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        New Message Board Archives >> 2002 Posts >> May have to leave Clusterville
        
(Message started by: catlind on Nov 7^th, 2002, 7:50am)

Title: May have to leave Clusterville
Post by catlind on Nov 7^th, 2002, 7:50am

:'(

I had mentioned in a post a while back that I was having heart testing done to get approval for using triptans. Well, I've found out that under no circumstances am I to use triptans. I go in Nov. 14th for a cardiac catheterization as they've found a problem with my ticker and/or arteries. Apparently my heart is not able to get enough oxygen rich blood out to my body, and they think my headaches may be from that. Now this is a cardio telling me this, not a neuro. But I don't have a decent neuro within 50 miles of me to tell me one way or the other if the CH is real or a mimic because of my heart condition.

So if it turns out that I my left ventricle is fuckered up and not getting the O2 out to my head, I may not be a CH'er and would naturally have to leave clusterville as imposters don't do very well here ;) :'(

Seriously though, I will probably be absent for a time, but I will return here to support those that want me, and I will find out for sure about these damn headaches one way or the other. Everything on this site and OUCH and different docs have told me I have CH, but of course, they didn't know my heart was fuckered up either.

I will let everyone know one way or the other after I have the procedure on the 14th.

See echo, you left and I had to go find my own echo (cardiogram) and now you've caused me all kinds of trouble! :P

Luv to all my cluster family

Cat

Title: Re: May have to leave Clusterville
Post by jimbo on Nov 7^th, 2002, 8:02am

Hey Cat, best wishes from our home to yours. Keep us informed.

Seeya,

Jimbo & family

Title: Re: May have to leave Clusterville
Post by woobie on Nov 7^th, 2002, 8:15am

YOU just can't leave... you have the BEST stories!!! ;D
I hope you get some sort of answer ..
I'm new to this whole website, but I'm sure the people here wont kick you out if you don't have clusters. I'm sure everyone will benefit from hearing what happens..
I hope you find your answers
all the best
Tina and Ramon

Title: Re: May have to leave Clusterville
Post by NotH20 on Nov 7^th, 2002, 8:25am

Cat - please let us know your results....you are in our thoughts and prayers....

Mia

Title: Re: May have to leave Clusterville
Post by echo on Nov 7^th, 2002, 8:55am

Hang in there Cat. You will be in my thoughts. Thanks for letting us know you may be absent from time to time.

Take care of yourself.

Title: Re: May have to leave Clusterville
Post by jonmach on Nov 7^th, 2002, 9:10am

I for one pray that alittle plumbing reroute takes your headaches away. be well and i will watch for your progress
jion

Title: Re: May have to leave Clusterville
Post by Cathi on Nov 7^th, 2002, 11:46am

Hey, Cat-
First- get yourself well- if some plumbing work sends the beast packing- that's all good- but you have experience & concern that this gang needs- and your stories....we need your stories!!!
Cardiologists, neuros...whatever it takes...I'll be looking forward to your updates, and thinking good thoughts the whole time!
Take care,
Cathi

Title: Re: May have to leave Clusterville
Post by don on Nov 7^th, 2002, 1:44pm

No reason to leave.

Hopefrully you'll turn out NOT being a ch'er and be able to eliminate your headaches but you know what?

You will make a great supporter. Stick around only in a different capacity. We need you.

Title: Re: May have to leave Clusterville
Post by Svenn on Nov 7^th, 2002, 1:56pm

Hey Cat, best wishes from Norway.You can`t leave.You are one of the best here.You have given us support and hopes.
keep us informed

Your friend Svenn

Title: Re: May have to leave Clusterville
Post by jonny on Nov 7^th, 2002, 2:39pm

Ahhhhh, Wouldnt I love to see you get all fixed up and your HA's stop......Then I could call you a MEEGRAINER!!!!!

Wishing you luck, Cat

.................................jonny

BTW: No one is kicking you out of anything, I have spoken and you can take that to the bank!!!!!

Title: Re: May have to leave Clusterville
Post by David Shea on Nov 7^th, 2002, 2:41pm

Hi Cat,
I'm new here at the MB. and have enjoyed reading your post. Hope this procedure ends all the pain you have
endured. And hope you return here to continue helping others. Like you have said.....
" There is more to CH than pain, There is our life"
I'll be pulling for you!
David

Title: Re: May have to leave Clusterville
Post by Linda T on Nov 7^th, 2002, 2:56pm

Hi Cat. Hang in there. However it works out for you I hope you do stick around. But more importantly, get a definite diagnosis (or at least try your best too LOL).

Wishing you all the best, Linda T

Title: Re: May have to leave Clusterville
Post by Jabeen on Nov 7^th, 2002, 3:35pm

Hey Cat-I am relatively new here, but I have seen your posts many times. I know you have been an active supporter on this site- I wish you luck. My husband is having similar problems and may require cathertization.
I hope it solves both problems for you-cardiac and CH!
Good luck- :) :) :)

Title: Re: May have to leave Clusterville
Post by kim on Nov 7^th, 2002, 4:06pm

Hey Cat,

Just wanted to wish you good luck and good health!!! Your posts brighten up the board, ya can't leave! :)

Title: Re: May have to leave Clusterville
Post by Drk^Angel on Nov 7^th, 2002, 5:03pm

Good luck Cat! Hopefully the docs can get ya all fixed up soon. No matter what the outcome, I think ya should definitely stick around.

PFDAN.......................................... Drk^Angel

Title: Re: May have to leave Clusterville
Post by ShariRae on Nov 7^th, 2002, 5:19pm

Cat,
Hang in there hon...You are in my thoughts and prayers..and no matter what.. you just HAFTA stay...sufferer,supporter,cheerleader,storyteller,referee...somethin!
Best to you
Shari

Title: Re: May have to leave Clusterville
Post by 2late on Nov 7^th, 2002, 5:45pm

Cat, i hope you get yer ticker adjusted & then be done with CH, wouldn't that be a blessing in disguise, you hang in there, give 'em hell & get back here A.S.A.P. ...........2late

Title: Re: May have to leave Clusterville
Post by getlit on Nov 7^th, 2002, 5:55pm

Hey, can anybody help me out here? I'm a rookie trying to get to the live chat room.

Title: Re: May have to leave Clusterville
Post by jonny on Nov 7^th, 2002, 6:16pm

Sure, I would help you out BUT who the fuck are you?

.....................jonny

Title: Re: May have to leave Clusterville
Post by SFChris on Nov 7^th, 2002, 6:40pm

Jonny - thanks dude!! I actually spit out the water I was drinking laughing out loud at your last post. I'm not sure why it tickled me so much, but it did... ;D
chris

Title: Re: May have to leave Clusterville
Post by catlind on Nov 7^th, 2002, 7:17pm

Thanks everyone for the well wishes and good vibes and luck. Jonny, you always manage to make me laugh ;D

I would be happier than a pig in a shit if the headaches went away, somehow heart surgery is a little more unnerving than clusters :-/

I don't imagine I could ever leave anyway, I may get rid of my CH's, somehow I doubt it, of course it would be my luck I'd have one while on the table having the heart cath done LOL. Besides, until Slammy is back harass me I can't leave.....it just wouldn't be right ;)

I've grown to know this place as family, and a supporter I can be, even if I'm a meegrainer ;)

I will be sure to keep everyone posted on what happens. I have just been so busy the last few weeks with appts for this that and the other thing and chasing a 2 year old that has decided to make my life a circus to which he can enjoy from the comfort of the inside of a warm car while I freeze just makes it hard to have the time to keep caught up with the posts.

Either way, I believe in the cause too much to stop participating. I've set my mind to get the word out and educate all those dumb fuck dr's about CH and my stubborn streak can be pretty bad ;D

Oh yeah, and I was told "request for leave denied, reapply in 50 years for final disapproval" ;)

Cat

Title: Re: May have to leave Clusterville
Post by Ree on Nov 7^th, 2002, 8:25pm

Cat ... then you would have to hang with US supporter folk... "seriously" as you said take care of yourself... I hope that whatever they do for your heart does truly cure your ch problem... wouldnt that be great... think positively and if there is anything I can ever do for you please let me know... Us Military family women gotta stick together... hang tough... love you alot Ree

Title: Re: May have to leave Clusterville
Post by Not4Hire on Nov 7^th, 2002, 9:10pm

Quote:

I had mentioned in a post a while back that I was having heart testing done

...don't worry,sister....yer heart (HERE) is not in question...... it's a big one and you are one of the *gems*.....

....hope it all works out, that you find relief from CH, and that you make this crazy place a *stop* on yer way to living a life that makes sense........

yer bro-in-arms....Steve ;D

Title: Re: May have to leave Clusterville
Post by cootie on Nov 7^th, 2002, 11:07pm

Good luck Cat....yer purdy cool.....b-cool if ya got rid'a dem CH's.......luck to ya....supporter cootie >^..^<

Title: Re: May have to leave Clusterville
Post by Charlie on Nov 8^th, 2002, 12:28am

:-/ Gonna miss you for awhile. No matter what, you have to come back so we can force you to take a beating from us. We'll do our best to keep it lively.

You'll do okay and let us know WTF is going on.

Mean old Charlie :D

Title: Re: May have to leave Clusterville
Post by Peppermint on Nov 8^th, 2002, 9:23am

Hey Cat.. sorry it took me so long to get in here..
Just b/c your heart is more fuckered up than your head doesn't mean you're not a confused Cat... Leave..permanently...??. WTF?? ... who would tell us these outrageous stories (I feel sorry for your kid when the teen years hit.. :D).
Seriously... take good care of yourself and then come back for your regular lashings from the peanut gallery.. ;D...it'd be fine however you fiind your way back, as long as you're in good health!
Hope everything turns out well... POSITive viBES.. POsitIVE VIbES.....
Pepp O' Mint

Title: Re: May have to leave Clusterville
Post by Slammy on Nov 8^th, 2002, 12:05pm

Nice try, LOL!

I knew you were a meegrainer all along! Bahahahah! :)

Stick around, it just gives me ONE more reason to "spank" ya! ;D

Seriously...... then again, maybe not.... priority one, go find out WTF is wrong with you... and FIX it!.....

priority 2..... ummm, I guess there isn't one... LMAO! Oh! I know, keep us informed on what's up! Your status on here would never change ( unless they figure out a way to make you smarter! ;D)! regardless what they find Cat... family is family.... but you KNEW that alreay..:)

Slammy 8)

Title: Re: May have to leave Clusterville
Post by cerebus1968 on Nov 8^th, 2002, 9:04pm

I personally dont care what your malady may be, if you are on this site then you have been a godsend to me in the short time i have been here.
whatever the problem is good luck to you.
Capt. Brown

Title: Re: May have to leave Clusterville
Post by firebrix on Nov 9^th, 2002, 12:10pm

Good luck Cat! :-*
Thinkin' of you, and wishing you all the very best with the surgery. I join Pep on the good vibes. We'll have ya home, well in no time!
Please let us know how it went and stay in touch
firebrix