Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> Jonny
        
(Message started by: Silver_Dolphins on Dec 27^th, 2002, 8:06pm)

Title: Jonny
Post by Silver_Dolphins on Dec 27^th, 2002, 8:06pm

I am confused (what else is new). Some doctors have told me I need to use a rebreather mask, yet everyone here says NON rebreather.

I am starting my 02 treatment Monday, as soon as I find a new neuro. Firing this one. When I call his office for a prescription, I damn well expect it, so here I sit with a kip6, pissed as hell, and am considering driving to the EMS station, but I need to know EXACTLY how to use 02.

Thank you.

Barry a/k/a Silver Dolphins

Title: Re: Jonny
Post by jonny on Dec 27^th, 2002, 8:16pm

You want to use a non-rebreather mask at a flow rate of 8-15 LPM's

Give me a few mins and ill post a pic of the mask.

.........................jonny

Title: Re: Jonny
Post by Silver_Dolphins on Dec 27^th, 2002, 8:20pm

Thank you. Thank you. Thank you. I guess it is too late now to go to the EMS, but when the next one hits, I will be pestering them.

Watch, the station will be deserted because of some disaster.

Title: Re: Jonny
Post by jonny on Dec 27^th, 2002, 8:33pm

Dennis (Pimplestilskin)

Bail me out, Dude......cant find the pic on my hard drive.

Sorry, barry.

got any questions, mail me, Bro.

...........................jonny

Title: Re: Jonny
Post by Frank on Dec 27^th, 2002, 9:09pm

Here a link to a picture of a non-rebreather mask...http://www.jlenterprise.com/nrbmx.html
The mask has a one way valve that allows the tank to fill the bag O2. When you exhale, that air goes out through one way valves in the mask. So you're not re-breathing stuff you already breathed once; hence the name.

Depending on how you breathe, you usually need to gently squeeze the bag when you inhale. Sometimes the valves on the sides of the mask fall off or leak, so you might need to block them (another great use for duct tape). The idea is to be breathing 100% oxygen.

If you are using O2 at 6-15 LPM, don't fall asleep whith it on... easy to do at night when the pain starts fading. You won't die, it will just dry your lungs out which hurts.

If your doc gives you the wrong mask (intentionally or un-intentionally), head down to one of those home health stores that sell wheelchairs, walkers, and 3 foot tall toilet seats. Many also carry O2 masks.

Title: Re: Jonny
Post by brain_cramps on Dec 28^th, 2002, 4:48am

Good point Frank!!!

on 12/27/02 at 21:09:21, Frank wrote:

If you are using O2 at 6-15 LPM, don't fall asleep whith it on... easy to do at night when the pain starts fading. You won't die, it will just dry your lungs out which hurts.

Title: Re: Jonny
Post by Not4Hire on Dec 28^th, 2002, 10:31am

here's a link that may help:
...an oxygen primer...
http://tinyurl.com/3voa

Good luck!

Title: Re: Jonny
Post by RobinT on Dec 29^th, 2002, 10:31am

when i had my first series of CH's (7 yrs ago), I remember my Neuro gave me a slip of paper to take to the ER, outlining to put me directly on 02 and skip the crap. HAHAHAHAHAHA......first we did my insurance info, then they felt the need to take blood pressure, temperature, etc., by the time they were done, my CH had run it's course. Last trip to the ER for me.

(sorry, not related, just reminded me of the experience)

Title: Re: Jonny
Post by Silver_Dolphins on Dec 29^th, 2002, 10:46am

I have heard all the horror stories of the ER visits. I know what would happen. The Beast would leave and they would all think I was just trying to get some drugs or that I was nuts.

On a better note, I went to the firestation the other day and introduced myself to the crew on watch. They said they would be more than happy to facilitate my requests and understood the situation. These were the FIREFIGHTERS not the EMT's. However, they also said they would relay my requests to all the shifts, so that nobody gets surprised at 2 am.

I have not had to go to the station, but it is good to know that I can. It is less than a mile from my house.

PFDAN

Silver Dolphins a/k/a Barry

Title: Re: Jonny
Post by jonny on Dec 29^th, 2002, 10:50am

Way to go, Barry!!!!

Jake's Rock!!

Others have done this also.

...............................jonny :D

Title: Re: Jonny
Post by RobinT on Dec 29^th, 2002, 1:25pm

perhaps i will visit the firehouse (good thing we give a donation, heh?)

sorry.....not funny......but i couldn't resist (i have a strange sense of humor....especially when i'm in pain)

Title: Re: Jonny
Post by jonny on Dec 29^th, 2002, 1:52pm

on 12/29/02 at 13:25:32, RobinT wrote:

sorry.....not funny......but i couldn't resist (i have a strange sense of humor....especially when i'm in pain)

Your not talking about having a sense of humor while in CH pain are you?

.....................jonny

Title: Re: Jonny
Post by RobinT on Dec 29^th, 2002, 4:45pm

sadly enough i am. not in extreme 8-9 pain mind you (that would be sumthing to see, heh?). this current bout is a strange one (imagine that). for the last 5 days, i think i've only had a few hrs each day with the pain level being a 1. i can joke at 2-3.....not much more, but i can joke

just got finished looking up in the phone book my Neuro's name....i hate the thought of all this b.s. ahead of me

also just realized i wasn't in remission for 6 yrs....had a bout 3 yrs ago...just didn't know what it was...i feel so dumb

Title: Re: Jonny
Post by Ted on Dec 29^th, 2002, 8:49pm

on 12/29/02 at 16:45:17, RobinT wrote:

also just realized i wasn't in remission for 6 yrs....had a bout 3 yrs ago...just didn't know what it was...i feel so dumb

Anyone? ANYONE?

Title: Re: Jonny
Post by cootie on Dec 29^th, 2002, 9:14pm

NOPE not sayin a word......... :-X :-X :-X :-X :-X :-X :-X

Title: Re: Jonny
Post by RobinT on Dec 30^th, 2002, 9:01am

~as i sit here sniveling away~ I called the Neuro's office today. Six years, hmmmmmmmmm, new patient. Need a referral (no kiddin'). The dr. can see you in 2 weeks.....yeah, right.

Obviously this receptionist has no compassion for CH pain (can't blame her, she' clueless).

I am feeling sorry for myself this a.m. Gotta snap outta it.

Jonny.....no feedback from others......I don't understand.....am i stupid for not realizing i had an "attack" 3 yrs ago?????

I don't know if i am more scared to have another attack or for tomorrow with the new doctor :'(

Title: Re: Jonny
Post by cootie on Dec 30^th, 2002, 10:01am

I 'member Brad's attacks and episodes almost to the....' T '......and I'm jus a supporter......I remember the years they started back up and what we was into at that time or doin......hard thing ta fergit.....it's imprinted in yer mind jus like every trip ta hell. Good luck to ya with yer new nero.....our new one in town has a 3 to 6 month waitin period.....Pam

Title: Re: Jonny
Post by RobinT on Dec 30^th, 2002, 7:04pm

thanks Pam.

I think the reason I didn't realize what was happening 3 yrs ago is that I had gum surgery (along the jawline where pain occurs). I was on a lot of narcotics. I remember for the last 3 years I thought the periodontist was a butcher and looking back, I remember the look on his face that he did not believe I could possibly be in the pain that I was in (I went to see him every other day for months). They then sent me to an endontist, however, he was not the right person either.

I feel so ashamed for the things I said about him ~blush~

Title: Re: Jonny
Post by cootie on Dec 30^th, 2002, 7:24pm

Robin.....it's live and learn.....trial and error and sink or swim world were in......you'll be ok.........Pam ;D