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Title: Another new guy... Post by marty on Oct 9th, 2002, 7:00pm Hi Y’all… I have been watching, reading and learning a-lot about CH on this board. I was fighting an “unknown” enemy from 1997 to the summer of 2002 when I finally was diagnosed with CH. I am a “periodic” and usually get hit once a year – lasting for up to two months. I have learned that “qualification” is pretty important here, so here it goes; I get the pains on the right side, first sign is that the base of my right nostril feels like it is on fire – from there, the area around my right eye hurts, my right temple becomes a “loosing battle ground” of pain. My right eye closing – tears streaming, sweating so bad that my hair (what’s left) is dripping – I drink coffee (since that is the only thing that takes my mind of the pain) HOT coffee that sometimes blister my lips – two large 7-11 cups usually does it. This is “controversial” but I do believe that the coffee is a mental “support unit” – let me explain that… Since 1997 (when I first got hit) the Dr’s told me that I had sinus problems – since they could not fix it, in my mind, I figured that I needed heat and moisture – so I made and drank coffee LOTS OF IT. It seemed to help so I continued and I have not dared to see what would happen if I did not drink the coffee when getting hit. My attacks usually lasts 40 minutes – When in cycle, (this feels stupid – it’s like preaching to the choir) I do not dare to sleep – I only fall asleep from exhaustion trying so hard not to fall asleep – After my third nightly attack, I can usually get up to three hours of sleep. I cycled out in July, two days after I was diagnosed at the ER. I was enrolled in a Headache Management Program and was given Imitrex, Oxygen and Verapamil – only thing is, I had cycled out by the time that I got the medication so I am waiting for my next “round” to see if they work on me. Regrets… I am usually the most “self-controlled” and even-tempered person you could ever come across. CH takes that control away from me – I get nasty and ill-tempered and part of the blame is my own ignorance. For 5 years, I did not know that CH was causing this pain – I thought that it could be anything from a brain tumor to allergies. I know that in part, CH caused my marriage to fail – my Son was hurting – my wife was bitching etc… They did not understand (not their fault) and I could not explain why I acted the way I did. In May of this year I started my cycle, I had a girl friend that I liked very much. My attacks scared her so bad… Once again, I could not explain what the problem was so instead I broke up with her – it was better for both of us if I dealt with it alone… Today, I am diagnosed with CH. I have found this web-site, learned a lot and I feel “ready” face my next cycle – not as ignorant and knowing that it will not kill me, only make me stronger… Marty By the way, I read this somewhere: What is the measurement of true friendship? When two people can sit in a room in complete silence – and be comfortable with it… |
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Title: Re: Another new guy... Post by marty on Oct 9th, 2002, 7:03pm I have no idea what happened to the text in my original post (some code seem to have slipped its way in) I typed the message in Word and did a copy & paste when I posted it - probably the wrong way to do it. I hope that you can make it out... Marty |
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Title: Re: Another new guy... Post by Donna on Oct 9th, 2002, 7:13pm Well Marty, that first post was a real challange, but I think we can get the gist of it. It's a great post and we are very glad that you found us. Hopefully we can be of help and support to you. Welcome aboard. |
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Title: Re: Another new guy... Post by Charlie on Oct 9th, 2002, 7:15pm We're happy to have you and glad you now know more about this horror. You sound like you know what you're doing. You probably know too much about us :D We have our fun, as you know and any clusterhead or supporter is welcome here. Have you seen Simon's letter about CH? It's great to explain CH to friends and family. http://www.ouch-uk.org/ch/note_colleagues.cfm It's a good thing to print out. By the way, puter geeks have to tell me what all the numbers like this----> #8211 etc. mean. Your post is full of these things which I guess replace some text. Just thought you'd like to know. Glad to meet you. Charlie |
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Title: Re: Another new guy... Post by marty on Oct 9th, 2002, 7:37pm Charlie... I figured it out. I wrote it in Word and copied the text (being lazy) - the alien numbers are from me trying to put " " and - in the text. Sorry... Marty |
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Title: Re: Another new guy... Post by domm on Oct 9th, 2002, 7:53pm Marty - sorry to hear of your diagnoses, but glad you found us. Start pushing button. Tons of info here and at OUCH. You'll also find a family who understands what you're going through, because we've all been there. Good luck finding the right set of meds. The ones you mentioned are all good ones and work for me. Welcome domm |
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Title: Re: Another new guy... Post by curtisdsc on Oct 9th, 2002, 8:02pm Welcome aboard and hold on. This place is fun. Curtis |
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Title: Re: Another new guy... Post by jonny on Oct 9th, 2002, 8:10pm LMMFYBO......Curtis ;D ................................jonny |
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Title: Re: Another new guy... Post by don on Oct 9th, 2002, 8:59pm Welcome aboard Marty Just what the #$*(&54?"] are you talking about anyway? I dont see#$%m72%% a thing wrong with the %^543{/"; first post. |
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Title: Re: Another new guy... Post by cox3406 on Oct 9th, 2002, 9:16pm Welcome, Something is wrong with the original post? Damn, I thought it was just the Topamax I got yesterday. ;) Bye |
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Title: Re: Another new guy... Post by NancyMcFree on Oct 9th, 2002, 9:42pm Welcome to the Zoo. I have made the same mistake typing a post in word and then cutting and pasting. You can correct this before posting by doing a "preview post" and editing out all the #$%^# gobbedly goop. Or you can just post it as is ... we'll get the message. Glad to hear you cycle has ended. The meds that were perscribed to you are what I use and they work pretty well for me. Good luck with the next cycle. Stick around, enjoy the animals !!!!!!! We have the exotic, the endangered species, the pre-historic, all sort of wonders here !!!! |
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Title: Re: Another new guy... Post by Mastifflvr28 on Oct 9th, 2002, 10:31pm Welcome to the board Marty, Just wait till Drk gets ahold of ya :) Mast |
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Title: Re: Another new guy... Post by Drk^Angel on Oct 10th, 2002, 12:28am Welcome to the board! Sorry that the beast is sticking thumb tacks in your eye and temple, then wrapping your cranium extra tight with rusty barbed wire, then dunking your head in a vat of molten steel until it busts into flames, and burns away. Good luck. PFDAN.............................. Drk^Angel |
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Title: Re: Another new guy... Post by marty on Oct 10th, 2002, 1:35am Thank you for all the kind words. I guess that I will become a little bit more active on the board - I've been keeping my eye on you-all for a couple of weeks and this kind of Nice, Sarcastic, Loving, Protective and sometimes, Really Weird crowd makes me feel right at home. Marty By the way, what in heaven's name does LMMFYBO stand for??? I came up with a few suggestions but I do not dare to post them here... |
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Title: Re: Another new guy... Post by oringkid on Oct 10th, 2002, 8:13am Welcome Marty! Come on in, take a load off. Best place anywhere for CH. Jonny will have to answer your question on the LMMFYBO cuz I just can't LOL. Sherry |
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Title: Re: Another new guy... Post by echo on Oct 10th, 2002, 8:22am Welcome to the group Marty. Lots of available information and people support is contained within this site. |
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Title: Re: Another new guy... Post by joepauley on Oct 10th, 2002, 8:48am Hi Marty, Let me pipe up and add my welcome. I don't talk much around here yet (notice I said YET ;) ), and I'm sorry you had to look for us, but we're glad you're here. PFNADs to us all... Joe Pauley |
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Title: Re: Another new guy... Post by Slydog on Oct 10th, 2002, 9:50pm Marty Welcome aboard. Hope you find some comfort here. Slydog |
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Title: Re: Another new guy... Post by StanTheMan on Oct 11th, 2002, 3:44pm Welcome Marty! Yeah, we come in all shapes, sizes, and persuasions. I'm a newbie here (but not to CH's). StanTheMan |
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Title: Re: Another new guy... Post by pjbgravely on Oct 11th, 2002, 4:54pm Marty, I must be really out of it becouse I thought you were inserting special diagnoses code to discribe you pain. I found that writing a post in netscape mail then copy and pasting does a better job. Isn't it amazing how when you finally get what you have been wanting the beast gets scared and leaves. By the way you can still go back and edit your post but I kind of like it the way it is. PJB |
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Title: Re: Another new guy... Post by 2late on Oct 11th, 2002, 5:16pm Marty i was away, now i'm back, welcome to the board, pull up a chair & kick your shoes off, this place is a real trip, filter thru the bullshit & you just might learn somethin' ;D good luck to ya!! ............2late |
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Title: Re: Another new guy... Post by jonny on Oct 11th, 2002, 5:27pm Welcome Marty, LMMFYBO? Laughing My Mother Fucking Yam Bag Off If you need to ask what a yam bag is I direct you to Don, he will be happy to explain ;D .................................jonny |
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Title: Re: Another new guy... Post by Slammy on Oct 11th, 2002, 5:29pm on 10/09/02 at 19:00:01, marty wrote:
Talking over the static...... Dude...get Sprint PCS! ;D Slammy 8) |
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Title: Re: Another new guy... Post by Slammy on Oct 11th, 2002, 5:31pm on 10/11/02 at 17:27:40, jonny wrote:
Or consult Jonny's dictionary and look under " Slammy" ;D Slammy 8) |
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Title: Re: Another new guy... Post by 2late on Oct 11th, 2002, 5:32pm slam get out!! your watchin' to much tube! ;D ..........2late |
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