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        New Message Board Archives >> 2003 Posts >> Another newbie climbing aboard and saying HI.
        
(Message started by: frozn on Mar 2^nd, 2003, 12:30pm)

Title: Another newbie climbing aboard and saying HI.
Post by frozn on Mar 2^nd, 2003, 12:30pm

Just wanted to say Hello to all the fellow clusterheads. What a great looking site. Has anyone ever heard anything about C/H being related to other neurological or brain disorders? I have suffered from C/H for about 15 years, and recently found that I had a slow growing brain tumor. After reading some interesting facts about how C/H work affecting the nerves and vessels around the eye, I became curious, since this is the same area where my tumor developed. Luckily I was able to have most of it removed with only minimal impact on my brain function and cognitive abilities. It still makes me curious if there could have been some underlying relationship between the two.

Title: Re: Another newbie climbing aboard and saying HI.
Post by jonny on Mar 2^nd, 2003, 12:52pm

Welcome aboard Frozn,

I doubt tumor has anything to do with CH, I dont have one but have chronic CH for more than 27 yrs.

Join OUCH dude, grab an oar and help us row this damn boat of pain to a cure.

......................................jonny

Title: Re: Another newbie climbing aboard and saying HI.
Post by suzy617 on Mar 2^nd, 2003, 1:21pm

Hi Frozn, glad to meet you. I agree with Jonny. Dont think tumors and CH are related. I think if that were the case, most of us would have realized by now, being that many members as myself have had CH for over 20 years and longer.

http://uselessgraphics.com/welcomedollz.gif

suzy

Title: Re: Another newbie climbing aboard and saying HI.
Post by Roxy on Mar 2^nd, 2003, 1:23pm

Welcome to the board and the family frozn.... :)

Glad they removed the tumor successfully....but really sorry you have ch's.

This place is a wellspring of info....just pull up a chair and start reading.

PFDAN,
Tracey

Title: Re: Another newbie climbing aboard and saying HI.
Post by cootie on Mar 2^nd, 2003, 1:36pm

just wanted ta say Hi frozn...............Pam

Title: Re: Another newbie climbing aboard and saying HI.
Post by woobie on Mar 3^rd, 2003, 7:24am

Me too.. just wanted to say Hello and Welcome..

Tina :-*

Title: Re: Another newbie climbing aboard and saying HI.
Post by 2late on Mar 3^rd, 2003, 6:16pm

welcome aboard frozn, you found the best place for info & support about ch, glad you got thru brain surgery without complications, i agree with the rest no link between the 2. good luck to ya! ..........2late

Title: Re: Another newbie climbing aboard and saying HI.
Post by cathy on Mar 3^rd, 2003, 6:24pm

:)...Just Hi and Welcome from me too...

Cathy

Title: Re: Another newbie climbing aboard and saying HI.
Post by Kirk on Mar 3^rd, 2003, 7:15pm

Hi frozn. They checked me pretty thoroughly for tumors and came up negative.

Title: Re: Another newbie climbing aboard and saying HI.
Post by Frank on Mar 3^rd, 2003, 10:50pm

Hi frozn... glad you found us.

It happens that I saw a Neuro today... first time since I started having CHs 14-15 years ago. He asked if I had ever had a CT scan or MRI. I told him no... but my guess is that 14-15 years later, my CHs aren't caused by a brain tumor or anything else that could be seen with a scan.... or I'd have no brain left.

Title: Re: Another newbie climbing aboard and saying HI.
Post by Charlie on Mar 3^rd, 2003, 11:09pm

Welcome aboard and stick around. You'll find all kinds of information here. Most of it pretty damn good.

Just wanted to say hello.

Keep watching the skies.......

Charlie

Title: Re: Another newbie climbing aboard and saying HI.
Post by Tim_w on Mar 5^th, 2003, 8:23am

Hi Frozn
Welcome aboard,Sorry your here,but grad you found us!
PFDAN Tim_w

Title: Re: Another newbie climbing aboard and saying HI.
Post by echo on Mar 5^th, 2003, 9:43am

Wanted to take this opportunity to welcome you to the board. Glad you found us, sorry that you needed to .

Title: Re: Another newbie climbing aboard and saying HI.
Post by ch_nic on Mar 5^th, 2003, 10:53am

Hi Frozn, you must have gone through a lot of difficult times with CHs like the rest of us.

Glad that you had your tumor removed and thanks for visiting us!

Title: Re: Another newbie climbing aboard and saying HI.
Post by Mark C on Mar 5^th, 2003, 11:26am

Hi frozn,
Welcome to the board, pull up a chair and jump in.

I do remember when I first went to a Neurologist I would have been glad for it to be a tumor. I had suffered so long and nothing had helped ANY help would have been welcome. Thank God for Triptans.

Nice animation suzy!

PFDAN's
Mark

Title: Re: Another newbie climbing aboard and saying HI.
Post by BruceD on Mar 5^th, 2003, 4:15pm

Man, I hate to say this but I wish the cause were as easy as a tumor. At least they could cut the darn thing out and put an end to the pain for everyone here. Anyway, welcome aboard and grab that oar that Jonny offered ...

Take care
BruceD