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        New Message Board Archives >> 2002 Posts >> Been a bad day
        
(Message started by: cox3406 on Oct 6^th, 2002, 7:56pm)

Title: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 7:56pm

Hi all,
I hope its OK if I rant some, its been a bad, bad day.
I am in day 27 or 28 or something of this current attack.
Nothing preventive has ever worked for me yet. I have been using Imitrex injection mostly (because thats what I have) but I should be able to get 6 Zomig tomorrow. Insurance is requiring something from my Doctor again before they will pay for my latest refill.
On about a 12 hour cycle between "dances" with really bad ghosting added just for fun. I tried an Imitrex pill (sample) this morning but it did not work near as well as the injection. Two hours after taking it I hit a high stride of about a 9 on the Kip scale and stayed there for a couple of hours. Been bad sick all day. The STATdose works much better in my case. The Zomig has been working also, but with the frequency of the current "dances" supply is a problem.
This spell has been going on for so long I am feeling like I am losing the battle. My family is suffering, my work is suffering, and my head hurts so bad. I wish it would just stop. I have started jumping on the kids and my Wife and the dog and everybody. I am the Daddy. I am supposed to be strong and it hurts even more when I cant even leave the Bedroom or Bathroom because I am too sick to open my eyes. My children are only 7 and 3 and they hurt too. They dont understand and its really making me depressed to be so sick and unavaliable to even eat Supper or play. Today I have just cried because I feel so helpless, so sick. I have been going through this for the best part of 25 years and I know it will eventually get better for a while, but right now, today, it hurts. I suffered so long because no Doctor knew what it was, they kept treating me for Sinus Infections, but it never helped. Another thing so bad about this attack is I also have had a real Sinus infection to go along with my dance with the Devil. Anti-biotics have pretty much cleared up the infection, but through it all my head has been hurting like a son of a bitch. I got a couple of doses of Imitrex injection with me so I am set for the next 18 or 24 hours I guess.
I dont know anyone else that has CH like I do so I am glad to have this place to vent. I only found this place yesterday and I am glad to be here. My poor Wife has suffered with me for 22 years now and she still dont understand. She just sees the results.
I am ghosting pretty bad and expect it to attack at anytime tonight, or maybe not. I am sick and tired of being sick and tired and I hate waiting to be ambushed. Please stop hurting.
I am working all night so I will be around
Thanks,
Mark

Title: Re: Been a bad day
Post by Charlie on Oct 6^th, 2002, 8:08pm

Rant away Mark and give my little technique that I posted under "Teck Neek" a try. It sounds nuts but that thing allowed me to keep going most of the time. Made things easier on those around me.

I know how you feel. We all do. Got mine in 1969 and it lasted until 1991. Since then, I've been in remission. Since 45, I've been free of the thing. It may just be age but the evidence is pretty thin on that.

It may be a good idea to let your family read some of the stuff on the site or read it to them. Kids have an amazing ability to understand and accept this kind of thing.

It's your turn for a break. Keep up the ranting. It was a good one. I warn you, you're going to get some real support here :D

Keep up the good fight.

Charlie

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 8:21pm

Thanks Charlie

Title: Re: Been a bad day
Post by domm on Oct 6^th, 2002, 8:23pm

Mark - I know where you are and I want you to know that its going to get better. There are lots of techniques and med combos that do work for many of us. You didn't mention Oxygen. It is a lifesaver for many of us and I recommend you read up on it here and at the OUCH site. Click on the search button and type in *oxygen and you'll get lots of info. I also would print out the medical info from the button on the left (second one down) and take it to your doc. Sometimes you have to educate them.
Hang on and fight the good fight. You have lots of support here with people who understand and have been there.
Good luck and PF days and night to you
domm

Title: Re: Been a bad day
Post by jonny on Oct 6^th, 2002, 8:33pm

Man, I went 14 yrs chronic and was never near the breakdown you are about to have.

The kicker is I had no meds for those 14 years.....im still here over a decade later.

................................jonny

Title: Re: Been a bad day
Post by don on Oct 6^th, 2002, 8:41pm

Try a prednisone taper.

The attacks may or may not re-occur when you get to the lower doses but there is a real good chance you'll get a few days of relief in between. Some time to get some rest and re-energize.

Title: Re: Been a bad day
Post by NancyMcFree on Oct 6^th, 2002, 8:46pm

Mark hang in buddy. Better days are ahead. Try the o2 suggestion ... I use that when I get hit while not sleeping and save my Imitrex shots for the "night calls" and when the o2 doesn't kick it. Take care !!!!

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 8:51pm

Thanks for the support guys.
I am going back to the Neuroligst this week and after reading some stuff here and Ouch I am going to see if he will try O2. He is pretty good so I dont think there will be a problem.

Jonny thanks for your input. I too have been chronic since 1976. I have tried many medicines, but it has only been in the last couple of years that anything tried had any positive effect at all. I am not sure what is worse, no meds or meds that dont work. Either way is not much fun.

Thanks all for the theraputic effect of one CH'r helping another seems to be without equal.
Mark

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 9:04pm

Thanks for the support guys.
I am going back to the Neuroligst this week and after reading some stuff here and Ouch I am going to see if he will try O2. He is pretty good so I dont think there will be a problem.

Jonny thanks for your input. I too have been chronic since 1976. I have tried many medicines, but it has only been in the last couple of years that anything tried had any positive effect at all. I am not sure what is worse, no meds or meds that dont work. Either way is not much fun.

Thanks all, for the theraputic effect of one CH'r helping another seems to be without equal, and besides, self-pity does not suit me all that well anyway,
Mark

Title: Re: Been a bad day
Post by Ree on Oct 6^th, 2002, 9:10pm

Sorry and Welcome... We definately can relate to where your at... how it effects our lives day to day... rant and rave here if ya need thats what we're here for... My hubby Dave has CH for close to 20 years now... the first 6 or so without meds because he didnt have a clue as to what he had... there are alot of things you can try... Dave uses Neurontin for a preventative... and imatrex injectables, nasal spray or zomig... if you get the zomig ask for the melting pills they are great incase you dont have water... good luck and again welcome let us know how we can help tell your wife we have a supporters page incase she needs an ear or shoulder... ok ree

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 9:27pm

Thanks Ree,
I am excited about this forum because no one has ever really understood what is happining. I think sharing here is like we were all crash survivors or POW's or something. Our common enemy brings us together and makes us stronger. I feel better now than when I posted earlier and I really dont care why, I just do.
I have discussed and even read some of this site to my wife in hopes she can gain some of the support that I have found. Maybe she will even post, I hope so.
Onward through the fog!
Thanks,
Mark

Title: Re: Been a bad day
Post by pjbgravely on Oct 6^th, 2002, 9:37pm

Mark, Try to get the sinus under control and it may help your CH. Even though your infection may be gone you probably need some healing in there. Try inhaling steam in your nose, and make sure your not clogging up again. Hope this helps.

Jonny, Few in this world are as strong as you!

PJB

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 10:09pm

Well its been about 12 hours and like clockwork the Devil is wanting to dance. I think I will try Maxalt a co-worker gave me. I still have my Imitrex injection but I like to save it for a 6 or better on the Kip scale. I havent tried Maxalt before so maybe it will help. I will be here all night no matter what anyway. My job has a certain amount of freedom that allows me to have all the CH I want. I can hurt here just as easy as I can hurt at home. 2 on the scale and climbing......see yall later.
Mark :(

Title: Re: Been a bad day
Post by cox3406 on Oct 6^th, 2002, 11:11pm

Maxalt seems to have worked, feeling better. Never rose above a 3 on the Kip scale.
Whew, may have dodged a bullet, at least for now.
PF at the moment,
Mark :)

Title: Re: Been a bad day
Post by cox3406 on Oct 7^th, 2002, 4:22am

20 hours now PF, cool. Maxalt worked , at least for now. Next attack , er dance, due about 2-4 hours from now, right about the time I am supposed to go to bed. I hope the cycle may be on the downside, but I am somewhat realistic that it may not be. In any case, PF right now and it feels good!
Mark