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Title: What pisses you off? Post by brad267 on Nov 16th, 2002, 8:51am Hi ya'll, This is for the CH sufferers out there. What one thing do non-ch'ers do or say that really irk you, when it comes to these piece-of-sh*t headaches? And do you tell them, or do you realize it's ok? I'll go first: My wife will say she has a killer headache and ask me to get her 2 tylenols. I let it slide though. (Because I'm a wuss. LOL) Regards, Brad |
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Title: Re: What pisses you off? Post by woobie on Nov 16th, 2002, 8:56am LOL, Brad, Are you having a bad day?? :-[ I think it pisses Ramon off when people dont think they're THAT bad. It's a "headache" after all. I think "headache" is the wrong term.. Tina |
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Title: Re: What pisses you off? Post by David Shea on Nov 16th, 2002, 9:32am Nothing really, except when I really getting hit hard, And someone says-- YOU O.K.?? Christ, Hows it look to you, DO I have to answer that . ;) They mean well, David |
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Title: Re: What pisses you off? Post by Karla on Nov 16th, 2002, 11:37pm Drs. that think cluster headaches and migraines are the same thing just vascular headaches. |
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Title: Re: What pisses you off? Post by Mark C on Nov 17th, 2002, 12:05am Quote "Oh yeah, me too, I get REAL BAD migranes, sometimes I have lay down...............". Yeah...right. |
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Title: Re: What pisses you off? Post by Charlie on Nov 17th, 2002, 7:07am The medical types who said that "they can be very painful." GODS. Charlie |
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Title: Re: What pisses you off? Post by SommelierCH on Nov 17th, 2002, 7:41am I can’t say that I really get pissed off with anybody whose intentions are good…But, during this 8 week cycle which started on Oct. 20, I’ve gotten: “Have you tried chamomile tea? That always works for me.” “A good foot rub should cure that.” “Are you taking Vitamin C?” “Yea, it’s allergy season.” 3 days ago, when I was driving to work (at night) the oncoming headlights started to set me off, so I pulled over popped a Maxalt and waited it out. When I explained to the Manager what had happened and why I was late, he (seriously) suggested: “Why don’t you wear sunglasses when you drive at night?” This one did piss me off: I got a kip 7.85 at work (no oxygen) and was in the wine room with a cloth napkin folded up over my eyes and tied behind my head, hunched over in a corner shrouded with a table cloth and I heard a waiter asking someone right outside the door: “Why can’t David come out and talk to my table about wine?”. The other person said “He’s going through one of his bad headaches”. The waiter said, “Oh Jesus Christ, give me a break, he’s at work, if you have a little pain at work you have to just suck it up and go on with your job”. Now that I think about it, there are more that do piss me off, so I better give it up for now. May you all find comfort, David |
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Title: Re: What pisses you off? Post by dmaislin on Nov 17th, 2002, 8:04am The headaches are more closely related to a epilectic seizure of the brain. There are some bad cells, an overactive hypothalamus (your body clock) with a minute difference in the size in the grey matter from the left and right side. Over time, something (yet to be discovered) finally triggers the hypothalamus to send a signal which starts the headache cycle. Headaches put you in a cycle until your body clock can be reset to not trigger the headaches any longer. Preventative medicine is key so that you can mess with the clock to stop the clusters. The latest cluster headache study is being conducted with civamide: http://archneur.ama-assn.org/issues/v59n6/abs/noc10084.html |
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Title: Re: What pisses you off? Post by Ted on Nov 17th, 2002, 9:00am I really hate it when someone sees me getting an attack and doesn't immediately offer to pay all my bills for the year and then go clean my house. Bastards! |
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Title: Re: What pisses you off? Post by Luna on Nov 17th, 2002, 1:08pm 1) Doctors that don't listen. 2) Being told "I get bad hangovers when I drink too" 3) Being asked "Where is dinner?" while in an attack |
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Title: Re: What pisses you off? Post by Ree on Nov 17th, 2002, 1:25pm ok Ted they have that service its called Merry Maids... but I think you have to pay them and I dont know about the bills thing... just tryin to help... your pal ree |
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Title: Re: What pisses you off? Post by Elaine on Nov 17th, 2002, 4:22pm I think sleep is what I can't deal with well when I am being attacked hard, so I would say when someone says why don't you go to bed and sleep it off!!! |
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Title: Re: What pisses you off? Post by Jarvis on Nov 17th, 2002, 8:31pm Things that piss me off.... Mark Cs throbbing red orb on his posts. Hey mark it hurts like hell to look at that at times..............Other things,...its all in your head,......can I get you an aspirin,......why dont you lay down for a while,.........does it hurt bad,..... I once ruined a perfectly good microwave cause it had a little flashing red lite on it when needing to be reset..It used to really piss me off. interupting my nightly rituals. I killed it one intense night at 3am. may it rest in peace. |
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Title: Re: What pisses you off? Post by eyes_afire on Nov 17th, 2002, 8:38pm Note to self.... if I ever meet Jarvis, make sure I'm not wearing anything with the color red :o |
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Title: Re: What pisses you off? Post by MellowFellow on Nov 17th, 2002, 10:34pm What pisses me off is EVERYBODY gets "migraines" too, and they "know how the pain is." First off, I had migraines growing up as a kid - the auras the whole bit. Those hurt, but they don't touch a cluster's pain. Not even close. Also, if everyone who tells me they get migraines actually does, then the incidence of migraines is about 90% of the population. I have yet to personally meet anyone else who gets clusters though (besides my brother.) |
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Title: Re: What pisses you off? Post by paul_b on Nov 18th, 2002, 1:04am when I get an attack while playing a really good game of golf. It is hard to putt with tears coming down. I gutted it out once until the pain brought me to my knees. I now take my imitrex with me everywhere. Funny thing though, I actually pared three holes in a row with a 10 bearing down on me. The Beast finally won and concentration became impossible. The incident did reveal that I had a high tolerance for pain. BIG DEAL. I would rather not have the pain---it hurts. |
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Title: Re: What pisses you off? Post by Mark C on Nov 18th, 2002, 4:09am on 11/17/02 at 20:31:22, Jarvis wrote:
and I keep agreeing with Ted........whats up with that? Maybe its the "Red Orb" hypnotizing me ;D PFDAN! |
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Title: Re: What pisses you off? Post by David Shea on Nov 18th, 2002, 8:40am Paul P- I has always tryed to be open minded when reading post and to understand what the poster is trying to convey. I have to tell you golf and kip10, I think not. DAVID |
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Title: Re: What pisses you off? Post by NotH20 on Nov 18th, 2002, 9:06am I've been angry MANY times over the last 22 years of living with the beast....but I believe the kicker was this past January. Here is the scenerio - I was admitted into the hopsital w/ a DHE IV for 6 days. I have a "chatty kathy" nurse who wants to stay in my room all night long. I'm on massive meds and pretty much out of my mind. My veins are all blown due to the meds and I'm not a happy camper. The nurse walks in - grabs her right temple and says to me "my head is hurting - I know what you have been going through - these migraines are just too much at times." >:( >:( >:( The nurse is still living, but she got an earful of me that night! ;) NotH20 |
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Title: Re: What pisses you off? Post by Hound_Dogg on Nov 18th, 2002, 9:14am Re: What pisses you off? Everybody & Everything But that's just today, maybe tomorrow will be better. |
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Title: Re: What pisses you off? Post by echo on Nov 18th, 2002, 9:16am When someone says "If you would just lay down and remain calm it will go away." "Have you taken an asprin?" "Reminds me of the headache I got the other day, not to mention the pain associated with this hangnail". I whisper -- please come near so I can beat you bald, paint you blue and ship you to Afganistan. |
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Title: Re: What pisses you off? Post by cerebus on Nov 18th, 2002, 11:04am 6 billion people surveyed....top five answers on the board. 1. " since you know when they are going to happen, how much of it is psychosomatic?" 2. " does it hurt THAT bad?" 3 "On a scale of one to ten.....where do you rate your pain?" 4. " Do They know what causes it?" 5. " We have to be at the airport/ movies in 20 minutes, do you think you can hurry that well done two inch thick steak we ordered?" And the #1 response to all of the above..... 1. I am the one known as Cerebus, the Gates of Hell are my charge, be it known that when Heaven fails to open to recieve your mortal soul, you shall not pass by me un-noticed, I will kill you again! |
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Title: Re: What pisses you off? Post by Hound_Dogg on Nov 18th, 2002, 11:48am Don't forget Smackin them naked & hiding their clothes. Echo. ;D ;D ;D |
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Title: Re: What pisses you off? Post by runprincess824 on Nov 18th, 2002, 7:04pm Today has been one of those days! And when I saw this post, I knew it would help. There are lots of things that piss me off. You can only take 2 Maxalts in 24 hours, so i have to hold out for the bad ones.The first one is usually the one I wake up to at night. >:( my mother gets migraines and acts like i am being a baby. (i had migraines when i was younger, and i can vouch that she has NO idea) ..."does it really hurt that bad..." ..."just relax and lay down..." (yeah right :o) ..."you are going to be fine, so stop banging your head off of things..." I am on the 8th day of this cycle. I am episodic, so I know it has to end sometime. Last time it lasted 5 weeks. I just pray that it will end! I pray that it the pain stops for everyone out there. thanks for listening. |
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Title: Re: What pisses you off? Post by 9erfan on Nov 19th, 2002, 5:18pm Things that piss me off: 1. People who say "have you ever tried acupuncture?" "have you ever tried excedrin migraine?" "have you ever tried a chiropractor?", etc, etc.... 2. nurses in the ER who tell me to LAY DOWN while waiting for the DR. Luckily, my mom is usually with me and she tells them off for me. 3. Dr's who say to me "what would you like to try?"...I'm sorry, who's the one with MD behind his name??? 4. and of course my favorite (like others) is "oh yeah, I know how you feel...I get migraines too". Those people are so lucky they haven't been smacked by me yet! |
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Title: Re: What pisses you off? Post by domm on Nov 19th, 2002, 5:47pm sommelierCH's posts. |
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Title: Re: What pisses you off? Post by Drk^Angel on Nov 20th, 2002, 3:54pm #1... My sister-in-law... Spends all day talking on the phone, playing cards, watching TV, etc... Then when anyone asks her to do something, "I've had a migraine all day, and it hurts so bad... I better go lay down." #2... The same person, asking me the same thing everyday for a week, "Have you tried advil? I've heard it's really good for headaches." PFDAN.................................. Drk^Angel |
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Title: Re: What pisses you off? Post by jonny on Nov 20th, 2002, 4:25pm People comming to this board to complain about having to live with the sister-in-law. LMMFYBO.....(Just pullin you chain, Bro) ;D ...........................jonny |
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Title: Re: What pisses you off? Post by BobG on Nov 20th, 2002, 5:20pm Ted and Charlie arguing on the same side of two different questions or disagreeing about the same thing only for different reasons. What pisses me off? I usually agree with them. Damn, I hate it when that happens. Another thing that pisses me off.......... When I go to Outback and get a Bloomin' Onion and a nice big porterhouse steak and fully loaded baked potato and the bastards put a stinkin' nasty stem of broccoli on the plate. That crap will stink up the whole room. |
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Title: Re: What pisses you off? Post by jonny on Nov 20th, 2002, 5:31pm Damn you Bob, I just lost the last of my teef and am now drooling for a steak, damn you, damn you, damn you!!!!!! ;D Im friggin starving :o Im going to Vegas.....LOL ................................jonny |
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Title: Re: What pisses you off? Post by suzy617 on Nov 20th, 2002, 5:38pm Jonny, are ya gonna replace those choppers? I work at a dental laboratory so I can hook you up. We can make you look just like this guy.... ;D ;D ;D ;D ;D suzy |
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Title: Re: What pisses you off? Post by jonny on Nov 20th, 2002, 5:43pm Thanks Suz, Got me a $1200 bottom plate that was put in yesterday, got to have adjustment tommorrow and then on Tuesday for Thankgiving. Thank you for your offer. ....................jonny |
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Title: Re: What pisses you off? Post by suzy617 on Nov 20th, 2002, 5:50pm Jonny, The guy that works for us charges my friends 250.00 for that. Thats how much the dentists rip you off. Anyway, glad you got those choppers just in time for turkey day! suzy |
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Title: Re: What pisses you off? Post by jonny on Nov 20th, 2002, 5:57pm The way I see it Suzy is that when I tell him if he cant fit me in at these prices I will have no option but to kill him, He sees me anytime I call........got to be a fear of tattoo thing......LOL Plus I can afford to terrorize dentists......LOL ........................jonny |
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Title: Re: What pisses you off? Post by kim on Nov 20th, 2002, 6:35pm Used to get highly irked at Some sort of blank look, followed by sympathetic eyes followed by the comment "Oh, I KNOW, a friend of mine gets really bad migraines" It does not bother me that much any more. I'm used to it I guess. My employer looking at me like I am from outer space.........that really used to PISS ME OFF! ;D Thank heavens I don't work any more ;D At least for money ;D Being called a "bad patient" by physicians.......... ::) WTF is a "bad patient"????? ??? But -- time and maturity have made me better. ;) Hey BobG, pass the broccoli :D |
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Title: Re: What pisses you off? Post by Charlie on Nov 20th, 2002, 6:37pm Rats, Jonny. Here's one for your collection: http://www.headachesupportgroups.com/echat43/rippedsm.gif Charlie ;D (anyone know where all this type of smiley is? I only have a few and there must be tons of them) |
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Title: Re: What pisses you off? Post by jonny on Nov 20th, 2002, 6:45pm Charlie, When some thing is for the rest of your life do you pay for quality or look for bargins? My buddy payed $250 and has to glue his teefs in......I dont.......whos the fool? ..............................jonny |
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Title: Re: What pisses you off? Post by suzy617 on Nov 20th, 2002, 6:59pm Charlie, I emailed the icon site, wasnt sure how to paste it in here. Jonny, my teef guys the best. He just cuts out the middle guy. Cost for materials to make it actually costs around 50.00. The lab charges doc 200.00. The rest goes in his pocket. |
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Title: Re: What pisses you off? Post by Drk^Angel on Nov 20th, 2002, 7:36pm Live with her? Hell no... I can't even stand to talk to her on the phone. Ever try to talk to someone while they have their dentures out, and they're complaining about everything? LOL PFDAN............................... Drk^Angel PS... You haven't been talking to anyone on the phone lately ... Have you? DA |
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Title: Re: What pisses you off? Post by cootie on Nov 20th, 2002, 10:33pm How bout this one......'when I feel the first sign of a headache I take 2 advils and it really works fer me' ?? Bradley puts dem people on his 'things ta kill list'........ |
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Title: Re: What pisses you off? Post by Charlie on Nov 21st, 2002, 3:06am Thanks Suzy. That's a great site. :D I've been to dozens of places but this one looks like I'm going to have even more fun :D Charlie 8) |
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Title: Re: What pisses you off? Post by Stampertje on Nov 21st, 2002, 9:45am Everything from "Have you taken an asprine yet?" to "My migraine is so bad this time that my asprines don't work." Or this one: "Nothing is worse then migraine." Ignorant, stupid, uneducated a$$holes!!! >:( And everyone who has good advice and never had a visit of the beast. But I'm still positive about mankind. ;D ;D ;D |
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Title: Re: What pisses you off? Post by Peppermint on Nov 21st, 2002, 4:09pm aw Jonny... sorry you're starvin' waiting for those new "teefs" :D ...but at least you'll have a great smile when you're done... at those prices... :P uh. Charlie...recall giving you this link before... ya might want to try it again (maybe it's the same one Suzy gave you ???) http://www.uselessgraphics.com Lots of great stuff in there... ;) ok... to keep in line with the topic... um.. can't think of anything that'd compare to piss me off... stupid shit pisses me off..... |
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Title: Re: What pisses you off? Post by RevDeFord on Nov 21st, 2002, 4:32pm Anything another cluster head says that is good about the Democratic party or bad about the Republican party. ;D More seriously though, the whole comparison to meegraines irks me to no end. |
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Title: Re: What pisses you off? Post by SFChris on Nov 21st, 2002, 4:39pm Boy, am I glad we have a separation of Church and State... 8) Seriously though, I do like the ol' Rev and his posts. Chris |
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Title: Re: What pisses you off? Post by RevDeFord on Nov 21st, 2002, 4:47pm Danke ;D |
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Title: Re: What pisses you off? Post by eyes_afire on Nov 21st, 2002, 10:40pm GNC ::) |
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Title: Re: What pisses you off? Post by Charlie on Nov 22nd, 2002, 3:48am Politicians with medical coverage we can only dream about and give themselves late night 3% raises. Charlie |
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