Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> IDIOTS!!!
        
(Message started by: jonny on Oct 26^th, 2002, 7:06pm)

Title: IDIOTS!!!
Post by jonny on Oct 26^th, 2002, 7:06pm

"When the break between cycles is less than six months, cluster headaches are termed chronic."

Miss information is one thing but when I read this on another HA site it really torks my ass!!!!!

Fucking Docs dont get it and .............forget it!!

Couple months PF sounds great to me and I wouldnt mind being labled chronic, hell, I wouldnt mind being labled a damn transvestite for that amount of PF.

Fucking idiots!!!!!!!!

.......................jonny

Title: Re: IDIOTS!!!
Post by BobG on Oct 26^th, 2002, 7:10pm

What HA site? Maybe we could all take turns each day hitting the doc with a snow shovel.

After a year without relief he would then be classified a chronic snow flake. :D

Title: Re: IDIOTS!!!
Post by jonny on Oct 26^th, 2002, 7:14pm

http://headaches.about.com/library/weekly/aa071200a.htm

I know they are friends of ours but WTF.....get your shit straight!!!!

.......................jonny

Title: Re: IDIOTS!!!
Post by Jackie on Oct 26^th, 2002, 7:27pm

They mentioned Seymour and Diamond a couple paragraphs down......that's probably where they got their information. ::)

Jacks 8)

Title: Re: IDIOTS!!!
Post by Ted on Oct 26^th, 2002, 7:51pm

6 months between cycles? Must be a variant form of chronic.

They also state "there does not seem to be a hereditary factor to them," which is also inaccurate. But all in all a good article and it's nice to see it out there.

Title: Re: IDIOTS!!!
Post by M.R. on Oct 26^th, 2002, 8:12pm

Sorry that I posted anything that was misinformative or misleading.....point was that ouch and ch.com was mentioned.....never said that these people had a clue...sorry dude

And sorry other peeps

Title: Re: IDIOTS!!!
Post by Karla on Oct 26^th, 2002, 8:25pm

How dare they! >:(

Title: Re: IDIOTS!!!
Post by Charlie on Oct 26^th, 2002, 8:30pm

What is the percentage of chronic sufferers? The stated 10% seems low from my reading here. I hope they're right and I'm wrong.

Charlie

Title: Re: IDIOTS!!!
Post by Ted on Oct 26^th, 2002, 8:37pm

10-20%, depending on what you're reading. But it's somewhere in there, Charlie.
I actually was happy to see that they mentioned us and had an article about CHs. Sure there were a couple of mistakes. And really, only one of the mistakes is now coming to light -- the hereditary part of the equation. That info is only a couple of years old. Anyone here who got mad at them also write to them and let them know of their error so they'll be better educated on it next time?

Title: Re: IDIOTS!!!
Post by Ueli on Oct 26^th, 2002, 8:52pm

M.R. here is nothing to be sorry about, about.com usually has quite good articles and the links you gave are ok.
However, the articles jonny linked to is full of errors; there are better ones on CH at about.com.

One or two headaches per day for three to eight weeks
Many of us would give their cluster eye if they could get away with this.

When the break between cycles is less than six months, cluster headaches are termed chronic.
Like our beloved Dannyboy, they believe the IHS criteria are useless.

Cluster headaches are six times more common among men than women.
Some rather old data.

There does not seem to be a hereditary factor to them.
Sure, you can't trust a know-it-all like Dr. Goadsby.

Those who start having them early may well outgrow them by their forties.
Who would like to swap with Charlie ;D

Other medications used to relieve the pain and prevent attacks include antihistimines, antidepressants, calcium channel blockers, beta blockers, and lithium carbonate.
SYNTAX ERROR! All these meds are preventative, or at least sold as such:
Beta blockers can prevent meegraines, but seldom help for CH.
Antihistamine treatment for $20,000 from the Diamond clinic have not a very good record :(

If you think you have cluster headaches, you should consult your physician.
An average of 8 years until the right diagnosis speaks for "your physician". How about a neurologist?

Who's gonna tell about.com that this article is below their standard?

PFNADs
Ueli

Title: Re: IDIOTS!!!
Post by ZAIRA on Oct 27^th, 2002, 1:27pm

OH MY GOD Jonny, me too, according to Dr. Goadsby, should be a chronic!
Thinking of it I am frightened!!
Hopefully I got the info from my Doctor that my cluster is episodic.
So, these idiocies should be checked before being published in a site.

Ciao, Zaira :-* :-* :-* :-* :-* :-*