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Title: What is going on ? Post by pjbgravely on Oct 23rd, 2002, 8:41pm What is happening to everyone? First Paco, Then Sailpappy and now DRK Angel gone. This is really strange to me unless there is a reason that we cannot see. Peppermint's post of someone falsly accussing her got me to wondering who would do that. Then I realized that if someone sends you a nasty E-mail or PM then deleate it without reading it. Most browsers allow you to block incomeing E-mail from senders you don't like. If someone replys to your post in a way you don't like then ignore it. It is only words, you need to consider the source of those words before you take them to heart. Ppl also post things they will later regret so why don't you wait and see if they change there mind. I know this is a mans point of view and that women can read more out of a message then men but everyone needs to consider the source. One more thing, I understand and know ppl who have got things so bad now, not just clusters, that they don't post for support becouse they are afraid of getting flamed for not saying things perfectly or have a diffrent opinion of things. I have a friend at work that knows a woman with clusters, I told him the URL but for her not to post right away, that hopefully things might get better. I have read a few very supportive threads so I am hoping that newbies in the future will get the wonderful support that I got with my first post. Sorry if I rambled........ PJB |
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Title: Re: What is going on ? Post by kim on Oct 23rd, 2002, 8:48pm Dunno. Wish it werent that way. don't know how to answer that question in a way that will make it change. Wish I did. It's not right. you have lots of company in contemplating that query. |
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Title: Re: What is going on ? Post by forgetfulnot on Oct 23rd, 2002, 9:47pm PJ, do you remember high school? ::) That's what is going on! Lee |
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Title: Re: What is going on ? Post by Lapsi_Harmaahapsi on Oct 24th, 2002, 12:24am Wise words from a 6-years old: "Nothing helps a bad mood like spreading it around." - Calvin |
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Title: Re: What is going on ? Post by Mark C on Oct 24th, 2002, 3:40am I will tell you whats going on with me, my head hurts! It has been hurting since the first of August. I got a little break for the last couple of weeks because of some Topamax and Medrol, or maybe not, but anyway my fucking head is still hurting. 12 hour cycles, ouch. Topamax is killing me too, nasty shit and my head still hurts. I dont understand how the pain of this MB runs people off but CH dont! I need DA and Sailpappy and anybody else who will listen to me bitch and moan about my goddamn headaches! I'm getting pretty fuckin pissed off and depressed about having to keep explaining to my "world" how I can have HA for 3 months! Hell I dont know! It aint my fault, ask God! ramble ramble ramble ramble........................... Yall need to find LTBullit and Jill and Me and see how us suffering people are doing and quit jerking each other off, there are plenty of other MB for that. I am now steping down off of my soap box because my head hurts too much to sit here in front of this damn screen for too long, but dammit I WILL be back as soon as I can. Jonny, you're in charge till I get back ;D Mark |
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Title: Re: What is going on ? Post by NotH20 on Oct 24th, 2002, 9:31am ??? Will someone PLEASE tell me what's going on regarding this MB and all the wonderful people? GONE??? Are you telling me that Paco, Pappy and Drk are gone? What on earth is everyone doing? Can anyone give me a quick response to these questions? Thank you, Mia |
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Title: Re: What is going on ? Post by marty on Oct 24th, 2002, 10:25am Could it be that when this MB was started, it was based on the fact that all CH'rs are equal. As time went by, some of the CH'rs that participated felt that they were more equal than others... I am very new to this board but I'll tell you, for me to start a new thread on a "popular" subject... I would have to think about it and write a number of drafts before I did so that it would be perfectly "diplomatic", supporting the leading views as well as the views that I have not even thought about yet... Marty |
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Title: Re: What is going on ? Post by DougL on Oct 24th, 2002, 12:18pm All true clusterheads are created equal on ch.com If you want to start a new thread just start it. Just be open to critizam. When I first started posting I was very set in my thinking and "Drummer"nailed me. Come to find out he was half playing half seariouse. Just took ME taking the time to get to know him and every one else on the board. Once I did that I understood how to take what others had to say to and about me. DougL |
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Title: Re: What is going on ? Post by Margi on Oct 24th, 2002, 12:25pm VERY profound, Doug: All true clusterheads ARE created equal on ch.com. And, if I remember your arrival correctly, you also had to train US on the Lutz World of Creative Spelling. ;) Drummer really was a master of interrogation, wasn't he? |
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Title: Re: What is going on ? Post by DougL on Oct 24th, 2002, 12:38pm There's nothing wrong with MY spelling. Yall are the one's who can't spell. :-* DougL |
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Title: Re: What is going on ? Post by don on Oct 24th, 2002, 1:15pm When I started posting I got into a fucking brawl. Big Deal! So What! I'm still here. I get support, I give support. Quote:
critizam- Is that a new CH drug? |
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Title: Re: What is going on ? Post by Bob P on Oct 24th, 2002, 1:16pm Ain't nuttin' goin' on wit da board dat ain't gone on a hunderd times. Pappy - not quite sure about that one. Paco - beat himself up and ran away. Dork - everyone beat him up but that is what he wanted, he feeds on that kind of treatment, his way of getting attention. We just keep rollin' along. Some come, some go. Some teach, some learn. Some stay, some leave (take the hint hub!). |
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Title: Re: What is going on ? Post by jonny on Oct 24th, 2002, 1:45pm on 10/24/02 at 13:16:46, Bob P wrote:
I didnt know you had CH, Chief Moose!!!! ;D ;D ;D ................jonny |
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Title: Re: What is going on ? Post by StanTheMan on Oct 24th, 2002, 2:38pm I never let being new to the board keep me from posting . . . At first, I'll admit I was a *little* intimidated . . . ("gee I wonder if they'll think I'm strange or treat me different 'cuz I don't cuss... ;D ", yada, yada. Then I thought: well, I'm just gonna be me...if they grill me, flame me, throw me to the HMO's, I don't care..." I quickly found out that I'm part of a wonderful (a little wierd) but wonderful family. No one's perfect here ... we might have a bad applea (aka "jerks") once in a while, but every site needs a couple of those, just to make things interesting! ;) Regards and PFDAN to all Stan "Loving You All" TheMan |
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Title: Re: What is going on ? Post by firebrix on Oct 24th, 2002, 2:59pm The brikki's back! ::) Yeh, have to agree with Bob - seen all this B4. Don't let it get to you - just accept that there are those who like to spread their misery around in all places on the planet. Try working in a big industrial plant! No smiles, laughter or SOH (except with the brikkis) and if we were too sensitive, I don't think there'd be a lot of production! This is still the best site for CH info, support and new research. We'd be mad to allow a few disturbed humans to stop our access to this. Harden up man! As we say in the refractory game "Go hard or Go Home!" Me? I'm a firebrick. Can't flame a firebrick! Remember it is we who make CH.com what it is. We can make it good, bad or whatever we like, but if we lurk and hide we cannot change anything. I've been hard out working 16 hr days for the last 3 weeks and have missed lots. Will take some time to catch up. When I last read the board, Nancyc who has been a huge help to me, was sick, in hospital and I have heard no more. Anyone have any news of my friend? Have been thinking of her a lot and wish her a speedy recovery. Sailpappy, who has helped so many, was also sick. Does anyone have any news of him? Love ya pappy and wish you happy healthy days and fair winds. Love to you all - even you cantankerous critters who almost scared me off long ago! I hope you are all well and PF. Catchya all soon. BE HAPPY One very tired firebrix |
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Title: Re: What is going on ? Post by Jim R on Oct 24th, 2002, 3:05pm Hey firebrix! Good to see you back. Nancy C is doing okay - just "talked" with her yesterday... They still don't know what's wrong but she's doing a bit better. Hi to Mopar and take care- Jim R |
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Title: Re: What is going on ? Post by Ree on Oct 24th, 2002, 6:46pm Hey Marty dont feel that way... jump right in... when I first came here because my hubby cant type and would like to believe that he DOESN'T have CH but DOES... Everyone kept saying get your husband to post... tell him to come to chat... well he aint the puter geek and I am. Then the fact that I am a chronic Migrainer got in the way too and alot of people flamed me over talking to the people that got here by accident... (they call them the Meegrainers, I am one)but I felt they should be lead away with the dignity that they came in with... I stuck it out... No one could make me leave. No one could stop me from posting the truth that I knew about CH, the experience of supporting, and the help that I feel posting gives to at least one or two people suffering or witnessing this horrible affliction... Its like any job or group... you meet you hang around you get comfortable... some come in get too comfortable too fast and sometimes post the wrong information that leads the experienced posters to sometimes get aggrevated... I haven't met a patient Cluster Sufferer yet. Hit them on the wrong day and your screwed... We are welcoming... very welcoming and friendly too. I wish more people would post... knowing there are 2000 and something lurkers gives me the creeps... Pain Free Cozy Fall nights to you and those who support you ~~~Ree |
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Title: Re: What is going on ? Post by Jim R on Oct 24th, 2002, 7:06pm Ree, That was a really nice thing you did - really nice. It's good to hear a different perspective sometimes as we get caught up in this CH thing so much sometimes that we overlook a lot...or we don't overlook enough. We CH'ers can get pretty hard sometimes and it takes someone like you to .... sort of gently shake us, at least me, and make us remember why we're here and for what... Thanks. - Jim R |
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Title: Re: What is going on ? Post by pjbgravely on Oct 24th, 2002, 8:45pm Ree, Great post. I knew someone could encourage others better than my original post. PJB |
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Title: Re: What is going on ? Post by Ree on Oct 24th, 2002, 8:48pm I love you guys... you're my (our) family now!!! ree |
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Title: Re: What is going on ? Post by Peppermint on Oct 25th, 2002, 12:06am This is one hell of a family, I've seen that...and better informed than any other I know of for damned sure... (and Firebrix, just wanted to say hi, glad you're back.. sorry you are having to bust your grill on the hours. Hope you get some rest soon doll. I'll never forget your positive outlook when I first arrived....one of the first to "talk" to me when I came here. ) Things may seem harsh sometimes.. ..but read Ree's post again....wanna share my spectacles? Nothing but love, Peppermint ;) |
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Title: Re: What is going on ? Post by paul_b on Oct 25th, 2002, 12:32am Thank you Ree for reminding me about my lack of patience. Right on target. Thought my cycle was on its last leggs, well this week proved it isn't and I am getting REAL short of patience. Oh, there is nothing wrong with the MB. If you stay around long enough, you learn what to ignore. |
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Title: Re: What is going on ? Post by Charlie on Oct 25th, 2002, 12:44am Bob & Company are right. There is nothing new here but the players. This current waste of energy is nothing special. It's way for some of us to exercise. I really miss the cranks and crackpots on the old board. It was fun reading. We were subjected to some of the looniest quacks on the web. It was great fun. I think that we have become a little quicker on the draw since we lost most of those outlets. If DJ hasn't deleted all of that stuff, it can be fun reading if you're nuts like me. Charlie |
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Title: Re: What is going on ? Post by Edna on Oct 25th, 2002, 8:13am NOPE Charlie, don't believe there is another here that's NUTS like you dude! Anyway, what is going on???????? Hell......most of the time for the majority here, it's headaches........headaches that have brought us here, made us care, made us cry, made us cuss, made us mad, made us want to die, made us laugh, made us stupid, BUT best of all MADE US FRIENDS at least, it's friends for the ones that care enough to stick around and learn from others here, learn to support, help, chat, post...........think you got the message. AND if you didn't.......well you better do some more studying PF wishes to all, EDNA |
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Title: Re: What is going on ? Post by Charlie on Oct 25th, 2002, 4:54pm See? It's people like Edna that make my life hell. She never lets up and has a very iffy reputation here.... ::) Actually that there Edna keeps me on my broken toes. I don't know what I'd do without her......nah......yes I do. She's right though. I'm crazy as a shithouse rat. 8) Mean old Charlie http://www.headachesupportgroups.com/echat43/mad2.gif |
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Title: Re: What is going on ? Post by NotH20 on Oct 25th, 2002, 7:03pm Hey meanie.......the "shithouse rat" cracked me up! ;D Thanks for making the end of my work week a little bit brighter.....you're a mess Charlie! Mia |
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Title: Re: What is going on ? Post by firebrix on Oct 26th, 2002, 2:37pm Ree You are SO COOL and brave! firebrix |
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