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        New Message Board Archives >> 2002 Posts >> New -  OH.. this is a long one!!!!
        
(Message started by: cerebus1968 on Nov 5^th, 2002, 8:49pm)

Title: New - OH.. this is a long one!!!!
Post by cerebus1968 on Nov 5^th, 2002, 8:49pm

???Uh.....Hi... For those of you who have not yet met me and/or already heard of me I am Woobie's Husband, the and i use this term kinda loosely as nothing really new has changed or developed in my particular instance.
Dealing in what appears to be self defeating behaviors most of these questions are rhetorical but if you have suggestions and/or observations please feel free to comment.
One has to wonder at least I do if some of the treatments for depression associated with this malady are in fact self defeating. For example the issuance of anti-depressants, as most of you already know and as most doctors will tell anyone that continued injury or illness for an extended period of time can and will cause clinical depression. But c'mon Doc.....isnt the issuance of anti depressants and/or other stimulants kind of self defeating especially in the case of the chronic or episodic CH sufferer? After all it is well known that one of the most common side effects of such medications is in fact headache? along with the long list of other un-desirable side effects of the same the LEAST desirable at least to us (meaning CH patients) . somehow I can't help but think so, whenever it is that I can actually think of something other than "Please Doctor.....just cut my head off and put it in a jar and I'll put it back on myself when I need it."
not in total disparity , however, some things actually do at times seem to help if even in a very minute way, one of which is to totally flush my body with room temperature water as the tension and panic of my cycle peaks, why is this ? who the heck knows....certainly not I , but its almost as if the simple act of just trying to find some form of comfort is taking just that little bit away from my trauma at the time. when in reality I believe that the only thing that is actually going to help at all is plainly severing my head from my body and placing it in as dark and quiet a place as I can find on the earth.
For those of you who have the unfortunate reality of being a chronic sufferer my heart bleeds for you the most and a little piece of me is rewarded with the notion that in time be it sooner or later MY pain will eventually subside even though I don't know when. Today at lest one little victory in my struggle for temporary sanity i actually havent yet had a HA , maybe its because the new meds i've recieved are actually working or simply because i have yet ( and utterly fear) had the opportunity to try to sleep. how does one deal with this? I am afraid to go to bed, when just a few short weeks ago that is the only activity I wanted to achieve. and now as i sit here in my sunglasses typing this to all of you and the shadow of my CH sets its talons depper into my psyche and soma I frett even more at the notion that not only may this continue for the rest of my natural born life, AND that if i go to bed I am all but certain sleep will evade me yet again. how to deal when the proverbial **** hits the fan. the answer is quite simple.......powder my skull. for this is the only sure fire way to avoid the next chapter.
Once again.....to all of you who suffer this chronically and are actually are worse off than I please be assured you have my empathy as well as my sympathy. Today as I tried to explain the terrible pain to my employers and superiors and will undoubtedly have to reitterate to other physicians and collegues and tomorrow as i remain embattled in the struggle for some form of relief from this living hell we all share .......i know that at least we all share it and I am not alone.
Thank you for all the support you have already unknowingly shown and given.
Captain R.D. Brown

Title: Re: New - OH.. this is a long one!!!!
Post by Cathi on Nov 5^th, 2002, 10:34pm

HEY, CAP-
I'll put my 2 cents' worth in now, to hold you till the big guns arrive! Coupla things I want to remind you of...take a look at the buttons on the right- read them- have Woobie read them. This may give you some new things to try. Now, everyone is gonna ask, so you might as well begin to tell them, what meds have you tried- what has worked? As for where you are right now, everyone on this mb has been there- and they're ready to stand by you now.
You are really not alone- you have found a group of people who know what you go through- and they will ALL remind you- this, too, shall pass. Get through this the best you can- looking forward to PF time that will come. Try ice, try the waterX3, try o2- try it all, please-
and then keep coming back here.
I know there will be many posts- read them all- and
keep posting, as well!
Glad you've found the people who will help you- sorry you have to be here.....now, wait for all the posts...
Cathi

Title: Re: New - OH.. this is a long one!!!!
Post by Charlie on Nov 5^th, 2002, 11:44pm

OK Captain....Here is a link for you to look at and print out for your friends and fellow workers. Simon's message is the best we have:

http://www.ouch-uk.org/ch/note_colleagues.cfm

Good luck.

Charlie

Title: Re: New - OH.. this is a long one!!!!
Post by sueellen83 on Nov 6^th, 2002, 11:01am

Hey, Cap.,

Welcome a board!!! Sorry to hear you are having to fight this demon but, glad you found us. Hang in there, it will get better.

If there is anything i can do to help let me know. We are all on your side.

Title: Re: New - OH.. this is a long one!!!!
Post by Linda T on Nov 6^th, 2002, 11:45am

Hi Cap and welcome. Sorry you're having to fight the fight right now. But you're right when you say we've all been there and know what you're going through. Stick around and read, read, read.

Good luck and PFDAN always, Linda T

Title: Re: New - OH.. this is a long one!!!!
Post by NotH20 on Nov 6^th, 2002, 1:01pm

Hey Cap - I responded to your wife's post...but just so you know, you have a new family here of people who not only know what you are going through, but offer to help in any way they can.....

Read...read and read some more......

Keep the faith,
NotH20