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        New Message Board Archives >> 2002 Posts >> Question....???
        
(Message started by: Jackie on Oct 28^th, 2002, 11:53am)

Title: Question....???
Post by Jackie on Oct 28^th, 2002, 11:53am

Blake is chronic..... >:(
However, the spring and fall are much worse.
We call that his "chronic cycle".
Do any of you other chronics notice this? ???

Jonny...we're still gonna go with the program we worked out Sat. night. I just got a call from him...he's getting the shit kicked out of him today at work. But we're still gonna try it. You'll be getting a report.. :-*

Jacks 8)

Title: Re: Question....???
Post by Margi on Oct 28^th, 2002, 11:55am

Aw, Jackie - I'm sorry to hear about Blake. :( I don't know how you chronics and supporters do it.

Hang in there, darlin - know that we're always here for YOU, too.

Title: Re: Question....???
Post by nancyc on Oct 28^th, 2002, 12:02pm

I am chronic but nov and dec are my worst months ...sitting here holding my breath and praying i beat the beast this year...will do the same for Blake...smiles, nancyc

Title: Re: Question....???
Post by Marc on Oct 28^th, 2002, 12:42pm

Jackie,

I have good weeks and bad weeks but for me it's not seasonal at all.

The only pattern I've been able to see is that I seem to get hit less when I'm under under very high stress.

Marc

Title: Re: Question....???
Post by Linda_Howell on Oct 28^th, 2002, 1:14pm

Yes Jackie, I go through months where it's a lot worse than usual, but it doesn't have anything to do with the seasons. Linda

Title: Re: Question....???
Post by Jackie on Oct 28^th, 2002, 1:25pm

I don't think it has anything to do with the seasons either. It's seems to be more a 'timing' thing. The spring months vary...often from late winter to early summer. It's just strange that it's so much worse two different times during the year. I will say that October is ALWAYS bad. His first cluster ever was in October....coincidence or what... ???

Jacks 8)

Title: Re: Question....???
Post by jonny on Oct 28^th, 2002, 3:28pm

Like Marc I have good weeks and weeks they break through, ive been getting killed for the last three days but its my own fault. ran out of Verap five days ago and was to lazy to get my ass to the drug store.....LMAO

I got the verap today and it should be a few days before the levels build high enough to matter.

WAH!!!....LOL ;D

.................jonny

Title: Re: Question....???
Post by David Shea on Oct 28^th, 2002, 4:34pm

Johnny- that is amaseing, If I'm not getting to personal
for you can I ask how long you have been suffering with
CH.. Can you work ? To be chronic Man! I do not think I
could stand up.. I boxed played hockey and never lay
down, wimp out But, this is the worst pain I ever Know.

Well hope I'm not to personal with this post.
I'm in your corner anyway you take it..

All the best. David

Title: Re: Question....???
Post by Ted on Oct 28^th, 2002, 4:39pm

I'm with Linda on this one. Some months get really heavy and others are lighter but I haven't noticed a correlation with the seasons.

Title: Re: Question....???
Post by Jackie on Oct 28^th, 2002, 4:44pm

Jonny,
Don't you remember what happened when you tried to go cold turkey a few years ago... ??? Running out of your meds is kinda the same thing. :(

You pull this crap again and I'm gonna be forced to call you a dumbass ;D ;)

SMOOOOOCH
Jacks ;D

Title: Re: Question....???
Post by jonny on Oct 28^th, 2002, 4:47pm

Dave,

27 yrs chronic and I have owned two companies in the last 18 yrs, owning your own company is the only way to go for me. I make the rules so I can break the rules.....LOL

Plus it helps being surrounded by 02 everyday ;D

.......................jonny

You can call me anything you want Jacks as long as your ONLY wearing spike heeled knee high black leather boots ;D

Title: Re: Question....???
Post by echo on Oct 28^th, 2002, 4:49pm

jonny and lazy don't seem to go together.

What was keeping jonny sidetracked for 5 days does interest me however. I doubt it had anything to do with metal and buffers.

Title: Re: Question....???
Post by David Shea on Oct 28^th, 2002, 4:59pm

Cheers Jonny- Happy to your you can deal with it that
way. And congrads. On the bussiness
David

Title: Re: Question....???
Post by talitha on Oct 28^th, 2002, 9:54pm

hey thats a good question about holding a job. have any of you had to stop working because of the clusters? i was in the Air Force and they wanted to medically discharge me- i fought that (because i was not too terribly bright) and did eventually retire from the AF. However, holding a job in the "civilian" world has been challenging. I lost one job working in a juvenile hall because of the HAs. Now i work for a non-profit and i'm the manager but frankly i'm out of sick time and out of vacation time. Say, i have an idea. Since i'm up all night anyway, and work is where my computer is, maybe i should just work my way through the beast.
seriously, have any of y'all tried diability or anything?
talitha

Title: Re: Question....???
Post by OneEyeBlind on Oct 28^th, 2002, 10:19pm

You are elligble for the FMLA (family medical leave act) with clusters. This gives you an additional 12 weeks off. Whether it is with or without pay, and all depends on how your company handles disability and how long you have been with them. But you cannot be fired for using this time. Your human resource dept should be able to provide you with the proper paper work ... then you need to get your doc to fill it out, return it ... and wala. Hope that helped.

Title: Re: Question....???
Post by Mark C on Oct 29^th, 2002, 2:56am

The good DR. Goadsby from the OUCH site sez................

"During the cluster period, attacks may recur once per week, or eight attacks per day may occur. Most patients experience one to two attacks daily.The individual attacks usually are brief, lasting 30 to 180 minutes each (mean, 45 minutes). Attacks tend to recur at the same time each day and are notable in that they often occur at night, awakening the patient from a sound sleep. A seasonal preponderance occurs, with cluster phase often occurring in the spring or autumn months."

Tis the season has a new meaning.

Hang in the Blake, we are pulling for ya!
Mark

Title: Re: Question....???
Post by oringkid on Oct 30^th, 2002, 2:37pm

It sounds to me like chronics and episodics are more alike than it would seem on the surface. The difference being that in episodics the pain goes totally away during the "low" times, whereas chronics keep on getting hit, but at a different...frequency? level?

If I pay attention, as staying with this site during remission has forced me to do, I notice small twinges that are cluster-like during my remission.

I just wonder what it is that causes the difference.

Sherry

Title: Re: Question....???
Post by 7yrscronic on Oct 30^th, 2002, 6:02pm

I am chronic also. The winter months are far worst than the summer. I don't know why, don't think I ever will. I'm just glad winter is the slow season at my work.

Title: Re: Question....???
Post by David Shea on Oct 30^th, 2002, 6:10pm

October..........that fits the beast.