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        New Message Board Archives >> 2002 Posts >> new and confused
        
(Message started by: mlmuir on Sep 27^th, 2002, 9:11pm)

Title: new and confused
Post by mlmuir on Sep 27^th, 2002, 9:11pm

Ok folks, I'm new here and Im in a bit of a quandry. I would like to find out about any symptoms people have Before an episode happens. From what I have read I cant seem to find mine. (an audiable ticking sound in my head followed by bright flashes when it hits). I quess (after reading most of the web site) that I'm lucky I have only had 4-5 episodes in the last 6 years. usually 2 a couple of weeks apart. and lasting from 5 mins for the initial pain to about a half hour to an hour for it to subside.

jeeze I am lucky I though I was having 'mini'strokes.

Michael

Title: Re: new and confused
Post by Karla on Sep 27^th, 2002, 9:26pm

Have you taken the cluster quiz? The link is to the left side of the screen. Your symptoms don't sound like clusters at all. Not the sound, light, or duration. Is it possible you have had a misdiagnosis or are you trying to self diagnose? I would recomend getting a second opinion.

Title: Re: new and confused
Post by jonny on Sep 27^th, 2002, 9:58pm

Excelent advice, Karla!!!!

..............................jonny

Title: Re: new and confused
Post by Charlie on Sep 27^th, 2002, 10:48pm

I usually began to think about them. I don't think that caused them. There was likely some little signal that my brain received. It seemed to happen frequently.

Charlie

Title: Re: new and confused
Post by pjbgravely on Sep 28^th, 2002, 8:18am

Wow, it sounds like you might have something treatable.

Title: Re: new and confused
Post by Svenn on Sep 28^th, 2002, 8:25am

Excelent advice, Karla!!!!

Svenn

Title: Re: new and confused
Post by jonny on Sep 28^th, 2002, 8:31am

Is there an echo in this thread?......LOL

.................jonny ;D

Title: Re: new and confused
Post by oringkid on Sep 28^th, 2002, 9:58am

Don't know about the sound, but the only thing I know about that has light flashes is a detached retina (my eye doc warned me of this as I have a 50/50 chance)

But I agree, get a second opinion.

Sherry

Title: Re: new and confused
Post by jonny on Sep 28^th, 2002, 10:19am

2Late

You ever read your IM's dude?.....LOL

.................jonny

Title: Re: new and confused
Post by 2late on Sep 28^th, 2002, 10:24am

Mike....... hope you get the right diagnosis. jonny.......echo left for the weekend ;D .............2late

Title: Re: new and confused
Post by 2late on Sep 28^th, 2002, 10:27am

jonny.........nope ;D i'm ckeckin' right now ;D ............2late

Title: Re:still new and confused
Post by mlmuir on Sep 28^th, 2002, 10:54am

Well,
I have taken the quiz, which came up on the positive side. And my doctor has told me in all likelyhood I do have CH. I was just trying to get some insite on the precursers of an attack. Does it just 'come out of the blue' for most folks or are there some signs that your going to have one?

???

Title: Re: new and confused
Post by domm on Sep 28^th, 2002, 11:18am

Michael - mine have always just hit out of the blue. They start out around mid kips of 5 or 6 and then build over the course of several weeks. I am episodic with cycles lasting from 8 weeks to 16 weeks. This cycle (my third) I started Verapamil, along with Imitrex and Oxygen for aborting the attacks. After three weeks of very low dosages of Vera (180 mg/day) I have been PF for 10 or 11 days now.
But there have never (that I can think of) been any warning signs - no high stress, physical trauma, sickness, etc. that could be tied to them.
good luck in finding the right set of meds, and I hope you've joined OUCH to support finding a cure for this damn horrid condition
domm