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        New Message Board Archives >> 2002 Posts >> Introduction, One Question
        
(Message started by: David Shea on Oct 28^th, 2002, 11:29am)

Title: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 11:29am

Hi Guys&Gals
I'm new to this site and have been reading info. here
for A few days. I guess I should have Introduce myself
here before joining and posting in the chat.
If you will allow I'll do that now.

My name is David I'm 47 yrs old. I began getting HA @
15 yrs. old. The HA were one or two times ayear,cycles
lasting about 8weeks. Kip scale ?? hard to say, Perhaps
8,9,10"S.. As the ER trips the screams and groans, rocking and profuse sweating were always prevelent in my bouts with the BEAST. always my right eye. And 2:20am the bell rang for round one each morning.

AT the age of 41yrs. I though I'd won the war. I had
heard from another clusterhead the beast would surrender if I got older and more relax in life.

After almost six years, I have found out the beast was only sleeping and awoke last week.
I'm now takeing high blood meds. ( NORVACS ) A calcium channel blocker. The durations does not seem to be as long this time around and Kip scale 7and 8's
are more prevelent. with long periods of shadows
before and after..
Hope you Guys and Gals do not mine me joining you here. Charlie thanks for your Tip..
One Question.... Does anyone experiance the profuse sweating I always have? I'm wondering what is bringing
this on.
I feel for you all and wish you the very best...
Hope you are PF soon.
David

Title: Re: Introduction, One Question
Post by Slammy on Oct 28^th, 2002, 11:34am

Welcome to the asylum, David. I, too, will break out into a sweat during an attack, though I do not know specifically why, other that my body is focused on dealing with the pain. Hope the beast's visit is a short one for ya! :D

Slammy 8)

Title: Re: Introduction, One Question
Post by marty on Oct 28^th, 2002, 11:40am

Welcome aboard David...

As you allready know there is lots of info here..

You are not alone when it comes to sweating.... Each and every time that I'm hit, I sweat to the point where my hair is literally dripping.. I have found that this is not connected to the severity of the attack though :-/. I don't know why the sweating is so extreme - but I have a feeling that someone on this board will know - there's some really smart people here.

Marty

Title: Re: Introduction, One Question
Post by eyes_afire on Oct 28^th, 2002, 11:58am

Hi David. I can only hazard a guess about the sweating. One prevailing theory is that a malfunctioning hypothalamus contributes to CH. The hypothalamus also helps control sleep/wake cycles and thermoregulation of the body. So, perhaps it is the malfunctioning hypothalamus that is causing the sweating ???

Title: Re: Introduction, One Question
Post by Bob P on Oct 28^th, 2002, 12:15pm

Just yesterday, I added a "Hypothalamus Primer" to the hypothalamus section fo the OUCH Library. It talks about the hypo's jobs and body temp regulation is one of them.

Here is everything you ever wanted to know about sweating and CH:

http://pahlow.net/ch/sweating.pdf
http://pahlow.net/ch/sweating1.pdf
http://pahlow.net/ch/sweating2.pdf
http://pahlow.net/ch/sweating3.pdf

Title: Re: Introduction, One Question
Post by don on Oct 28^th, 2002, 12:25pm

Wecome aboard the ship of the damned.

It takes an enormous amount of energy to fight pain.
Sweat?

Almost as much as when I won that Mr. Olympia contest back a few years ago.

Title: Re: Introduction, One Question
Post by Marc on Oct 28^th, 2002, 12:50pm

Hi David,

Just to add my 2 cents to all of the above - yes, during an attack, I sweat big time and have a really, really hard time cooling down.

Between the sweating, the nose & eye running, I think I lose one hell of a lot of liquid in a short time!

Marc

Title: Re: Introduction, One Question
Post by sueellen83 on Oct 28^th, 2002, 1:14pm

David,
Welcome to the madness!!!! ;D ;D ;D.
gets a little crazy around here at times. But lots of good info.

I also sweat alot during a CH attack. When it starts to subside then I get chills. I think maybe, Eyes is right about the hypothalmus.

Hate to hear the beast is back. Talk to you later.

Sue Ellen

Title: Re: Introduction, One Question
Post by Jim R on Oct 28^th, 2002, 1:53pm

Welcome David. I'm sorry to hear the Beast is back for you after a long hiatus. I had the same thing happend ot me last year (I'm the same age as you).

To answer your question, my face sweats during a bad CH on the side of the headache, but not a general whole body sweat.

Wishing you a brief cycle and PFDAN's.

Jim R

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 2:02pm

Thanks for the replys Slammy, Marty, Eyes ,Bob , Marc,Don, Sueellan- Its nice to be able to have some company with this battle going on in my head. I've
got to tell you guys I do not know how this can happen
all over again....MAN!! THIS REALLY SUCKS.....

Don wanted to tell you I'm from Attleboro and visit often
By the way I work on a ship... I thought I would be in
Attleboro for a visit in Nov. But not with the Beast back.
Patriots are in for along season.....

All stay strong and I'll try to do the same. But, I'm in
trouble here.
David

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 2:09pm

THANKS for the Post Jim R,
looks as tho your siting out on a lake in that pitchure.
David

Title: Re: Introduction, One Question
Post by jonny on Oct 28^th, 2002, 2:54pm

Welcome Dave,

Be very careful of that Don, he will eventually try to borrow money from you. that sucker got me for $50 two yrs ago ;D

BTW: im from weymouth and Don keeps knocking on my door, I pull all the shades and act like im not home but he wont go away.....one time I had to call the cops on him :o :o :o :o

.....................................jonny

Title: Re: Introduction, One Question
Post by Jim R on Oct 28^th, 2002, 3:05pm

Yeah David - in my boat on Lake Winnisquam. I live in Laconia, NH. Been to many a concert down your way in Mansfield, MA at the Tweeter Ctr. Good luck neighbor!

Jim R

Title: Re: Introduction, One Question
Post by echo on Oct 28^th, 2002, 3:25pm

Welcome aboard the CH boat. Sorry that you needed to search for such a site. Now that you're here -- stick around. Let us know how you're doing. MB tends to get alittle gamey from time to time, just hang in there.

As one of our old farts puts it -- grab an oar and start rowing.

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 3:49pm

Thanks Echo!
I'll be around, Now were to go with these battles going on in my head.
Hope I can make back to work in Africa, 2nd week December. I'm on my way to OUCH to try to get info.
on foods containeing Nitrities..

Thanks for the Warning Johnny, I'll keep that in mind..
David

Title: Re: Introduction, One Question
Post by Bob P on Oct 28^th, 2002, 4:02pm

David,

You won't find anything on nitrites at OUCH.

that's because there are no foods recognized as cluster triggers. Alcohol, nitroglycerine, heat and exercise are the only triggers I've seen mentioned in any literature (unless of course the literature was written by a meegraine doc).

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 4:09pm

Thanks for That post Bob I've read that foods containing Nitrites and other compounds that diliate blood vessels
are triggers.
Thanks Again,
David

Title: Re: Introduction, One Question
Post by 2late on Oct 28^th, 2002, 4:14pm

welcome to the board Dave, i also sweat like a sleeper in a police station during attack, glad you found us, watch & learn ;D ...........2late

Title: Re: Introduction, One Question
Post by 2late on Oct 28^th, 2002, 4:16pm

sleeper....LMAO shoulda said lady of the evening ;D ..........2late

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 4:43pm

O.K. 2late.
I'm watching and leaning, Great that I found this site
lots of info. for my many questions. I read the info. @
Ouch on why we are sweating, tho I'm not sure I
understood it. But, I'm soak after an attack, Have to
change and dry off. This is keeping me in my home.
No social life for this period.
Thanks for the post,
David

Title: Re: Introduction, One Question
Post by domm on Oct 28^th, 2002, 5:22pm

David - I usually got the sweats during a really bad attack. Never whole body, just forehead and scalp. Welcome to the board and I hope you're following all the great advise thats available here. Are you using O2 or other abortives? The calcium channel blocker thing worked for me (Verapamil).
Good luck and PF days and nights to you.
domm

Title: Re: Introduction, One Question
Post by Jabeen on Oct 28^th, 2002, 5:28pm

I do not have bad attacks (probably nothing over a 5) but I do sweat also...actually reminds me of night sweats. I am sure males can't relate to that, but maybe some females-
Jeabeen

Title: Re: Introduction, One Question
Post by David Shea on Oct 28^th, 2002, 6:51pm

Hey Domm- As I said this nightmare is just comeing back into my life now after 6yrs. of silence. I have to look into
some meds. I've never had any before save for pain
killers. But5 always said I'll get something if any of this was to happen again. I leared of the 0xgen and cocaine
derived meds after my curse was in remission for 6yrs.
Any way I'm in the process of look into meds. now, As I
don't think I could get by again with out them. I really
got my ass kick today. One thing that concerns me is the job I do. I'm Captain on and offshore supply boat
and live on it for 60days in Nigeria to boot.. And all meds. are ifvie on board and piss test all the time..
So, I'm not sure what I'll do.
Thanks for your Post Domm, Hope to hear more..
David

Title: Re: Introduction, One Question
Post by marty on Oct 28^th, 2002, 7:14pm

David...

Talk to your employer about the meds that the Neuro (when you see one) gives you. At my work, we test alot and I was Ok'd for using verapamil - the Imitrex was iffy though and I can't use it while working and not less than 4 hours before going to work.

Another thing that you might be able to try (it actually helped me) was caffeine tabletts that disolves in water. I got them while in Scandinavia - Since your ship must be in International waters, maybe you can get them or something like it - I haven't been able to find anything like it in the U.S that works. Hey, it's worth a try...

Title: Re: Introduction, One Question
Post by Ree on Oct 28^th, 2002, 8:11pm

Welcome to another Mass Clusterhead... We are from Natick... my hubby has had Ch for about 20 years (we're sick of counting) He heard that same idea about CH going away when you get a little older... I guess this means your YOUNG... Hope its a short cycle for you ~~~again Welcome Ree (supporterhead)

Title: Re: Introduction, One Question
Post by sueellen83 on Oct 29^th, 2002, 10:30am

Hang in there David!!!

Just wanted to tell you that some of the foods listed on the migraine triggers list make my CH's worse. Doesn't necessarily trigger them just makes them more intense.

You might keep a diary of HA's and their intensity and what you ate before them and see if you see a corralation.

Hope this helps a little.

Sue Ellen

Title: Re: Introduction, One Question
Post by David Shea on Oct 31^st, 2002, 3:24am

HI sueellan- I remember reading some were that
foods containing nirites can trigger clusters.
Bob P, tells me I would not find any info. on this at
OUCH. I guess the medical community has reversed them selfs on nirites and other compounds being triggers.
unfortunately for us I don't think sience will every
agree on any triggers for this curse. Its to hard to understand first. and second almost inpossible to study.
Thanks for the post.
David

Title: Re: Introduction, One Question
Post by David Shea on Oct 31^st, 2002, 3:34am

OH YEAH!
tHE NITRITES AND other compounds found in somefoods
being triggers. that was a report from the
Seymour Diamond headache clinic in Chicago.
medical scientists what do they know? Right!
They should stop testing, Always reversing them selfs.
Right!
What do you think Sueellan???????
pfdn
David