Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> One lucky family ???
        
(Message started by: netniet on Dec 29^th, 2002, 5:23am)

Title: One lucky family ???
Post by netniet on Dec 29^th, 2002, 5:23am

I have a question for all of you.

Is anyone familiar with along family history of clusterh.

It seems my family thing :-/,
cause my great grandmother, grandfather, father and last but not least I :(.
Allso some uncles, cousins etc. (all from father side of the family) suffer from clusterh.

I never heard this before and cluster isn't now as a family happening.
So I was wondering are we the lucky ones ???

Ninet

Title: Re: One lucky family ???
Post by Brassbear on Dec 29^th, 2002, 5:35am

Ninet: From everything I've been able to find CH is not supposed to be hereditary. However, my father has both migraines and CH just like I do. As far as I know, that's all for my "blood kin".

Just found out a couple of days ago that my daughter in law is also a clusterhead.

Michael

Title: Re: One lucky family ???
Post by Bob P on Dec 29^th, 2002, 8:22am

The articles I've read say CH is 10 to 20 times more frequent in relatives of a clusterhead than in the general public.

I hope you guys have filled out the Heredity Survey on the OUCH Surveys page.

http://www.clusterheadaches.org/library/general/heredity.htm

Title: Re: One lucky family ???
Post by suzy617 on Dec 29^th, 2002, 9:09am

Hi Netniet, There is nobody else in my family that has ever had CH so I guess I was picked to be the lucky one. :(

suzy

Title: Re: One lucky family ???
Post by Drk^Angel on Dec 30^th, 2002, 4:15pm

I believe the IHS is supporting the idea that approx 7% of clusterheads carry a dominate gene contributing to their disease. The final draft of the IHS proposed revision of the diagnostic guidelines contained the information, but I haven't seen the new official guidelines yet to be sure that it was kept. Last I read, they were planning to publish the new guidelines in January.

PFDAN............................... Drk^Angel