Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> 1 Day painfree
        
(Message started by: F1World on Oct 27^th, 2002, 11:06pm)

Title: 1 Day painfree
Post by F1World on Oct 27^th, 2002, 11:06pm

Hello all. After a miserable 14 day stint of no sleep due to our common bond bastard, I am so glad to say that I have had ONE whole night of uninterupted sleep. I had almost given up all hope of finally obtaining one solitary night of quality shut eye, especially with Friday night being so bloody ruthless for me. Being bombarded at 12, 2, 4, 6am respectively, I thought I was gonna go mad yet once again. I made it through Saturday without incident, to my utter amazement, and went to sleep, quite exhausted I might add, sleeping ever so soundly until almost 10 am Sunday. So... this is my one little victory, and I'm enjoying it, because as I type these words..... well, we all know how it ends..... :'(

One question.... if the attacks are becoming less in duration, but sometimes more intense, is this a sign that a cycle may be ending? I hope, I hope?? Gotta keep re-affirming myself that there is light at the end of the tunnel... and not just a train coming at me head on....... if you know what I mean.

Take care everyone....

F1World.

Title: Re: 1 Day painfree
Post by Mastifflvr28 on Oct 27^th, 2002, 11:30pm

Sounds SO familiar F1!!!
Those are my PEAKS (every 2 hours all nite)...meaning they start weaning down to the end. I can't promise that's what it is for you, but I'm sure hoping.
Good luck!!
Mast

Title: Re: 1 Day painfree
Post by Lori on Oct 28^th, 2002, 12:04am

For me when I start a cycle, they last about a 1/2 hr and slowly, day by day, they last longer until finally each HA lasts 1 1/2 hrs. That lasts for about a week and then it goes back down gradually to lasting about a 1/2 again before it ends. So, maybe, and I hope for you it is the sign of the end. :)

Title: Re: 1 Day painfree
Post by Charlie on Oct 28^th, 2002, 12:55am

Welcome and as they say: it's very familiar.

For me, when my cycle was ending, the frequency would drop. They did seem a little shorter as well. The intensity rarely fluctuated, if at all.

Charlie

Title: Re: 1 Day painfree
Post by Mark C on Oct 28^th, 2002, 2:16am

Great news F1, glad to about any PF day or night!
I know you have a rough one. :(
ENJOY!
I'm pretty sure I finishing up a bender that started in August, ripped through September and October and is finally releasing me in the last few days...whew. October was one to three K8's daily, every fuckin day, rough. Been sicker than I have been in a long time.
Sick enough to find THIS PLACE! ;D
HOME!
Later all,
Mark

Title: Re: 1 Day painfree
Post by Marc on Oct 28^th, 2002, 3:00am

F1,

Yup, lots and lots of folks have reported that pattern. Hope you are on the down side of your run now!

Good luck!

Marc

Title: Re: 1 Day painfree
Post by suzy617 on Oct 28^th, 2002, 5:22am

Mine started in Sept., first 3 weeks mild kips then wham, 6 out of 7 nights a week for 3 weeks (for some reason I would be pf at least once during weekend) and then they just completely stopped. 8 pfn's for me now. Good luck to you, hope the beast is gone.

Title: Re: 1 Day painfree
Post by F1World on Oct 28^th, 2002, 8:24am

I should have kept my mouth shut :-X as I figure that bastard was drunk or getting laid Saturday night, and that's the only reason he left me alone..... he made me pay for my overexuberance and in the thought that he may be leaving soon.... yuck, what a night. 3 majors that left me moaning and paralysed, rocking in my chair (walking made it worse) 2 of them lasted close to 2 hrs each.... man oh man..... I am really getting worn out.... can't even blow sunshine up my own ass today....christ.

Title: Re: 1 Day painfree
Post by Edna on Oct 28^th, 2002, 8:31am

sorry to hear that your pf time was shortlived F1......but hang in there.....since you got a taste of that pf time you know how good it is, and think of that when you're fighting. It's worth it and so are you!!

Hoping your fight with the devilish best in nearer to an end than we know.

Keep us posted and wishing for pf moments for ya,
EDNA

Title: Re: 1 Day painfree
Post by echo on Oct 28^th, 2002, 8:36am

Sorry your PF streak was short lived. I hope this visit is a short one.

Title: Re: 1 Day painfree
Post by Margi on Oct 28^th, 2002, 8:55am

Hi Jeff,

Yep, same pattern for Mike when his cycle starts to end. One or two good nights, while the beast seems to be sucking in his breath, only to draw strength and nail the hell outta him yet again. But that's always a sign that his cycle is drawing to a close.

So take heart, kiddo - it's really not a train this time. ;)

Here, hold onto this rope....we'll pull ya back up over that cliff you feel you're hanging off of right now.

Title: Re: 1 Day painfree
Post by Riccardo on Oct 28^th, 2002, 9:10am

Same as Charlie here.

during start and end (a couple of weeks both), the frequency of attacks rise (start) and lessen (end).

No change in the time (always 1 hour) and pain (always Kip 10 for me.... :'( )

Title: Re: 1 Day painfree
Post by ZAIRA on Oct 28^th, 2002, 1:32pm

Hy F1,
I can understand you when you tell that it is a victory to have a painfree night, rather having an attack diring the night I would prefer to be beated... I am happy to hear you are good, and I hope the beast will leave you definitely.

October for me has been a very hard time I got many attacks, I know that the CH is leaving me when I have less attacks during the day even if the intensity is quite pretty,

Good luck form Italy, Zaira :-*

Title: Re: 1 Day painfree
Post by David Shea on Oct 28^th, 2002, 5:30pm

Hey F1 World,
The same goes for me, The battle stops and than comes
back roaring and than get less and less intensity and
duration.
I got nauseated just readingt your second post here.
Good Luck!
David

Title: Re: 1 Day painfree
Post by F1World on Oct 28^th, 2002, 5:45pm

Just a quick "Thank You" to those that took the time to read and reply to my post. I enjoy reading feedback, even if it is on such a horrible topic for us all, but it helps to know how others' cycles ebb and flow. I just wish it was done already... I really don't know how you all manage, maybe with the meds it helps, but alas, I haven't taken anything except Tylenol... pfft.... being an adult student with limited funds kinda puts me in the "I really can't afford the treatment" category. Such is life. Take care all.. and "Thanks" once again!

F1World

Scuderia Ferrari, Forza Ferrari!!!!!!

Title: Re: 1 Day painfree
Post by Slammy on Oct 28^th, 2002, 6:09pm

on 10/28/02 at 17:45:21, F1World wrote:

Scuderia Ferrari, Forza Ferrari!!!!!!

Now I know what F1World means... :D

Slammy 8)

Title: Re: 1 Day painfree
Post by Ree on Oct 28^th, 2002, 8:14pm

Hope its the end for you F1~~~ think positive... I'll be crossing fingers for you... ree

Title: Re: 1 Day painfree
Post by domm on Oct 28^th, 2002, 8:59pm

F1 is also (usually) the key used to get instructions and help in computer programs ...... things that make you go hmmmmm 8)

domm

Title: Re: 1 Day painfree
Post by F1World on Oct 28^th, 2002, 11:04pm

Interesting Domm.... I guess that sort of applies to me as well, as I am currently in school working towards my MCSA, but Slammys' conclusion was totally on the mark. Yeah, I'm a Formula One fanatic.... some may murmer "obsessive..." depending on with whom you speak... but it's my deepest passion, and has been for most of my life. Even have the Michael Schumacher logo tattooed on my left bi-cept... Jonny's not the only one with a set of guns.... heh heh. :o

Well..... off to make sure my gel packs are nice and frozen... gonna be one of those nights..... man I hate this....

ciao

Title: Re: 1 Day painfree
Post by Mark C on Oct 29^th, 2002, 2:37am

Sorry about the regroup and flank attack F1, this shit just plain sucks. It is a cruel irony that there are meds that can prevent / abort CH, but at a hefty price that only "Gill Bates" can afford.
I have attached a link I hope can help. good luck!

http://www.phrma.org/pap/pa99.pdf

Later,
Mark

Title: Re: 1 Day painfree
Post by Ted on Oct 29^th, 2002, 2:49am

A two-week cycle, huh? I'll be the first one on the block to be a prick and tell you my heart's not breaking for you. Sorry dude.

Title: Re: 1 Day painfree
Post by Mark C on Oct 29^th, 2002, 3:24am

Damn Ted,
Lighten up,
I didnt see anywhere in his post requests for sympathy,
only what I thought we were here for, a place to hurt.
I guess some of us are sicker than others.
DJ sez.....

"It's been almost three years now. More than 1,113,000* people have visited the site, 6,001,000* hits total, and over 173,600* messages posted on the message board (* numbers as of August 28, 2002). I am TRULY amazed! If you only knew how many nights I've sat here, with tears streaming down my face, reading the messages from all of you. You have truly blessed my life! Like many of you have stated in messages, sometimes, the greatest feeling in the world is just knowing that someone else out there REALLY knows how you feel! That comfort, in itself, is absolutely priceless!"

I think the last couple of lines sums it up nicely!

Title: Re: 1 Day painfree
Post by Ted on Oct 29^th, 2002, 4:50am

Hi Mark. Good to see you posted tonight to every single possible post there is. A "veteran" in 2-3 weeks? ::)
So, what the hell does "sez" mean? ::) ::) ::) ::) ::)

Title: Re: 1 Day painfree
Post by Mark C on Oct 29^th, 2002, 5:21am

Hi Ted,
Good to see you read every post I made tonight! ;D

Main Entry: 1slang
Pronunciation: 'sla[ng]
Function: noun
Etymology: origin unknown
Date: 1756
1 : language peculiar to a particular group: as a : ARGOT b : JARGON 2
2 : an informal nonstandard vocabulary composed typically of coinages, arbitrarily changed words, and extravagant, forced, or facetious figures of speech

Please post Ted's rules of posting, limits, pain levels required, HA duration, etc. I would like to PC about this.
I have only had CH since I was 14. I will be 41 this month, do I qualify? :)

I didnt call you a prick..........you did.
Later

Title: Re: 1 Day painfree
Post by F1World on Oct 29^th, 2002, 9:25am

Hi TED... Fuck you TED.... Have a nice day... TED.

nuff said?

F1.

Title: Re: 1 Day painfree
Post by Ueli on Oct 29^th, 2002, 10:28am

Nice post F1 ;D