|
||||||||
Title: Dangit Post by RevDeFord on Sep 28th, 2002, 7:23pm >:( I am back! Every freakin year in the fall I start having these friggin things again. I wonder how long this episode will last. Last one I was fortunate in only having it for 2 weeks. Time before that was 6 months, and the time before that was 2 years. Had several last night. The joy of it all is not only do I get these freakin things, but my head is like a barometer and the day before and the day of a cold front I get a migraine too. I keep hoping I will be able to not have any anymore and stay away for good, but not happening. |
||||||||
Title: Re: Dangit Post by Edna on Sep 28th, 2002, 7:38pm Hi rev, so sorry to know you're being hit again, and hope this fall session won't be to hard on you. I'm biding my time and hoping to escape the hits as they've not come this year yet. (Hopefully not at all) But, many ppl here for you during your time of need! ISN'T THAT AMAZING? Thanks to all you such ppl, pf wishes for you man, EDNA |
||||||||
Title: Re: Dangit Post by pjbgravely on Sep 28th, 2002, 9:09pm Please be kind, I know of two members that haven't been here much since their pain has lessoned. They both are big supporters to a lot of sufferers. I am glad for both that they are able to live pain free. I don't know about you but I will have a lot to do when I am PF. My daughter will have a father again and maybe I fix the brakes on the car and find where those snakes are living and on and on and on. Also peaple can do support by E-mail without being on the group. Also peaple who spend time on the board can up date PF members on special cases. Maybe someone should check up on members who haven't posted in awhile. I know I have. Remember that when some are not tired and sick and in pain they may want to get outside and away from the puter. |
||||||||
Title: Re: Dangit Post by jonny on Sep 28th, 2002, 9:18pm Give and take All take and no give makes Jack a douchebag JMHO ........................jonny |
||||||||
Title: Re: Dangit Post by pjbgravely on Sep 28th, 2002, 9:29pm Jonny I don't understand, ah, now I get it. Your real names Jack then. |
||||||||
Title: Re: Dangit Post by jonny on Sep 28th, 2002, 9:53pm Nah, my name cant be Jack cause I give twice as much as I take. Think you can argue that point? ...............................jonny |
||||||||
Title: Re: Dangit Post by Marc on Sep 28th, 2002, 10:01pm Well Jonny......... I've heard you called a lot of things (mostly by Don) but never "Jack" ;) Speaking of Jack........ |
||||||||
Title: Re: Dangit Post by jonny on Sep 28th, 2002, 10:12pm Will the real slim jackie please stand up, please stand up!! |
||||||||
Title: Re: Dangit Post by Charlie on Sep 28th, 2002, 10:25pm There are many people who can't post often, feel uncomfortable talking about anything but CH or have real lives. That's not saying it wouldn't be nice to stop by a couple times a month to let us know how you are. Welcome back, Rev. Charlie |
||||||||
Title: Re: Dangit Post by Linda_Howell on Sep 28th, 2002, 10:54pm Just because someone wants to live their life when they're PF, doesn't mean that they should just abandon all the people who helped them in the 1st. place. Jonny and Charlie are both right. Linda |
||||||||
Title: Re: Dangit Post by don on Sep 28th, 2002, 11:46pm Thats fuckin bullshit PJ. Wanna support by email and not use the board then thats great. When you get hit Email someone. But only those special people in your address book. Fuck the rest! |
||||||||
Title: Re: Dangit Post by RevDeFord on Sep 29th, 2002, 7:09am I do read the boards when I am pain free and I personally email as I can. I work 90 hours a week and have a 15 month old son, so my time is pretty tight... One of my biggest regrets is not being able to attend on of the OUCH meetings. I was around when all that was in it's planning stages. I am so glad that I am episodic instead of chronic. I don't know how you chronic guys stand it. |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 9:47am Us chronics come to the board and yell at each other, thats how we keep our sanity ;D .....................jonny |
||||||||
Title: Re: Dangit Post by pjbgravely on Sep 29th, 2002, 2:12pm OK, Don, I'll tell my two friends what you think of them. Any one else want to add thier name to Don's? Why doesn't someone check each member and see how long since they last posted, we need a cut off time, maybe 1 month, and then tell them they are no longer wanted at this board. I would go to but I am having too much fun here. By the way who is supporting the members who get blasted for saying the wrong things and have thier posts buried in fights? Not saying that they aren't fun to read. I try my best to support both ways. Some things cannot be brought up in the posts without alot of ppl getting bent out of shape. Jonny, Sorry, I don't understand your point to argue with it. Thats what happens when your brains have been replaced with tater tots |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 3:15pm The point to argue if you have the balls to is Ive given back twice what I took....open your eyes meathead. "You take, you give back" what the fuck is so hard to understand about that?? Maybe its just me, but when im given I give back. Where do you live? .....................jonny BTW: put my name right under, Don's |
||||||||
Title: Re: Dangit Post by pjbgravely on Sep 29th, 2002, 5:18pm Jonny, What I didn't understand is which Jack you are referring too. Is it Jack in the box, Jack off, Jack and Jill, Jack be nimble, dull boy Jack, member Jack, Jack and the bean stalk, Jack and Diane, You don't know Jack, Jack-a-lope, Jackass, Jack of all trades, and suicide Jack. By the way my head is full of tater tots not meat! Many have starved to death trying to find me. I will definately add your name to Don's tommorrow. Bill the Cat |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 5:36pm My recomodation is getting rid of the tater tot brains and getting real brains. When that happens we can talk. ...........................jonny |
||||||||
Title: Re: Dangit Post by don on Sep 29th, 2002, 5:47pm You don't need to tell them PJ. Come to think of it, if they are sufferers who contribute then they would know by reading this post wouldn't they? My email is right here. I will tell them myself if they wish to email me. I will never say a bad word about any supporter who supports in any way they wish. I am talking about sufferers who will pop up in cycle want to be everybodies friend and just as quickly vanish when they are feeling better. Many members who have not posted recently are simply tired of the taking and not giving bullshit. If you look in the archives you will see that they have already contributed more info than most ever will. |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 5:54pm Don, You look lovely tonite, are you doing something special with your hair? ..................jonny |
||||||||
Title: Re: Dangit Post by don on Sep 29th, 2002, 6:39pm Why yes I am. I'm scooping it out of the shower drain and bagging it to paste on later. |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 7:04pm Got glue?......LOL |
||||||||
Title: Re: Dangit Post by RevDeFord on Sep 29th, 2002, 7:05pm I think one of the reasons why I don't stay here year around is because I used to and it seemed when I did that there were so many juvenile arguements along with constant foul language. I come looking to be an encouragement to others and receive encouragement and all I see is a bunch of cynical bull crap. I think that dj put together a tremendous help for a small segment of the population that noone seems to understand. I personally have referred 2 people to the board over the last 3 years. The unfortunate thing is that so many discussions that could be helping somone are hijacked and turned into a profanity fest. I am longing for a group of people I can call friends who understand, even more than my wife understands. And, I know there are others who would happen upon this site and feel the same way. I just wish some of the nonsense could be carried to personal email instead of out in the open. I am not directing this comment to anyone in particular as I do not remember names except a few who have encouraged me in the past. And I don't mean this to tick anyone off. Just my observations. |
||||||||
Title: Re: Dangit Post by jonny on Sep 29th, 2002, 7:10pm Well, I for one can tell you sir that the DJ I know would tell you to shut the fuck up and deal, but that is just my opinion of what DJ would say. ..................jonny Evenmorethanmywifeunderstands.com theres your link, dont let the door hit you on the ass |
||||||||
Title: Re: Dangit Post by don on Sep 29th, 2002, 7:34pm Quote:
MarthaStewart.com Or you could get a hooker. Kinda hard to keep friends when your only there when you need something. Ironic that you put a picture of YOURSELF in your posts |
||||||||
Title: Re: Dangit Post by pjbgravely on Sep 29th, 2002, 7:49pm on 09/29/02 at 17:36:59, jonny wrote:
If I did that then I would be out of Character. Bill The Cat |
||||||||
Title: Re: Dangit Post by Charlie on Sep 29th, 2002, 8:34pm Gee Whiz Folks: Foul language and juvenile arguments is where it's at. Why do you think I stay here? I should be writing a book like Den on the sociopaths who post here 16 TIMES A DAY. As one of these brain-damaged hall of famers, I feel everything I write belongs in Den's soon to be published "What the Fuck Is Wrong With Us?" tome. All seriousness aside, I'm still right. It doesn't bother me if you can't come here all the time. I would hope that you drop in a couple times a month and at least become a Junior. If not, that's okay but I'd like a chance to beat up on you as well. Wouldn't it be luverly? Hope you are pain free. Charlie |
||||||||
Title: Re: Dangit Post by Ted on Sep 29th, 2002, 9:31pm I join the not a very nice person league, whatever that may be. |
||||||||
Title: Re: Dangit Post by Not4Hire on Sep 29th, 2002, 10:26pm don..... do you mean that ........the *picture* of StFUD is.....(sob)....not yer REAL likeness ??? .....I am ........ crushed........... |
||||||||
Title: Re: Dangit Post by Drk^Angel on Sep 30th, 2002, 12:37am I can understand the whole distancing yourself from CH during PF times because I've done that before. I can understand spending extra time with the family or werk during PF times, because I've also done that before. But now that I've found this board, I do not want to ever just leave it no matter how long I'm PF. I can understand slowing down reading the sire, and posting to the site, but not just leaving the site. Maybe it's just me, but I cannot see how anyone can grab unto a group of ppl when they are in need, and then forget them when they don't need the support anymore, only to return when the need comes back. I don't know... I just couldn't do that. But then again, I haven't been here the past few months expecting support so much as trying to give it anyways. I'm here for the duration, whether PF or not, although while PF, I'll prolly not post quite as much, because I'll be tryin' to spend extra time with the family, but I'll still be around... Posting, supporting, givin' some ppl some laughs. C'est la vie... Just wanted to give y'all my opinion for the discussion. I'm not trying to insult anyone, or take sides. Good luck Rev with the beast. PFDAN....................... Drk^Angel |
||||||||
Title: Re: Dangit Post by Linda_Howell on Sep 30th, 2002, 2:41am Mr. RevdeFord. You said and I quote...."I don't know how you chronics stand it" No you do NOT!!!!!!!!!!!!!! You will definetly get encouragement , when you get the hell off your high horse and maybe give back a bit of what you've recieved. As all of these guys you are complaning about, have done over and over again . Charlie, you have never been more eloquent...BTW.... Charlie has been not had a cluster headaches in 11 yrs. HE>>>>>>>> continues here. I am sorry, but people like you really piss me off............Linda Howell |
||||||||
Title: Re: Dangit Post by Charlie on Sep 30th, 2002, 5:59am Thanks Linda, and I'm still right. So are you, so is Jonny, Don, Edna, PJB, Drk, Not4, Marc, and likely the others who will put in their two cents. I have no friggin' idea what that goofball Ted is talking about... :o :D By the way, the dickhead thing is hilarious. 8) Anyway folks, Take it easy. Life is short, the days are long, and maybe soon, clusters will be on the run. Do your best to have a little fun.....like posting here and keeping things lively. You too Rev, you have friends here you know 8) Charlie |
||||||||
Title: Re: Dangit Post by don on Sep 30th, 2002, 8:11am I confess StFudd is me. BUT Only on Saturday nights when I dress up. Don't tell my therapist. |
||||||||
Title: Re: Dangit Post by Slammy on Sep 30th, 2002, 12:53pm on 09/29/02 at 19:05:12, RevDeFord wrote:
Hey Cat? Take a note, dear..... THIS IS FUCKING FUNNIER THAN HELL too....... ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by kristi on Sep 30th, 2002, 1:53pm This site "first and foremost, is the most caring, compassionate, supportive family of cluster headache sufferers (and their supporters) in the world." Okay, so leaving the board when not in cycle is neither compassionate nor supportive of those who are hurting and need help. But ridiculing, condemning, and running off those who are hurting and need help, including those who are returning to the board only when the beast returns, is not compassionate or supportive either. Just my humble opinion, but perhaps when new clusterheads sign on, we should just tell them from the get-go never to leave, or we will turn our backs on them and on their pain. At least that way they will be prepared for this type of response and not expect support. PFDAN to all. K |
||||||||
Title: Re: Dangit Post by Slammy on Sep 30th, 2002, 2:17pm Quote:
I dunno.... The only thing I see is the subtle reminder to those people that leave...."That they should stay and give support". I think the ridicule, condemning, and running off comes after their response! Personally, I prefer raping and pillaging, and wreaking havoc, over ridicule and condemning! ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by RevDeFord on Sep 30th, 2002, 2:19pm Ok, So now that we know that I am a total jerk for not sticking around more often how do I fix it? I am willing to hang out as often as I can so that I can be a support to others who need an encouraging word. Rest assured I won't come and go so easy next time. Who knows, this episode might be the death of me anyway....seems worse than it has been in more than 10 years this time. |
||||||||
Title: Re: Dangit Post by jonny on Sep 30th, 2002, 2:33pm Nah!!, you cant die we wont let you. Pull up a chair and we can all be jerks together ;D .................jonny |
||||||||
Title: Re: Dangit Post by NancyMcFree on Sep 30th, 2002, 2:35pm Hey Rev ... praying that the headaches don't kill you and also that the responses and "great support" you are getting doesn't either. Just stick around. There are lots of nice people on the board, and lots of people looking for support. Take care and hopefully this will be a short cycle. PFDAN's to ya !!!!!! |
||||||||
Title: Re: Dangit Post by BobG on Sep 30th, 2002, 2:41pm At this time there are 17 guests and 18 users signed in CH.com and very few are posting. Some of the names I've never seen before. Are they new people looking for help? I don't know. I hope it's not strings like this one keeping them from finding relief from their pain. Just my opinion but I'm stickin' to it. |
||||||||
Title: Re: Dangit Post by Big_Dan on Sep 30th, 2002, 2:58pm I'm all shiney and new here, so I'm just gunna try and keep this on topic. Rev. - Pray it passes soon, and I hope you stick around afterword to share any knowledge you have. ... okay.. I can't help it. I'm not even in my cycle yet, and I'm "taking" more than recieving... Hell, I've only known about this site for a week or so. But even thought I don't hang around and shoot the shit like everyone else, should someone like me (not that I'm being addressed here) be ridiculed, even though I'm deeply and honestly apologetic for their pain, and praying that it'll pass hastily? |
||||||||
Title: Re: Dangit Post by RevDeFord on Sep 30th, 2002, 3:11pm No condmenation from me....glad you are here. I was new once... :D |
||||||||
Title: Re: Dangit Post by NancyMcFree on Sep 30th, 2002, 3:45pm I say live and let live; and help when you can. We all do have lives outside of cluster headaches (or at least we hope we do). Our families deserve our best times. Keep posting if you can when not in cycle. For the people who can continue to support while out of cycle ... I thank you. If it were not for you I would have landed here and only met people in pain. That would NOT have been fun !!!! PFDAN's to all. |
||||||||
Title: Re: Dangit Post by fubar on Sep 30th, 2002, 4:48pm Well, this is my first post to this board, having just found this site today. I must say, when I found this site, the first page almost made me cry. Just seeing evidence that there are others suffering as intensely as I am was heartbreaking. I was thrilled to see a site dedicated to this incredible problem that nobody seems to understand. I have been living the CH nightmare for over 15 years. The prospect of connecting to a community of like-minded people is a great thing. I guess it will take me a while to fully grasp the tone and culture of this forum, each one is different. I must say, however, that I don't understand the problem with a guy (Rev) coming back to the group when he is suffering. Everybody is different, and we all gain from ANY participation at all. To ridicule a particular member for not 'giving back' while he is PF will have a chilling affect on posting in general. Since I have no context in which to judge the group's reaction, I won't say a whole lot about it except that it seemed mean-spirited and counter-productive. Look, I know it's the right thing for *me* to give back when I've gotten support from a group. But that doesn't mean it's YOUR responsibility to do so. It would be great if you did, but not everybody is great and I don't expect everybody to be great. In fact, I expect the opposite, so when people do the right thing, I am impressed -- This is exactly the opposite of being pissed off when they don't deliver, or seem to take advantage. What I'm trying to say is, please have a little tolerance. Not everybody wants to live their lives beholden to a message board. However, those message boards can be an incredible resource in times of need. If the policy is to require minimum activity levels to remain in good standing, it should say so when you join. If you berate people who drop off the map for a few months just because you think they only show up when they are needy, then you'll be missing out on a lot of good posts that are therapeutic in their own right. Actually, it sounds like Rev does feel bad for dropping off and wants to make up for it. That's fine, but I think you guys were pretty hard on him. As it was one of the first posts I read, it made me wonder if this is actually a reasonable board to participate on. I expect that it is, and this incident is an aberration. -Shawn p.s. I'm glad I found you people. |
||||||||
Title: Re: Dangit Post by jonny on Sep 30th, 2002, 5:01pm We are so sorry we disappointed you, Shawn. We will try harder next time to not let you down. BTW: Welcome ......................jonny |
||||||||
Title: Re: Dangit Post by BobG on Sep 30th, 2002, 5:06pm RevDeFord...........welcome back. fubar Shawn...........welcome to the site. |
||||||||
Title: Re: Dangit Post by Charlie on Sep 30th, 2002, 6:35pm That was terrific Shawn said it all. Just so you know Shawn, most of this cranky stuff comes from the most helpful members. I can understand your uncertainty of the tone of the board. I was lucky, I came here when the old board was still up. It was easier to sort through and gave me a chance to see just what kind of lunatics populate DJ's little world. On the whole, when not exchanging CH ideas or trying to help our friends, we like to "exercise" whatever sense of humor we think we possess and generally get on one another's nerves. We do go around the bend but give this place some time. Charlie |
||||||||
Title: Re: Dangit Post by catlind on Sep 30th, 2002, 8:11pm Well I wouldn't be me if I didn't put my 2 cents worth in ;) When I came here, I found a home. I found a family. I found a group of people who completely UNDERSTOOD what I was going through. I found support. I found fights and I found humility and I found laughter, alot of laughter. As with any family, people will fight, and if your brother buggered off and left the family hangin it might bristle your feathers or it might not. If we all got along all the time and no one ever had reason to speak out about the negatives they see, this place would be boring, informative, but boring ;) I personally have come to love the people here as a family, they understand, they support and they are great stress relievers with their twisted sense of humor ...another reason I love this board ;) I can't imagine leaving. Sure, I can see where I'd get busy and wouldn't have time to post everyday. But never could I imagine going away for an extended period. I don't begrudge those who do, that's their choice, but when others here are giving and giving and giving, in more ways than just the words on the board, it is frustrating when people only come in the hour of need and then abandon ship. Can some folks here be mean? Yup. And if you piss off the right ones, you can really have fun with it ;) Just my confused/challenged cat sense Cat :D |
||||||||
Title: Re: Dangit Post by don on Sep 30th, 2002, 8:42pm Quote:
Game....Set.............Match Point duly noted Kristi. And Reverand, thats stepping up to the plate. Theres nothing to fix if you ask me. It is what it is. OPINIONS and OPINIONS only. Now if you need support, let us know whats going on like meds and neuros and other such nonscense. |
||||||||
Title: Re: Dangit Post by fubar on Sep 30th, 2002, 9:23pm Well, every forum has it's own personality, and I'm sure I couldn't possibly figure this place out in the 1 hour I've spent on it so far. Jonny, don't assume I was disappointed. I see worse than that every day, and I'm more than happy that this place even exists! Oh wait, that was sarcasm. Besides, if even 10% of you suffer like me, I'd expect more than a few skewed personalities to stir the pot up. I'm living the same nightmare. CH is one of those things that can make you feel (and act) like a raving lunitic, so nothing here would shock me, especially cranky people. I'm sorry I said anything... I probably should have done the requisite lurking before speaking critically. At first blush, it seemed like some guy in pain was being shamed for seeking the company of people who understand. Was the display of disaffection some sort of payback because he was lucky enough to live pain-free for awhile? -Shawn |
||||||||
Title: Re: Dangit Post by Ree on Sep 30th, 2002, 9:34pm WELCOME SHAWN (FUBAR) and you will soon see. This is not just any message board... If ya feel like fighting Cluster Headaches there is STRENGTH IN NUMBERS...We need every last Cluster Head and Supporter to fight this thing... If everyone leaves when their cycle is over... then who will be here watching the store... Great things happen everyday here at CH.com and I hate to miss a day... I've been here for about 2 years now... Welcome and keep posting let us know who you are... ~~~ree |
||||||||
Title: Re: Dangit Post by fubar on Sep 30th, 2002, 11:54pm Wow! So, I didn't know I was a Cluster Head. Do I have to put that on my resume? Do we get identification cards? I knew something was seriously wrong with me. I knew that it was impossible for me to explain the intensity and surrealistic nature of what would happen, without notice. I don't have words for it, so reading those excerpts on the www.clusterheadaches.com intro page grabbed me and jolted me upright. I couldn't believe how accurate and descriptive they were of the whole experience, right down to the effect on partners and children. I am a total believer of 'strength in numbers'. I am thrilled to finally stumble upon this site. I wonder why it took me so damn long to enter 'cluster headache' into Google. I beg you, please don't take that as a sign of my intelligence... sadly, I have no other excuse. Judge away if you must. I am at the tail-end of the worst episode in my life. For some of you, I’m sure this is no big deal, but the last 5 weeks have been a completely new brand of hell for me. My headaches have found a new level of pain I did not know exists. I have involuntary muscle contractions in my neck and face that cause secondary damage. The headaches leave me with no ability to speak or indicate to my wife that I am not, in fact, going to die. This can last for hours. I can usually regain speech within minutes of the attack, but I am left completely and totally exhausted, and usually say nothing before I fall asleep only to wake shortly thereafter with another attack (thereby scaring the hell out of her again.) She has dealt with my headaches for 15 years, but even this is alarming to her. There has to be a better way to live. I do not accept that this is just the way it has to be. I am lucky that I have a doctor who also suffers from cluster headache. He is truly empathetic with my condition, but has no solution. He trusts me and is willing to try anything reasonable that I suggest, having known me throughout the long history of my condition. I am loaded with questions, mainly because I have never met, other than my doctor, another person who understood what I was going through. I don’t advertise the fact, so it’s not like it comes up in dinner conversation (unless I’m bashing my head into the bricks… that’s sort of a giveaway) I’ll save them for posts later, and I’ll snoop around to get to know this site (and it’s flavor.) Perhaps I won’t step in the digital crap next time. ;) -fubar’d Shawn |
||||||||
Title: Re: Dangit Post by Ted on Oct 1st, 2002, 12:25am Hey fubar. You must have read something wrong. I just read today that cluster headaches are any headaches grouped together in clusters. A doctor even said that so it must be right. Sorry to hear you get that annoying little drone of an ache like we all do. Sometimes they get so bad I have to grit my teeth and say "gosh." But that's when they are so amplified I think a bout of gas would be better. Oh my. Did I say all that? |
||||||||
Title: Re: Dangit Post by Charlie on Oct 1st, 2002, 2:21am Looking around here Fubar is a revelation. One can learn a lot or get sidetracked by one of the countless brilliant excursions into philosophy and politics....not that Ted and I ever indulge in such things. I can't help with medictions but the following is the technique I learned from my old neurologist: Dr. Wright's Circulatory Feedback: This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been very helpful to many. When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand. This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time for this to take hold but when this works, the relief is almost immediate. I learned this from the doctor in a few minutes. He simply told me to concentrate on keeping blood away from the head. He thought the easiest is the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. I like to keep at it a few minutes longer than seems necessary to insure success. This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience. When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance. I wish you the best of luck - Charlie Strand |
||||||||
Title: Re: Dangit Post by RevDeFord on Oct 1st, 2002, 6:14am Fubar, Research on this site the drugs that are available along with other preventative things. Some of the most widely used are verapimil as a preventative, Oxygen as an abortive, and imitrex are used by alot. They don't always work for everyone, but the work for some, and they might work for you. There are tons of things people have tried, and people are always faithful to report back to the list. I had a situation develop a few years ago that I didn't understand. I had had 3 cluster headaches by 2 a.m., starting with the first at 6:45, 15 minutes before I was to lead a revival in a church. This was rare for me, because the majority of my episodes start at about 11:30 and the last hitting abotu 5:45 in the morning. Anyway, the one at 2 a.m. hit, and I started sucking on oxygen. After 10 minutes I took a hit of imitrex. After 15 minutes, I took another imitrex. After 20 minutes, still no relief. All of mine have lasted for 15 to 20 minutes in the past. After 30 minutes, I figured I was having an aneurism, so I called 911. I was transported to the hospital where I worked and saw a doctor immediately who could see how bad it was. They tried o2 again, and when they saw that that wasnt working, they called in a neurologist. An hour had gone by so far, and I was sitting at a 10. The neurologist said - "I am going to try something that I have never done or heard of being done, but you are desperate, right?" I said yes and he proceeded to stick a syringe with a large needle up my nose and filled my sinuses with novacain or lydocain - whatever they use as a local anesthetic. I thought I was going to drown with the stuff. Long story longer, I had relief within 30 seconds. If you find a doctor who understands what you are going through, you have already won a huge battle. Take information from this list to him and see if he will work with you. Glad to meet you. |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 11:08am Charlie and Rev, My sister has had success treating migraine with the lidocaine shot into the nose. I am a stupid baby when it comes to needles, but I have learned to give myself injections anyway. One efficacy study I was in required me to self-inject, and that was the first time I ever ad to deal with needles... amazing what pain will motivate you to overcome. The oxygen thing is news to me, I'll definitely have to give that a shot. Seems too easy, but if it works I'm all for it. That study medication I was on was friggin perfect. Every single time I needed it, it killed the headache within seconds of administration. I was completely devestated when they terminated the testing and ditched the medicine due to complications with other patients. Argh. I am on my third attack-free day so far. I am starting to gain optimism that this episode has passed. I wish I had found this site 5 weeks ago. Doesn't matter now. Is anyone here in that new study? Any thoughts? -fubar |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 11:16am on 09/30/02 at 21:23:14, fubar wrote:
Who do you think you are kidding? You are not sorry at all... Check it out! :D Quote:
Quote:
Quote:
Who the fuck talks this way? You remind me of DAVE the computer on 2001; Space Odyssey> I expect this soft calm voice coming over the speaker! :D You are not sorry, because you are the type that likes to hear themself talk. But hey! That's ok! We need people like that on here! ( as if we don't have any of these!) :D Anyways, glad you found this place, and hope you have PFDAN's! Looking forward to reading your posts with great enthusiam and to bandy words of insolence with ya! ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 11:28am rough group... i'll shaddup. |
||||||||
Title: Re: Dangit Post by BobG on Oct 1st, 2002, 2:01pm That was just Slammy's way of saying Welcome to the board. |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 2:11pm Slammy, Your going to have to knock that shit off, I fucked up my tail bone at work and it hurts when I laugh my ass off!!!......LOL You just MIGHT be funnier than I ;D ........................jonny |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 2:31pm on 10/01/02 at 14:11:34, jonny wrote:
Hahaha! No.... but we make a pretty good team... ;D I just wanted to make him feel welcomed and break him in...... Slammy-style :D I just hate it when someone stroll's in here and posts all this profound shit and has a larger vocabulary than I! :D I mean, did you read all that shit? he waltzes in here and pegs us dead nuts on in a heartbeat! :D I knew someone like that in high school.... he died.. I hope I didn't scare him off, ;D How did ya fuck up your tail-bone, bro? :-/ Slammy 8) |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 2:39pm Wouldn't you know it... another attack already today. I really should have kept my mouth shut. I'm opting for amputation soon if this keeps up. -fubar |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 3:04pm Dude, thats no attack.....stick around Slam, check this...I drilled a hole in one piece of pipe and inserted another piece of pipe in the hole and it wouldnt come out, so I stradled the first piece and pulled on the second.....it came out and I went back on the bone......LMMFAO ;D Now I know I just gave you 2 tons of material so go easy on me.....LOL ;D.....But thats what happen :)))) ..................jonny Fubar, this aint a group, Bro.......its a family, stick around we always need another bro. |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 3:08pm Hang in there, fubar.....all of us sufferers have felt that way..some more than others...it's good that you have an empathetic doctor... there's plenty of "recipes" in here to try... hopefully there's one that will minimize the suffering! Hey! we may beat each other up from time to time.. :D but, mess with one of us and we come out in hoards to defend one another....hmmmm not unlike most families... huh? ;D ok... this is your free, one time only, normal post from Slammy ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 3:11pm Welcome to the group Fubar. Slammy gets testy when he needs to get out the dictionary. If you spell the big ones wrong it ties him up for hours. |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 3:22pm on 10/01/02 at 15:04:22, jonny wrote:
;D :-X ok, sorry.... I 'll be good.... but I doubt if the others will be... LMMFYBO!! Though I would to know what your thoughts were the split second the pipe came out and right before you landed on your coccyx ( take that fubar! ;D)! Slammy 8) |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 3:29pm Thought?......one thought. "DUMBASS!!!!!" LOL ..........................jonny :o |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 3:35pm Yep! LOL! I hate those " dumber than shit" moments! ;D especially when you are painfully reminded of them for a few days Man! You should have known you got to have "lube" before you slide your pipe in! ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by BobG on Oct 1st, 2002, 3:37pm echo, Slammy bookmarked his dictionary under the word dickshunary and now it won't open. He called his help desk but they laughed so hard that they couldn't speak. Slammy doesn't know why they laughed. Should we tell him? |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 3:39pm [quote author=jonny link=board=general;num=1033259017;start=50#61 date=10/01/02 at 15:04:22]Dude, thats no attack.....stick around I drilled a hole and it wouldnt come out, so I stradled the first and pulled on the second.....it came out and I went back on the bone......LMMFAO ;D thats what happen :)))) Playing with jonny's words it's almost like a eye witness account of a porn scene. I know -- STFU Oh but to see the look on your face when it happened. And then to try not to laugh. Hope you're ok bro. |
||||||||
Title: Re: Dangit Post by pjbgravely on Oct 1st, 2002, 3:39pm Slammy, The computers name in 2001 was Hal . Dave Bowman was the surviving astronaut. Bill the Cat |
||||||||
Title: Re: Dangit Post by Jabeen on Oct 1st, 2002, 3:45pm I am not a newbie anymore-I graduated to the next level, but I do feel intimidated by some of these posts. A lot of the people that have been around for a while obviously know each other and have established friendships beyond this site. I am not chronic, and I am only in my second cycle of this shit-but I like coming here for the information and comiseration. I do not feel like a part of the "group" yet- and after this, quite frankly I am terrified to let my postings lapse! It's been interesting- Jabeen in Joisey :) :) :) |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 3:47pm on 10/01/02 at 15:39:32, pjbgravely wrote:
here's another one of those knowitallfucks! ;D Thanks PJ, I remember the computer with the soft voice saying "dave, what are you doing? " but the fact that you know his last-freakin name!.. :D thanks for the catch, bud! ;) Slammy 8) |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 3:47pm Echo, Playing with my post is one thing but when you make it read like a gay porn I start to wonder about you, Bro ;D .........................jonny |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 3:52pm on 10/01/02 at 15:45:44, Jabeen wrote:
well, now that you have "lined" yourself in my "crosshairs" you won't have to worry about it! ;D Muahahaha! Hey! just jump in! the water's fine! we have fun, but the "group" as you say..... ok... say this after me......... FAM - A- LEEEEE did ya say it? this family is not exclusive....as far as intimidation...don't worry.... look at Cat and Nancy.... Bahahahahah! ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 3:53pm EEEEUUUUUUU!!! What the hell was I thinking!! That's what I get for being a smart ass. And leave it to you to catch me on it. |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 3:57pm Hey, I know that song "We-R-Fam-A-LEE" Aint that hit group from China? ;D .....................jonny |
||||||||
Title: Re: Dangit Post by pjbgravely on Oct 1st, 2002, 3:59pm Your welcome Slammy, I think that was the first thing I have remembered since this cycle has started. My spelling has also improved. I hope this means this cycle is ending. |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 4:02pm Wouldn't that befram ar wree |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 4:02pm on 10/01/02 at 16:01:11, echo wrote:
Slammy 8) |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 4:28pm Intelligent There you go Slammy, now go to the corner and lay by your dish. ;D |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 4:40pm That was bizarre.. when I quoted yo, echo.. there wasn't the purple Quote:
but I don't see that your post was edited! :o hmmmm ;D Slammy 8) |
||||||||
Title: Re: Dangit Post by BobG on Oct 1st, 2002, 4:44pm Yippeee! Slammy insulted me (I think). That's as good as being told to STFU. I feel so warm and fuzzy and accepted now. Thanks Slammy. |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 4:45pm Mystery solved. I had two posts. One with - One without. So I removed the one without. Nice catch there slammy, nothing is getting past you. you can get out of the corner now. |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 4:48pm I don't know how you define an attack, but when my head feels like someone has momentarily transported hot lava into my skull, I call it an attack. It only lasted 15 minutes, so I should be thrilled. Like I've said, I'm at the end (I think) of a cycle, so they are shorter and farther apart. I'll stop using $5 words if it makes jonny's head hurt. I never even graduated high school, so I'm not sure I'm permitted to use them anyway. And, I don't even want to know what a coccyx is, or why you'd be straddling a pipe. Some things are better left unsaid. I guess that's why it's so much fun saying them. |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 4:48pm Bob, aint you due for Vegas soon?......LOL Echo, STFU! ;D Man, I need a life.....LMMFYBO ;D .....................jonny |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 4:55pm Sorry dude, when you said second attack under slammys post I thought you meant his post......hope this is the end of your cycle!!!! ....................jonny |
||||||||
Title: Re: Dangit Post by BobG on Oct 1st, 2002, 4:57pm Yep. I get off work in about an hour. Then I'm goin' to Vegas. ;D coccyx.............I like that word. Haven't heard it since David told us he had a bump on his. :D |
||||||||
Title: Re: Dangit Post by echo on Oct 1st, 2002, 5:02pm Fubar -- hope your attacks are nearing the end. Rundown so far: Jonny needs a life Slammy can come out of the corner. Neither Bob or I can make intelligent posts. I'm taking my toys and going home. Later dudes, I'll be on the morning shift. |
||||||||
Title: Re: Dangit Post by Cathi on Oct 1st, 2002, 5:07pm OOOH BOB! You are my hero! Really? You live in Vegas? I aspire to live in Vegas! "Course, I'd be broke in 2 days) VIVA LAS VEGAS! Viva Las Vegas (sing with me, now...) viva VIVAAAA LASSSS VEGASSSS! (sorry, I'm not allowed to sing at home) Cathi |
||||||||
Title: Re: Dangit Post by Slammy on Oct 1st, 2002, 5:18pm hey BobG Have a blast in Vegas! I'm actual banned from that town... :P Cathi.... you are not allowed to sing here either!STFU! ;D Echo... have fun playing with your "toys" :D Slammy 8) |
||||||||
Title: Re: Dangit Post by Charlie on Oct 1st, 2002, 5:25pm Ouch! That bump on the coccyx is called a pilonidal cyst. It can be excised and I know from personal experience. :o I just couldn't let it go............ ::) Hole in his tail Charlie 8) |
||||||||
Title: Re: Dangit Post by BobG on Oct 1st, 2002, 5:27pm Cathi, Actually I live in Henderson, of which Vegas is a suburb. We have all the cool people here. Mojo Mike and Skettico, Marc J, Berry and more. If you ever come to town call one of them. I hate tourists. I'm just kidding. :D Feel free to bring your paycheck. |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 5:53pm Bob, All of my bills are paid out of Henderson (Cyberbills)... so I am actually sort of a resident... hell, all of the credit card companies think I live there. I have to do the complete-waste-of-time Las Vegas tech shows (Comdex) and in fact I'll be there again next month. I fucking hate Vegas... been doing it twice a year since Comdex opened there. I'm pretty sure Vegas hates me right back. Last time I left, I left with a bunch of their money. I get the feeling that's not what they had in mind. Now, I'm getting all kinds of offers for comp'd rooms and such so I can go give it all back. Screw em. The only worthwhile thing I've done there is indoor parachuting. What a blast. -fubar bohica! |
||||||||
Title: Re: Dangit Post by Cathi on Oct 1st, 2002, 6:00pm BobG- Thanks for the ...uhhhh...offer? Don't worry, in Vegas, I'm a woman on a mission-and I really prefer to throw my hard-earned money away in the local joints. BUT, when in Henderson, I'll be certain to...well, I'm not as tourist- I'm just another overtired, hawaiian-shirt wearing, fannypack totin', sandals-with-socks-on, stylin' UHHHH, potential millionaire- yeah, that's it! But, by all means, I must be left alone-I gotta concentrate! Slammy- I called Vegas- they still have you on the uninvited list....said something about not until you let me sing- yeah, that's the ticket- till I'm allowed to sing! Warming up my vocal chords, now.....MEEEE<MEEEE<MEEE!!!!!! Cathi |
||||||||
Title: Re: Dangit Post by jonny on Oct 1st, 2002, 6:07pm on 10/01/02 at 18:00:28, Cathi wrote:
Women, go figure!! ;D ...................jonny |
||||||||
Title: Re: Dangit Post by Cathi on Oct 1st, 2002, 6:09pm Hey Fubar- Methinks that was MY money.....can I have it back?? Made the mistake of doing an impromptu trip to Lost Wages once during Comdex.....ended up in a room with mirrored ceiling, auctioned off by the hour.....Slammy- do not get excited- I was with my mother. Personally glad to hear SOMEONE has won....great job, Fu! Cathi |
||||||||
Title: Re: Dangit Post by Cathi on Oct 1st, 2002, 6:16pm Jonny, LAAAAA LAAA LAAA LA Better? Cathi |
||||||||
Title: Re: Dangit Post by fubar on Oct 1st, 2002, 6:20pm Cathi, Seeing that you're 'family' now... and I'm sure that money was yours. No. :) |
||||||||
Title: Re: Dangit Post by Cathi on Oct 1st, 2002, 7:01pm FU- Is that your final answer? AWW, GEE, c'mon now, after all, we are now related....I know....let's have a family reunion.....in Vegas- at BobG's house....I'll bring the buckets for the $$$- and the fannypack....when do we leave? At any rate, I'm finishing my work, here, here's to a PF night, for the whole fam damily! Cathi |
||||||||
Title: Re: Dangit Post by oringkid on Oct 2nd, 2002, 10:33am In reference to what Don said on page 1... Quote:
ROTFLMAO!!!!!! Welcome to the board everybody! Welcome back everybody! PF since April and still here! Originally found this site in 2000...but then didn't have a computer for a while, then moved. (ie had a fairly good reason for disappearing for a while) I love this place and these people! Sherry |
||||||||
Title: Re: Dangit Post by Cathi on Oct 2nd, 2002, 12:04pm Sherry- THANK YOU- for the warm welcome- to those of us who are new, and those who are returning....and I'm glad you got a kick out of this thread.....didja notice BobG hasn't stepped up yet? I know he's looking forward to our visit...... I may be as useful as a box of nails in a tire factory- but I'm a quick study, can be comic relief, and I am adamant- if I can offer a shoulder or a pep talk, I will! Now, can you tell Slammy I can sing? Cathi |
||||||||
Title: Re: Dangit Post by jonny on Oct 2nd, 2002, 2:37pm And we love you, Kid!!!! "Those eyes" "Those lips" Slammy!!, what say you? .................jonny |
||||||||
Title: Re: Dangit Post by BobG on Oct 2nd, 2002, 2:48pm BobG steppin' up here. Cathi, If you want you can visit Sherry's house. She has casinos in her backyard. And buffets up the whaazoo. And cute Latin cabana boys. And a river to water ski on. And wide open spaces to look for turtles. Matter of fact that sounds pretty good (except for the boy) Let's all go to Sherry's house. I'm off work tomorrow. See ya'll then. |
||||||||
Title: Re: Dangit Post by oringkid on Oct 2nd, 2002, 4:03pm Hey... I dint see no Latin cabana boys....!! Where? Where? I say we all meet in my backyard...Laughlin, NV. I live in a pretty boonie, crappy part of AZ, about 40 min. from Laughlin. And 5 min. from Needles CA. My house is just too embarassing to invite you guys to LOL! But one of the casinos for drinks would be fun! Sherry |
||||||||
Title: Re: Dangit Post by jonny on Oct 2nd, 2002, 5:17pm Man, you got more yam than me, Kid.......I listen to "America in the morning" every morning on the radio and they tell where the hottest place in america was the day before.......Neddles Cal is the one place they mention the most. Now I know where to come to cook my pig.....LOL .....................jonny |
||||||||
Title: Re: Dangit Post by fubar on Oct 2nd, 2002, 5:31pm you all know about the Bermuda triangle, and how planes, boats and people vanish there. Well, Needles is a magical sort of place too. I've drivin' through Needles about 8 times in my life, and in all the miles of cross-country driving I've done, the only place I've ever broken down is Needles. 3 times. Coincidence? I think not. -fubar |
||||||||
Title: Re: Dangit Post by Cathi on Oct 2nd, 2002, 5:47pm Okay, Fubar- Here's the plan- ya get on that washboard road, put the pedal to the metal- if ya get going fast enough, you can go airborn, lap the Alaska flights- there- and back! The best part, was dirving, my very first time, into Laughlin, pulling into the parking lot- and discovering people, sleeping in their cars.....well, I chuckled, how cheap can one get? Rooms were, at that point maybe $30 a night- why take a room? So, I walked into the hotel, right up to the desk, and of course, said "we'd like a room"- this is at 3am.....desk clerk got out his map, showed us the directions to Needles.....every single room in Laughlin was BOOKED!!! Who'd a thunk? Searchlight was even booked!!! Moral- GET RESERVATIONS! Cathi |
||||||||
Title: Re: Dangit Post by fubar on Oct 2nd, 2002, 6:29pm Cathi, On my last trip to Vegas, I had to drive there and deliver some last minute hardware. On the way, I wanted to get some rest, and tried to stop in Baker (the home of the world's tallest thermometer). Well, I had the same surprise... no rooms. I did manage to get the very last room in town at a place called the Royal Hawaiian Motel. Now, this is a place you would be frightened to get under the covers. Among the best parts: - Upon walking in, I could see that the shower didn't even have a showerhead. Not necessary because there was no running water either. And no towels. Somehow, the toilet was working. No toilet paper. - The back sliding glass door looked onto a concrete remains of a pool area. Something was growing in the pool, but I don't claim to know what planet it came from. - The sliding glass look was incapable of shutting, let alone locking. - My poor nieghbor, who was going cross-country with a wife and baby tried to turn on (big mistake, what a fool) the air conditioning unit lodged into what used to be a window. It promptly fell out and landed on him, making for great evening entertainment. - The bed spread, which I did not get under, looked worse than anything I've seen a homeless person use. - The carpet, a mix of 70's shag and sculptuered shag, was patched all over the place with different colored carpet. All couter tops and dressers and ledges had long cig. burns on them. It was lovely. |
||||||||
Title: Re: Dangit Post by Cathi on Oct 2nd, 2002, 6:46pm Hey, FU- Baker, huh? That's a nice, warm spot....around 102 at midnight? Your story parallels mine to Laughlin- we drove on into Vegas- there's always a room there, right? Nope......COMDEX! We ended up at the No-Tell Motel, in a room that was auctioned off by the hour- complete with no hot water, mirrored ceiling, and an anatomically correct lamp in the corner. My mom was my traveling partner....they imploded this motel with the one next door, to erect the new Aladdin....methinks that was a good move. So, with all these horror stories, lost $$$, broken cars in the Western Bermuda triangle, and the disgusting desert heat, why IZZIT -I am ALWAYS up for a trip to Sin City? Sick puppy, huh! Hey Fu, have a good evening.......and PFDAN! Cathi |
||||||||
Title: Re: Dangit Post by fubar on Oct 2nd, 2002, 7:06pm Hey Cathi, I heard that place has video cameras in every room... maybe you and your mom are famous by now. ;) -Shawn |
||||||||
Title: Re: Dangit Post by Jabeen on Oct 3rd, 2002, 4:41pm Don't know if people are still following this thread-but I see Slammy has put me in his "crosshairs" after my comments about intimidation. It's nice to know this is a family-I just feel like a distant cousin at times...I am gone a lot without access to the web so my posts can be intermittent...don't cut me out of the will just yet- Jabeen |
||||||||
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |