Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> my ch story by beckes
        
(Message started by: becks on Oct 5^th, 2002, 3:08am)

Title: my ch story by beckes
Post by becks on Oct 5^th, 2002, 3:08am

hi my name is becks;
my story is that i have been getting ch;s for 15 years;every 3years to the month ; oct/nov. the pain is of the most chronic ever, i get about 3/4 per day lasting for about 6/8 weeks;at this time my wife& kids are put through hell as well trying to be there for me as much as they can. my pain relief has been one big trial ; with little results . the best that i have found at the moment is solpadeine; i have also been on kapake and many more. i am looking for anyboady with the same pattern; or close to mine, please HELP
many thanks from
BECKS

Title: Re: my ch story by beckes
Post by oringkid on Oct 5^th, 2002, 4:27am

Well Becks, that pretty much describes most of us that are episodic. Not exactly of course but right in the ball park.

Not sure what those drugs are that you listed....

I get mine in a 3 to 5 month cycle, about every 2 years now, with 3 to 7 per day at the peak of the cycle.

Sherry

Oh yeah, and I have had them for 29 years

Title: Re: my ch story by beckes
Post by BobG on Oct 5^th, 2002, 5:26am

Welcome becks,

Solpadeine and Kapake (aka co-codamol) are pain killers containing codeine. Pain killers do not normally have any affect on cluster headaches and many times will bring on rebound headaches as bad as the cluster.

Have you been to a neurologist for a diagnoses? If not, it is probably best that you do.

Click the medical info button on the left side of the screen to find some meds that are known to help with cluster pain.

Not trying to be nit-picking...........
the term chronic when used with cluster headaches refers to the length of time the cycle lasts. More than one year without a two week, un-medicated, pain free break.
To describe the intensity of the pain we use the kip scale, also under a button on the left.

Please let us know more about your condition.

Title: Re: my ch story by beckes
Post by Ree on Oct 5^th, 2002, 6:26am

Welcome to the family there is alot of information here some can help you more than what your taking now. Our family also suffers deeply when my husband Dave has CH...where are you from... I am assuming your last name is Beck and we have alot of Becks where Im from here in Massachusetts... go to see a neuro one that is more up to date with medications that will prevent and abort to at least make your cycle this time tollerable and maybe even end quicker... ree

Title: Re: my ch story by beckes
Post by becks on Oct 5^th, 2002, 10:43am

thank you all for your replys,ree ; im from england a bit far from your neck of the woods; but thanks anyway
becks

Title: Re: my ch story by beckes
Post by Jayne on Oct 5^th, 2002, 11:50am

Here ya go Becks
This is the cluster UK site. This might help you find a doctor in your area that knows his/her stuff.
Also you need to look into taking Verapamil..the wonder drug for most of us.
Good luck dear

http://www.clusterheadaches.org.uk/