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(Message started by: canadajim on Nov 24^th, 2002, 8:10am)

Title: alcohol triggers
Post by canadajim on Nov 24^th, 2002, 8:10am

Like everyone I dread going to bed my cycle is 1 hour sleep 1 hour pain usually 4 to 7 attacks per night.Being Canadian I love to have a beer but I have abstained as it is a major trigger when I`m not sleeping.Last night I gave in my son scored 2 goals against a very tough hockey team and I just had to celebrate. My sister in law suggested drinking Corona and I have to tell you I had 5 came home and slept like a baby.As I type this I have a shadow but I just wanted to share this with everyone.{ and no, I don`t work for Corona ha ha}

Title: Re: alcohol triggers
Post by captdshea on Nov 24^th, 2002, 8:43am

Hello again Canada Jim-Maybe you got lucky, I drink
only Corona with lime. But, I'm not able to even finish one when in cycle, HA graps me everytime.

Like you I'm A big Hockey fan, And grew with the Bruins
in the days of B. Orr , I visit ST. Catherins form time to
time and often see Stan Johnathan, At A friends home.
This is the six nations res. of the mohawks.

Hope the Corona continues to be kind to you. Wishing you Pain Free days and nights.
David

Title: Re: alcohol triggers
Post by 2late on Nov 24^th, 2002, 8:51am

alcohol is a definate trigger here to, i drink draft beer & corona don't come in a 1/2 barrel >:( but i'll gladly buy a case if it works. Lemieux will be the oldest player in history to win the scoring title this year ;D ..........2late

Title: Re: alcohol triggers
Post by canadajim on Nov 24^th, 2002, 9:50am

Thanks for the good wishes and I also wish the same for every one. I was told not just corona but any light beer might work. and the big M is having a great season

Title: Re: alcohol triggers
Post by captdshea on Nov 24^th, 2002, 10:03am

2late- Mario is the king, And all take the back seat to
him, even Wayne the greatest, And I hate to say it put
ORR him self. Great Hockey town Pittsburgh has become.

Jim, I saw Brad Park on T.V. A few months ago, commenting on the assault charges issue, What A change. Guy Lafluer WOW! D. Sanderson would be serving life if he was still in the NHL. ;D

David

Title: booze the other team
Post by rumplestiltskin on Nov 24^th, 2002, 10:07am

...I drank heavily everyday...in and out of cycle...It did not start em and it sure didn't stop em.

Verapamil did stop them...months before I finally got sober.

Just my story.

Walk in the sunshine
den

Title: Re: alcohol triggers
Post by canadajim on Nov 24^th, 2002, 10:12am

that`s for sure imagine phillie with bobby clark? those days are over

Title: Re: alcohol triggers
Post by don on Nov 24^th, 2002, 10:15am

My guess is luck. Alcohol is the trigger, not what nit is mixed with.

If your episodic and in cycle I will personally guarantee an nattack 99.08 % of the time. You may be the .02% THIS time.

As for Den, he is the .02 % in all cases any way.

Run in the rain

Title: Re: alcohol triggers
Post by Ueli on Nov 24^th, 2002, 11:31am

Great math, Don, but what happens to the remaining 0.9% ? ;D

Title: Re: alcohol triggers
Post by cootie on Nov 24^th, 2002, 11:46am

canadajim....Bradley drinks Miller 'lite' (wuss) and once his cycle started he would get hit within the hour....wether he had 1 or 10....or 20....or.....anyhow, he tired other beers, wine coolers....he found out he'd have 'several' attacks durein the nite if he drank at all 'while in cycle'......course he kept tryin....ouch...to bad it's not a cure...he'd of been drunk fer 6-7 weeks round the clock tho !!!....jus my two cents here of info.....

Title: Re: alcohol triggers
Post by canadajim on Nov 24^th, 2002, 12:18pm

To all I guess I jumped the gun and got excited about the first pain free night in a month we`ll see tonight.

Title: Re: alcohol triggers
Post by Mark C on Nov 24^th, 2002, 2:16pm

Episodic and when in cycle alcohol is an invitation to the beast to dance......... however, when out of cycle.... last night a couple of "George Killian's Irish Red's" , in a frosted mug, were quite good. ;D
Congrats on the pain free night now matter how it happened!

http://uselessgraphics.com/peop87.gif

Title: Re: alcohol triggers
Post by don on Nov 24^th, 2002, 2:59pm

Quote:

what happens to the remaining 0.9% ?

Migraines

Title: Re: alcohol triggers
Post by Ann on Nov 24^th, 2002, 5:48pm

LMAO Don!!

Jim, I thought I would try having a beer too. Had a Corona (my beer of choice...unless Moosehead is available) I hadn't drunk half the beer when I was hit..big time! Until I'm sure the bastard has moved on, I will not touch another beer. Makes for a very dry Christmas! Hope you have better luck than I!!

hugs
Ann

Title: Re: alcohol triggers
Post by suzy617 on Nov 24^th, 2002, 6:23pm

When I was in cycle I could not go near Coors lite, would do me in everytime but I found that I could drink vodka and club soda but would have to drink alot of it and each time I did on the weekends I would be pf the whole night. If I only had a few then it didnt work. Who knows though, maybe I drank so much that I didnt remember the next day that I had an attack. :)

Title: Re: alcohol triggers
Post by cootie on Nov 24^th, 2002, 6:50pm

Bradley thought if he drank ALOT verses a few (and then git hit fer sure )... he thought he'd be ok esp when we went out.....he'd actually do alright while out but he'd get hit after he went to bed within the predicted hour....nothin worse then a drunk guy goin thru that hell......he'd sober up purdy fast tho.....he'd sorta scare me tho at first !!!!

Title: Re: alcohol triggers
Post by Matt30 on Nov 24^th, 2002, 8:36pm

I am a big beer drinker myself and same thing.it's a big no.no when in a cycle.I havn't touched one and won't til cycle is over,but for those of you that don't know ,you can drink Vodka,it's not my choice of beverage but a couple screwdrivers or bloodymary's go down pretty good,,couple other drinks you can have to but don't remember what they are. Anyway ,just thought I'd throw that everybody's way who didn't that about Vodka.
And it is fact not fiction about Vodka. :D

Title: Re: alcohol triggers
Post by Charlie on Nov 24^th, 2002, 8:59pm

I'm not a big drinker but when I had my CH, alcohol had no effect no matter how blotto I became. I have no idea why, Good luck kids.

Charlie

Title: Re: alcohol triggers
Post by don on Nov 25^th, 2002, 6:31am

I know why Charlie

0.9%

Title: Re: alcohol triggers
Post by Bob P on Nov 25^th, 2002, 8:32am

Matt,

Just curious what the "fact" is about Vodka?

Vodka was my drink of choice. When in cycle it meant a full blown attack within 15 minutes. Any alcohol meant an attack and believe me, I tried them all (that's what alcoholics do).

Title: Re: alcohol triggers
Post by Matt30 on Nov 25^th, 2002, 10:40am

I received a list from my doc. with lists of do's / don'ts and when it came to drinks it's not the alcohol that triggers it's a ingredeit in the drink
and Vodka doesn't have it. Not making a arguement just telling what I read and the Vodka works for me ,doesn't trigger the beast. But I don't get all loaded cause don't want to mix the Trex injections with a load of alcohol in me,sorry it doesn't work for you.. I'll get the list and paste it in, will take me a little time for I have to scan it in at my fathers on his computer.I can also just email it to you if you want.
Take care,Matt

Title: Re: alcohol triggers
Post by cootie on Nov 25^th, 2002, 11:30am

Mat30...Hey if you don't post the do's and dont's could you email me a copy pleeeze ? We did alot of things wrong this past cycle....he was determin'd it was just sinus and didn't want to accept the CH's were back rite at first.....he was gobblin down the advils. asprin, and tylanol and doin the regualr over the counter sinus sprays.....he'd pound a few beers in the evening to relax which was all wrong to he foundout. Plus ta add to it all we had Chinese a few times and had heard that was bad !!! Thanx so much ...............

Title: Re: alcohol triggers
Post by Bob P on Nov 25^th, 2002, 11:35am

I'll save you the effort. Here is the list of cluster triggers:

"Alcohol, nitroglycerine, exercise and elevated environmental temperature are recognised precipitants of acute cluster attacks."

With clusters, unlike migraines, it's the alcohol, not what's in it.

I suspect that your doctor, just like my neurologist, handed you the list of things to avoid for migraines.

Alcohol is a vasodialator. Just what you don't need when fighting clusters. That's why your face flushes when you drink. That's why long time drinkers have the red nose with the spider web blood vessels. That's why you shouldn't drink when you're cold. The vessels dialate and you lose body heat faster.

I suspect that the mechanism which keeps your blood vessels in check normally is whacko when in a cluster and unable to fight the vasodialating qualities of alcohol.

Title: Re: alcohol triggers
Post by don on Nov 25^th, 2002, 5:32pm

Quote:

it's not the alcohol that triggers it's a ingredeit in the drink and Vodka doesn't have it

Throw that list away

Quote:

it's the alcohol, not what's in it

Damn straight and thats a fact

Title: Re: alcohol triggers
Post by Roxy on Nov 25^th, 2002, 5:41pm

Can someone clear this up for me? Please?

I assumed red wine was a trigger...it was pretty much a given that if I drank red wine, I would be hit.

But does all alchohol trigger them? Since I usually have one every night anyway...what the hell. The medical info on this sight said that if alchohol is going to trigger an attack, it would hit shortly after drinking.

Is alchohol still a trigger if it doesn't hit until 4 hrs. later?

R

Title: Re: alcohol triggers
Post by Ted on Nov 25^th, 2002, 5:49pm

For many clusterheads alchohol is a definite triger. For a few it's not. Only you will know if it's a trigger for you. It often triggers it pretty quickly. Does it always trigger it within four hours no matter what time of day you have a drink? And would you get an attack within four hours anyway? What I mean is do you get afternoon attacks everyday too and if not but had a drink with lunch would you definitely get an attack in the afternoon? That would probably determine it for you better than anything we can say to if it's a trigger for you.

Title: Re: alcohol triggers
Post by Drk^Angel on Nov 25^th, 2002, 5:58pm

It seems to me that I've read quite a few times in the past of people that only certain forms of alcoholic drinks seem to trigger an attack in them. I don't know. I normally drink beer, and I don't believe it has ever triggered an attack, but sometimes it does seem as though distilled liquors will occasionally act as a trigger. But then again, that's just me.

PFDAN................................. Drk^Angel

Title: Re: alcohol triggers
Post by Roxy on Nov 25^th, 2002, 6:03pm

Before I knew exactly what I was having, I never even thought to keep track of the attacks (tried not to think of them at all).

Since I live in two places...with a different lifestyle in both, I'll start keeping track. When I'm home at the ranch w/the kids, I very seldom drink. When I'm in Houston, we socialize probably 5 nights out of 7.

But...I'm usually going to get hit every night anyway, so I think I'll just go open that nice cab...

R

Title: Re: alcohol triggers
Post by Ueli on Nov 25^th, 2002, 8:08pm

If all alcoholic beverages except vodka are triggers then it's obvious not alcohol but taste is the culprit. Vodka is distinguished from all the others by the absence of taste. ;D

It is said that small amounts of alcohol is a trigger. Could be people gulp down vodka so fast (because it has no taste) that they are completely intoxicated before a CH attack can hit. ;D

But seriously, it is possible, at least for some people, that an interaction between alcohol and other food stuff can be a trigger. For me beer, wine, liquor on its on is not a trigger. But in combination with any dairy product, and especially hard cheese, gave me in days before preventatives a three hour screamer. Now I have to hit the oxygen 5 or 6 times, 10 minutes on, 20 minutes off. The bottle of Irish cream whiskey I bought 3 years ago is still almost full.

I just read today (here if you read German (http://www.aerztezeitung.de/docs/2002/11/25/213a1102.asp?cat=/news)) that alcohol speeds up one hundred fold the absorbtion of histamines from food. Could be that a large histamine boost is a trigger for me.

Ueli

Title: Re: alcohol triggers
Post by ave on Nov 26^th, 2002, 3:43am

May be it only works for non-Americans, Ueli (and Den of course).

I have had nights out with drink, in the midst of a cycle, and the only headache I had was a slight hangover next morning.

Title: Re: alcohol triggers
Post by ave on Nov 26^th, 2002, 3:45am

Got kicked out again.. to continue:

I know a lady who lives not far from me, who occasionally deadens attack courses with red wine.

She and I must be Don's 0,02 percent. (and I am the other 0,9 as well: used to have migraines)

However, I do not really recommend alcohol as a palliative!

Title: Re: alcohol triggers
Post by Ted on Nov 26^th, 2002, 4:12am

on 11/26/02 at 03:43:13, ave wrote:

May be it only works for non-Americans, Ueli (and Den of course).

You hear that, jonny? Not only are we now put in the ranks of non-Americans but in the likes of Den! Is there no shame? Is there no end to these constant insults?

Title: Re: alcohol triggers
Post by Riccardo on Nov 26^th, 2002, 4:30am

on 11/25/02 at 20:08:49, Ueli wrote:

For me beer, wine, liquor on its on is not a trigger. But in combination with any dairy product, and especially hard cheese, gave me in days before preventatives a three hour screamer.Ueli

Gosh, UELI.... there is an Italian cheese good for you!!!
is a "hard" cheese immersed in pure alcohol ;D ;D ;D ;D
...just joking ...... but this cheese really exist!

Title: Re: alcohol triggers
Post by suzy617 on Nov 26^th, 2002, 5:32am

Anyone in cycle now and who drinks vodka....I'm curious if you pick a night and just drink alot of it (I did with club soda) and see if you remain pf. As I said above, I did this a few times on a saturday night and never got an attack. I'd like to know if its just my temporary cure or if it works for anyone else. Unfortunately its something I couldnt do every night for 6 weeks but even 1 night pf was a good thing for me.
suzy

Title: Re: alcohol triggers
Post by Ted on Nov 26^th, 2002, 5:48am

You drank and had a painfree night? How was the next day for you? When I drink I'll now be painfree all night (used to be I'd get hit hard but the next day get relief). And the next day will be the same as my paranthetical comment. the "next day" thing is something I've known for years and watched it. The lack of attacks the same day is only a year or so old. What I'm watching now is how I'll get slammed really hard 2-3 days after drinking and trying to see if that is an actual pattern. Sounds like you've been getting some relief from drinking too. Care to watch out for that too and let me know your results? Are you worse a few days later, though you had respite the next day?

Title: Re: alcohol triggers
Post by don on Nov 26^th, 2002, 6:02am

This whole thread is ridiculous.

If alcohol is so important to you that you would risk a CH ("worst pain known to man") in order to drink it then perhaps there are other issues you need to look at.

Title: Re: alcohol triggers
Post by Ted on Nov 26^th, 2002, 6:12am

If, as some of us are reporting, we get a whole day of relief out of this, I don't see what's so ridiculous about this. And, especially as a chronic, one day of no attacks is worth risking. And was worth risking too when I knew in the old days that I'd get hit hard only for that night from doing it. You have a point and I probably fall into your point. But don't knee-jerk this method away either.

Title: Re: alcohol triggers
Post by suzy617 on Nov 26^th, 2002, 6:30am

Ted, I did not find any change in my ch pattern the following days, just a pf night was what I got out of it. And Don, alcohol is not an important part of my life. I drink only on weekends that I go out with friends and socialize. During the week I work 2 jobs, usually from 3am till 8pm so I feel there is no problem in going out on the weekends and letting loose. As Ted says, whatever gets one thru a night pf is a good thing. Sorry you dont approve. :(
suzy

Title: Re: alcohol triggers
Post by don on Nov 26^th, 2002, 6:58am

Ted, let me clarify

My post is directed towards anyone who is pretty damn certain they will get attacked but go ahead and drink anyway. I shouldn't have generallized.

If I thought alcohol would prevent or abort, I would have a pert time career touring the Jack Daniels Distillery.
"Pert time"
Thats Southern for "part time". At any rate............

Shut Up Ted!

Title: Re: alcohol triggers
Post by jonny on Nov 26^th, 2002, 5:38pm

on 11/26/02 at 04:12:32, Ted wrote:

You hear that, jonny? Not only are we now put in the ranks of non-Americans but in the likes of Den! Is there no shame? Is there no end to these constant insults?

I'm American but I aint no Pimplestiltskin (Den), How dare they lump us in, Ted!!!!!

The Bastards!!!!!

............................jonny

Title: Re: alcohol triggers
Post by MarkV on Nov 26^th, 2002, 6:00pm

interesting post.

My 2cents..

If I'm in a hard cycle, I've found all alcohol, including vodka is a serious trigger. Even a sip and I get a screaming jab. The only exception is tequila. I can drink that in almost all hard cycles without a problem.

Why? I have no clue.

Title: Re: alcohol triggers
Post by don on Nov 26^th, 2002, 7:16pm

It's the worm Marc. It's the worm.

Title: Re: alcohol triggers
Post by brad267 on Nov 26^th, 2002, 7:33pm

I can drink an O'Douls during a cycle... It's better than nothing... LOL

-Brad