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        New Message Board Archives >> 2003 Posts >> maybe i just found out
        
(Message started by: hotprestwich on Mar 2^nd, 2003, 4:34pm)

Title: maybe i just found out
Post by hotprestwich on Mar 2^nd, 2003, 4:34pm

Hi whoever reads this
For the past 5 years i have suffered with these headaches, they last for 1 month to 2 months, at a time, ive tried seeing all sorts of doctors about it and they always told me i had some sort of sinus infection,
the head ache always wakes me up at about 3-6 in the morning, with this incredibal pain behind my right eye and then my temple starts paining then the back of my head, they only last for about an hour but i always put that down to the pain killers i was taking, somtimes they were every morning but just recently it was every other morning, i am a cave diver and always thought that if it were my sinus surely i would experience pain on my decents, but there was no problem with this,
yesterday i took a canadian girl diving who happens to be a doctor and i explained my symptoms, she said it sounds like i suffer from cluster headaches, i have never heard of it before so i deciced to do a web search and up this site popped, i took the cluster survey, and it looks like this is my problem, secretly i thought what if i have a brain tumor as the doctor i visited out here wants me to have an x ray, he precribed me somthing called minocin, and after taking it for a week the headaches started to fade away, i still lay there at night wondering if they will return but the the past week and a half have been pain free, its such a relief, however its the same like always i get these headaches for a couple of months then they just dissapear, i often feel like crushing my skull when they come but soon after i take some co- proxamol there gone untill the next morning, same time like clockwork, its been hard on my girlfreind as they started soon after i met her 5 yrs ago,
is there any cure for it? some of the stories ive read on the web site, sound horrific, i dont know what i would do if i had them every day all year round,
any feedback would be much appreciated as i have never met anyone with the the same symptoms,
kind regards,
dave.

Title: Re: maybe i just found out
Post by Roxy on Mar 2^nd, 2003, 4:45pm

Hi Dave....welcome to the clusterheadache world. Sorry you had to find us. Sounds like you need to find a doc who understands these things, and prescibe what you need. You'll find tons of info on this site and the OUCH site (button to the left...join while you're there also!)

I use verapamil, 02 and imitex. 02 is a very wonderful abortive if used right.

on 03/02/03 at 16:34:30, hotprestwich wrote:

i often feel like crushing my skull when they come

This picture shows what I always want to do:
http://www.yatoula.com/gif/insolite/insolite_74.gif

Take care,
Tracey

Title: Re: maybe i just found out
Post by eyes_afire on Mar 2^nd, 2003, 4:55pm

Hi there Dave. Your story sounds familiar. Minocin is an antibiotic, there are no reports of it ever helping CH (that I know about). It is probably a coincidence that your cycle was ending after you started taking Minocin. Bad news: there is no cure for cluster headaches, only meds to help control them (with varying degrees of success). Good news: you have discovered one of the best resources for clusterheads. If you have cluster headaches, explore this site fully. Many in the medical community don't know about cluster headaches, so often the patient needs to be proactive.

Title: Re: maybe i just found out
Post by Jarvis on Mar 2^nd, 2003, 5:09pm

Hi - Dave, your post brings up some memories. .. .Way back before I was diagnosed I was an avid diver too. I remember assuming that my HA's were due to the bends or maybe too much air or dirty air. Even quit diving for a while. ... . Then I assumed it was an allergic reaction to my girl cause she was there all the time. Quit seeing her for a while too. The headaches continued. Welcome to the site. ........ . Do get the xray mri's etc to make sure its not something different. Sounds like you may be on the right track to a bit of understanding. ...... I've never met another clusterhead either they just live in my computer.

Title: Re: maybe i just found out
Post by K. on Mar 2^nd, 2003, 5:12pm

Hi Dave
Sorry you are suffering. Welcome to the family. I'm somewhat new to the family myself but I can tell you it's the best place to be in all the world. I've been a clusterhead for 18 years. You will learn a lot here. I can safely say that most of us here had never met anyone else with cluster headaches. Have your girlfriend read the boards...to gain some understanding of what you are going through. I hope you find a good doc..as they are hard to find when it comes to clusters. My meds are Verapamil 480 mg/day, O2 and the imitrex injections...if the O2 doesn't work.
Good luck, may you continue to be pain free.
Karen