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(Message started by: john stock on Feb 10th, 2003, 6:36pm)

Title: Is water the cure
Post by john stock on Feb 10th, 2003, 6:36pm
The water thing. Well this might sound crazy. But this happen to me. Two years ago I started to go swimming every day. All most every day.  This place that i went swimming.  The water was cool and crystal clear and super clean . i Call it the my blue lagoon. So anyway there were big rock piles in the lake. I would move then of one place to another . I was spending a lot of time under the water. i did this most of the summer . My chs have been with me for ten years nonstop to this point. From spending so much time under the water that summer they stopped!!!!!  The only thing that was going throw my mind at this time is that i had found the fountain of youth. You never know  It could be. I was cured  wow !!!! The sun was shining on me that summer ( finally pf ) It could have been  the water temperature. I feel that our body temperature is the key to being pf  If there could be some kind of hat that would keep our heads at the right temperature. These headaches would be history!!!!! I don’t think  ice works because it’s to cold.  Ice is to much  We need to use something that we can use all day. It’s  kind of funny but i would hate for everyone to call us hot heads. That WWW thing is on the right track. It is cooling down your head. but that’s a lot of water. I would look like and feel like a beached whale . The headaches are vascular. The blood pressure builds up .And then what we call it . the beast the demon or ooooo God, Boy that sucks. Meds do nothing for me and i hate meds we all been there. Med sick bummer. The water or (right temperature)cools down the blood veins and shirks them causing the pressure to lower that stops the headache. amen!! I hope that the cure. i can dream can’t i. well my chs came back this oct so this summer guess where i am going to be. THE BLUE LAGOON i hope it works again. ps if you think i am on the right track let me know. thank you fellow custerheads

Title: Re: Is water the cure
Post by Margi on Feb 10th, 2003, 6:57pm
uh John?  I'd hazard a guess that it was the action of you swimming every day that helped you - oxygenating yourself like that.  
For what it's worth, Dr. Goadsby (kind of a cluster pioneer) will really disagree with you about these being vascular headaches.  He has discovered an overgrowth deep inside the brain (the hypothalmus) of a clusterhead that throws a lot of hormones out of whack (melatonin, seratonin, etc.) and his research is really proving out his theories.
Also, ice really isn't too cold for a lot of clusterheads here.  Applied directly to the pain, it sends a message to the brain to warm that area up, thereby 'distracting' the pain receptors temporarily.
Just my two cents, but I'm glad you're out of pain.  Hope you never go back into cycle.

Title: Re: Is water the cure
Post by suzy617 on Feb 10th, 2003, 6:59pm
Hi John and welcome to the board.

Your story was interesting, maybe the blue lagoon did work for you.  My cycle starts in september so I really wouldnt know if the swimming thing would help me. Hey if that works for ya, I'd buy myself an indoor pool for sure!

suzy

Title: Re: Is water the cure
Post by jonny on Feb 10th, 2003, 7:06pm
Ahhhh Margi.....you ruined it for me.

Here I was dreaming of swimming and grabing a coupla lobsters, walking up the beach and digging some clams, starting a fire and having a moonlite clambake with a hot chick.

Now im stuck with the thought of old Goadsby and he probably aint even circumsized.....LMMAO ;D

Bummer!!!!!

.......................jonny :D
HONK!!!!

Title: Re: Is water the cure
Post by Margi on Feb 10th, 2003, 7:24pm
ignore my imagery jonny, and go ahead and have that clambake anyway.  couldn't hoit, right?  ;)

oh, and p.s.  i don't have any tatoos, but i do have some freckles...so, can I *beep* or *tweet* or something?  my daughter has a tattoo, and I did give her my permission for that (it was better than a belly button ring at that point)...does that count?  even for a tiny little annoying honk like from an old Honda civic?

beep?



Title: Re: Is water the cure
Post by jonny on Feb 10th, 2003, 7:27pm
Ill lend you my left arm, Margi.....Honk away, Honey!!!!!!

......................jonny :D
HONK!!!

Title: Re: Is water the cure
Post by suzy617 on Feb 10th, 2003, 7:29pm
Margi,  You can honk anytime you want girl! Hey maybe at the convention we can find a tatoo parlor nearby and get ya one. (or two).  Mine is over 20 years old so I'll go with ya and we can hold each others hands!

suzy
(honk)

Title: Re: Is water the cure
Post by Jarvis on Feb 10th, 2003, 11:39pm
Whatever works for you john is the greatest cure of all.

Title: Re: Is water the cure
Post by tommyD on Feb 11th, 2003, 7:11am
John -

Blue Lagoon sounds like a fine treatment.

I've been thinking about the importance of temperature, myself, in relation to the water treatment. I found I could abort two out of three attacks by chugging a quart of cold water in a couple minutes. I've not heard anyone else say this does or doesn't work, but then I never saw a post here where someone else has tried the water treatment as an abortive.

This works for me, is all I can say, and I don't know. But I have two seat-of-the-pants theories: filling your stomach with cold water may cause your body to re-direct blood flow to the stomach, thus reducing blood pressure in the carotid. OR -- the cold water cools and shrinks the carotid.

As Margi says, the hypothalamus is the culprit, but you can treat the pain by acting on the carotid. Verapimil, for example acts on blood vessels, not the hypothalamus.

And the hypothalamus, as part of the endocrine system, may respond to body-temperature issues, and for all I know, that's  what's happening. So there's a third theory.

In my opinion, tattoos have nothing to do with it. I see nothing wrong with discussing this idea. Perhaps the "medications, treatments and therapies" board is a good place to bring this up.

-tommyD

Title: Re: Is water the cure
Post by TomM on Feb 11th, 2003, 7:26am
John--

If it works for you, roll with it. Just be aware of shinkage!

TomM

Title: Re: Is water the cure
Post by Margi on Feb 11th, 2003, 10:00am
Cool post, TommyD.  Add Mike's name to the list of folks who copious amounts of cold water have worked as an abortive.  Only ever in the very early stages of a cycle, mind you, but ice cold water is always the first thing he reaches for in the early days.  It has about a 75% success rate for him at that point.  He'll drink 2 or 3 glasses as quickly as possible, and can abort 3 out of 4 attacks.  
After a few days into cycle, however, it fails him and his next weapon is the trusty O2.  That fails at peak cycle too.
Mike continues to hydrate himself through cycle anyways.  It sure doesn't hurt him.
And, John, I hope you didn't take my post wrong - I echo the other's thoughts here - whatever works for you, GO for it!  I do think it's because you're forcing more oxygen into your system though, but cooling down by immersing in cold water never hurts, either.

Title: Re: Is water the cure
Post by Stampertje on Feb 11th, 2003, 11:02am
I totally agree with TommyD. For me drinking a lot of cold water when you feel it coming, works as great abortive for a short time.
I have to do it whithin the first 3 minutes or doesn't work anymore. It also comes back after about an hour, but then I'm expecting him with a warm welcome of O2.

PFDAN

Rik

Title: Re: Is water the cure
Post by brain_cramps on Feb 11th, 2003, 11:17am
WOW!   I never thought about this before, but before I started getting CH, I used to swim about a mile a day  (in about an hour!!!).    Never really got back into it.   (Now it would probably take me the whole day!)

probably unrelated,
grant

Title: Re: Is water the cure
Post by don on Feb 11th, 2003, 12:37pm

Quote:
Here I was dreaming of swimming and grabing a coupla lobsters, walking up the beach and digging some clams, starting a fire and having a moonlite clambake


Can I come along?



Partner.

Title: Re: Is water the cure
Post by tanner on Feb 11th, 2003, 3:29pm
hi john, i'm with everyone else on this one...
whatever floats your boat ;)

my first cycle of 6yrs  ended about a month after my wife lin and i had moved to the chesapeake bay region and stayed gone for the next 7 years through numerous moves and changes. this cycle started a year ago last july in malibu, ca. and guess where we just moved back to... yep the bay, right on the water. unfortunatly it hasn't helped yet but hey it's a real pretty place to live and ya just gotta dream!!!

and while your waitin o2 and h2o

good luck and pfdan to ya.... tim

Title: Re: Is water the cure
Post by Slammy on Feb 11th, 2003, 5:36pm
Actually, over the years, I have found that sex works for me in regards to curing cluster headaches! Not mine, of course, but the cluster headaches of female sufferers!  :D  There!  I said it! Always the giver!   ;D







Slammy   8)

Title: Re: Is water the cure
Post by jonny on Feb 11th, 2003, 5:57pm

on 02/11/03 at 17:36:41, Slammy wrote:
Actually, over the years, I have found that sex works for me in regards to curing cluster headaches! Not mine, of course, but the cluster headaches of female sufferers!  :D  There!  I said it! Always the giver!   ;D


Ya right.....and having the head of a Cuban born Chinese circus midget jam his head in my ass will make me sing like Tiny Tim.....

Oh wait, it does......Nevermind ;D

.............................jonny :D
HONK

Title: Re: Is water the cure
Post by oringkid on Feb 12th, 2003, 6:34pm
I have a feeling that the guzzling cold water thing is probably the same as my holding ice, or popcicle in the back of my mouth thing.  I think it might be the cold, applied to the inside (which may be closer to the nerves in question) that helps.

Just my opinion though. (and it is way easier to hold small amounts of frozen stuff in the back of your mouth than it is to drink copious amounts of cold water! Also in my opinion only)  But, keeping your system flushed is always good.

Sherry



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