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        New Message Board Archives >> 2002 Posts >> First post: Cold Water Therapy
        
(Message started by: rat on Dec 19^th, 2002, 6:25pm)

Title: First post: Cold Water Therapy
Post by rat on Dec 19^th, 2002, 6:25pm

Hi All, This is my first time here and I feel better already knowing that you all understand. It is hard to explain to to others. I have been suffering for about 7 years now, and before I was diagnosed I had no idea what was going on. I have good results with Immitrex and Oxygen. However, given that Immitrex is strong and limited in the amounts to be taken in a 24 hour period, I prefer oxygen, but it is not feasible to carry around an oxygen tank. Lately, I have had good results by sticking my head under the cold water tap in the sink. I soak the entire head first and then focus on my left side (where the pain is) and let it run on my eye if it is a really bad one. If I catch the headache before it sets in fully it tends to work very well, but it may come back. What I try to do is soak the head in the coldest water I can stand and wait until the pain changes from headache to a sting from the coldness in the water. It is a very noticeable change and given the pain of our headaches it is really not bad at all. Hope it may help some of you and good luck over the holidays. RAT

Title: Re: First post: Cold Water Therapy
Post by jonny on Dec 19^th, 2002, 6:31pm

First of all, give me a name....I dont like calling someone rat unless they deserve the name ;D

Try the link to the left "Imitrex tip" you can cut the shots in thirds.

.........................jonny

Title: Re: First post: Cold Water Therapy
Post by rat on Dec 19^th, 2002, 6:38pm

The nickname was given me with no negative connotations and I have been called much worse, so please call me Rat or The Rat if you prefer. I find the Immitrex injections a little too strong and only use them if I wake up with a headache already fully rooted if you know what I mean. But try the cold water with the ones you catch in the early stages. Rat

Title: Re: First post: Cold Water Therapy
Post by jonny on Dec 19^th, 2002, 6:41pm

Imitrex injections are 6 ml, the Trex tip will have you taking 2 ml which aborts CH for many people.

Less drug, less money.

...................jonny

Title: Re: First post: Cold Water Therapy
Post by Linda T on Dec 19^th, 2002, 6:44pm

Hi Rat and welcome. Sorry that you've had to seek this place out. Glad that cold water works for you. It seems to help alot of people but for me its hot water. The hotter the better. Stand in the shower until your blood boils hot. But, whatever works, right?

Good luck and wishing you all PFDAN always, Linda T

Title: Re: First post: Cold Water Therapy
Post by paul_b on Dec 19^th, 2002, 6:46pm

Jonny, how can I develop an attitude when you are being so kind and helpful. Cut it out!!! :o :o :o

Title: Re: First post: Cold Water Therapy
Post by jonny on Dec 19^th, 2002, 6:54pm

Long haired, Tattooed, potty mouth people can add some thing when it comes to helping people, Paul.

Dont let no nazi, selfrighteous, good guy wanna be change that view.

.........................jonny :D

Just to let you know im still me I'll leave you with this.

FUCK!!!!!!!

Title: Re: First post: Cold Water Therapy
Post by Mark C on Dec 19^th, 2002, 7:01pm

Welcome rat,
Sorry you need us but glad you are here. We are a varied bunch, you will find the hots as well as the colds here. Personally I am a hot guy, but whatever works. Thanks to Bob I don't need to search too hard to find the following "cures" and "treatments" offered on this board...thanks Bob.

on 11/02/02 at 15:08:53, BobG wrote:

A quick search, copy and paste and we have a list of fixes for clusters.
These are just the first couple of years of this board.
They were all posted at this site.
I do not endorse nor dis-dorse any of them.

a non-invasive killing of the nerves surgery
BC-Pain Relief powder
sneezes 6 times cycle will start, 6 more and it stops
try a hypnotherapist
snorts cayenne pepper
being pregnant stops her ch
a medical student with a cure but won’t share it
Norgesic Forte
gives herself DHE shots
Feverfew
non-prescrip anti-histamine tablets stopped ch
Pot helps a lot
emu oil
Radio Frequency Lesion
Magnesium
LSA & LSD
aspirin & ibuprofen
ear plugs stop ch
go on a diet to stop ch
Drez Procedure
Tylenol and Xanax
Charge Plus 2
hypnosis and a nice bath
Duragesic Patch
histamine phosphate by IV stops clusters
Vioxx
Stereotactic Radio Frequency Rhizotomy
takes other people's percocet
gamma knife
try a colonic
craniofacial manipulation
take Fioricette and lay down
alcohol drink "brain wrench" stops ch
try peppermint oil on the lump on your neck
aspirin
narcotics
hyperventilation will cure clusters
clip corrugator muscles
accupuncture
lowering cholestrol will reduce ch
a chiropodist fixed his pelvis & cured ch
O2Zone
wears a device in his mouth to stop ch
Percodan
Oxicontin tablets
Asprin with codine
Elimination diet
capsaicin cream
GABA
saline injections in your fat
jacking off
2 benedryl, 2 aspirin, & coffee cures ch
morphine shots
anti-biotic shot
Stadol & other opiates
a very tight hat band
food additives need to be flushed out
cluster cure is mind over matter
ch is caused by depression and cured with caffine
post-heart attack meds
Advil and chiropractors
Ambrotose
wants a bone in his neck shaved
his church prayed for him and he was cured
the schroom treatment
Oragel
Atlas Orthogonal
chelation therapy
ride a bike real fast
valerian root
Blue Green Algae, magnezium, B6 and pot
hycodan
pray to Jesus and quit smoking cures ch
Omega-3 in fish oil
cuts off blood to head ‘til he passes out
sphenopalatine ganglion block
Alegra
Relaxatia
sniff amonia
tilting his head back will stop ch
Sharper Image Quadra Ionic Breeze ionizer
shots of cortizone in the back
sniff Camomile
dental bite reshaping stops ch
crush and snort imitrex pills
Midol
orgasms will stop her headaches
Prozac
excersize
squirt Xylocaine up your nose
DEEP neck massage
Migra-lieve
effedrine HCL
diflucan
Nasal Irrigation
take Diazepam with a beer or 2 or 3
acupunturist taped magnets and birdseed to his ears
oxycontin & percocet
ectasy
a hard-on will keep blood from head and stop ch
ibuprofen and Red Bull
NAET(nambudripad allergy elimaination technique)
Inderal and Peritrate
her Harley's vibration stops ch
Passion Fruit
fruit juice stops ch in people with Hypoglocemia
Valium
ULTRAM 50 mg tablet mcn
takes narcotics as prevenative but is not in cycle for 3 years
Tahitian Noni Juice
Says ch is cured by Deliverance or exorcism to cast out devils
Ace Inhibitors
Phalenz
DRUGS, DRUGS!
Phallenx
Actiq lollipop
do excerises
Testosterone treatment
ginger powder
had trigeminal nerve removed
drink 64 oz of water a day
lidocaine shots around the eye
see a medicine man from some tribe
try holotropic breathwork
give access to the cosmic unconscious
ear candling
high colonics
cayanne pepper

IMHO, the winners are!
novacaine shots in the back of the head
uses a pad sander to message his head
taking a shit relieves a ch

Note: I gotta get a life. :(

Title: Re: First post: Cold Water Therapy
Post by Roxy on Dec 19^th, 2002, 7:18pm

Hi Rat...welcome to the club. If tonight"s like last night, your cold water will get played in this house. I'll try anything once. When you find something that works for you w/no side effects....that's great. (Can really bad looking hair be a side effect?)

Mark,

That was absolutely the best thing I have read in ages....got to print it off. Harley vibrations...hmmmmmmmmmmm. Don't get a life...you're much to entertaining now!

Title: Re: First post: Cold Water Therapy
Post by domm on Dec 19^th, 2002, 7:43pm

Rat - welcome to clusterville. Glad you found something that works. Cold for me also, although I haven't stuck my head in the freezer yet. Oxygen and Imitrex to abort, Verapamil to prevent.

Roxy - that thread on the big "O' has you fixated, now its motorcycle vibrations.... ;D Slammy will be sniffing around soon enough... ;D

Title: Re: First post: Cold Water Therapy
Post by suzy617 on Dec 19^th, 2002, 7:52pm

Welcome to the family Rat.
Mark: Just want to know how long it took you to look that stuff up, LOL. ;D
Jonny, thanks for my heart. ;)

suzy

Title: Re: First post: Cold Water Therapy
Post by Marc on Dec 19^th, 2002, 8:01pm

Suzy,

If you read Mark's post you will see that he gave Bob credit for the list. (That's Bob G)

Marc

Title: Re: First post: Cold Water Therapy
Post by jonny on Dec 19^th, 2002, 8:14pm

That heart says, Suz...all over it.....glad you like it.

.....................jonny :D

Title: Re: First post: Cold Water Therapy
Post by suzy617 on Dec 19^th, 2002, 8:15pm

Sorry, missed that part. Went out for some Christmas Cheer after work, guess it dulled my brain some. :D

Title: Re: First post: Cold Water Therapy
Post by cootie on Dec 19^th, 2002, 10:01pm

Harley vibrations, long hair, and tatts.......with sum added potty mouthin....now yer talkin !!!! My girlfreind does my tats.....good stress relievers !!! Pam

Title: Re: First post: Cold Water Therapy
Post by Charlie on Dec 20^th, 2002, 3:12am

I can't add much Rat but here is my thing. The damn thing works for many and it is NOT a psychic thing.

Dr. Wright's Circulatory Technique

This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.

When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.

This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.

I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.

This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.

When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.

I wish you the best of luck - Charlie Strand

Title: Re: First post: Cold Water Therapy
Post by Drk^Angel on Dec 20^th, 2002, 12:02pm

Welcome to the board! Sorry that the beast has filled your cranium with hungry, diseased rats that are now biting and tearing through your eyesocket trying to rip their way out. Good luck!

PFDAN......................................... Drk^Angel

Title: Re: First post: Cold Water Therapy
Post by Margi on Dec 20^th, 2002, 12:22pm

Just a quick note to newbies.... BobG's list was posted in jest, gang - please don't think that we want you to try all the things listed on there - especially taping bird seed to your ears or sniffing BLEACH!! ::)

Rat (i'm with Jonny on this one, can't you give us a first name??) you might want to try an ice pack instead of drowning yourself under the tap. You're right in seeking cold for relief, but those gel-filled ice bags do a much better job. So will a bag of frozen corn or peas.

Also, if you are otherwise med-free, you may want to try the water treatment - the Water x3 button on the left - it has had good results for some folks who are otherwised unmedicated. Be sure to take a multi-vitamin along with it though - you don't want to wash out the good stuff!

Hope you find some relief soon.

Title: Re: First post: Cold Water Therapy
Post by rat on Dec 20^th, 2002, 5:11pm

Hi guys, thanks for all the positive energy, I do prefer Rat but my first name is Rob. I wish I had a harley to try. I have also tried the ice packs but water works much better, at least in the winter. Thanks again for the welcome and I wish you all a PF holiday season. Rat

Title: Re: First post: Cold Water Therapy
Post by Ree on Dec 20^th, 2002, 6:56pm

What is with the sudden name paranoia... sheesh if I can be Ree he can be Rat.... Welcome Rat~~ but if you come to chat I might call you Mouse ~~http://members.tripod.com/~katyskubicle/mice2/mouseworry.gifI have a habit of makin up my own names for people... One thing my hubby likes to try is takin an imatrex tab before bed that way when the rem sleep sets in and he gets hit hes ready... and it lessens the severity... good luck Welcome again... ree

Title: Re: First post: Cold Water Therapy
Post by OneEyeBlind on Dec 21^st, 2002, 5:00am

Welcome to the board Rat. Glad the cold water works for you. I am a heat seeker myself ... get those wet towels in the microwave and heat them up ..... hot swari wrap !!! But i only do that if my Imitrex and O2 runs out ... which I ain't gonna let happen !!!

Title: Re: First post: Cold Water Therapy
Post by firebrix on Dec 21^st, 2002, 4:23pm

We have a good friend called Rat. I like the name and him and think we should be allowed to call ourselves whatever we wish. Some people do have a thing about anonymity.
Maybe as newcomers to this site, some people are afraid to divulge their full names, but will do so as soon as they realise this is a family.
WELCOME RAT!! Sorri you had to find us!
firebrix

Title: Re: First post: Cold Water Therapy
Post by cathy on Dec 21^st, 2002, 5:43pm

:)
Welcome Rat ........you've come to the right place if you want the good, the bad or completely ridiculous....

All the friendship and support you'll need you'll find here......wishing you ....PFDAN's

Cathy :)