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New Message Board Archives >> 2003 Posts >> Are there any African-Americans represented here?
(Message started by: SommelierCH on Mar 8th, 2003, 11:48am)

Title: Are there any African-Americans represented here?
Post by SommelierCH on Mar 8th, 2003, 11:48am
If not, does that mean that Cluster Headaches don’t affect the African-American community? (Sorry, I personaly know that to be false). Or, does that mean that we haven’t reached out. What can we do?

David J.

Title: Re: Are there any African-Americans represented he
Post by Ted on Mar 8th, 2003, 12:00pm
If you look at BobP's page you'll see some of the people are black. We're on a lot of search engines and that's how we get found. One of the reasons for fewer blacks finding us is because fewer blacks have computers and are online. Although, I'm sure seeing the racist comments that pop up on the board here once in a while doesn't help matters.

Title: Re: Are there any African-Americans represented he
Post by cbolony on Mar 8th, 2003, 12:13pm

Quote:
Sorry, I personaly know that to be false

You are right ch can hit anybody white,black,yellow,red
anybody.I been here over a year and i never ask them what there color is.If they need help we will help them.
If you want to know what color i'am white

Title: Re: Are there any African-Americans represented he
Post by Mr.Happy on Mar 8th, 2003, 12:45pm
Pretty interesting, Davo, since I was noticing the same thing over the last few months. The only African American Bob-pix I could find was "Bernie".........if there are others, I missed them. Have paid (some) attention to this when searching, and never really noticed any info on frequency of CH in differing races.
Lack of computers or online? Doubtful.
Racism/intolerance/rudeness on MB? No brainer.
Reason why there's not much racial interaction here? Unknown, but it's had my interest for a while.

Black to the Future,
RJ

Title: Re: Are there any African-Americans represented he
Post by Ted on Mar 8th, 2003, 12:57pm
Is it just Bernie on Bob's page? Maybe I'm thinking of the few posts that are put here where it's mentioned that the person's black.
I don't know why the lack of computers and being online is doubtful since there's a whole slew of information and research about how the technological gap between whites and blacks in this country is quite wide (and let's face it. While it's an international board, it's predominantly people from this country who use it) and a very small percentage of blacks own PCs, when compared to whites and Asians.

Title: Re: Are there any African-Americans represented he
Post by Bob P on Mar 8th, 2003, 3:23pm
Dannyboy claims to be "black as night".  But then again, he doesn't have clsuters.

Be that as it may, I'm looking forward to meeting Danny some day.  I want to pinch those big round, shiny, black cheeks of his (the ones on his face Jonny).

Danny, how about a picture?

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 8th, 2003, 3:40pm

on 03/08/03 at 15:23:54, Bob P wrote:
Dannyboy claims to be "black as night".  But then again, he doesn't have clsuters.

Be that as it may, I'm looking forward to meeting Danny some day.  I want to pinch those big round, shiny, black cheeks of his (the ones on his face Jonny).

Danny, how about a picture?


Holly crap......ROTMFFLMMFAO!!!!!! ;D ;D ;D

Back to the mines Danny boy.....LOL

..............................jonny :D

Title: Re: Are there any African-Americans represented he
Post by cathy on Mar 8th, 2003, 3:48pm

on 03/08/03 at 15:40:05, jonny wrote:
Holly crap......ROTMFFLMMFAO!!!!!! ;D ;D ;D

Back to the mines Danny boy.....LOL

..............................jonny :D



Oh dear Jonny I think Danny will be giving you some real black looks right now....never mind things will be all white in the morning....... ;D

Sweet cheeks.. :-*

Title: Re: Are there any African-Americans represented he
Post by 2late on Mar 8th, 2003, 4:09pm
i'm sick of this African American bullshit, the're black people, we're all Americans first! after that add what you want.                                                                                                                                                                                                        .........Jack                                                                                                                                                  

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 8th, 2003, 4:16pm

on 03/08/03 at 16:09:44, 2late wrote:
i'm sick of this African American bullshit, the're black people, we're all Americans first! after that add what you want.                                                                                                                                                                                          .........Jack


I dont know about anyone else but im native American, being born here makes it so.

Ought to fuck the cencus reports up if we all check that box.....LMMFAO ;D

......................................jonny

Title: Re: Are there any African-Americans represented he
Post by Frank on Mar 8th, 2003, 8:38pm
One of the things that I think is cool about Internet chatrooms is that I can be anyone I want to be. Even here, as long as I am truthful about having cluster headaches, I can be who I want to be.

If I told you all that I am a white American, who believes in some God but I am really agnostic, who is an ex drug addict, that I am a practicing alcoholic and a smoker... would it make any difference in how you treat me?

I hope not... but sometimes those details matter to some people... and so, they are better left unsaid.

All that matters here is that I am a fellow clusterhead.

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 8th, 2003, 8:49pm
ROCK ON, FRANK!!!!!

Im a ex druggie, alcholic smoker white brotha.

Do script drugs count?......LOL ;D

........................................jonny

Title: Re: Are there any African-Americans represented he
Post by woobie on Mar 8th, 2003, 9:29pm
Ramon - Cerebus - Hit by Bus - Crash...
is 1/2 black..

gotta problem with that???  LMAO!!!

Tina

Title: Re: Are there any African-Americans represented he
Post by Karla on Mar 8th, 2003, 9:57pm
I didn't know that we needed to give blacks a special welcome.  I thought the front door gave a nice welcome for all nationalities.  And if that aint good enough well then be offended and leave.

Title: Re: Are there any African-Americans represented he
Post by kim on Mar 9th, 2003, 1:53pm
I wanna meet Dannyboy tu.....as to which cheeks to pinch -- hmm, have to see... :D  Need a visual.... ;)

Post that/those pics DB! :D

Title: Re: Are there any African-Americans represented he
Post by cootie on Mar 9th, 2003, 2:05pm
Brad kept callin me CRACKER all weekend.......guess that makes me a whitie supporter..........guess the beer made him do it.......I never really thought CH was a racial beast myself......figur'd it could hit anyone......Pam-Coots-thats-a-crispie-cracker

Title: Re: Are there any African-Americans represented he
Post by brain_cramps on Mar 9th, 2003, 3:42pm

on 03/08/03 at 12:00:21, Ted wrote:
One of the reasons for fewer blacks finding us is because fewer blacks have computers and are online.

SHEEEEIT !!!!!


on 03/08/03 at 12:00:21, Ted wrote:
Although, I'm sure seeing the racist comments that pop up on the board here once in a while doesn't help matters.

Wouldn't the first line be considered a 'racist comment'?

fukkin amazing,
grant


Title: Re: Are there any African-Americans represented he
Post by kim on Mar 9th, 2003, 3:49pm
:-*  Now that was smaaat! :)

Scatty brain ;)

Title: Re: Are there any African-Americans represented he
Post by kim on Mar 9th, 2003, 3:48pm
:-*  Now that was smaaat! :)

Scatty brain ;)

Title: Re: Are there any African-Americans represented he
Post by Ted on Mar 9th, 2003, 8:17pm

on 03/09/03 at 15:42:34, brain_cramps wrote:
SHEEEEIT !!!!!

Wouldn't the first line be considered a 'racist comment'?

fukkin amazing,
grant




Nope. It's not racist to state facts. Isn't being scared to discuss the facts adding to the racism? Avoiding racial topics of inequity from fear of offending someone (and it's usually the white middle-class who's offended) means nothing will ever get done about the non-discussable issues. Blacks also have a higher unemployment rate and have a larger percentage in the prison system. If you're one of the people who is scared to state these facts then you are one of the people who perpetuates the problem of racism by being scared to talk about the truths.

Fucking typical.

Title: Re: Are there any African-Americans represented he
Post by Woobie on Mar 9th, 2003, 8:52pm

on 03/09/03 at 20:17:46, Ted wrote:
Nope. It's not racist to state facts. Isn't being scared to discuss the facts adding to the racism? Avoiding racial topics of inequity from fear of offending someone.

Fucking typical.


WOW... I didn't know RACISM was the topic to this thread....

I am not afraid -   but i do have to tell ya.. I am married to an african american russian..
(a black russian).. LMAO!  ;D

and you're right.. he DOESN"T have a computer.   The computer is MINE. he can only borrow it from time to time.   It's MY little way of keepin the brotha down!!

LOL!!   ;D  
Just a joke, ya'll!!

Now, can we stop talking about racial shit??

The question david asked was about DEMOGRAPHICS, not about racism!!   I totally understand his question.. and for people to turn it into a racial issue, ... that's just fuckered up.

Now stop it, because I'm white, and middle class, and I may get offended!

Tina   :-*

Title: Re: Are there any African-Americans represented he
Post by Charlie on Mar 9th, 2003, 9:35pm
You’re right, it didn’t begin as a race post but we always turn it into race because we don’t know how not to.  Most from my generation are scared to death to talk about race so we begin by qualifying everything.  I’m not proud of it.  

Ted's right

Charlie

Title: Re: Are there any African-Americans represented he
Post by brain_cramps on Mar 10th, 2003, 8:32am
Ted:

Lets say for a minute that instead of 'black', you mentioned another visible minority that is not proportionately represented here (ie. Asian, Native American, East Indian, Latino, etc.).   Would your comments about the number of   *insert visible minority here*   "not having computers or being online", "higher unemployment", "larger percentage in the prison system" still stand up?

When dealing with a potentially volatile subject, it might be a good idea to use some degree of tact and/or diplomacy.  If you don't think of this as a potentially volatile subject, you might want to open your eyes and look at the WORLD around you.

the red-neck bastard that used the 'PONTIAC' acronym,  :-X
grant

Title: Re: Are there any African-Americans represented he
Post by Hound_Dogg on Mar 10th, 2003, 8:37am
My grand-father was born in South Africa...Does that count? :D

Actually I'm Eurorussianasiansouthpacificislandercaucasion-American.

Clusters don't discriminate!

Jim

Title: Re: Are there any African-Americans represented he
Post by brain_cramps on Mar 10th, 2003, 8:48am

on 03/10/03 at 08:37:28, Hound_Dogg wrote:
Actually I'm Eurorussianasiansouthpacificislandercaucasion-American.

LMAO!!!
Heinz-57, like the rest of us.   ;)

Title: Re: Are there any African-Americans represented he
Post by Margi on Mar 10th, 2003, 10:33am
David, thanks for bringing this up - I think it's high time we DID do a survey again here.  We did the race question here back in the first year of ch.com, and I'm pretty sure Bernie was our only black clusterhead.  She also had a lot of other health problems, however, and I believe never actually DID get a cluster diagnosis.  I know she had head pain of some kind, but I remember talking with her on the phone and she was wondering if she really did have clusters at the time.  To my knowledge she was the only black who ever posted here with any kind of cluster symptoms - that doesn't prove anything though.  (We forget how many people just watch and never post.)
The Asian race seems to be another group that seems to have some kind of cluster immunity.  I know of two Asians with clusters but both folks are half-caucasian.
There definately ARE diseases that are race specific (rickets comes to mind) and could it be that clusters is one of them?  That leads us to the obvious question:  WHY IS THAT?  Is the hypothalmus formed differently in difference races?
It's this kind of questioning that is some day going to lead us to a cure.  Thanks for doing this, David.  

p.s.  I didn't think what Ted said was racist at all.  He was just stating economic facts.  Ted's got to be the most non-racist person I've ever known.

Title: Re: Are there any African-Americans represented he
Post by Hound_Dogg on Mar 10th, 2003, 11:08am

on 03/10/03 at 10:33:20, Margi wrote:
There definately ARE diseases that are race specific (rickets comes to mind) and could it be that clusters is one of them?  That leads us to the obvious question:  WHY IS THAT?  Is the hypothalmus formed differently in difference races?
It's this kind of questioning that is some day going to lead us to a cure.


Let's not forget Tay-Sachs, which is predominately a Jewish disease. I personally think a lot of these diseases came down to a Genetic "Mutation" of a certain clan many, many, many years ago. Which has evolved even further either to the better or to the worse, depending on our lineage.

But that's just my take on it. Thanks for putting the post back in perspective, Margi.

Jim

Title: Re: Are there any African-Americans represented he
Post by Woobie on Mar 10th, 2003, 11:39am
Yes, Margi, it is a valid point, and an important question, and one that I've wondered too...

To answer the question again... Ramon has clusters, and he is 1/2 black... 1/2 Russian.   Maybe he IS the only black clusterhead here... who knows.

Maybe.. on the cluster survey <---- there should be a question about race.  For demographic purposes only, of course.  Maybe it could be researched that way.. instead of blatently asking people.. just an idea... because race may very well play a part.. ya never know.

I am thinking that the lack of other ethnicities on this site probably has more to do with language barriers - for the Asian and Indian populations, for sure.  As for blacks, I dont know.  

And, just for the record, I do NOT think Ted is racist!!!  

I was simply miffed at the fact that a perfectly VALID and important thread turned into a racial debate... no matter WHO did it.. or what the intentions were, it happened.

Now, can we get back to the original topic of the thread??  Geeesh.  

Peace ya'll!
Tina   :-*

Title: Re: Are there any African-Americans represented he
Post by Margi on Mar 10th, 2003, 12:04pm
I agree, Tina, that we need to get back to the original purpose of this post - that's why I posted what I did.

I wasn't saying that you were calling Ted a racist at all.  Someone else referred to his remarks as racist (I forget who now).  I just didn't agree with that - that's all.  :)

As to Ramon...he's another case in point as are my two Asian friends here.  He's only 50% black origin.  Who's to say it isn't his caucasian 50% causing the clusters? We really need to establish a control group, I guess, of folks who are of 100% origin of individual races.  

Also, I think your suggestion of adding a race question on the cluster survey is a good one - but no need to qualify it though.  Maybe just put check boxes for the different races - I think most folks understand why a question like that would be asked.  

I do (respectfully) disagree with you about the language issue though.  We each live in virtual melting pots of countries - Canada and the States - so many different races in both countries.  While English as a second language is quite common, I doubt there are THAT many folks who wouldn't start searching for cluster info in English if they needed help.
 

Title: Re: Are there any African-Americans represented he
Post by brain_cramps on Mar 10th, 2003, 12:40pm
Sorry, I did not intend to label Ted or anyone else as racist.

Perhaps instead of phrasing the question "Wouldn't the first line be considered a 'racist comment'?", maybe I should have asked "Isn't it possible that the first line  could be considered a 'racist comment'?"

Again, I did not mean to label ANYONE racist.  My apologies to Ted and anyone else who may have taken it the wrong way.

But back to the original question.  That has always been a question of mine (not limited to African-Americans).

My apologies to anyone that I may have offended and in the future I will preview my posts in a 'potentially volatile' thread such as this,
grant

Title: Re: Are there any African-Americans represented he
Post by Peppermint on Mar 10th, 2003, 2:19pm
*sigh*
David do you have your answer... this here thread is in the running.  

I didn't even want to post to this.  But I understand *as a person of color* what Grant was alluding to.  No comment as to who is or is not a racist, I will not judge from a few words in this thread.

HOWEVER. AS a person of color, there IS a heightened sensitivity *strictly speaking for myself at this moment*, to commentary or things that may be REGARDED as or misconstrued as being racist, or prejudiced.  That just comes from years of dealing with it, whether it has been blatant or ever-so-subtle.  So whether it was meant or not, what has been said, is said..... and I have to say, I was not comfortable.  When stating something that is a fact, as in, statistical, especially when it can be viewed as a volatile statement, you need to back it up with your resource.  Otherwise you risk being misunderstood.  

That's all I have to say about that subject.  Now, back to your regularly scheduled thread.  

Title: Re: Are there any African-Americans represented he
Post by Margi on Mar 10th, 2003, 3:10pm
Patty, I don't think David's question DID get answered.  

The point is that we really DON'T (to our knowledge) have any full-blooded blacks OR Asians (or hispanics, or western indians - but we do have Eastern indians, right?)  that have signed up here as diagnosed clusterheads.  WHY IS THAT?  I hate to use the word 'they', but 'they' can't ALL speak another language and not have access to a computer.  I'm thinking that maybe 'they' just don't get cluster headaches!  WHY IS THAT?

We're throwin the baby out with the bathwater here if we let this very valid question of David's turn into any kind of racial issue at all.  

Patty, I'm sorry if you felt uncomfortable by what was said here.  I sure didn't mean to add to that.  I'm just trying to get back to the original point of this thread, which really is a good one.  If we can identify why some races get clusters and why some don't, we're one step closer to determining cause and, hopefully, cure, right?  

Title: Re: Are there any African-Americans represented he
Post by Bob P on Mar 10th, 2003, 3:45pm
One look at the "Where we live" page reveals hispanics (Garza's, Pachaeco's, Jesus's - them hispanics are big on Jesus and Mary).  Also lots of south americans.

There are even a couple of Yokoyama's and Sushi's.

I think CH is a genetic disease of middle class white boys who didn't nurse long enough.  I have determined that circumcision has nothing to do with CH (thanks for that info hub).

That's my input for today.  Now I'm off to Oakland to hunt for clusterheads of minority persuasion.

Title: Re: Are there any African-Americans represented he
Post by Peppermint on Mar 10th, 2003, 3:58pm

on 03/10/03 at 15:10:14, Margi wrote:
Patty, I don't think David's question DID get answered.  

The point is that we really DON'T (to our knowledge) have any full-blooded blacks OR Asians (or hispanics, or western indians - but we do have Eastern indians, right?)  that have signed up here as diagnosed clusterheads.  WHY IS THAT?  I hate to use the word 'they', but 'they' can't ALL speak another language and not have access to a computer.  I'm thinking that maybe 'they' just don't get cluster headaches!  WHY IS THAT?

We're throwin the baby out with the bathwater here if we let this very valid question of David's turn into any kind of racial issue at all.  

Patty, I'm sorry if you felt uncomfortable by what was said here.  I sure didn't mean to add to that.  I'm just trying to get back to the original point of this thread, which really is a good one.  If we can identify why some races get clusters and why some don't, we're one step closer to determining cause and, hopefully, cure, right?  


Margi-
I appreciate what you are saying - I have wondered myself about the demographics of clusterheads.  I think David has more than a valid question.  I wasn't aiming at throwing out the baby with the bathwater... that is not what I was trying to do.  It possibly IS an important component of who makes up the clusterhead population.

My point was to give some insight from my perspective.  If there are minorities on this board reading this, I suspect they may have similar feelings, or at the minimum, be ambivalent about how to take some of the commentary.  

I do think it is important to take into account all possibilities, from all angles.  After all, whether you support a child, a husband, a friend, etc., we don't want to see them in pain.  We don't want them to suffer.  To find a cure - that would be a blessing.

Hope this helps to clarify.

Title: Re: Are there any African-Americans represented he
Post by 9erfan on Mar 10th, 2003, 4:05pm
This is a really interesting thread...

Margi pretty much already articulated my feelings on the subject.  I don't care if someone is white, black, red, or purple BUT I do think this would be interesting to look into from the perspective of "who gets clusters?".    It may just be that clusters are predominent in white males (looks like it in this thread).  And like Margi said there are several diseases out there that target specific racial groups...sickle cell anemia???  Also, I have read several times that black men are at higher risk for high blood pressure & high cholesterol.  No idea why, though!

Thanks for starting this conversation David, I think it deserves more exploration.
Virginia

Title: Re: Are there any African-Americans represented he
Post by Margi on Mar 10th, 2003, 4:36pm
I think a really good place to start the research on this subject would be to ask our neuros if they have any patients who are non-caucasian.  Might get some wheels turning if that answer is no.

And, Virginia - I'm betting that the purple people don't get clusters either, but, that's just my opinion.  ;)

Title: Re: Are there any African-Americans represented he
Post by Woobie on Mar 10th, 2003, 5:08pm
 Geez you guys....now I gotta open up my big mouth again and you all know what fun that has been in the past....
 First I read all of this thread so far and I don't see one hint of Racism.....course I don't go out of my way to look for it either. Bottom line on racism is that there is no racism. I live in an area where I've heard racism screamed more than anywhere else I have ever lived, and I am sick of it. People create thier own problems when they go around tuned in to every statement or whisper that could be interpreted as a racist remark, and DO.
 I personally don't have time to waste digging up racism everywhere I go, life is too short. Personally, if you have that kind of time then either you are wasting it or have too much. Besisdes why would you want to create more obsticles in your life?
 I have experienced racism on ALL levels, because I was never white enough for whites nor black enough for blacks, so where do I fit in? So forget the technological and judicial demographics and get on with the medical stuff, the rest is just symantics.

 CH....= sucks
 CH ..a race specific disorder? = unknown
 tring to figure out where you fit in with CH in a racist world? = Priceless
 
 for everything else.... theres work, family, and living screw mastercard.

Ramon

P.S.  noticed that I posted this under woobies name? ........thats what I get for opening my fat mouth.

Title: Re: Are there any African-Americans represented he
Post by Margi on Mar 10th, 2003, 5:28pm

on 03/10/03 at 15:58:20, Peppermint wrote:
If there are minorities on this board reading this, I suspect they may have similar feelings, or at the minimum, be ambivalent about how to take some of the commentary.  

Hope this helps to clarify.


Exactly my point...well, a roundabout way of getting to it, anyways....we've probably all been guilty of wording the request wrong, but ARE there any full blooded Black, Hispanic or asian sufferers here?  All we're asking and offering here is an open invitation for you to stand up and be counted.  It's the only way we can learn about this condition and to rule OUT hypotheses that could end up leading us to false conclusions.  Please let us know if you are of any of these racial origins.

Again, Patty, I'm sorry that you took offense (if you did) by my participation in this thread.  Certainly not my intention.  I do see your point, though - I wasn't trying to disregard that at all - just trying to steer conversation back to the question at hand....

and, while I'm up here on my soapbox, David - you mentioned that you personally know this to be false (that clusters don't attack blacks)....how DO you know that?    

Title: Re: Are there any African-Americans represented he
Post by cerebus on Mar 10th, 2003, 5:30pm
 Since we are sorta on the topic of racism ....sorta. I have a couple more comments. I don't think that lack of technology, education,  has anything to do with the lack of "African-Americans" on this site.
 I believe actually that it lies more with the lack of knowledge by physicians and patients alike that show the true nature of the problem. Keeping along the ECONOMICS aspect of this topic, fewer blacks have health insurance than most whites, as well as generally being poorer. Hence that less blacks may be seeing doctors that are not in thier own practices, and seeing physicians that are state funded, in turn, creating a gap in health care situations.
State medical funding often doesn't allow expensive testing, and/or speciallists when the diagnosis isn't terminal or commonly acknowledged by the medical community. And we won't even try to touch the pharmaceutical points to this. Therefore less blacks knowing about CH and  even fewer seeking help for a condition they don't even know they have.
 Makes sense to me anyway. Oh and just for the record blacks are now out-numbered in America by hispanics. We are an actuall minority again......wooohoooo! wait a minute ....did I just say that?
Ramon

Title: Re: Are there any African-Americans represented he
Post by Slammy on Mar 10th, 2003, 5:37pm

on 03/10/03 at 17:28:13, Margi wrote:
and, while I'm up here on my soapbox,


Get off there!  You're gonna fall and get hurt, Margo!   ;D





Slammy   8)

Title: Re: Are there any African-Americans represented he
Post by Peppermint on Mar 10th, 2003, 8:45pm

on 03/10/03 at 17:28:13, Margi wrote:
Exactly my point...well, a roundabout way of getting to it, anyways....we've probably all been guilty of wording the request wrong, but ARE there any full blooded Black, Hispanic or asian sufferers here?  All we're asking and offering here is an open invitation for you to stand up and be counted.  It's the only way we can learn about this condition and to rule OUT hypotheses that could end up leading us to false conclusions.  Please let us know if you are of any of these racial origins.

Again, Patty, I'm sorry that you took offense (if you did) by my participation in this thread.  Certainly not my intention.  I do see your point, though - I wasn't trying to disregard that at all - just trying to steer conversation back to the question at hand....

and, while I'm up here on my soapbox, David - you mentioned that you personally know this to be false (that clusters don't attack blacks)....how DO you know that?    


Ok Margi... maybe roundabout, or not efficiently stated... however, as far as saying the same things... that's Exactly my point.  

No offense taken.  

Wish I'd followed my instincts.  

Title: Re: Are there any African-Americans represented he
Post by Ted on Mar 10th, 2003, 9:26pm
Let's recap. The question was asked why blacks aren't at ch.com a lot and how can we reach out. I state a FACT (sorry patty, but it's a fact, whether it offends you or not) as to why, but admittedly I didn't give an answer to reaching out. For answering the question by stating that fact I'm insensitive and a racist. It's a FUCKING fact. There's no reason to cushion it. There's no way to cushion it, like some requested. And if you want attributions, do your own homework. Try the Southern Poverty Law Center, where I get some of my hard copy and e-info from. Try NPR or the Times for stories on it.
Ramon's economic theory was a damn good one that I hadn't thought of. And it's probably the largest reason few blacks come around here. But I see from how some of you look to be a cause without a rebel, I'd have probably been branded the grand dragon of the KKK had I said it.  ::)

Title: Re: Are there any African-Americans represented he
Post by don on Mar 11th, 2003, 2:29pm
2late, believe me I know where you are coming from but I know a lot of blacks who are not African-American. I also know (my neurologist) who were born in Africa but are white. Just a point to ponder. I'm fucking fed up with the the PC bullshit to.

Title: Re: Are there any African-Americans represented he
Post by SommelierCH on Mar 11th, 2003, 7:48pm
Wow,

This question was asked of me by my ex-girlfriend (still my best friend, we just can’t live together). She is a “Chocolate” lady, born in CA.

It got me wondering, like Ted, if economic disparity was causing a lack of representation, or if the black community is immune to this disease.

If the answer is “economic disparity”, I thought that since we are trying to “get the word out to everyone who suffers from CH’s”, perhaps there was another way to reach people who don’t have internet access. It was just a thought.

As far as the anger directed towards the supposedly Political Correctness of the term “African-Americans” as opposed to “Blacks”, I think you will find that neither term really fits. I have had discussions with the publishers of both, Ebony and JET magazines (they will be the first to tell you that they do not speak for all African-Americans), they prefer the term “African-Americans”, however they accept that the term "Blacks", is in common usage. Seems to me like they are searching for a term that will distance themselves from the “Black Power” image, symbolized by the raised fist at the Olympics. That image does not speak to their pride in being American. It’s their call, not mine.

As Father Guido Sarducci said about the Pope and contraception—“You no playa da game, you no makea da rules”.

David J.

Title: Re: Are there any African-Americans represented he
Post by Frank on Mar 11th, 2003, 10:52pm

Quote:
Wow,

This question was asked of me by my ex-girlfriend (still my best friend, we just can’t live together). She is a “Chocolate” lady, born in CA.

It got me wondering, like Ted, if economic disparity was causing a lack of representation, or if the black community is immune to this disease.

If the answer is “economic disparity”, I thought that since we are trying to “get the word out to everyone who suffers from CH’s”, perhaps there was another way to reach people who don’t have internet access. It was just a thought.


OK... if I understand the point of your original post... it was about getting the CH message out to those who are economically disadvantaged, who perhaps do not have Internet access. If so, I think that is a great idea.

But economic disparity is not unique to African-Americans... there are lots of people who may not have Internet access... poor African-Americans, poor families  in the Appalachian Mountains, the Amish (most who don't even have electricity), homeless people, etc...

A good place to start would be flyers or brochures in hospital ERs, free clinics, and doctors and neurologists offices. Word of mouth advertising is also good... I have managed to meet a couple of clusterheads in my city that way.

Many people who are poor who cannot afford medical insurance or a computer or Internet access still are eligible for Medicare, Medicaid, and other services... and do visit the same doctors and ERs as those of us who are more fortunate.

The CH sufferers who are probably hardest to reach are those whose religions  bar treatment using drugs because "if you have cluster headaches, it is God's will" ??? Unfortunately, I don't see a way to help them.

Title: Re: Are there any African-Americans represented he
Post by SommelierCH on Mar 12th, 2003, 5:33am
Everybody,

No one in the world is doing a comprehensive history of Cluster Headache sufferers, comparable to this site.

We have to do our own research. Hell, there are medical articles quoting our “Cluster Survey”—we ARE the source.

If there is a group of people out there, that don’t get Cluster Headaches, we should want to know that information. We have to be aware of what isn’t there, as much as we are with what is there.

Remember, our goal is to find a cure.

David J.

Title: Re: Are there any African-Americans represented he
Post by Peppermint on Mar 12th, 2003, 12:50pm

on 03/10/03 at 21:26:07, Ted wrote:
... I'd have probably been branded the grand dragon of the KKK had I said it.  ::)


I hate to pop this thread back up to the top.  

But I just wanted to say to you Ted, I apologize if that's the way you took it.  I didn't mean to offend you but looks like I have done just that.  I consider you a friend, but after this, its your call.

I just want to say it right here where it began.  

I'll go away now.

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 15th, 2003, 12:20pm
Call me black, call me white, call me anything you like, just dont call me late for the party ;D (Steelheart)

............................jonny :D

Title: Re: Are there any African-Americans represented he
Post by jimash on Mar 15th, 2003, 12:39pm
There are plenty of Black people with CH (Kareem Abdul Jabbar for one)
And there are plenty of black people with computers and know how to use them.
(donning flame retardant suit)
The Black culture and community deals with problems like this in a different way.
They are there at the doctors and ER's.
If they can afford it. If they can't afford it they are probably skeptical of getting any satisfaction or relief from a forum such as this.
Black people also don't report very many UFO sightings.
Generally they are too busy just trying to get along.
Jim

Title: Re: Are there any African-Americans represented he
Post by Lenny on Mar 15th, 2003, 7:30pm
Jim,
Thats a very interesting statement you made ( plenty of black people suffer from C.H. ) where did you hear this ?  Or are you assuming that this is the case ?

BTW = ( Kareem Abdul Jabbar ) suffer's from that other disorder that starts with an "M" and ends with an "E" and sometime's with an "S" ( depending on,how you phrase it ;) ). Let me know where you got this imf.


Alot differant than "CLUSTERHEADACHE'S"

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 15th, 2003, 7:48pm
Ya, where do you get your info?

What brothas have CH? (Said in a PC way)

..............................jonny

Title: Re: Are there any African-Americans represented he
Post by jimash on Mar 15th, 2003, 11:03pm
It stands to reason that black people get them.
It is just not customary for them to whine about it online like we do.

Years ago my brother called my attention to a story about how Kareem would go into cycle at the playoffs and have to take ergot treatments.
http://www.mapinc.org/drugnews/v00/n1008/a07.html
Just a referrence,
Jim

Title: Re: Are there any African-Americans represented he
Post by Lenny on Mar 16th, 2003, 2:07am
Jim,
Did you read your link ??? ( what disorder Kareem has ) ?
 

It did not mention anything about CLUSTERHEADACHE.
It did mention that other disorder ( what does that have to do with you claiming that the man suffers from a disorder that he does not have, C.H. )? I love people like you, ( BLOWING HOT AIR OUT OF YOUR ASS ::) ::) ).So far on this thread you have made 2 claims, ( your 0 for 2 ) ::) ::).
 Please dont come back and tell us Emmitt Smith has clusters aswell ( remember that,it was during or just before the game ).
 BTW = Kareem likes to lay in a dark quite room when he is getting hit by "HIS CLUSTER ATTACK" ;)
 I dont give a fuck what color you are,if you suffer from c.h. like i have and most others on this board with the misdiagnosis and the years of just suffering with no-one that truley understand our pain,etc.,etc.,etc. ( i actually forgot what i was getting at :D ) weather your black,brown,red,yellow or like me COCK-ASIAN ;D ;your
going to do what we did and find this site. As far as your other statemant, as far as i am concerned,your 0 for 3 :o :o :o . Nighty - night Jimmy ;D ;D  

Title: Re: Are there any African-Americans represented he
Post by Bob P on Mar 19th, 2003, 3:39pm
Since Dannyboy is hanging around, I just thought I'd bring this back to the top for his input.

Title: Re: Are there any African-Americans represented he
Post by cbolony on Mar 19th, 2003, 5:42pm
BobP who the fuck is this guy dannyboy looks like you been dealing with this guy for a long time

Title: Re: Are there any African-Americans represented he
Post by jonny on Mar 19th, 2003, 5:59pm
Dannyboy, showed up awhile back trying to sell us on his daddy's surgical procedure, wants us to fly to south africa to have it.

His daddy posted that he has never operated on a CH'er and more or less that Dannyboy was full of shit.

We like to pick on him when he shows up, its fun!!!!!.....LOL ;D

....................................jonny :D

Title: Re: Are there any African-Americans represented he
Post by cbolony on Mar 19th, 2003, 6:15pm
is this the same guy who sells the imitrex cheap and he from africa.btw is he a crow

Title: Re: Are there any African-Americans represented he
Post by Woobie on Mar 20th, 2003, 11:36am

on 03/19/03 at 18:15:40, cbolony wrote:
is this the same guy who sells the imitrex cheap and he from africa.btw is he a crow



What is a "crow",  cbolony?

Title: Re: Are there any African-Americans represented he
Post by Mark C on Mar 20th, 2003, 11:59am
I kinda wish Ueli would have posted to this thread. His grasp of stats is better than mine. There must be a scientific way of determining the racial spread of CH without all of the emotion.

Ted is right about the "Digitial Divide", but the gap is narrowing. There are decent computers in the $200.00 range here in town and soon every one will have one, just like TV's, telephones and microwave ovens.....oh yeah, VCR's too. Even poor folk have this stuff now, I do and I'm poor.   ;D

Broadband from a Trailer Park in Tennessee!
PFDAN's
Mark

Title: Re: Are there any African-Americans represented he
Post by JDH on Mar 20th, 2003, 12:24pm

on 03/19/03 at 18:15:40, cbolony wrote:
btw is he a crow


CB, I hope you don't mean what I think you mean.
You wanna explain that comment?





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