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        New Message Board Archives >> 2002 Posts >> Stupid
        
(Message started by: Night_Owl on Oct 5^th, 2002, 12:26pm)

Title: Stupid
Post by Night_Owl on Oct 5^th, 2002, 12:26pm

Now, my doc said that I had sinusitis, and is treating me for that. I have NONE of the symptoms. Is this possible? I am gonna bet no. One more thing to add to my "Things That Irritate Me" list.

Night_Owl

Title: Re: Stupid
Post by pjbgravely on Oct 5^th, 2002, 3:29pm

I have cronic sinusitis and each CH cycle starts with sinus problems which caused misdiagnosement. Sinusis may be a trigger but not the cause of CH. A sinus ha will be felt below or above the eye or in the back of the head. Not behind the eye. My nuro says that true sinus ha's are rare. Also they will beable to be seen with a x-ray. PJB

Title: Re: Stupid
Post by Lenny on Oct 5^th, 2002, 4:49pm

I myself was told that i had sinuatis before i was properly diagnosed,ended up having surgery that never helped.Hopefully you wont have to go that route.Are you seeing a neuo. that is familiar with clusters? If not,go to the home page and click on the O.U.C.H.website,they have a list of Dr.that are familiar with our wonderful disorder ( hopefully you will find one near you ).
good luck to you and hopefully PFDAN to you
Lenny

Title: Re: Stupid
Post by marty on Oct 5^th, 2002, 7:20pm

Dr's will do that to you... Mostly when they are not familiar with CH. I've seen a number of doctors, both in the US and in Sweden; They all told me that I had "Chronic Sinus Problems".. Just by pure luck, when at the ER in San Diego, I came across a Doctor that, when I explained my pain and related symptoms, diagnosed me with CH. For 5 years I was treated for Sinus problems - even though X-Rays showed clean sinuses....

As adviced above, check the listings of Doctors and hopefully you can find one in your area

Title: Re: Stupid
Post by Charlie on Oct 5^th, 2002, 9:17pm

Good Marty. Nice you found a good ER doc.

The odd thing is that my little town.....Jamestown, NY...
has one ER and every staff member knows about CH. and when asked about it they all grimmaced. Some lucky clusterheads here.

Sinus....not even close.

Charlie

Title: Re: Stupid
Post by Ree on Oct 5^th, 2002, 10:58pm

I will say it again Doctors are Stupid!!!!! When I had spinal meningitis June of 2000 the doctor first misdiagnosed me by saying" that sounds like a sinus infection" and prescribing cipro to me over the damn phone... 2 days later puking and the headache still didnt go away... I ended up in the hospital with a lumbar puncture and a 5 day stay... fried my brain with the 104 temp I couldnt get to break... Sinus and CH are two totally different pains... tell your parents to find a new doc for you... You dont have sinus problems... and time will tell Im sorry to say... If it is CH it will return... ~~~~love ya girl Ree

Title: Re: Stupid
Post by Night_Owl on Oct 6^th, 2002, 11:56am

Yes...for seemingly smart people they aren't very knowledgable. The ones I have seen aren't anyway. I go to my neuro on the 11th and won't leave that office until I get something...this is ridiculous...just fell down the stairs...think I might've given myself another butt crack!

Night_Owl

Title: Re: Stupid
Post by visegrip on Oct 6^th, 2002, 1:42pm

I feel for you Night Owl, I've had quite a bit of trouble with the misunderstanding of the medical community.

If you don't already have one, a tank of Oxygen can be your best friend.

Fortunately it works for me. Unfortunately, it took years of suffering to find this out. Thanks, Doc.

Title: Re: Stupid
Post by Night_Owl on Oct 6^th, 2002, 1:58pm

Yeah...I don't have any 02. I need something though.

Night_Owl

Title: Re: Stupid
Post by Peppermint on Oct 6^th, 2002, 2:04pm

Night!
Ok, back to the other night's discussion on HSG -
If you can't get 02 from the docs, I understand that you can use welder's or diver's 02.
The expert on regulators etc. on this is JOnny, as I understand it. I hear this is what he uses... maybe it would be worth it for you....

Anything's better than a new crack... ;)

Pep

Title: Re: Stupid
Post by Night_Owl on Oct 6^th, 2002, 2:29pm

LOL. That is an idea. I will have to see about that.

Night_Owl

Title: Re: Stupid
Post by Peppermint on Oct 6^th, 2002, 2:41pm

Calling on Jonny, calling on Jonny, kid in need of your wisdom and expertise...

Come in Jonny.. do you read...
Night could use your help..

(Night, I know there are some old threads on this too. If you are not in a CH mode, do a quick search, just so you see.. I'll see what I can find for you too.)

Title: Re: Stupid
Post by jonny on Oct 6^th, 2002, 3:12pm

Ask your Doc for 02.....thats all I can add unless the Doc wont give it to you.........then I can help.

.............................jonny

Title: Re: Stupid
Post by visegrip on Oct 17^th, 2002, 12:19am

Right on Johnny ! You go, man...spread the message of how to get that inexpensive welders Oxygen ! You bet. I love my oxygen tanks. I treat them like holy relics during times when I'm not in an episode. Knowing that there might come another time when they are precious friends. Fill em up and keep em filled. Holy grails they are indeed.

Title: Re: Stupid
Post by Charlie on Oct 17^th, 2002, 3:57pm

I think one of the reasons some doctors make stupid diagnoses is that they want badly to help and things such as sinisitis have solutions. CH, on the other hand is frustrating to many doctors and they feel as helpless as we. At least that's my theory.

Charlie

Title: Re: Stupid
Post by Not4Hire on Oct 17^th, 2002, 5:49pm

Quote:

ight!
Ok, back to the other night's discussion on HSG -
If you can't get 02 from the docs, I understand that you can use welder's or diver's 02.
The expert on regulators etc. on this is JOnny, as I understand it. I hear this is what he uses... maybe it would be worth it for you....

not to rain on the parade, but I think *diver's o2* doesn't exist...... SCUBA divers use compressed air which is mixed with nitrogen (like the ambient air that we breathe) ...altho divers DO mix other gasses (like helium) for extreme depths

still, jonny is the OH TWO GOOROO......

if I'm wrong, the Ole Owl (Ueli) will surely call my Med Supplier and inform them that I'm just a meegrainer...and cut me off...(sob) :'( ...it was a good run...all this time I thought I had clusters...turns out to be The Heart Break of Psoriasis......)

Title: Re: Stupid
Post by jonny on Oct 17^th, 2002, 5:58pm

Im no guru Bro, there are plenty of people here that Know much more than I, Hell, This is where I was told to try 02 again and instructed on how to do it and what to use.

Now if you need a med reg customized to fit a welding tank im your guy.

Sorry to hear about your Psoriasis...... ;D

You couldnt be more right about divers 02, Not

............................jonny

Title: Re: Stupid
Post by Peppermint on Oct 17^th, 2002, 6:27pm

Quote:

You couldnt be more right about divers 02, Not

Not4 & Jonny...
thanks, I will pass that on..

( :-[ and Once again... ::))

Title: Re: Stupid
Post by Bob P on Oct 17^th, 2002, 6:36pm

They're absolutly correct.

Diver's air is just that, air. Same thing you're breathing right now. An air compressor sits out back and sucks in the air from the parking lot and squeezes it into your diving tank. No nothing is added to it, unless you are doing deep water diving, when they start using mixed gasses.

When my tank was being filled I always walked to the other end of the dive shop. Read an article once about a tank exploding while it was being filled. Made a heck of hole!

Title: Re: Stupid
Post by jonny on Oct 17^th, 2002, 6:51pm

Sure, the speed the air enters the tank is so great that it heats the tank really fast thats why they put it in a tank of water to keep it cool, otherwise.....KAABOOM!!!!

...........................jonny

Title: Re: Stupid
Post by echo on Oct 18^th, 2002, 11:51am

Big Kaboom. 1972 hauling 4 tanks in the trunk of my pals car heading salvage diving when the car broke down. Left the car, hitched a ride back to get some tools. Gone about an hour. When we returned the rear 2/3 of that 70 Galaxy was friggen GONE! There were parts scattered for a hundred yards in every direction. Insurance didn't cover it -- something about a moron clause. Oh to be 18 and stupid again, 4 tanks of pressurized air in the trunk of a car on a hot sunny summer day.

Title: Re: Stupid
Post by Drk^Angel on Oct 18^th, 2002, 12:36pm

ROTFLMFAO picturin' that echo... :P Uh oh... My coworkers are startin' to stare, better try to act like I'm workin'.

PFDAN...................................... Drk^Angel