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        New Message Board Archives >> 2002 Posts >> Hoooray
        
(Message started by: WendyHowe on Nov 30^th, 2002, 5:32am)

Title: Hoooray
Post by WendyHowe on Nov 30^th, 2002, 5:32am

Dear All (especially Ree, Sonny and Randy)
Just to close a chapter, I saw the neuro for the first time today. He immediatelly diagnosed cluster, was very knowledgeable, very helpful, very everything I wanted him to be.
From reading endlessly from this site and the UK one (where I play mainly now) he is suggesting all the right treatments to my GP + a few back-up ones of the first choices don't work. He has taken me off all the unsuitable drugs i was being prescribed (some of which e.g. pethidine I wasn't taking anyway)
I count myslelf as phenomenally lucky as I have only had to have three GP's appointments and one Neuro meeting to get to this, and all in one month. So many of you have not been so lucky, but there obviously are good ones out there.

A huge thank you to you and the UK site for all the information, support and advice. It was worth more to me than I can say

Wendy

Title: Re: Hoooray
Post by Donna on Nov 30^th, 2002, 6:56am

It's so nice to hear of good Dr/Patient relationships and proper diagnosis and proper meds.

You are lucky, and we are happy for you.

Wishing you the best,
Donna

Title: Re: Hoooray
Post by rumplestiltskin on Nov 30^th, 2002, 7:03am

Pip pip...well done then...lovely to hear of such positive work being done. I often lurk at the UK site. It's so...so...civilized....and they write in English there.

Is it just me or does the percentage of Clusterheadache sufferers on that tiny isle seem high ?

Love that sound thingy on the chat there!

cheerio
den

Title: Re: Hoooray
Post by Edna on Nov 30^th, 2002, 7:23am

Always loving to hear when the news is good, glad that you are having such success with your docs........pf wishes for you

EDNA

Title: Re: Hoooray
Post by ave on Nov 30^th, 2002, 9:44am

Wendy, in your thankfulness, "donate" the name of that good doctor to the OUCH site, where they collect those names, for other people.

Title: Re: Hoooray
Post by WendyHowe on Dec 1^st, 2002, 6:16pm

Dear Ave
Have done it. Unfortunately the neuro I saw was private. No, Den , I'm not rich 'Pip,Pip' public school type- it is a company scheme. (actually I've never, ever heard anyone in the UK say Pip, Pip)
Yes we on the OUCH UK site mostly speak/write English - that's because we invented it and American English is a bastardisation of the language- no offence meant, just a fact, and mostly people on the OUCH UK site do not abuse each other verbally like some of you do on this one. I for one enjoy both sites as they are so different.
One indication of how different is that you can openly discuss explicit matters on your site. I got censored out on the UK one for putting in the word 'orgasm'!!!!
We're not really sexually repressed over here, well not much anyway, only when in cycle!

Cheerio, Pip Pip, Toddleoo etc etc from the Brit.

Title: Re: Hoooray
Post by WendyHowe on Dec 1^st, 2002, 6:22pm

Den
Sorry forgot to write about percentage sufferers in the UK in response to you. As I understand it, CH affects 0.1% of the population. That makes it one helluva lot of people out there, many many thousands- and OUCH UK has less than 500 members. (No idea what the population of the UK is right now)
It also makes stonkingly enormous numbers of people in the US, and makes it even more pathetic that the Doctors often don't recognise/treat it properly .
It's the same percentage as MS sufferers and everyone knows what that is.

Title: Re: Hoooray
Post by Drk^Angel on Dec 2^nd, 2002, 1:20pm

England created English? I thought English was a bastardized version of the languages used by various germanic tribes which populated Great Britain in it's earlier history.

PFDAN........................................ Drk^Angel

Title: Re: Hoooray
Post by WendyHowe on Dec 2^nd, 2002, 1:29pm

Quite right Mr Linguist. Indo-germanic I think you'll find. But we also have indigenous languages such as Gaelic.
But while we are on the subject, almost no-body speaks your indigenous language do they?

Title: Re: Hoooray
Post by Drk^Angel on Dec 2^nd, 2002, 2:23pm

I don't have an indigenous language. I normally just speak whatever language everyone else is using.

PFDAN............................................ Drk^Angel

Title: Re: Hoooray
Post by fubar on Dec 2^nd, 2002, 2:48pm

I have travelled the world, and actually lived in the UK (Windsor) and Japan (Tokyo) for a while. For those in need of a dose of pure xenophobic arrogance, you can't beat those two countries. Don't get me wrong, I have nothing against either country, I have plenty of (native) friends in both places that would agree with me.

for the record... they speak English in the UK. I don't know why they insist on using words improperly ("My spare tyre is in the boot") but they claim ownership of the language, so who am I to argue? And when was the last time you went out in the rain with a rubber on? Been a while for me.

Of course, I'm just taking the piss out of you...

-fu

Title: Re: Hoooray
Post by WendyHowe on Dec 2^nd, 2002, 4:47pm

No, no, no , we go out in the rain in a mac'. We rub out pencil lines with a rubber!