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Title: Just Joined... Post by blew_an_eye_gasket on Oct 18th, 2002, 6:30pm I just found this site today at work, I have been dealing with this for about 5 years. They were always a pain, but this past week has been unbearable, today at work I got one and to try and pass the time I did a search on 'suicide headache' and this site came up. Between pacing around my office and wiping the tears from my left eye, I read as much as I could and have learned more than any of the 6 doctors I have been to see about this. Sometimes it's more than even the most strong willed person can take, and It's impossible to expalin to people who don't understand how unbearable the pain is. I already feel better about this, I thought I had a brain tumor or something. This week I will be sure to quiz my doctor about this, he seems to think Clartin-D and Allegra should fix my problems, but I know it's not a sinus problem. If sinus headaches were this painfull there would be a cure by now. |
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Title: Re: Just Joined... Post by RevDeFord on Oct 18th, 2002, 7:11pm :D Welcome aboard. It is never good to have CH, but it sure is good to know the things are real and you aren't just going out of your mind. I can remember how many times my dad, a paramedic, would tell me - "HEadaches just don't happen like that." I thought I was going nuts. But when the doctor told me what they were when I was in the middle of an episode, I was happy to put a name on the demon. Welcom. |
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Title: Re: Just Joined... Post by Jim R on Oct 18th, 2002, 7:32pm Welcome Blew...sorry you have to be here, but it IS the best place to be when you have these suckers (substitute an F for the beginning). LOTs of good info here.... and people. Wishing you pain free time... Jim R |
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Title: Re: Just Joined... Post by ShariRae on Oct 18th, 2002, 8:18pm so sorry you had to find us.. but welcome aboard...stick around..you will find much help, support & information. I know it was the greatest relief for me to find this site. I finally figutred I was not alone..yayyyyy!!! and neither are you! Huggsss Shari |
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Title: Re: Just Joined... Post by domm on Oct 18th, 2002, 8:26pm Blew - welcome home. Click your way through this site and the OUCH site. Buttons on the left. There is relief from this damn horrid condition, you may need to educate your doc, but it can be done. If he/she won't listen, find a new one. Don't take no for an answer, because you are not crazy, and you're not alone. You have found the best group of people around good luck domm |
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Title: Re: Just Joined... Post by Tim_w on Oct 18th, 2002, 8:34pm Welcome aboard- dont waste your time with clartin-d or any allegra -get another doctor- been there-have had c/h for 21 years |
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Title: Re: Just Joined... Post by Charlie on Oct 18th, 2002, 9:55pm We're glad you found us. There is an awful lot of some very good info here. We also have our fun but as one of us says: take what you need and leave the rest. You will find things to help in one way or another. We've all been there. Keep in touch and let us know how things are going. Charlie |
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Title: Re: Just Joined... Post by Georgia on Oct 19th, 2002, 1:26am Welcome home! Sorry you have to join our little pain fest. The good news is, you've just found a place that has more info, more empathy, and more support than any place else when it comes to cluster headaches. The 6 drs that you have been to see, were any of them neurologists? I would suggest going to see one if you haven't already...if you have, then go see another one. There is a list of recommended dr's by location on the OUCH website (link to the left). But most importantly, don't leave the treatment of your ch up to the dr. Arm yourself, by reading, by asking questions, and by reading some more. Go to the dr's prepared with what you want to try. Some suggestions: oxygen (see link to the left) imitrex (or any of the triptans) and a good preventative (verapamil works for a lot of people here). The more you tell us about what you have already tried, the more we can help. A script of Imitrex - $60. The support and info awaiting you here when the Imitex doesn't work - priceless. Peace and love and theft of corny commercials, Georgia |
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Title: Re: Just Joined... Post by 2late on Oct 19th, 2002, 8:18am welcome to the board blew! now do yourself a favor & take Georgia's advice! ..............2late |
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Title: Re: Just Joined... Post by Linda T on Oct 19th, 2002, 10:55am Hi Blew and welcome aboard. Glad you found this site. Not glad that you had to look for it in the first place. Stick around and read as much as you can. Print whatever you can and bring it with you to your neuro. If he/she is worth a damn he/she will be glad you did. Best of luck. Wishing you all PFDAN always, Linda T |
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Title: Re: Just Joined... Post by Jabeen on Oct 19th, 2002, 11:49am Welcome! I know what its like-the first dr. gave me eye drops, the 2nd dr. gave me sleeping pills. Very frustrating...when I found a neuro who knew exactly what I had I was ecstatic. However it was good news/bad news...there is no treatment that works for everyone. After I found out what I had and went to the book store, I found out that I was practically textbook-it bothered me that neither dr. had a clue when my symptoms were so textbook. Good luck-lots to read here- Jabeen |
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Title: Re: Just Joined... Post by Mark C on Oct 20th, 2002, 3:58am Welcome aboard Blew, In no time at all you will know more about being a Clusterhead than 99% of Earthling doctors. Sorry you need to be here but glad you are. Read, read read, then read some more. Educate yourself so you can educate your Doctors, they need it. Good luck and let us know how you do! Mark |
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Title: Re: Just Joined... Post by Drk^Angel on Oct 20th, 2002, 7:13pm Welcome to the board! Sorry that the beast is slowly forcing a lit flare further and further into your eyesocket, while banging on your cranium like a conga drum. Good luck! PFDAN............................ Drk^Angel |
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Title: Re: Just Joined... Post by wally on Oct 20th, 2002, 10:35pm when first went to the doctor, she told me the same thing, take some allegra and it will be alright. a week later i went back and she prescribed maxalt, and that seems to do the trick.....welcome anyway ;D |
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Title: Re: Just Joined... Post by BIG_AL on Oct 20th, 2002, 11:06pm Know how you feel blew - sorry and elated at the same time- but you'll find more here then in 99% of any doc's office. Load up here and then find a doc. If he/she listens great, if not, find one that does. It's amazing! My sinuses have been just dandy since I stumbled across this website. I just wish I could say the same about the right side of my face. Welcome Aboard Al |
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Title: Re: Just Joined... Post by cbolony on Oct 21st, 2002, 6:07pm blew they told me i had sinus headaches for four years.But like you the pain was so great i use to bang my left side of my head on the corner of the wall take hot and cold showers for about a hour take pain meds hold the left side of my face drops to my knees and say why me.Found this site read a lot went to a neuro told him i want imitrex injections to stop the the plain.So every time i get a ch i take imitrex and it helps me for now.Hand in there you are not alone.The people on this site are great people and they will help you |
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