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Title: Head Check Post by Mark C on Nov 20th, 2002, 5:05pm I was wondering how you all are feeling.........who's hurting right now and who ain't. Head check I guess. I hope for positive results.......thanks all. Mark |
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Title: Re: Head Check Post by ChristineL on Nov 20th, 2002, 5:07pm To quote James Brown................ "I feel good" Chris L |
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Title: Re: Head Check Post by jonny on Nov 20th, 2002, 5:09pm Teeth pain? 5 Bulging discs pain? Sciatica pain? Heart pain? Oooohh, head pain, doing pretty good in that relm for me. Thanks for asking, Dude. ....................jonny |
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Title: Re: Head Check Post by suzy617 on Nov 20th, 2002, 5:12pm Pain free for around 3 weeks now, awww life is good! |
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Title: Re: Head Check Post by Jackie on Nov 20th, 2002, 6:17pm Blake is getting the crap kicked out of him right now. This has been going on since August. :'( The strange thing is that it's mostly during the day. I've managed to get him an appointment with a new neuro.....we'll see ??? He may not know anything more than we do but at least maybe I can get him to write some different scripts. I know one thing for sure....he's GOT to get off the prednisone....it's been way to long. Jacks 8) |
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Title: Re: Head Check Post by eyes_afire on Nov 20th, 2002, 6:28pm Hi Mark. Glad to hear the good news. Hopefully you never get CH again. As for me, my current cycle started in September 2001 (yup, it's been over a year ::) ). But, I think it is finally ending. Last CH was about 3 weeks ago, but I'm still getting shadows :-/ ???. |
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Title: Re: Head Check Post by jonny on Nov 20th, 2002, 6:32pm Eyes, Thank you for sticking around!!!! ..............................jonny |
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Title: Re: Head Check Post by David Shea on Nov 20th, 2002, 6:34pm Hey Mark, PF FOR 9DAYS NOW! ;D David |
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Title: Re: Head Check Post by SommelierCH on Nov 20th, 2002, 6:37pm My cycle is peaking (I hope). The Big One always 2 hours after going to sleep, a Kip 5 late afternoon every other day and Kip 2-3 shadows most of the rest of the time (which seem to be helped by alternating aspirin and ibuprofen, which I know is bullcrap). Jonny, Sorry to hear about what you’re going through, shit, when it rains it pours. Just wondering if you can do a shot of Jack Daniels once in a while to help out? Or is that just a death sentence? Take care King, I’m praying for you. Pace, David J. |
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Title: Re: Head Check Post by eyes_afire on Nov 20th, 2002, 6:38pm No problem Jonny. You guys are a lifeline. Thanks for supporting, it means alot! There is no way I can leave this place, after experiencing the torment of CH. Cycle or no cycle, I'm here. This board has made a big difference in lives (Thanks DJ!), but there is much more work to be done. |
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Title: Re: Head Check Post by SFChris on Nov 20th, 2002, 6:47pm Been pain free for going on three months now, after an eight month cycle. Can I get a hell yeah? Hell yeah!!! |
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Title: Re: Head Check Post by catlind on Nov 20th, 2002, 6:48pm Well, I had been painfree since the first week of Octoberish, and just finished a short, weak battle with the beast 20 or so min. ago....Oxygen is my best friend, thank any and every deity or devil or whatever else you may or may not believe in for the O2!!! And especially Jonny, for making it right to use, and teaching me how to use it properly so it works. Beast wasn't supposed to show up again until T-giving, guess his invititation got lost in the mail and he decided to set his own date to come to dinner. Here's hoping it was just a breakthrough CH or something else, like a reaction to the norvasc or something. Puleeeeeeze let it be one of those things. I can't and won't leave this board, it saved my life and there's a host of people here whom I love dearly as my own family :) Geez, Slammy where are you? I'm doing that rambling thing again.... Can never count on some brothers can ya ;) :-* Cat |
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Title: Re: Head Check Post by jonny on Nov 20th, 2002, 6:55pm HELL YA, CHRIS!!!!!!! Fuckin A, Bro .........................jonny |
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Title: Re: Head Check Post by domm on Nov 20th, 2002, 7:03pm Been PF for right around two and a half months. Thank you DJ ! Thank you fine folks who recommended Verapamil and taught me how to use O2 properly and gave advise and coached and, counseled and, and....... 2 1/2 months !! - ;D ;D ;D |
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Title: Re: Head Check Post by Karla on Nov 20th, 2002, 7:05pm I am day 2 into Methadone 10mg every 12 hours. On Sat. I up the dose to 20mg every 12 hours. I am week 2 into Botox and am still getting hit 8x a day at kip 10's. |
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Title: Re: Head Check Post by Ann on Nov 20th, 2002, 7:08pm Hell Yeah to you Chris!!!! I've been doing shitty for a while now...sigh! Started taking lithium about 2 weeks ago. I'm still waiting for the miracle to happen. I hope it kicks in soon cause I'm going away right after christmas and I dont' want to have to deal with this shit on holiday!!! <grumble, grumble, grumble> Glad to know so many of you are pain free!! That's wonderful..gives the rest of us some hope! Johnny...man..you've got it rough. I'm sending you some vibes dude...hoping it'll help some. Cat...it was a reaction to the meds...I'm sure of it!! STay positive! hugs to all Ann |
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Title: Re: Head Check Post by jonny on Nov 20th, 2002, 7:14pm If you get an e-mail from anyone named Corjito, delete it.....this is a friend of mine but this mail shuts my puter down. Hes a clusterhead and may have a virus. be on your toes folks. ...................................jonny |
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Title: Re: Head Check Post by catlind on Nov 20th, 2002, 7:18pm Yes ... I've just done my 7th format in as many weeks from a backdoor worm and an IRC trojan. Have had several infected emails....the trojan is a smart virus, I found the files, went to norton to find out how to manually remove it, and when I went back the files had managed to rename and relocate, couldn't find the stuff that had been where it was and in the end had to submit to format. Everyone keep their virus protection up to date! Cat |
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Title: Re: Head Check Post by Ted on Nov 20th, 2002, 7:36pm I always keep my virus protection up to date. But, uh, I don't think that's what Mark meant by a "head check." |
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Title: Re: Head Check Post by Edna on Nov 20th, 2002, 7:41pm Happy to say that as usual I have skipped my cycle time for THIS year.....found this place last year during cycle time..........and I KNOW I'll still be here next year when it comes again...........(would still be here even if the bastard skips me over for once) For those not there yet......hang in with us and pf moments will come!! AND CHRIS HELL YEAH DUDE!! What a wonderful post mark c.......gave me some new found news about what fellow buddies are pf at the moment. Gee, I sure do love this place....thank you DJ EDNA |
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Title: Re: Head Check Post by Marc on Nov 20th, 2002, 7:44pm Ted, You're right, all of should keep our virus protection up - especially for those back door viruses. Marc |
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Title: Re: Head Check Post by paul_b on Nov 20th, 2002, 7:49pm Into month 6 of nightly attacks. Longest cycle ever but pain level manageable. Need to be careful not to overdo imitrex, bad things happen when I over-med (get 5-6 one after another). O2 doesn't work for me so I do the toilet seat rock, no kidding. ;D |
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Title: Re: Head Check Post by Drk^Angel on Nov 20th, 2002, 7:52pm The beast hasn't visited in nearly 2 months here. PFDAN............................ Drk^Angel |
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Title: Re: Head Check Post by 9erfan on Nov 20th, 2002, 8:08pm HELL YEAH CHRIS!! ;D Happy to hear that! I know you were suffering for awhile. I'm glad to hear that so many others are doing well at this point in time. Here's wishing that it stays that way for you so you can have pain-free holidays! I, myself am not doing well at all. I know I'm a broken record but last pain-free day was 2nd week of February, 2001. Currently, I'm 10-minutes pain-free :-[. If I EVER get a permanent job (still waiting to hear on my last interview) with medical benefits again, I will be getting oxygen, verapamil, and lithium per the advice of Jonny and so many others. Thank God for this board and everyone on it because it keeps me hopeful! :) Virginia |
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Title: Re: Head Check Post by catlind on Nov 20th, 2002, 8:27pm on 11/20/02 at 19:44:59, Marc wrote:
ROFL.....and especially with a ball and tube on the loose at the start of the thread ;) Cat |
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Title: Re: Head Check Post by Charlie on Nov 20th, 2002, 8:37pm Great news Chris. ;D Such nice benign posts. We really can be sickeningly nice...... :D Glad so many are doing so well Charlie |
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Title: Re: Head Check Post by Jill on Nov 20th, 2002, 9:12pm (sigh)..pain free....what is that? Nice to hear some know what it is...when can I learn? The dance with the beast continues on here, never ending. More than eight times a day does he plunge his sword into my head, trying to rip out my eye. Each time leaving me banging my head into any wall thats there, screaming, gripping my head, begging for mercy. Lurking when the beat slows, readying himself for his next chance to win, to beat me. Leaving me with feelings of exhaustion, helplessness, emptiness.... experiencing the depths of hell. Pain free? Only in my dreams....(sigh) Jill |
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Title: Re: Head Check Post by pjbgravely on Nov 20th, 2002, 9:52pm PF Jill, still praying for your many PFDAN PJB |
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Title: Re: Head Check Post by Not4Hire on Nov 21st, 2002, 12:59am ...hurtin'...... |
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Title: Re: Head Check Post by Lapsi_Harmaahapsi on Nov 21st, 2002, 1:36am Pain free for 9 months now. :) That's the usual time between my cycles. :( |
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Title: Re: Head Check Post by Stampertje on Nov 21st, 2002, 3:44am Nice to hear that so much of you are PF!!! :D :D :D :D I on the other hand have been in cycle since June. And the last two months have been the worst. There is still no sign of remission. :( :( I called my neuro yesterday to up the lithium, but he wasn't present so he would call me back today.... I'm hoping that works. But someday I will WIN!!! Just like you guy's. PFD, Stampertje. |
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Title: Re: Head Check Post by Mr.Happy on Nov 21st, 2002, 6:30am Thought it prudent to wait and see how the election was going before casting my "One man, One vote". I'll be kneeling here banging my head on the Wailing Wall throughout the rest of the festive Holiday Season. Feel free to join me in a prayer of your own.......... Congrats to those of you who are PF; now you can easily sneer at mere trivialities like the flu, facial burns and "High Stool". After a hitch here in little West Virginny, it's amazing how _Relatively Adjusted_ one's measurement of pain becomes. Smoke `em if you got em, RJ |
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Title: Re: Head Check Post by RevDeFord on Nov 21st, 2002, 7:22am Head pain free since November 4. However my chest is what is concerning me now. And I need my knee replaced and my hunting expedition Saturday has reinflamed that. Wouldn't it have been something if I had a heart attack in the woods last Saturday. |
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Title: Re: Head Check Post by cerebus on Nov 21st, 2002, 8:23am PF? Outstanding and congrats to you who are. ;D Blake.. Sorry dude CH sucks to say the least hang in man. :-/ As for me Still getting hit every other night, began in second or third week in October, the meds have helped though, If this keeps up gonna put a real damper on my hunting season. >:( Cerebus |
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Title: Re: Head Check Post by Mastifflvr28 on Nov 21st, 2002, 9:16am PF here. Counting down till spring. Hell Yeah to those that are PF. Vibes going out to those that aren't :( Mast |
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Title: Re: Head Check Post by Mr.Happy on Nov 21st, 2002, 9:37am You were lucky, RevDeFord: Quote:
That's exactly what happened to a member of our little "Deer Hunting Expedition" several years back. He didn't have much of a chance. The doctor said his odds of survival would have been a lot better if we hadn't _Gutted Him_ first. You learn a lot from experience, eh? RJ |
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Title: Re: Head Check Post by echo on Nov 21st, 2002, 9:39am At this time of the year a three day PF run is all I have been allowed. With snow heading this way over the weekend I can damn near count on a becoming intimate with the basement floor again. |
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Title: Re: Head Check Post by SFChris on Nov 21st, 2002, 9:59am LOL Mr. Happy ;D |
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Title: Re: Head Check Post by RevDeFord on Nov 21st, 2002, 10:39am Too funn mr. happy. |
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Title: Re: Head Check Post by Slammy on Nov 21st, 2002, 11:17am Hell yeah, Chris! Rock on, dude! :D Quote:
It's a simple head check, Cat.. once again, you failed...check your meds..you may need to up the doses.. ;D Mr. Happy's orbiting a different planet than the rest of us! :) Stop hoggin the stuff! Share!! ;D Slammy has been PF for the last 2 months after a 6 month cycle....and sending positive vibes to those who are not PF..... Slammy 8) |
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Title: ;DRe: Head Check Post by sueellen83 on Nov 21st, 2002, 1:47pm Fantastic news from all of you who are pain free!!!! ;D I'm in The 16th week of my cycle, ( which usually lasts 12 weeks. What's up with that?), having kip 3-4 shadows 2 or 3 times a day. Thank God for Verapamil though. It seems to be keeping the beast at bay. Hope everybody has a GREAT Thanksgiving and PFNAD!!! |
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Title: Re: Head Check Post by SFChris on Nov 21st, 2002, 3:19pm Hell yeah back to you Slam-man. It appears you and I are on similar cycles. |
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Title: Re: Head Check Post by RevDeFord on Nov 21st, 2002, 4:35pm They are both still there. :o |
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Title: Re: Head Check Post by eyes_afire on Nov 21st, 2002, 7:30pm For all those who are still suffering... hang in there. I know it is all-too-easy for me to say such a thing since I've been getting a bit of relief and I may not suffer as badly as some of you do. And I know it's not always easy to 'hang in there' during a cycle. During this 14 month cycle I thought I was bad-fucked forever, never to return to PFD&N. It was seeming rather hopeless at times, so I can empathize with those who are suffering. Usually my cycles lasted for 6 months, so when this most recent cycle reached the 8 month mark I was freaking (right Mastifflvr28?). By the time September rolled around I fit the definition of chronic. So it is possible to go chronic, but then experience pain free days. I have no clue why this cycle lasted 14 months ??? I have no clue why it seems to be ending now ??? I have no clue why shadows have persisted for so long after the last CH ??? Since my cycles usually started in October or November, I now have no clue when my next cycle will start ??? But it is possible to return from 'chronic'. |
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Title: Re: Head Check Post by Not4Hire on Nov 21st, 2002, 8:13pm Quote:
Eyes my brother: Earth circles the sun *once*/year...you are from the Planet PorchMonster>>>which circles the sun once about .....oh, every 17.38475 months(more or less..lost my ShroomDecoderRing...did I lend it to YOU?;D?) The Shadows....oooooogawdtheShadows.......came to MYfuckingHouse...and they are now paying the RENT.....and they are inviting the MOFO to dance every A.M. 'round about MY pillow......better with me than you, but this SUX!!!! >>>like you, I have NOCLUE......but the bulletholes in the wall only let in enough light to illuminate my o2 tank....and that is a GOOD thing........ glad to hear yer PF...many returns......... and .....this too shall pass............... |
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Title: Re: Head Check Post by Jarvis on Nov 21st, 2002, 8:40pm Hey can someone check mr happys head.. Seems to need a little adjusting. Mr Happy if I see you hunting at my place I may just have to shoot first then point out the no hunt sighns..Your more than welcome to come in for a potent cup of coffee though......................................................... .................As for me in cycle 6-8 per night and morn feel pretty good most of the days though. Feel even better seeing so many of you feelin good and knowing that there is most likely a clearing ahead on the road. been at it a couple months now. What allways amazes me when they finally drift away is how little of the pain "I" remember and the fact that we really can exist with only a few hours sleep. Heres hopes for all of us in country, to join you PFers soon. Just gotta practice a little more and we'll be with you. |
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Title: Re: Head Check Post by eyes_afire on Nov 21st, 2002, 8:47pm I guess that means according to this here ShroomDecoderRing my age in solar 'years' is 21.39806. Kinda cool... er... I mean... what ShroomDecoderRing ??? :D Planet PorchMonster is only a trip away ;) Beware the PorchMonsters ::) Not4: I really hope you are soon able to evict The Shadows and MOFO. |
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