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        New Message Board Archives >> 2002 Posts >> New at site / Board
        
(Message started by: mojoe on Nov 1^st, 2002, 8:11pm)

Title: New at site / Board
Post by mojoe on Nov 1^st, 2002, 8:11pm

Hello all,
It was nice to come across this site. (good info)
I'm 34 male, been suffering since I was 22. My first CH happened while drinking a Miller Highlife beer. Thought I got a bad beer. Will never forget that day. My last cycle was 1.5 years ago. Thought I was done with them. Guess what? They came back last July. My normal cycle is 1-2 weeks twice a month. 1 to 6 per day.
Often every two hours starting around 11:30 pm. Usally a couple during daylight hours. VERY SEVERE!!
Imitrex Injections work great. Same probs as everyone else. - cost, availability, etc. O2 helps a lot also. These last three months have been the worst in my CH career.
Thanks for listening - ttyl - :'(

Title: Re: New at site / Board
Post by OneEyeBlind on Nov 1^st, 2002, 8:20pm

Mojoe, welcome to the board. Lots of good people here to listen and offer advice.

Check your post ... did you mean 1-2 weeks twice a month? If you mis-typed this you can modify it.

Anyway, welcome, welcome, welcome. Sounds like you have been reading some posts around here !!!

Title: Re: New at site / Board
Post by mojoe on Nov 1^st, 2002, 8:26pm

Thanks for the welcome OneEyeBlind. To clarify, My cycles in the past ran for 7 to 14 days then remission for 7 to 14 days. (on average).

Title: Re: New at site / Board
Post by OneEyeBlind on Nov 1^st, 2002, 8:30pm

Oh, now I am feeling lucky Mojoe !!!!!! Two weeks on .. two weeks off. The jury is still out on whether my cycle has ended (it was my first) ..... lasted four months ... but I am hoping for a 10 year reprieve !!!!!

Title: Re: New at site / Board
Post by StanTheMan on Nov 1^st, 2002, 10:02pm

Welcome Moejoe!

Glad you found us, but sorry the beast had to drive you here!

Best wishes and prayers for pain free days!

StanTheMan

Title: Re: New at site / Board
Post by domm on Nov 1^st, 2002, 10:06pm

mojoe - welcome to the board. Sorry you felt compelled to do so. I hope you're finding the right set of meds. Are you on any preventatives? Verapamil worked for me and is usually the first choice.
Hope the beast loses your address
PFDANs
domm

Title: Re: New at site / Board
Post by Drk^Angel on Nov 1^st, 2002, 10:39pm

Welcome to the board! Sorry that the beast is dropping you on your head, from 500 ft in the air, to the bottom of a active volcano with plenty of jagged rocks to crash your cranium into before breaking through the thin crust on the molten lava, and frying your cranium into a crispy critter. Good luck!

PFDAN........................ Drk^Angel

Title: Re: New at site / Board
Post by Charlie on Nov 1^st, 2002, 10:50pm

Glad you found us and welcome. If you stick around and keep in touch, you will find some help here. There are lots of ideas here and ways to handle meds. The others can help you there.

This thing is a horror but you'll find help here.

Charlie

Title: Re: New at site / Board
Post by Mark C on Nov 1^st, 2002, 11:47pm

Welcome

Title: Re: New at site / Board
Post by 2late on Nov 2^nd, 2002, 1:15pm

welcome to the board mojoe! DRk........LMAO! ...........2late

Title: Re: New at site / Board
Post by iamdying on Nov 4^th, 2002, 10:50am

This is my first time here too. Have not had what they considered "a migraine" in over 12 years. Have had 2-8 of these a day for 3 1/2 weeks. Have tried Imitrex Nasal (no luck) Injections (fairly good luck) and another pill called (i think) Vomax or something like that. It did NOT work. Now, we are trying Skelaxin Muscle Relaxer w/Imitrex Injections. Not total relief but MUCH better. At least I can work. I take this on top of the meds I take for Neuopathy, Myoclunus and hormones. I am confused about ALL of this headache stuff. If you could help me with any info on this I would appreciate it.. :o

Title: Re: New at site / Board
Post by Svenn on Nov 4^th, 2002, 10:55am

Welcome to Clusterville.
so sad you have to ,but you have definatly found the right place,and are among the best friends in the world here.
just ask and you will get all the info in the world.

Svenn

Title: Re: New at site / Board
Post by echo on Nov 4^th, 2002, 10:59am

Welcome to the MB Mojoe. Hope you go PF very soon.