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        New Message Board Archives >> 2002 Posts >> They refused me for the trial...
        
(Message started by: ave on Dec 7^th, 2002, 12:50pm)

Title: They refused me for the trial...
Post by ave on Dec 7^th, 2002, 12:50pm

The Academic hospital in Leiden, hereabouts, is mounting a full scale MIR scan for clusterheads, to get as much info on our cooky brain they can.

I was sollicited to take part.Then when I phoned on, I got turned down. :( .
Turns out I am not a true episodic OR a true chronic either, at this point in time. Used to be episodic. Since spring I have had 1/2/3 painles attacks almost every day. (Except for the one occasion I forgot myself with liquorice.) Low level chronic is what I say, but that's not on the books.

It is a shame. They need people to take part. I was willing eniough, but my case is not clear cut. I DO understand. They need evidence that cannot be refuted. Also, insurance does not pay for the MIR scan, since there is already a diagnosis. Precious research money would be wasted on a wishy washy case like myself.

So... let's toddle on till somebody needs me again.

Title: Re: They refused me for the trial...
Post by cerebus on Dec 7^th, 2002, 3:39pm

ummmm....kinda self defeating ,that study, since they refused you ,not so sure I want to be a part of those stats anyway if the criteria is THAT selective.
Cerebus

Title: Re: They refused me for the trial...
Post by cbolony on Dec 7^th, 2002, 5:00pm

ave i am going monday to the new england head clinic
for the trial i we let you know monday night if they
take me .