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        New Message Board Archives >> 2003 Posts >> 02/02/03 Cluster trial update
        
(Message started by: cbolony on Feb 2^nd, 2003, 8:21am)

Title: 02/02/03 Cluster trial update
Post by cbolony on Feb 2^nd, 2003, 8:21am

First week
mon tue wed thur fri sat sun
no no 4ch 4ch 4ch 3ch 4ch

Week two
Started cluster trial drug Civamide or Placebo
mon tue wed thur fri sat sun
4ch 4ch 3ch 4ch 4ch 3ch 3ch

Week three
mon tue wed thur fri sat sun
2ch 3ch 3ch 2ch 2ch 2ch no

Week four
mon tue wed thur fri sat sun
1ch 2ch 1ch 1ch no no 02/02/03 not yet

two more weeks to go just letting everbody know
whats going on with this trial drug maybe it can help
us down the road

Title: Re: 02/02/03 Cluster trial update
Post by domm on Feb 2^nd, 2003, 10:23am

Thanks for the update cb- couple of questions. Are you episodic or chronic? How far into your cycle were you when you started? How long do your cycles normally last?
Whatever you were using "seems" to be having a positive effect, but its hard to tell without other info.
Thanks again. I don't know if I am brave enough to do what you've done. You've earned my deepest respect.
PFDANs
domm

Title: Re: 02/02/03 Cluster trial update
Post by jonny on Feb 2^nd, 2003, 11:22am

Damn CB,

Your getting killed, reminds me of the no meds days. I dont even like to think about those days.

Stay strong
............................jonny

Title: Re: 02/02/03 Cluster trial update
Post by cbolony on Feb 2^nd, 2003, 1:10pm

domm i am episodic and i was 5 days in cycle
then started trial drug.my cycles last 6-8 weeks

Title: Re: 02/02/03 Cluster trial update
Post by domm on Feb 2^nd, 2003, 2:15pm

Thanks cb - I'll be very interested in seeing the final results. Here's hoping no more hits.
peace
domm

Title: Re: 02/02/03 Cluster trial update
Post by JDH on Feb 2^nd, 2003, 11:11pm

cbolony,
Did they have you take the Civamide only for that one week?
It's been about a month now since I finished the study and I'm still getting hit nightly. The day the study ended the Dr started me on 60 mg Pred, o2 and 240mg Verapamil (which he has since doubled).
Hope you get to keep adding those no's to your chart.
PFDAN's to you.

Title: Re: 02/02/03 Cluster trial update
Post by cbolony on Feb 3^rd, 2003, 10:55am

JDH sorry that you are still getting hit.I took the Civamide or the placebo for one week twice a day.When
I get ch I let it run 15-20 mins to see the pain level
whice they want to know mild, moderate, severe and then I take a imitrex injection.Those 15-20 mins felt like
hours as I watch the clock.I will try to find out when the study is over if I had the Civamide or placebo