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        New Message Board Archives >> 2002 Posts >> Chinese Alternative hmmm
        
(Message started by: jonmach on Nov 4^th, 2002, 7:49pm)

Title: Chinese Alternative hmmm
Post by jonmach on Nov 4^th, 2002, 7:49pm

Hello my name is Jon mach. I am brand new to this web site. I just found you guys after 20 years of living with the pain that i know you all understand after reading through the site and various posts. i will be breif i am 39 years old. my clusters first cycle was at the age of 19. it has been a long hard battle and im sure we all have our stories .
enough of yesterday and on to today. i had a cycle start appx 2weeks ago with the alarm clock ringing my head off at 4:30 am then at 11:am then At 530pm then at 11:20 pm and hasnt changed pace much in 2 weeks.
i have been fairlyy head ache free for nearly 4 years .
dont get me wrong the same cycles hit me at the same times. but i kept them undercontrol through regimine of nutrition and meditation. long story short.... i got lax in my nutriton for the month of september & oct and low and behold i got caught with my pants down and my head buried if ya know what i mean. long story short .... i was having severe 8 , 9 & 10 kip scale pain
for 6 to 8 hours of the day for the last 2 weeks.
i have been alone and scared and thouroughly discusted
i decided to try accupunture from a credited and certified practitioner) i have had four treatments in 6 days. i have been thouroughly impressed with the results and plan on continuing with and keeping track of the results. i have a regieme of nutrition that i have found has helped me more than modern medicine ever even thought of. i just wanted to make my self known to you people and look forward to developing a relationship with any all of you. i am willing to and will post some of my regiems as i learn your system and get the proper guidance to do so. please feel free to email me .. i need all the freinds i can get at this point.. boy these things can depress ya!
i cant not explain what it was like to read in this site. it made me cry to see that i am not alone. Thankyou for being here and i am here for any and all of you
God Bless
Jon Mach

Title: Re: Chinese Alternative hmmm
Post by domm on Nov 4^th, 2002, 8:03pm

Jon - welcome to the board, sorry you felt compelled to seek us out. Don't be surprised if your method of dealing with this is met with some skepticism. But whatever works, works.
I hope you've clicked your way through the site and also hit the OUCH site. Tons of great info.
You've found the best place for support and meeting folks who have this damn horrid condition, some for a short time, others are chronic and have been for years. We can learn alot from all of them
good luck
domm

Title: Re: Chinese Alternative hmmm
Post by catlind on Nov 4^th, 2002, 8:13pm

Jon, welcome to clusterville. You will find a wealth of information on this site and the OUCH site. Click all the buttons, and read read read.

Your reaction when you found the site is a story told by many. I cried and rejoiced all at the same time, finally people who truly understood what the pain is like.

I'm currently out of cycle, but if my meds don't work I'll be back battling the beast at the end of this month.

Unorthodox treatments will often receive skepticism from some folks here who have tried everything and know more than almost any doctor out there on the planet. But always remember, if it works for you, then keep at it, just remember to not try to push it on others here or you may find yourself getting slammed and flamed hard.

We are a family here, and welcome all who suffer, and just like any family, we have our disagreements and fights, but there isn't a soul here who wouldn't give the shirt off their backs ... literally to a fellow CH'er in need.

Again, welcome aboard, and as Jonny told me when I first got here, don't get depressed, grab an oar and start rowing ;)

Cat

Title: Re: Chinese Alternative hmmm
Post by David Shea on Nov 4^th, 2002, 8:33pm

Jon- Welcome and thanks for the tip.
Cat, What a great post. enough said.

Title: Re: Chinese Alternative hmmm
Post by Charlie on Nov 4^th, 2002, 9:58pm

Welcome aboard and I'm glad you've had a break. Like you, I was a puddle of tears when I read the guest book. I had no idea there were so many of us.

Have you seen a neurologist? In any case, stick around and contribute.

Charlie

Title: Re: Chinese Alternative hmmm
Post by Slydog on Nov 4^th, 2002, 10:24pm

Jon Welcome to the board. I have tried accupuncture before to get rid of this Beast. For a while it seemed to work great.....but this last cycle it didn't and I'm back on the Meds. Thank God I think it's about over now. My reaction was the same as yours when I found this place hope you find some peace here. Wishing you PFDAN's Slydog

Title: Re: Chinese Alternative hmmm
Post by Ueli on Nov 5^th, 2002, 1:00am

Jon, welcome to the board.

I don't wish CH to anybody, and I think you are one of the lucky one who don't have it:

Ch is such a serious disease that meditation can hardly touch it, unless you are one of the rare Indian fakirs that can even control the rate of heart beat by will power.

If nutrition can affect CH then it must meet one of two conditions:
a) You are adding something that stops CH, what is this mysterious stuff?
b) Your special diet eliminates some harmful "toxins". We had recently a guy who could eliminate 5 pounds of toxins in only 2 days by drinking water. Despite this "well known" marvelous feat nobody can tell anything about the nature of these toxins, although this amount should easily show up in the excretions (and why are they called "toxins" and not just "poisons", does it sound more scientific?).
Of what type is your diet? Additive ore subtractive?

You did not mention the more conventional preventatives (Verapamil, Prednisone) or abortives (Imitrex, oxygen). Did you not try them because they are not indicated for your type of head aches? 6 to 8 hours attacks at 8 , 9 & 10 Kip are a bit outside the IHS description of CH. (All you "Unifiers Of All Headaches", SHUT UP, the IHS specs are rather restrictive to give us a chance to find relieve for CH, and not waste our effort on catch-all meditation and nutritional and Chinese hanky panky "cures")

The reason why I think that acupuncture is noting but a money grabbing scam I explain in a separate post:
Why Do I Not Believe In Chinese Medicine (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1036479389;start=0)

PFNADs
Ueli

Title: Re: Chinese Alternative hmmm
Post by jonmach on Nov 5^th, 2002, 7:12am

hello all:
jonmach here and thankyou for the welcomes :
and the diagnosis!
i guees a little more info needed for some people, 20 years of hell with diagnosis of clusterheadaches from all over the country and numerous neroulogist and head ache clinics.
like they told me something i didnt know ! i have been on every medication every thought of for these damn things and some they never. i finally got to the point i was so disgusted with thier efforts i took resposibility for them my self and delved in to nutrition and alternative meds. my efforts have been far from 100%
but i would have to say that i have had better than 40%
success in battling my desease over the last 5 years.
i think i will continue in my efforts. as far as being one of those rare indian fuckers or what ever you called them
Iam. i am a 4th degree master instructor of the martial arts and over the years i have learned to control my heart beat. this isnt something that happens over night it has taken me 17 years of hard core training.
I guees the one thing i would want all of you to know is that i will not and am not telling anyone what to do. i am simply stating what i am doing that helps me.
and will share that with anyone who wants it. i have led a far more fufilling life since this change. and i believe that relief is out there for anyone who claims it and is willing to work for it. might not be a 100% but its better than the conventional meds ever gave me i promiss you that. (and so will my family) and i am not aposed to conventional
i just been there done that ! as far as being out of the ihs specs. 6 to 8 hours is over the course of 3 and 4 attacts thru out the day. any where from 1 to 3 hours of 89&10 kip scale pain. not one attack sorry that wasnt clear.
i can certainly see why things can get heated in this forum with people calling nutrition a hanky panky cure.
with that attitude i think your safe in your world of pain
ueli. i will look forward to reading your post on what you think of chinese meds. but i must tell you you can almost always tell when shit will run from someones mouth when they start the sentence with "I think"
dont think ya hurt the team!
jonmach
ps i am new at this so if this is out of line im sure you will let me know.
Also this is day 2 of nothing over a 4 and the shadow is clearing woohoo! love this hanky panky stuff

Title: Re: Chinese Alternative hmmm
Post by OneEyeBlind on Nov 5^th, 2002, 7:47am

Hey, if you can control your heart beat you might want to try Charlies circulatory feedback method for us. We are dying to see it work for someone new !!!! Most of us I fear don't have the concentration level it requires.

Just a thought .....

Title: Re: Chinese Alternative hmmm
Post by catlind on Nov 5^th, 2002, 8:22am

Actually OneEye, I have been working at Charlies method, I'm out of cycle now so it's easier, and I am getting better at it, and when I get breakthrough headaches, (I'm not sure if the cycle is over or the preventative has made them much less of a concern) and if I feel that icepick behind my eye, I start to concentrate on typing on a keyboard as a means to get the blood to flow away from the brain to the hands. So far so good, and I don't need the keyboard to do, as I'm a touch typist, I just look funny if I'm out in public typing in thin air LOL

Jon, this is a huge collection of people, no one will ever agree 100% on anything here except this is a great place and the pain is the worst in the world.
Sometimes you can liken it to a priest and scientist trying to convince each other that their way is the best and only way.

Just my 2 cents

Cat

Title: Re: Chinese Alternative hmmm
Post by Drk^Angel on Nov 5^th, 2002, 12:07pm

Welcome to the board! Sorry that the beast is hammering giant, rusty, red-hot needles into your crainum. Good luck!

PFDAN.......................... Drk^Angel