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        New Message Board Archives >> 2002 Posts >> new on clusterheadaches
        
(Message started by: netniet on Nov 23^rd, 2002, 12:15pm)

Title: new on clusterheadaches
Post by netniet on Nov 23^rd, 2002, 12:15pm

First of all it's very hard for me to expres my feelings in english (I,m dutch so don't mind the mistakes). For over 4 years i have cluster. My first doctor didn't care, he sad come back sometime en we talk about your headaches (talk :o, I didn't want to talk I needed help!!!)
So almost 4 years I struggeld allone with no medication, nothing. Friends I told all said "I have headaches too" and they where right, how can you explain something you can't discribe ???. How do we describe this pain.There were times I had too get my son from his school (I was a single mother then) when i had this terrible pain. the other mothers must thought that I was loosing it. I couldn't work, my study, everything went wrong. There where day's that I wanted to jump out of my window (I live on the 4th floor). I did't want to sleep, cause this pain wake me every night...
Anyway you all now what it is.
Now its getting better I have a verry good docter I'm getting Imitrex injections and nasalspray. I still have this terrible pains but not as often as I was used too. But still at least 4 times a week almost always in the evening or at night I'm working again my study go's well.

When I read the stories of the people in the USA I think I'm better of because my insurens? will cover my medication. With all the pain, I don't have to worry about that.

Netniet

Title: Re: new on clusterheadaches
Post by domm on Nov 23^rd, 2002, 12:46pm

Net - welcome to the board, but I am sorry you are in pain. Glad you found a good doc. You didn't mention Oxygen. When used properly, this is a very powerful abortive that works for many (but not all). Read up on it here. Also, you didn't mention any preventatives. Many of us have found relief with Verapamil. Read through everything here and on the OUCH site (buttons on the left) You will then know more than most doctors.
Hope the beasts visit is a short one.
domm

Title: Re: new on clusterheadaches
Post by rick on Nov 23^rd, 2002, 4:44pm

Net-

Your English is much better then my Dutch ::).

Welcome to the board! You will find much information here, and hopefully some of it will help you out.

-R ;D

Title: Re: new on clusterheadaches
Post by Mark C on Nov 23^rd, 2002, 8:07pm

Sorry you need to be here, but glad you are. I think your english is pretty darn good myself. Please keep us posted as to how you are. Good luck.

http://animatedgif.net/welcome/wel21_e0.gif

Title: Re: new on clusterheadaches
Post by Charlie on Nov 24^th, 2002, 2:17am

Welcome to our little corner of the world of pain. Too bad this place is so crowded. Anyway, your English is excellent and you'll find you're not alone. I'm fairly sure one of our Ducth members will answer as well.

We know exactly what this is like and if you stay here and read some of the ideas, you'll likely find something to help you in some fashion. Stick around.

Charlie

Title: Re: new on clusterheadaches
Post by tommyD on Nov 24^th, 2002, 9:46am

Welcome!

You are lucky to live in the Netherlands.

First, there is a cluster headache website at:
http://www.clubs.nl/community/default.asp?clubid=13181

And, in the Netherlands, what we call the "shroom treatment" is legal. This can work very well, but there is much to learn first. Start here:
http://home.attbi.com/~rwold350/
and
http://www.geocities.com/ClusterBusters2002/

-tommyD

Title: Re: new on clusterheadaches
Post by echo on Nov 25^th, 2002, 8:45am

Welcome to the MB. Sorry you needed to search us out. Glad you found us.

Title: Re: new on clusterheadaches
Post by Murazza on Nov 25^th, 2002, 8:54am

Hi Netniet,

I'm glad you found a good doctor, mine isn't even listening right :'(

I only found this site three days ago, only posted my first today. I live in Rotterdam.

which city are you from? And where does that doc of yours live :)

Title: Re: new on clusterheadaches
Post by Drk^Angel on Nov 25^th, 2002, 4:16pm

Welcome to the board! Sorry that the beast is crushin' your cranium in a trash compactor. Good luck!

PFDAN..................................... Drk^Angel