial question? I just felt like it, k?
::)  Goodness!
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 7:21pm

on 03/08/03 at 19:08:14, Lori wrote:
Hello????? I said behind the left eye! And yes, then I continued to go on to explain what I usually experience..why couldn't I do that after answering your initial question? I just felt like it, k?
::)  Goodness!


Didnt know I was talking to you.

.........................................jonny
Title: Re: If U have CH I have a ?
Post by eileen on Mar 8th, 2003, 7:24pm
My right eye and the back of my neck on the right side also.  But the EYE the most................
Eileen
Title: Re: If U have CH I have a ?
Post by jonny on Mar 8th, 2003, 7:28pm

on 03/08/03 at 19:24:02, eileen wrote:
My right eye and the back of my neck on the right side also.  But the EYE the most................
Eileen


Now thats what im looking for.

Thank you Eileen.

.....................................jonny
Title: Re: If U have CH I have a ?
Post by Ueli on Mar 8th, 2003, 8:57pm
Jonny is probably gonna say I don't have CH (but if he does, I'll kick his ass ;D).
My CH pain is far away from the eye, just below the checkbone.
Title: Re: If U have CH I have a ?
Post by Jarvis on Mar 8th, 2003, 9:14pm
  The Temple aproximately one inch behind the right eye. The pain spreads from there, as does the nerve. ....  Ueli your like the dog chasing the tail ;)
Title: Re: If U have CH I have a ?
Post by brain_cramps on Mar 8th, 2003, 9:25pm
Mainly behind the right eye; bridge of the nose on the right side, and cheekbone temple area going back towards the ear.  Occasionally the teeth, knuckles on the right hand.

Grant
Title: Re: If U have CH I have a ?
Post by Bob P on Mar 8th, 2003, 9:27pm
Temple/forehead
Title: Re: If U have CH I have a ?
Post by amber on Mar 8th, 2003, 9:33pm
My pain most resembles Karla's, although it doesn't go down my cheek but it is in the back of my neck. The rest of hers is the same so I won't repost it :)

I ALWAYS apply pressure to that spot about 1 inch behind the temple.  Feels like someone took a sledgehammer to me there and I have this big ol' bruise.  That's where all the nerves stem from too, I think *shrug*
Title: Re: If U have CH I have a ?
Post by Ted on Mar 8th, 2003, 9:56pm
Forehead, eye, nose. Sometimes the temple, upper lip and teeth get as intense too.
Title: Re: If U have CH I have a ?
Post by Lori on Mar 8th, 2003, 10:17pm

on 03/08/03 at 19:21:50, jonny wrote:
Didnt know I was talking to you.

.........................................jonny


Well, it seemed like you might be addressing me as one of the couple since I didn't give just a location, but continued to give more detail. Anyway, don't mean to be agitated, but I guess I am a bit agitated lately. So, forgive me.
Have a good weekend!
Title: Re: If U have CH I have a ?
Post by Mastifflvr28 on Mar 8th, 2003, 10:48pm
right eye.  Railroad spike driven into the back of my right eye...no throbbing...it's like a 100 freakin foot railroad spike.  I apply pressure to temple...eye...and eyebrow.  

Mast
Title: Re: If U have CH I have a ?
Post by JDH on Mar 8th, 2003, 10:54pm
left side...eye & temple  :'(

sometimes when a bad boy is ramping up, it'll start at the top of my head but it always zeros in on my left eye and temple...and it sucks too!
Jim
Title: Re: If U have CH I have a ?
Post by eyes_afire on Mar 8th, 2003, 10:59pm
Behind left eye.

Searing, grinding, burning, insane pain.  It feels like my eye is impaled on Satans burning pitchfork.

Lori:  I sometimes get the sharp jabs also.
Title: Re: If U have CH I have a ?
Post by Edna on Mar 8th, 2003, 11:18pm
Worse pain area:

       where my right eye brow meets the nose.........if I could attach a vise grip there and squeeze the living fuck out of my eye.........I'd probably still have the damn ch going on.....but at least I'd think it was doing some good.

AND
    you're quite welcome jonny

EDNA
Title: Re: If U have CH I have a ?
Post by marty on Mar 8th, 2003, 11:35pm
Right temple >:(

Marty
Title: Honk if I have CH.
Post by rumplestiltskin on Mar 9th, 2003, 12:18am

Quote:
Ok, so far the eyes have it.


Quite witty fer a half wit.

My Teyemple....new gross anatomy term.

Good Grief
Den
Title: Re: If U have CH I have a ?
Post by ken_b on Mar 9th, 2003, 12:27am
Behind my right eye no doubt!!!!!!      ken
Title: Re: If U have CH I have a ?
Post by H2odiver on Mar 9th, 2003, 3:29am
Left Temple.... Always ..... Shooting like an Uzi
Title: Re: If U have CH I have a ?
Post by CHILDINSIDE on Mar 9th, 2003, 12:03pm
:-[  yes, the eyes have it.  a branding iron stuck into my brain, and into my eye from the back.           melissa
Title: Re: If U have CH I have a ?
Post by Roxy on Mar 9th, 2003, 12:14pm
Has anyone else ever gone to look in a mirror to see if there is actually blood pouring out of that eye?   :-/ :'(
Title: Re: If U have CH I have a ?
Post by Mastifflvr28 on Mar 9th, 2003, 12:22pm
thought bout doing this rox, but too hard to get to the bathroom.  I'm always amazed the eye doesn't just bleed out of the head and sit on the floor as a bloody mess.
Mast
Title: a thread inna post
Post by rumplestiltskin on Mar 9th, 2003, 1:28pm
The mirror thread...blame rox...she changed the subject.

I have, a couple times during an attack, forced myself to stare in a mirror. It seems that something so horrible, so present, so massively clenching.... demonic, should be visible.

Nothing....always amazed me. The pain is invisible.

No wonder the civilians don't get it...don't understand the depth of my suffering. Give em a cracked femur piercing thru the skin and blood spurting...er that bleeding ozzing eye that Rox referred to....butt some guy with a runny nose and tears...well that just ain't that impressive.

Cool Hand Luke lookin fer God to show himself "....just talkin to myself"

Love
den
Title: Re: If U have CH I have a ?
Post by kim on Mar 9th, 2003, 1:37pm
Den, I just read your post and i got goose pimples!  I will say to my husband, "Can you see it?"  Guess what?  He has said "Yes, I can see it".  But that's cuz he knows the beast in his own way by now.  It IS invisible to most.  I've looked in the mirror too, and I CAN SEE IT!!!!  It's like a malevolent "thing".........hard to explain.  The affected side DOES mirror the monster, but strangely, only to those who are intimate with it/him/her that rat bastard!

Oh yeah, back to jonnys question ;D ???  Where the most pain?  Eye, nose, teeth, shoulder......it kind of just blasts off out of those general areas.  One attack my eye will feel so swollen and HOT and tearing.........the next attack I wanna pull out my teeth, or punch my muscle in the neck/shoulder for relief, it varies.....so much for pinpoint. :D
Title: Re: If U have CH I have a ?
Post by K. on Mar 9th, 2003, 2:02pm

on 03/08/03 at 19:00:26, jonny wrote:
Screw all the other pains, put it this way where do you apply pressure with your hand (Thats where it hurts)


Lets put it this way....it's a wonder I can still see out of my right eye. But jonny...I use my thumb not my hand. That way my fingers are free to push against my head too.

Karen
Title: Re: If U have CH I have a ?
Post by kim on Mar 9th, 2003, 2:40pm
Thought about yur question.  Mostly, I either rub my fingers at my temple (affected side) or rub the KNOT in my neck/shoulder area..............The other hurting areas I put a cold or hot rag on.  I can recall only rubbing my temple/eye or neck wit the fingies.
Title: Re: If U have CH I have a ?
Post by Ree on Mar 9th, 2003, 3:04pm
Dave says       " MOSTY MY EYEBALL... to explain it, a fucken dagger is in the center of the eyeball... then if you can when you think the pain can't get any worse, then they fucken twist the dagger while its in there..."  quote unquote  by Dave the man of very few clean words  with love from his secretary and typist Reebananaorangebod...

PS then he said some stuff about his hair standing up on end like a dog bein rubbed the wrong way but i thought you guys would have a party with that statement so i left it out of his quote....

Title: Re: If U have CH I have a ?
Post by Mikey on Mar 9th, 2003, 5:01pm
Well mine switches from one eye to the other at times.
I'm chronic, so the right eye has it most of the year then the left.  Every time, the pain is the worse right in the center of the back of my eye on either side.

Mikey,  :o
Title: Re: If U have CH I have a ?
Post by BruceD on Mar 9th, 2003, 5:24pm
Easy answer Jonny... a nailgun firing on full auto right through my right eye. (although I have had 2 episodes that were on the left eye in the past 13 years). I'm still amazed that I can still see out of that eye after all the pressure I've put on it....
Title: Re: If U have CH I have a ?
Post by jonny on Mar 9th, 2003, 5:42pm

on 03/09/03 at 17:24:10, BruceD wrote:
Easy answer Jonny... a nailgun firing on full auto right through my right eye. (although I have had 2 episodes that were on the left eye in the past 13 years). I'm still amazed that I can still see out of that eye after all the pressure I've put on it....


I can top that dude.....LOL (Not that I want to)

Had one start in the left eye and the next one hit me in the right eye....been there since.

What a fucked up thing this shit is, Man O man A chevites.

.............................jonny
Title: Re: If U have CH I have a ?
Post by Opus on Mar 9th, 2003, 6:02pm
WT, I had one start in my left eye, (that was always the spot ) then it moved to my right eye and I got hit hard. It's been the right ever since. I guess the left got wore out.

Worst pain is always behind the eye.

Opus :P
Title: Re: If U have CH I have a ?
Post by maggie_may on Mar 9th, 2003, 6:09pm
Behind my right eye.  My fingers usually do a 3-point stance at the bottom inner and outer corners and the top outer corner.  It starts out like someone is trying to pull my eye out from the inside and then the icepick.

maggie
Title: Re: If U have CH I have a ?
Post by jonny on Mar 9th, 2003, 6:31pm

on 03/09/03 at 18:02:27, Opus wrote:
I guess the left got wore out.


Now thats fucking funny dude, I guess after 23 yrs the left eye gave up on me......LOL

I agree the eye....oh man!!..........shoot me.

I feel lucky though, I can kill every HA while im awake (Every single one) its the wake ups that get me.

For some strange reason im thinking this time thing has alot to do with it, I was on the med combo im on 10 years ago and I was being hit alot more than I am now (Alot more)

On top of that I dont get hit nearly half as much as I use to.

What up with that?

Ive been half doseing the last couple weeks and the MF'er come screamin back with a vengence......who knows what this prick will do next.

................................jonny
Title: Re: If U have CH I have a ?
Post by Ann on Mar 9th, 2003, 9:41pm
Hey Jonny!  Sorry you're having a bad time of it lately!

You said the worst pain would be wear I rub, but I'll rub both the back of my neck (cause it feels like it's all coming from there) and around my eye (sinuses).  Now when I put the ice pack, it's always all along my left side, or right over my left eye.  Guess I'm wierd.  My eye burns all day long every day...so maybe that's why I don't get as much pain there?  who knows....I hate this thing!  God...have I answered the question?  LOL

hugs
Ann
Title: Re: a thread inna post
Post by JDH on Mar 9th, 2003, 10:42pm

on 03/09/03 at 13:28:45, rumplestiltskin wrote:
I have, a couple times during an attack, forced myself to stare in a mirror. It seems that something so horrible, so present, so massively clenching.... demonic, should be visible.

Nothing....always amazed me. The pain is invisible.




I've never really thought I could see it but there have been times when it hurts so bad it seems like I can hear it...like some kind of grinding noise going on inside my head.

Jim
Title: Re: If U have CH I have a ?
Post by farmboy on Mar 10th, 2003, 1:55am
There is no question about it it is the eye and temple area that is where the pain is the greatest.  Mine are so bad that my teeth and jaw hurt when it hits the apex of and attackk.
Title: Re: If U have CH I have a ?
Post by echo on Mar 10th, 2003, 9:00am
Well jonny -- it's definately the right eye for me.  I have had two occassions in the last 28 years when it changed sides.  The left was a walk in the park compared to the right.
Title: Re: If U have CH I have a ?
Post by Margi on Mar 10th, 2003, 12:13pm
definately eye pain for Mike too, Jonny.  His cheek, jaw, and nose all get involved as the pain ramps up, but it originates in the eye for sure.

It varies sides, cycle to cycle, and I remember one particularly horrific night that it switched sides, mid-attack.  That's only happened once though, at the peak of this last cycle.  I hope that never happens again -  poor guy.  :(
Title: Re: If U have CH I have a ?
Post by SFChris on Mar 10th, 2003, 12:37pm
Most intense = behind right eye/right temple (Mr. Happy's description is pretty acurate).  Although the pain start in my neck - I alternate punching my neck and wanting to rip out my eyeball to relieve the pain...

Chris
Title: Re: If U have CH I have a ?
Post by BonnieW on Mar 10th, 2003, 2:43pm
jonny - it's Warren's left eye for sure - he pushes the heel of his hand against his eye while he rocks.  Usually the pupil of that eye is very constricted too.  
Title: Re: If U have CH I have a ?
Post by DeansGirl on Mar 10th, 2003, 4:29pm
For Dean, it's behind his left eye.  And YES!  I can see it.  His eye becomes so bloodshot red that I wait for blood to join the tears streaming down his face (out of his left eye only) and the left nostril....it just streams down his face like a faucet.  By the time the pain reaches that stage, he can't stay still long enough to observe, but I will look for the pupil constriction and droopy eyelid if the beast returns while I am with him.

DeansGirl
Title: Re: If U have CH I have a ?
Post by Margi on Mar 10th, 2003, 4:32pm
You sound like a great supporter, Deansgirl.  I do that cluster-check too, when Mike comes home.  I check his eye.  It's what we do, right?  :)

And, you're absolutely right - we supporters CAN see the pain.  Maybe you sufferers can't but we sure can.  Your face does change, especially your eyes.  It's just a look that's indescribable.  But, yep, we can see it.  Sometimes even before you can feel the pain.
Title: Re: If U have CH I have a ?
Post by Slammy on Mar 10th, 2003, 5:27pm
Right Temple.   Feels like a screw driver being punched through my right ( or left) Temple and out my right ( or left) eye!







Slammy   8)
Title: Re: If U have CH I have a ?
Post by pigeon on Mar 10th, 2003, 6:02pm
Left Eye for me.  Can't tell if there is pain anywhere else, too busy dealin' with the daggers being pushed, pulled, and twisted.

Joe P. ;)
Title: Re: If U have CH I have a ?
Post by jonny on Mar 10th, 2003, 6:16pm

on 03/10/03 at 18:02:30, pigeon wrote:
Left Eye for me.  Can't tell if there is pain anywhere else, too busy dealin' with the daggers being pushed, pulled, and twisted.

Joe P. ;)


Thats what im talking about Joe, For me there is no pain but the eye pain. If there was other pain I dont know it cause of the twisting and turning of the dagger in that eye.

You win Joe, I like your post the best....LMMFAO ;D

All I got for a prize is a bottle of Lithium.....LOL :D

...............................jonny
Title: Of All The Unbearable Pain-
Post by Mikestu on Mar 10th, 2003, 7:54pm
the most unbearable is just behind the right eye. I did electrical work for a few years. The first reaction to touching a live wire is to get away from it. The pain is somewhat like that, with the wire piercing the eye. The problem is that you cannot get away from it, and you cannot turn the current off.
Title: Re: If U have CH I have a ?
Post by Leesa on Mar 11th, 2003, 8:14am
Dave has told me that for him it's the temple first then the eye (left side) that it's like someone putting  a red hot poker in the temple running it right out the eye.  :-[
Title: Re: If U have CH I have a ?
Post by das on Mar 11th, 2003, 8:23am
Right Eye.. no eye pain = no CH

Feels like my eye is imploding and will burst at any moment.. eye becomes so red..there is practically no white.. good for halloween costume....

I also get pain in my right nostril..jaw..essentially from my eye to the back of my neck... stabs... and pressure..

that's my story...
Title: Re: If U have CH I have a ?
Post by Kate27 on Mar 11th, 2003, 10:05am
I'm new here!

This is my first "known" CH and it is definately the right eye.

I have also experienced living with another CH sufferer (my dad) and it also affects him in his eye.

(P.S. it's been reassuring to know that there are other people out there who understand what it's like - Unbearable!!)
Title: Re: If U have CH I have a ?
Post by Marc on Mar 11th, 2003, 10:11am
Once it ramps up to a 10, it's equally right eye, right forehead, right temple and right upper teeth.  BIG time flood from right eye and nostril.

Marc
Title: Re: If U have CH I have a ?
Post by dizzyd on Mar 11th, 2003, 5:10pm
Always always always left eye, like a red-hot icicle!!

Dizzyd
Title: Re: If U have CH I have a ?
Post by Kcir on Mar 11th, 2003, 11:32pm
Always starts in left eye and slowly moves down the left side of my face, usually finishes in my lower jaw.  The most intense pain can be anywhere along the route.  It changes for each CH.

Rick
Title: Re: If U have CH I have a ?
Post by Drk^Angel on Mar 12th, 2003, 12:14am
The absolute worse pain is always behind my eye.  Like a 12 gauge shotgun blast of rock salt, battery acid, and gasoline... in slow motion... ripping, tearing, burning, melting, obliterating anything and everything in the socket, piece by agonizing piece, until nothing's left but a blackened, smoldering, gaping hole.

PFDAN.................................... Drk^Angel
Title: Re: If U have CH I have a ?
Post by Jarvis on Mar 12th, 2003, 1:13am
:) Good to see you again Drk Angel  :) You were the first to greet me and I've missed your descriptive words.
Title: Re: If U have CH I have a ?
Post by OneEyeBlind on Mar 12th, 2003, 5:24am
Left eye .. imploding.  
Title: Re: If U have CH I have a ?
Post by SommelierCH on Mar 12th, 2003, 5:57am
Always, always...fuckeneh ALWAYS the right eye. No other spot ever, for 16 years (eposodic).

David J.
Title: Re: If U have CH I have a ?
Post by Jim R on Mar 12th, 2003, 2:16pm
The eye is bad, always (whatever side I'm getting hit on) but almost as bad is the teeth (feel like they're exploding) and down the neck on the same side.  Sometimes if it's in the ear that can hurt as well....

Jim R
Title: Re: If U have CH I have a ?
Post by don on Mar 12th, 2003, 2:42pm
Toes on right foot


From kicking everything in sight.
Title: Re: If U have CH I have a ?
Post by jonny on Mar 12th, 2003, 3:03pm
ROTFFLMMFYBO!!!!!!!!....DON!! ;D ;D ;D

DRK< Good to see ya.......I mean that!!

..................................jonny
Title: Re: If U have CH I have a ?
Post by cootie on Mar 12th, 2003, 3:48pm
Drk^Angel hello....missed you !!! Pam-Coots-that-misses-sum-people
Title: Re: If U have CH I have a ?
Post by Silver_Dolphins on Mar 12th, 2003, 6:11pm
The most intense pain is my eye. It feels like someone is trying to pull it out with a pair of vice grips while pushing it out with an ice pick.

Then there the is all the other pain associated with this horrible affliction we have.
Title: Re: If U have CH I have a ?
Post by 9erfan on Mar 12th, 2003, 6:47pm
worst pain for me is AROUND the eye (not necessarily in the eye ball) extending from the eyebrow to the top of the cheekbone.  You could just draw a big circle around my eye and that would cover it..

but a lot of times the pain in my neck & shoulder are just as bad  (i hope i won't get kicked out of the family for not feeling like plucking out my eyeball... ;D)
Title: Re: If U have CH I have a ?
Post by terrylch on Mar 13th, 2003, 3:35am

Behind the right eye. Always
Title: Re: If U have CH I have a ?
Post by CJohnson on Mar 13th, 2003, 10:13am
Behind the right eye, every single time. With my very worst ones, I sometimes get sick. I read that getting sick is uncommon. Does that happen to anyone else?
Title: Re: If U have CH I have a ?
Post by 9erfan on Mar 13th, 2003, 11:16am
Yes...to getting sick unfortunately.  Not in the early years but over the past few years I vomit when the pain is at a 10 and I've taken too many pills (sensitive stomach).
Title: Re: If U have CH I have a ?
Post by Binger on Mar 13th, 2003, 12:37pm
Most of the time the pain is in or behind my left eye, occasionaly switches to right eye---never both in the same day.  As for getting sick, rarely I do, only once the pain has gotten extreme.
Title: Re: If U have CH I have a ?
Post by NotH20 on Mar 13th, 2003, 1:04pm
Right eye ALWAYS Jonny!  I apply pressure to many areas of my eye, neck, temple, head, etc.  But to start with I apply pressure above my right eyebrow with a downward force which causes my eye to close and the force applied to the entire eye.

Good one Don - enjoyed that laugh!   :)

Hey Drk - kudo's to your description!   ;)

Mia
Title: Re: If U have CH I have a ?
Post by parrothead on Mar 13th, 2003, 5:07pm
Definitely Left Eye!

It actually feels like someone taking a power drill
through my left temple and drilling directly into my
left eye!

Only sick one time, when I first started getting "THE BEAST", but I think that was due to all pain killers my
"family doc" had me on.
Title: Re: If U have CH I have a ?
Post by Linda_Howell on Mar 13th, 2003, 7:11pm


 Most definetly the Hitler boots behind which-ever eye the beast decides to hit on.

A close second would be........that idiot carpenter who decides to pound nails into each and every one of my teeth on the affected side.

           LindaH
Title: Re: If U have CH I have a ?
Post by BobG on Mar 13th, 2003, 9:03pm
Up to about a kip 7 the left eye, then it's the eye and teeth equally.
Title: Re: If U have CH I have a ?
Post by jonny on Mar 14th, 2003, 7:18pm
I want to thank you all again for replying to this thread, I think new people that show up here not knowing if they have CH will be able to read this and see true CH pain centers.

Well, as long as this threads on  here......LOL

Thanks folks.

............................................jonny

1000 Hits in six days, DJ, do we have a record here?
Title: Re: If U have CH I have a ?
Post by JDH on Mar 15th, 2003, 10:51pm
jonny I scrolled through this thread and did an unofficial count.
for whatever it's worth, it looks like the right side has it

29 people said right side
20 people left side
and 20 people either didn't specify or said both sides.....
oh yeah, don't forget Don mentioned his big toe on the right side  ;D
what's it all mean? who knows...but what we do know is that Don needs some steel toe shoes  ;D
Jim
Title: Re: If U have CH I have a ?
Post by cerebus on Mar 16th, 2003, 9:57pm
Eye ...right side.

Ramon
Title: Re: If U have CH I have a ?
Post by Janice on Mar 18th, 2003, 5:50pm
Mine is always in my left temple area.  Funny thing here, as the CH fades away it sorta slides down my face.  When the pain reaches my chin, it stops immediately.  Anyone else out there like that?   ???
Title: Re: If U have CH I have a ?
Post by K. on Mar 18th, 2003, 6:57pm

on 03/14/03 at 19:18:09, jonny wrote:
I want to thank you all again for replying to this thread, I think new people that show up here not knowing if they have CH will be able to read this and see true CH pain centers.



Jonny, not only is this thread excellent information for the new people but it's also great info for friends and family members of those of us afflicted by CH. There are some detailed decriptions in this thread that tell it like it is and it helps those close to us understand what is going on.

Karen
Title: Re: If U have CH I have a ?
Post by jonny on Mar 18th, 2003, 7:01pm
Thank you, Karen

I try to pose questions that everyone can ring in on and provide info for for the masses.

......................................jonny
Title: Re: If U have CH I have a ?
Post by sailpappy on Mar 19th, 2003, 11:55am
;D ;D Even though you say your pain is in the eye itself, well that can't be possible, no nerves inside the eye!
    Actually the pain is in the Ganglia nerve that runs from just above the eye back to the Hypothalmus along with the optic nerve connected to the back of the optic nerve cord running out of the rear of the eye socket and eye ball.
    My most severe pain is in a direct line starting above my right eye and gunning backward through my skull to the nerve package at the base of the neck, It feels like a white hot sword piercing through my head from just above the eye and coming out at the base of my skull where the tendons attach to the skullcap.
    I know I have Clusters, Pappy
http://www.gifs.net/animate/sungulls.gif
http://www.gifs.net/animate/sailboat.gif
Title: Re: If U have CH I have a ?
Post by sailpappy on Mar 19th, 2003, 12:02pm
;D ;D Oh Yeah!   When I have a cluster and I look in the Mirror this is what I see !!!!!! ;D ;D   Pappy

http://www.dewa.com/animated/7.gifhttp://www.dewa.com/animated/7.gifhttp://www.dewa.com/animated/7.gifhttp://www.dewa.com/animated/7.gifhttp://www.dewa.com/animated/7.gifhttp://www.dewa.com/animated/7.gif
Title: Re: If U have CH I have a ?
Post by jonny on Mar 19th, 2003, 4:13pm
Thanks for the input and information, Pappy.

........................jonny
Title: Re: If U have CH I have a ?
Post by michaelc on Mar 19th, 2003, 5:14pm
Here is a description of my type pain to add to the pile - this is incredible after suffering alone with this for so long.

on the kip scale mine regularly hit 10 at peak cycle - i can tell becaue i am totally disabled and helpless, unable to even talk or look at anything and cringing in pain.

the types of pain are numerous - i will go in ascending order of intensity

dull warm pain behind the right eye, with small jabs
intense Pressure behind right eye - a very solid type of pain
sympathetic pain in my teeth, jaw and face
stiff neck, sore and with a knot that gets hard
intense diffuse pain on ENTIRE right side of brain, plus the eye pain
AND pick-like jabs of pain across my whole head (so bad they make me physically jerk sometimes) that are kip 10 x 10 for brief spells. i go to a bathroom and clutch my head, shield my eyes and rock back and forth to kill the time.

During the worst parts my scalp becomes sensitive and tender, and if i let any light reach my eyes it send an almost instant wave of pain. That's how i check to see if it's going away - i peek out and see if there is a jab.

I sometimes sweat and get cold feeling at the same time.
grrrr .. this sucks, 2 already today! k5 and k9.
michael
Title: Re: If U have CH I have a ?
Post by catlind on Mar 19th, 2003, 6:34pm
Jonny,

I'd have to say that 7 out of 10 times start with the worst pain in the right temple, and the other 3 out of 10 are the right eye.  When it starts in the temple it's more of a pain that bores from the right temple out the right eye, but I try to stop the pain by using the heel of my palm pressed into the right temple while my fingers press on my right eye.  I know I know more info than you wanted :P

It always amazes me how when it hits in the eye first that I feel like I can reach behind my eyeball and pull the pain out - I hate this damn beast  >:(

Cat
Title: Re: If U have CH I have a ?
Post by Charlie on Mar 19th, 2003, 7:41pm
Here ya go Pappy:

http://www.netsync.net/users/charlies/gifs/headache2.gif

Charlie


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