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        New Message Board Archives >> 2002 Posts >> Help -new and scared: Fist time with CHs
        
(Message started by: Melissa11-8 on Nov 23^rd, 2002, 12:50pm)

Title: Help -new and scared: Fist time with CHs
Post by Melissa11-8 on Nov 23^rd, 2002, 12:50pm

:'(

My user name is Melissa 11-8, cause that's my name and the date that this hell broke loose. I thought this was just another migraine and now I am loosing my mind and SO THANKFUL that I thougt to look for a sight light this. I was only married 2 months ago and my husband has a hard enough time with the ER trips with the migraines, but when this turned into 4 ER trips in 2 weeks with a 3 day hospital stay 036 hrs demorol - now they have me on so many meds with the words LITHIUM lingering I am just so scared and so confuesed I really need help getting a grasp on this

Title: Re: Help -new and scared: Fist time with CHs
Post by suzy617 on Nov 23^rd, 2002, 1:05pm

Hi Melissa, Have you been diagnosed as having CH? You should take the cluster quiz on this site. If you are having CH then there is alot of info on this site about which meds work good for some. Read all the info in here, you will learn alot.
suzy

Title: Re: Help -new and scared: Fist time with CHs
Post by Melissa11-8 on Nov 23^rd, 2002, 1:12pm

Yes- I was diagnosed last Thursday (day 14 of my migraine that the nuerologist now classified as a cluster headache cycle) I have downloaded clinical info on them and will read it when I can focus. I am ao thankful to have some where to go.17 days straight with pain and I can't take it much more, Now Im seing from reading that this probably will revisit me time and time again!

I had had Epstein Barr Virus in High School (22 yrs ago) and they swear this is unrealeated but I was sick over a year ago then. Dr. says this bought is usually 4 to 6 weeks,they have me on Topamax 2x day, verapamil 4x day, prednisone and pain meds. My vision and balance is shot and I am out of work for who knows how long.

I am trying to get my in laws, and husband to understand all this (my mother suffers from migraines so they have an idea but they are even very conserned). Its just very frustraiting not to be able to even cook a meal cause the pain is so bad! I guess it has to get better! I will look into this site much closer after I sleep today! THanks so much

Title: Re: Help -new and scared: Fist time with CHs
Post by jonny on Nov 23^rd, 2002, 1:20pm

Meegraines, meegraines, meegraines.....YEEHAW!!!!!!

All together now....MEEGRAINES!!!!!!!!

...................jonny

Title: Re: Help -new and scared: Fist time with CHs
Post by domm on Nov 23^rd, 2002, 2:45pm

Melissa - get to a neurologist. There is a list of recommended docs over on the OUCH website (button on the left). Your overlapping conditions are confusing to me and I don't have a clue what to tell you. Sorry you are in pain.
Good luck in finding the right set of meds that work for you.
domm

Title: Re: Help -new and scared: Fist time with CHs
Post by Charlie on Nov 24^th, 2002, 2:35am

Welcome Melissa and if you have clusters, you've found a good place for some help. One very good indication of clusters is that they wake you out of a sound sleep. If this is the case, you're welcome here and I hope you will stick around and contribute.

Chalie