|
||
|
Title: Fuck you I love you! Post by DougL on Sep 25th, 2002, 3:34pm I’ve been thinking about this for a while now. I read the messages the supporters post. They are giving advice to the other supporters to not take it to heart if their clusterhead snaps at them while getting hit. Now this bothers me! Where do we as clusterheads get off in feeling that its ok to snap at the people that we love. Just because we are in pain?!? I just don’t agree that this is ok. I make an extra very hard effort while in pain to be nice to my supporter while getting hit. He does not deserve that type of treatment. He is at my beckoning call for the duration and deserves that kind of respect! Please people. Your supporter deserves so much more than petty snapping. I know this may be a lot to ask while in the mist of a kip 10, but think how you would feel if you were on the other side and getting snapped at just for trying to help and love someone. DougL |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 25th, 2002, 3:41pm This is just ONE of the reasons that I insist on being alone when clustering. .........................jonny |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 25th, 2002, 3:45pm Doug, This is off the subject but good luck with the hurricane. Hope you and your supporter stay warm and safe. We will be thinking of you. Chris L |
||
|
Title: Re: Fuckyou I love you! Post by Bob P on Sep 25th, 2002, 3:51pm Fuck you! I love you! Kind of redundant, don't ya think? Sounds like an old Doors song. Hub once asked me to rub his belly while he was getting hit. I didn't fall for that old trick though. My wife asks how she can help when I'm getting hit and I just say "Pull my finger"! She only asked once and I didn't even need to snap at her. |
||
|
Title: Re: Fuckyou I love you! Post by domm on Sep 25th, 2002, 4:02pm Doug - I'm with Jonny on this one. Leave me alone while I'm getting hit. I don't want to say or do anything I would regret later. My beautiful wife / support is probably the only one who truly knows how to "handle" this from me. And when I'm recovering, I always make sure to reconnect with her. After 30 years, of marriage she is still my best friend. domm |
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 25th, 2002, 4:04pm on 09/25/02 at 15:41:07, jonny wrote:
Ditto Dude! ;D Slammy 8) |
||
|
Title: Re: Fuckyou I love you! Post by echo on Sep 25th, 2002, 4:12pm When asked in the past "What can I do for you honey"? Leave me the fuck alone! Now she gives me the space I need, but continually checks on me to ensure I'm not going over the deep end. I agree that the decision of how to be supported must be determined while out of cycle. True loving supporters are understanding and unoffended. My wife is one of these types of supporters. |
||
|
Title: Re: Fuckyou I love you! Post by Margi on Sep 25th, 2002, 4:22pm I just gotta get in on this one. This is exactly why I always stress how important it is to ask you guys what you want us to do while you're getting hit - but to ASK that question BETWEEN attacks - NOT during one! - and to NOT be offended if you need to be alone. Expecting you to be patient and pleasant when you're in that kind of pain is just asking too much. Those of us who have been supporters for a long time know that you will come to us if you need us during an attack, but it's always best to let you lead during this grisly dance. I'm blessed with Mike - he's not a snapper at all. He just needs his space when he's getting hit. Like Domm said, the time for reconnection is after the attack. Thanks, Dougie Lutz - you're a star for saying what you said. ;) |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 25th, 2002, 4:33pm Margi, I sent you mail Monday and it came back today......I resent today did you get it? ..................jonny |
||
|
Title: Re: Fuckyou I love you! Post by echo on Sep 25th, 2002, 4:33pm During an attack she once asked me if a hummer would help. Good for a great laugh. ;D Wonder if it would work? Johnson that is. ??? |
||
|
Title: Re: Fuckyou I love you! Post by 2late on Sep 25th, 2002, 5:03pm i'm with jonny lock me away i'll deal with it. echo, i'm pretty sure that's the only time i'd refuse a hummer,just make sure you get a raincheck ;D ...........2late |
||
|
Title: Re: Fuckyou I love you! Post by Elaine on Sep 25th, 2002, 6:44pm You are so right Doug, pain does not give us a right to snap at people expecially people who are trying to help. I do remember gettig upset with Buddy in the ER one time, they were getting all my insurance information. Name address and phone number stuff like that . Buddy was just sitting there and I was trying to answer all the questions. The woman asked me how old I was. I be damn if I could remeber I looked at Buddy and said "you know you could help me out here these questions are getting harder damn it"! Being alone is best. Like Margi said its best to tell them what we need so as not to chance being rude. |
||
|
Title: Re: Fuckyou I love you! Post by Marc on Sep 25th, 2002, 9:09pm My 2 cents: I don't snap at anyone because it's impossible for me to interact with others when I get hit. My "zero to Kip 9" is about 5-7 minutes. I don't talk, I don't make eye contact - I just pace around thinking "why me, why me". If someone approaches me, I simply walk away holding my head. I just want to be left alone to deal with it in my own way. When it peaks, the dark and scary thoughts creep in while I rock. Simply impossible to see or do anything but try to deal with the Beast. Between my eye and nose, I can soak a bunch of paper towels in 3 minutes flat. The heat builds up, and I'll try anything to cool off. When the pain is on the down slope, I get really talkative, kind of "high" on the relief. It's a steep ramp - killer pain to zero in 5 minutes followed by total euphoria for about 30 minutes. Marc |
||
|
Title: Re: Fuckyou I love you! Post by don on Sep 25th, 2002, 9:14pm Echo I would like to think it helps. In fact a feel a little shadow coming on now! Oh honey...................................... |
||
|
Title: Re: Fuckyou I love you! Post by Jabeen on Sep 25th, 2002, 9:35pm My experiences are just like Marc's post. My husband waits til I'm done and then sees what I need or want. Mine are always at night so I have told him to ignore me. Jabeen :( |
||
|
Title: Re: Fuckyou I love you! Post by kristi on Sep 25th, 2002, 9:50pm Thank you DougL. Just knowing that you are thinking about us supporters and our feelings too with such warmth made me feel good. Being snapped at is irrelevant in comparison. :) PFDAN! K |
||
|
Title: Re: Fuckyou I love you! Post by don on Sep 25th, 2002, 10:04pm I dont think any of us thinks it's OK. In fact I think we all feel pretty damn guilty when it happens. But I know it CAN happen so like Slammy and Jonny, it's syonara when I get hit. For me and my supporters. |
||
|
Title: Re: Fuckyou I love you! Post by Marc on Sep 25th, 2002, 10:07pm Hey Don, I know a really attractive gal who told me she was very "aural", do you suppose that she was talking about a Cluster abortive method? ;D |
||
|
Title: Re: Fuckyou I love you! Post by Mastifflvr28 on Sep 25th, 2002, 10:25pm "Can I do anything for you?" "YEAH, GET ME A FUCKING GUN!!" Never asked me again. He does peek into my hell room once in a while... Good think we don't own any guns :) Mast |
||
|
Title: Re: Fuckyou I love you! Post by Charlie on Sep 25th, 2002, 10:39pm I used to say turn on the light, ask me how I'm feeling, turn on the radio or rattle the dishes and I'll kill you. Lucky I didn't throw someone down the cellar stairs, put their head in the vise, beat them to a plup with my mallet, saw off their head and start them on fire. Otherwise I was a peach. Charlie |
||
|
Title: Re: Fuckyou I love you! Post by ShariRae on Sep 25th, 2002, 10:57pm I agree with those that need to be alone.. I just walk away with my hand to my head...and they know.. when hubby or my kids "check on me" they know not to even talk...they just open the bedroom door..and if I put my hand up..they know I am ok on my own & to close the door & walk away.. I actually do it this way so they feel they at least tried to help... especially my kids...be kind to your supporters....they are there cuz they love you :) Huggsss Shari |
||
|
Title: Re: Fuckyou I love you! Post by Peppermint on Sep 25th, 2002, 11:35pm To all of you who posted above, Thank you for saying what I have been thinking ;). I received a message under Supporters board asking me about this type of thing. #1 I am a long distance supporter, whatever that may mean. All Iknow is that my 'Angel' is rarely ever rude, in fact quite the opposite. I can tell when things are getting too much - I did ask him in between his attacks, about how he feels, what he needs, etc. And I also let him know the one time he hurt my feelings that I didn't deserve it, whatever it was he was feeling. He's supposed to let me know when he isn't feeling well, so that I can leave him be, doesn't want to talk, he needs his space....which he has done 99% of the time. #2 I never think its okay for someone to be shitty to someone else who is doing what they do out of care or love >:(. We all have our moments, as above, but this should not be all about walking on eggshells and being a doormat. I agree with all the toughies on this board, one namely Jonny who ALWAYS ::) speaks his mind - you have to be thick skinned at the right time. You can always show the person you care for that you are there for them when they are NOT in intense, headbanging pain. #3 I would never be so presumptuous as to say 'I know what you are going through' because I thank my lucky stars and Lord above that I really DONT. This might do well to be posted under the SUPPORTERS CORNER board, there are some that could use this advice. I'm just glad it came from the people who know. I didn't want to look like an ignoramus - (although Slammy, if I sent you a picture, you wouldn't say I look like one now would you? ;D) Thank you for confirming my belief, maybe SUZANNE 102 will read this... I didn't have the heart to say what I was thinking because I wasn't sure :-/; thought it was only me. The thread I am referring to is under Sup corner, don't have a clue here need advice.. Now I am sure I was on the right track all along... thank God my 'Angel' sure behaves like one. PFDAN to you all, Peppermint |
||
|
Title: Re: Fuckyou I love you! Post by Ree on Sep 26th, 2002, 12:22am Thank You Doug L!!! Dave likes to know that I'm in the world when he gets hit... sometimes he will call me but I just listen in the back ground incase he needs me... sounds like torture but I think he does this when he feels like hes dying or gonna die... if ya know what I mean... I always ask what he needs too... he gets snappy... if he gets too snappy or doesnt want me around I get lost... Most times I stay... my choice... been through alot together... I like to share this with him... He watched me give birth right... love to all of you... thanks again Doug L for knowing we care ~~~ree |
||
|
Title: Re: Fuckyou I love you! Post by catlind on Sep 26th, 2002, 8:03am I'd have to agree with everyone. No it's not ok to snap, and I am famous for snapping at my hubby. I then immediatly am apologizing. He has gotten used to it and understands now what to do and what not to do thanks to the great people on this site. It has helped him immensely. The only thing he does now is leave me alone, and try to keep the kids from getting me irritated. He lets them help in various ways. When he's home, the only thing he will not let me do is leave the house on my own. He has physically restrained me while I screamed and thrashed and banged my head looking for a moving vehicle to put my head under. After it ends, it's all back to normal and I tell him how much he means to me and how much help he and the kids are to me. This site has made all the difference in the world though, before he felt completely 100% helpless, and now he and I both understand things better, and he's able to do things that help him feel more helpful and me to not yell at him for trying to help and just loving me. Cat |
||
|
Title: Re: Fuckyou I love you! Post by stevek on Sep 26th, 2002, 9:38am I vote for the "leave me the fuck alone". I only snap when I must repeat this every few CHs. I also can't stand my daughter's chick rap while I’m having a CH, actually I don't like it at any time. I think it is time for a room at the other end of the house. Take care, stevek |
||
|
Title: Re: Fuckyou I love you! Post by echo on Sep 26th, 2002, 11:08am on 09/25/02 at 21:14:05, don wrote:
Thanks for the laugh Don! |
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 26th, 2002, 11:53am on 09/26/02 at 09:38:40, stevek wrote:
Right-on Surfer Steve! ;D I especially liked the chick rap portion...lol! I think it's time for a room at the other end in the house, but it's for my 14 year old! I was playing Dire Strait's " Brother in Arms" on the guitar the other day, and he rolled his eyes at me saying that I was having "flashbacks"! lil fucker... I almost flashed backed him! ;D Slammy 8) |
||
|
Title: Re: Fuckyou I love you! Post by Margi on Sep 26th, 2002, 12:14pm Eureka!! I think we have finally identified the cause of clusters!! Teenagers. Ours moved back home with us for awhile during Mike's last cycle, earlier this year. THAT definately added to the stressmosphere and *blammo* - longest cluster cycle ever, that amazingly ended when she moved back out again. hmmmmm...... I think we should round up all the teenagers and ship them off to an island somewhere.... (with apologies to any teenage sufferers in the audience) |
||
|
Title: Re: Fuckyou I love you! Post by don on Sep 26th, 2002, 1:24pm I agree Margi and DAMN IT, I'm going to be part of the solution. You can start sending all 18 &19 year old females to Don's Isle of YEEEE HAH! |
||
|
Title: Re: Fuckyou I love you! Post by Cathi on Sep 26th, 2002, 1:32pm Marc - ;DYippeee!!! Again, a subject to which I can speak! Maybe Slammy can get another weekend out of this thread! Aural? Maybe....but you warped pups will never know, now, willya? :-X Whatever works for all of you- as an abortive- I hope you all get what you need! I'm just here for you......as a supporter, just tell me (except Jonny & Slammy) how I can help. ::) Seriously, since I've never experienced my friend in the throes of a dance, I don't know what I'd do, actually- most likely I'd sit somewhere quietly, making certain no one gets hurt, and wait it out, to celebrate when the dance is over. Margi, I like what you have to say- you've got a real big heart and a level head-and that's so good! Slammy, it's your turn- go for it! Cathi :o ::) |
||
|
Title: Re: Fuckyou I love you! Post by don on Sep 26th, 2002, 2:22pm Margi"s head is so level you can roll a BB in a straight line right across the top of it. |
||
|
Title: Re: Fuckyou I love you! Post by Margi on Sep 26th, 2002, 2:34pm OK, Don, that'll be enuff outta YOU, sir. You Massachusetts peeps are a challenge, aren't ya? Wait...maybe it's not that at all. Maybe it's just that you're all CHALLENGED. (Yikes - i think i may have just checked 6 of my friends off my list. I'll just be shutting up now.) :-* |
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 26th, 2002, 2:35pm on 09/26/02 at 13:32:41, Cathi wrote:
Sorry..... being "Aural" doesn't do anything for Slammy. Now, if you are talking about her being very "Oral"... now ya talking! That's right down Slammy's alley! ;D Slammy 8) |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 26th, 2002, 2:46pm Hey Margi, Do you know the nickname for people who live in Mass??? Mnot a very nice personS ;D ;D ;D. Putting on my flame proof suit now Chris L |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 26th, 2002, 2:54pm Nope!, thats not it, Christine LMMFYBO!!!!!!! .....................jonny ;D |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 26th, 2002, 3:02pm I know Jonny - I know!!!! The damn MB won't let me say the real thing. How come we can say FUCK but not Mnot a very nice person - see bet it does it again. Chris L |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 26th, 2002, 3:09pm M_A_S_S_H_O_L_E.......LOL See?....its easy......LOL .......................jonny |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 26th, 2002, 3:11pm AHHHHH - thanks!!! Now I feel better. Chris L |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 26th, 2002, 3:13pm Thats why im here, to make women feel better. LMAO ;D ...............................jonnytotherescue ;D |
||
|
Title: Re: Fuckyou I love you! Post by StanTheMan on Sep 26th, 2002, 3:24pm I too, prefer to be left alone . . . Fortunately, this has not been a significant problem for me, although I can be somewhat grumpy during my cycle due to lack of sleep, etc. Have to agree with much that has already been said: Excruciating pain is NEVER an excuse or license for being rude in any way, shape, or form. By all means, if your temper / mouth is a problem for you while under attack, then GET AWAY! Please don't subject your spouse, children, or loved ones to verbal outbursts. Regards! StanTheMan |
||
|
Title: Re: Fuckyou I love you! Post by Cathi on Sep 26th, 2002, 3:27pm on 09/26/02 at 14:35:12, Slammy wrote:
|
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 26th, 2002, 3:27pm on 09/26/02 at 15:09:36, jonny wrote:
Ahhhh! Thanks! and all this time I thought they were called Dickheads! ;D Slammy 8) |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 26th, 2002, 3:38pm Thats true. A man has to think with his head, this way theres no discussion as to which ;D ....................jonny |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 26th, 2002, 4:33pm and they're the ones with the stupid Mt. Washington bumper stickers!!!! |
||
|
Title: Re: Fuckyou I love you! Post by echo on Sep 26th, 2002, 4:38pm on 09/26/02 at 15:38:21, jonny wrote:
And both of mine are bald. No wonder I'm so confused. |
||
|
Title: Re: Fuckyou I love you! Post by jonny on Sep 26th, 2002, 4:41pm No, Mt Washington was my draft name for the Mule before I settled on "Mule" I think it fits......LOL ................jonny Echo, Me thinks you should get a matching bag......LMAO ;D |
||
|
Title: Re: Fuckyou I love you! Post by SFChris on Sep 26th, 2002, 5:30pm This is a great message thread - the subject name alone should go into the hall of fame. Yo Slammy - nice new picture on your messages. A wolf howling at the moon, huh? How on earth did you decide on that as your logo? Who'd of thunk? LOL. Chris |
||
|
Title: Re: Fuckyou I love you! Post by catlind on Sep 26th, 2002, 5:33pm on 09/26/02 at 15:09:36, jonny wrote:
Up in Canada we just called the state Massive Two Shits eh? LOL Cat |
||
|
Title: Re: Fuckyou I love you! Post by ChristineL on Sep 26th, 2002, 5:37pm Good one Cat...........I'll have to remember that one!!!! LOL Chris L |
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 26th, 2002, 6:00pm on 09/26/02 at 17:30:55, SFChris wrote:
heheh...... I keep humming the tune " Little Red Riding Hood..." ;D Slammy 8) |
||
|
Title: Re: Fuckyou I love you! Post by catlind on Sep 26th, 2002, 6:54pm OMG Slammy ate grandma!!!!!!!!!!!!!!!!!!!!!! :o :o :o :o Cat |
||
|
Title: Re: Fuckyou I love you! Post by kristi on Sep 26th, 2002, 8:50pm Oh, Cat, I did not get a very nice visual out of that one at all. Eeeeeewwwwwwww! LMAO though! K |
||
|
Title: Re: Fuckyou I love you! Post by Charlie on Sep 27th, 2002, 3:15am You can say rectal aperture though. :o Just trying to help :D Charlie 8) |
||
|
Title: Re: Fuckyou I love you! Post by Slammy on Sep 27th, 2002, 11:10am on 09/26/02 at 20:50:46, kristi wrote:
Dyan Cannon is a grandma! so much about your visual distortion! ;D Slammy 8) |
||
|
Title: Re: Fuck you I love you! Post by oringkid on Sep 27th, 2002, 5:35pm Ok, I am going to throw a big fat nasty wrench in the works here. Cathi, if you have never witnessed a CH and don't have CH...why are you here? Don't mean to be a bitch or anything, but... first time I saw you post was on the "big "O" thread" and just wondering..... I may be way off base here... won't be the first time and hope Margi doesn't decide to flatten me again but... just wondering......... Sherry |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 27th, 2002, 6:04pm Flatten you, Kid? I dont think so, noone flattens noone unless it goes by me. Ill be watching this thread, anyone flattens my Kid will deal!!!! Try me !!! .........................jonny |
||
|
Title: Re: Fuck you I love you! Post by Drk^Angel on Sep 27th, 2002, 9:00pm Hey kid... I think she's a supporter, but just hasn't been around her clusterhead during a cycle yet. Maybe she's gettin'a head start on the supporting. PFDAN............................. Drk^Angel |
||
|
Title: Re: Fuck you I love you! Post by dentedhead on Sep 27th, 2002, 9:36pm Hello People. I snap at my wife almost every time I have an "attack". When the day comes she leaves me alone I won't "snap" on her. How can you snap on someone unless they are running their mouth. Here's one my wife hears alot= SHUT THE FUCK UP! Sorry, but our significant others may not realize the actual pain we are in. Oh well, I got bigger worrys. As far as the hummer goes.....it works for me!!!!!! Quit your bitching and suck my dick. Gee....dont hear me "snapping "much then. LOL. :o Mike |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 27th, 2002, 9:52pm Ever wonder why the person that brought it up said "Hummer?" Cause kids read this board thats why. Now you know. ...............................jonny |
||
|
Title: Re: Fuck you I love you! Post by ChristineL on Sep 27th, 2002, 9:58pm Mike.......I think that was a bit more than any of us needed to know. Chris L |
||
|
Title: Re: Fuck you I love you! Post by Drk^Angel on Sep 27th, 2002, 10:01pm I'm startin' to understand where he got that dented head from. I'd imagine his wife has had alot of practice swingin' that skillet if he really treats her like that... PFDAN........................... Drk^Angel |
||
|
Title: Re: Fuck you I love you! Post by ChristineL on Sep 27th, 2002, 10:07pm If I was his wife and he was really treating me that way a CH would be the least of his problems! Chris L |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 27th, 2002, 10:18pm LMMFYBO!!!!!!......Chris and DRK......LOL ........................jonny |
||
|
Title: Re: Fuck you I love you! Post by Charlie on Sep 27th, 2002, 10:43pm Bleaugh Charlie |
||
|
Title: Re: Fuck you I love you! Post by LTBullitt on Sep 28th, 2002, 12:25am Don't approach a rabid wolverine ever! |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 11:27am Sherry- Wrench received.....I'll go get some ice..... Perhaps I should tell you why I'm here- then YOU can decide where I should be, since the group seems to need a locator police. My friend is someone I've known for ohh, about 37 years. We met in Jr High...he was very special to me then....as we became adults, we went our seperate ways, and have just this year reconnected. It was just recently he told me about CH- and directed me to this website. We live in different states, but that does not mean we don't get to visit from time to time. I have wanted to understand what he goes through, so I surf this site when time allows.....I have never made any bones about the fact that I first discovered a trait of CH early on.....clusterpeeps are amazingly funny, sharp-witted people, and I have truly enjoyed many of the posts I've read....just a week or so ago, I finally added my own post. Do I really have to see this person in abject agony before I can participate? Am I to understand that one cannot be a supporter/participant in this site unless one has either experienced, firsthand, a hit, or is a supporter who has watched the maddening dance? Let me tell you what I was up to yesterday, when I hit the site: I read of Sailpappy's plight- sent him some encouragement, from my unenlightened perspective. I read of a young boy, battling cancer- same age as my own precious grandson....I was compelled to send his grandmother some words, and his parents a bit of $$ to help with the fight this child was facing....then, since he ALWAYS cracks me up, I tried to jump in on one of Slammy's posts. Given the opportunity, I'd prefer NEVER to see any ONE of this group get hit- EVER again....so, I watch, and I read, and sometimes, I put my own supporter/newbie 2 cents' worth in.....unless I'm not welcome. My friend e-mailed me last night, asked me if I wanted him to jump in & avenge me. I stand on my own feet. Please tell me what YOU would do. I encourage you to go back through ALL of my posts, then, you might get a better idea of who I am....sorry this is long, I'm just a bit disappointed. Cathi |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 1:28pm Well, Cathi, there really aren't any location police here. I think it's pretty cool you're going the extra mile for your friend - always good to have just one more person knowlegable on cluster headaches. I do understand where Sherri's coming from though, too. The supporters that have already arrived here actually HAVE witnessed cluster attacks - way too many of them, and we really do live with this disease in real life. Supporters here have had to work hard for recognition because we've never felt their pain firsthand, but we're slowly earning our rightful place here. Does it matter if YOU'VE never witnessed an attack? No, not really. And, again, it's very kind of you to do this research for your friend. You'll have to forgive us if we have kinda treated you to be like an unmarried marriage counsellor, or the water boy at a football game. And there will be times here when full-time supporters will shock you with their real life war stories. I guess it's kinda like the sufferers are in the centre ring, full-time supporters are just outside the fence and research supporters are just outside THAT fence. But, there's room for everyone here that has any involvement with cluster headaches. Has your friend been diagnosed by a qualified cluster knowledgable neuro? Please tell him to feel free to post here too, ok - meeting others that go thru his pain is a big part of support. And, Sherri - why would I 'flatten ya' ...? I'm really not an ogre, Sherri. :( Margi p.s. DentedHead/Mike: all I can say is i'm glad you're not MY Mike. Tell your wife to feel free to visit the Supporters Group. Sounds like she really needs us. ::) |
||
|
Title: Margi, Margi, Margi Post by BobG on Sep 28th, 2002, 1:57pm "we're slowly earning our rightful place here" "full-time supporters are just outside the fence" You (and Cathi) and any and all supporters don't have to 'earn' your rightful place here. Just because you don't get the headaches you do suffer right along with victim. You have a full-fledged right to be here and I'm grateful that you are here. Thank you for being part of this board. Maybe I'm just dumb or naive but I've never noticed a 'fence' between the suffer and the supporter. I hope there's not one. If there is it is time to tear it down and replace it with a Welcome mat. Thanks to you and DJ we have the Supporter's Corner here. It's the first thing I read each time I sign on to this site. I may not post there often but I do want to know what is going on there. Thanks for doing it. This is only my opinion and I stickin' to it. |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 1:57pm Margi, First off, he's here, Margi- and he told me he has great respect for you. Marc posts here regularly....haven't used his name till now, because I didn't want any confusion as to our connection. He suggested I look into this site to understand his disease. I am, have been, always will be his friend- as well as a staunch supporter. I still have a lot to learn about this insidious devil he deals with, and, after being out of touch with him for so long, I'm still reeling with this stuff! I'm quite serious, my life does not leave a lot of time to be involved with a bunch of websites/forums- but this one, till I get this stuff, is important. I don't want to offend anyone, nor do I wish to jump into something where I don't belong. Do I WANT to see Marc get hit? Absolutely not! I hope, if he's ever around (possibilty near zero) when he is hit, that I'd do the right thing to help him- THAT"S why I'm here, and, perhaps, to add a bit of levity. Not just for my friend, but for anyone who cares to partake. No ulterior motives, no hidden agenda. As I've told Marc, I have gotten far more from this great group than I could possibly give- which makes it all the more frustrating....but...do I NOT belong here? Am I tresspassing? I wish all of you PFDAN- long-lasting, peaceful times, and I'm so glad you have each other to lean on. If ever I can help, I'd like to. I'm dropping this now. Cathi |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 28th, 2002, 1:58pm Now I know why Mike loves you. You are smooth, Margi!!! I cant wait to see you and my man Mike again. Cant wait to hear "EH".......LOL .........................jonny Noone trashed noone......cool Opps, to early to tell, let the thread go on......LOL |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 2:06pm Marc? As in Verapamil Marc? Morro Bay Marc? |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 2:29pm OK, first of all, Cathi - of COURSE you are welcome here. We WANT people to learn about cluster headaches!!! That's one of OUCH's main goals. And, you're absolutely right - you'll probably make history as being the first pre-qualified cluster supporter. We've all had to learn it by our boot-straps. I wish I'd known about clusters before I actually witnessed Mike have an attack! Scared the CRAP outta me! so, yes, please...pull up a chair. BobG - the fence isn't something sufferers construct....it's the pain that builds that fence. We can't stop it and we can't do anything about it - but, no - it's not something YOU guys do. And, Jonny? Thanks for the hayah cayah (hair care) tips you gave Bonnie and me the other night. ;) hugs all 'round, Margi |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 2:37pm That's Covina Marc, nee, San Dimas Marc...everywhere I've been, and everywhere aI haven't been, currently, sittin-on-the-beach, starin' at a big rock Marc..livin' the good life in Morro Bay....y'know another? If you're down that way, please give him a hearty handshake for me, wouldja please? And BobG, and Drk, thank you both- I was feeling a bit bruised...kinda felt someone was drawing a line in the dirt or something....I still have a lot to learn from all of you- and your humor is outstanding! Did anyone whose looking notice I went NOWHERE NEAR the "hummer " thread? So, what you MIGHT have been supposin' about my motives.......proves THAT theory is waaay off the mark.....or is that ...oh, nevermind! |
||
|
Title: Re: Fuck you I love you! Post by catlind on Sep 28th, 2002, 2:40pm You address a very good point Margi, that I know I personally tend to forget. As the supporter, you and my hubby and all other supporters, are helpless to deal with the pain. I guess in one sense, you have it worse. You have the pain of watching a loved one in pain, and the helplessness of not being able to do anything about it. I would never wish this on my worst enemy, but to inflict it on our best friends, our spouses, friends, and significant others, through no invitation or desire, must be hard to come to terms with. I suppose I need to re-evaluate just how incredibly strong and wonderful each and every one of our supporters is. Cat (ok done rambling now - carry on ;) ) |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 2:45pm Ah-ha! Now we know who Marc's secret admirer is at the guest book :D Marc's got a girlfriend! Marc's got a girlfriend! neener-neener-neener. Cathi............you also "look maaahvelous" ;) |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 28th, 2002, 2:51pm SHUT THE FUCK UP......ALL OF YOUES, THATS RIGHT "YOUES" ...............................jonny |
||
|
Title: Re: Fuck you I love you! Post by catlind on Sep 28th, 2002, 3:29pm :o :o Hmmm ya think he wants us to be quiet? ;D ;D ;D ;D ;D Cat |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 3:31pm Who wants us to be quiet? |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 3:33pm BobG- Would it, then, be out of place for me to respectfully request you refer to Jonny's last post? As far as the other comments- I'm a happily married grandmother- if he wants a girlfriend- it surely wouldn't be someone older than HE is- he'd go for 2- 25 yr olds, I'd think! As to his birthday messages, well....I was in Maui- from the 18th through the 25th, so I can plead the fifth, can't I? Let's put this thread to rest, shall we? Nice to know ya BobG- Cathi |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 3:42pm Dang..........thought I had it nailed. Guess I'll have to guess again. Ok, I'll shut up now. |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 3:47pm Teee Hee, chuckle chuckle ::) |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 4:00pm Dear Happily Married Grandma, (by the way, so is my wife) Why do I get the feeling I've just been had? :) Happily married Grandpa (of 5) |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 4:08pm Dear Grampa- Dunno......smoke & mirrors maybe corn-fused you a bit? Really, Bob, thanks for making me feel welcome, here....do you need a supporter? It's always nice (my perception) to have more people on the team, so to speak.... BUT- I think Jonny wants us to shut up! fONDLY, hAPPILY mARRIED gRANDMA |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 4:11pm LOL this really IS getting a little lengthy, huh? ;) Cathi, again, welcome. You've definitely got one of the best pre-requisites a supporter can have: a sense of humour. Because you're definitely gonna need one.... Sometimes you will think there's absolutely nothing to laugh at, so you'll notice that sometimes we supporters act like clowns and klutzy cheerleaders - usually, that's an effort to make our loved ones find their smile...but sometimes it's just us blowing off steam when our own walls have closed in on us. This is kinda cool too, for us veteran supporters. I don't think we've ever had a ROOKIE before. Mooo-haa-haa.....we get to actually TRAIN one!! Ree? Bonnie? Monique? And all you other supporters? Looks like we got a live one! ;D Stick around, gal. Knowledge is power. Oh, and Catlind? LOL thanks for what you said. Your words made me smile and re-read it a little though. I sure HOPE we supporters don't actually INFLICT these things on you guys! LOL I understand what you meant though, not to worry. ;) Jonny? Were you saying something? :-* |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 4:19pm Margi- Supporter? Victim? I have it on good authority, it is possible for one to quit this forum, and then jump back on- more than once, even. I'll count on everyone to help toughen my skin, it's something I've needed for a long time- just be gentle, please. Keep telling me what I need to know, and I'll try not tjump in where I don't belong- I'm likely here for the long-run, so get used to it. Now, I gather Jonny wants this thread to end.....shall we? Thanks for your help, Margi- you're a peach! Cathi |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 4:41pm Cathi, Thanks for the supporter offer but I'm not in a cycle at this time. Maybe later. I do have supporters at home. Click this and go to the second row, 5 to the right. See the little kid? He's been an OUCH member for more than half his life. http://pahlow.net/ch/clusterheads.htm |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 5:04pm BobG- Yknow that calls for an "aaawwwww" I'm so happy you need no additional support- and I hope that continues till the year 3000- unless you'd like it to last longer.................. What's another 998 years when you're as young as we are??? Cathi |
||
|
Title: Re: Fuck you I love you! Post by catlind on Sep 28th, 2002, 5:04pm DOH Margi, I'm glad you read that the way it was intended LOL Yes, I meant that we sufferers INFLICT this hell on YOU our beloved supporters! YEEF There goes that chronic foot problem again... can't keep it outta my mouth Taking jonny's advice....S'ingTFU now ;) Cat |
||
|
Title: Re: Fuck you I love you! Post by BobG on Sep 28th, 2002, 5:12pm Cat, That wasn't advice from jonny. It was an order. And when jonny speaks you better believe he means it. Or else! :D But, This string started a dirty word in the heading and has gone on for 87 replies. That's gotta be a record for a 'start-with-a-dirty-word-string'. I ain't leaving until it hits a hundred replies. |
||
|
Title: Re: Fuck you I love you! Post by SFChris on Sep 28th, 2002, 5:26pm This post is just my way to help keep this thread alive - for several reasons. 1) I love the Subject Line and want to see it at the top of the MB; 2) I agree with BobG and want to see it hit 100 replys: 3) Because Jonny told us all to shut the fuck up and I don't want to. BobG - I like your first reply regarding supporters. You guys help keep us going when it gets really hard. Thanks Margi, Ree, Monique, Bonnie, Cathi etc. Chris |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 5:29pm Well, hell, count ME in too! Not only will a Supporter Theme make history, but it will piss Jonny off all at the same time. LOL (;)) Sorry, Deej...are the archives bustin at the seams yet? Cool beans, BobG!! p.s. Ree, speak up - I know you're online there, ya lil lurker ;) |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 6:04pm And furthermore...this supporter's thread is settin records out here with the Big Dogs...we're not even in our own room. So (to quote our Pres)....nanner nanner. :P I know, I'm responding to my own reply. Shut UP Margi. |
||
|
Title: Re: Fuck you I love you! Post by Ree on Sep 28th, 2002, 6:08pm IM IN IM IN... WHERE THE HELL HAVE I BEEN... HEY THAT RHYMES LIKE THE POET AND SUPPORTER I AM WHAT WERE WE TALKING ABOUT?????????????? I THINK I NEED TO READ BACK A WAYS I MISSED SOMETHING... COULD USE A MENTAL SUPPORTER MYSELF... HI CATHY I AM ABOUT TO BE A NANA MYSELF...LOL IMAGINE THAT... ~~~~JUS REE~~~~ |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 6:20pm Pick one: * oooohhhh, I'm shakin' in my boots- Jonny's not gonna like this- y'know what he told us to do....... *Ree- and Hi backatcha, girl...let's talk someday, shall we? *Is that 100 yet? Cathi |
||
|
Title: Re: Fuck you I love you! Post by Ree on Sep 28th, 2002, 6:22pm OK READ A LITTLE MORE...Slammy I am going to be a nana soon so the visuals cant be that bad... (not all grandmas are old) Hi Cathy hang around and help us support some peeps it would be great... and Jonny~~~ Dave and me are probably way funner than Margi and Mike so why arent you rushin over here to meet US shit you would think we lived in another state or something I am starting to be offended by this ??????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????? sorry Margi i just had to lol.... love ya gal... ree |
||
|
Title: Re: Fuck you I love you! Post by Peppermint on Sep 28th, 2002, 6:23pm No, not 100 yet Cathi ;) Jonny, I'm originally from Brooklyn - In B-land we spelled it YOUZE, as in , HOW YOUZE DOIN'? LMAO baby, had to get in on the fun.... Peppermint |
||
|
Title: Not 100 yet... Post by catlind on Sep 28th, 2002, 6:27pm Hmmm get it to 100 posts, but will it make it to 1000 times read as well?! LOL Now we have a goal! LOL Cat |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Sep 28th, 2002, 6:30pm I said I'd like to help....so here goes.. Ree You are about to enter the most wonderful time of your life...now I'm liable to ramble on & on about grandparenthood, so I'll keep this brief......let us know when this baby is due, please........and, until my little Michael really got proficient with his speech, I was "Jamma'- I still like to think of myself as the "french gramma"- deusions of grandeur, I'm sure! We'll talk soon, Ree- glad to know you! (can you help keep me out of trouble?) Cathi |
||
|
Title: Re: Fuck you I love you! Post by Margi on Sep 28th, 2002, 7:40pm So this be post 98 or 99... Ree, GIRL...put yer money where yer mouth is. We can go ya. ;) LOL Why just last week, we've come up with a new song. You know that song by Styx? Babe? Babe, I'm leavin, I must be on my way... well Mike likes to comes up with his own lyrics. So now it's ....Ooooh, oooh, ooooh, DAVE. Dave, I'm leavin, I must be on my way.... or I got You, Dave. Or, Davy I'm a Want You.... top THAT, Mrs. Massachusetts. :P |
||
|
Title: Re: Fuck you I love you! Post by domm on Sep 28th, 2002, 8:09pm In Florida it was - "yunz" here's 99 domm |
||
|
Title: Re: Fuck you I love you! Post by Peppermint on Sep 28th, 2002, 8:15pm 100 ?? Well, I guess I'll be hanging around... I think Mr. Mass is away.. good work everyone ;D Jonny, ya hafta be LYAO at this thread.. this continued in your honor! Peppermint |
||
|
Title: Re: Fuck you I love you! Post by jonny on Sep 28th, 2002, 8:57pm Ok ok ok, 100 posts SHUT UUUUUUP NOW!!!!!! ........................jonny |
||
|
Title: Re: Fuck you I love you! Post by Peppermint on Sep 28th, 2002, 9:04pm ya just couldn't resist now could ya.... loveya too Jonny, Pep |
||
|
Title: Re: Fuck you I love you! Post by Ree on Sep 28th, 2002, 11:50pm LMAO I dont think I can top that one Margi... and Pep...Look at all the fun your having here... That "angel" sent you here and now you have more friends than he does... He'll be sorry... you show em... ooh and Cathy the baby is due this week coming up... Oct 5th and its a boy............ my son is an Army Aviator I want him to call the baby "Chopper" for a nick name... isnt that cute...I cant wait... |
||
|
Title: Re: Fuck you I love you! Post by Slammy on Sep 30th, 2002, 12:20pm Alright! Everyone out of the pool! Slammy 8) |
||
|
Title: Re: Fuck you I love you! Post by oringkid on Oct 2nd, 2002, 8:46am Ok, I'm bringin this back up. Sorry Jonny. But since I got the crap started...and I was gone for the weekend... Cathi, I really was just wondering. I never saw an introductory post. Not that you necessarily need one, but usually you will see something like, "hi, I'm so and so, and heres my story." or something to that effect. Marc emailed me and let me know what the deal was. And he said knowing you, you would probably "reply" to it . LOL (not his words) Didn't mean to offend you. And I do welcome you to the board. I like a sense of humor and banter, so don't think you should change or anything. I truly was just wondering basically what connection you had with CH. Now I know! So, I apologize for making you feel unwanted. Hope we can be friends! It is pretty cool that you want to understand. Especially when you haven't even seen one!! Wish more people were like that. Jonny, thanks! Margi, thanks. Now, I will STFU! ;D Sherry |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 12:16pm Thanks, Sherry- Maybe this thread can go to 200-perhaps 300- we'll see...I've been a lurker for awhile now....guess I'd gotten to the point where I just assumed (Iknow I know-what happens when we assume.....) YOU all knew ME like I was getting to know you.....when :o I got that, I started the post on the supporters' forum....which, BTW, has been a massive fizzle. As far as Marc's e-mail to you, send him this-----Hey, Man! I told you, I stand on my own feet- :o Now I'm gonna have to beat Marc up-anyone wanna help? Now, that's Marc's outta my daytimer- hey, Sherry- wanna be friends? Cathi |
||
|
Title: Re: Fuck you I love you! Post by echo on Oct 2nd, 2002, 12:53pm Welcome aboard cathi. Bald echo will be your friend. I'm fairly harmless, a sharp dresser and all around good egg. |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 1:45pm Hey, Ech- (can I call you that?) So, it's a deal......Marc's outta the book- you're in- along with Sherry.....when do we meet to beat him up? Enough levity- I'll be glad to listen, Echo- jsut send up a flare- I'm new, and I don't know much, but I know how to comfort and encourage! You'rea good egg! Cathi |
||
|
Title: Re: Fuck you I love you! Post by echo on Oct 2nd, 2002, 1:52pm Just don't call me late for dinner. Ok, let's take Marc out back and pound wet sand up his ass. (it packs so much better) We'll hit him so hard and fast he will think he's surrounded. Slap him so hard his dog will bleed. Watch for flares sis |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 2:05pm No NO!! Echo!!! I take it all back! His dog doesn't deserve it at all!!! Cathi |
||
|
Title: Re: Fuck you I love you! Post by echo on Oct 2nd, 2002, 2:16pm Okay. No puppy pounding. Everything but that is a go? I have way too much time on my hands during these conference calls. |
||
|
Title: Re: Fuck you I love you! Post by oringkid on Oct 2nd, 2002, 3:53pm Oh no! Didn't mean to get Marc in trouble! :'( ;) How bout keepin him AND addin me and echo? If ya need more daytimer pages I got some...course they are from 1998...but heck you can always cross out the date! ;D Sherry |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 4:10pm Sherry- That's funny- I have all mine from "98, too- did I do NOTHING, or did I forget to write it down? Guess it's not important now..... You didn't get Marc in trouble- he can do that all by himself.....we should stop talking about him while he's not around to defend himself, huh? Right, Ech- NO POUND PUPPIES......the rest, well, we'll see what sounds like fun when we all get together! BTW, Sherry- BobG says we can have the Las Vegas fam-uh-lee reunion at your place- d-ya have a plane? 125 9approx) rooms, and a large grocery store in your house? Cathi |
||
|
Title: Re: Fuck you I love you! Post by oringkid on Oct 2nd, 2002, 4:25pm Uh... that would be a negative Cathi, I repeat, a negative. LOL! Sherry |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 4:34pm What part, Sherry? I was packing..... cathi |
||
|
Title: Re: Fuck you I love you! Post by oringkid on Oct 2nd, 2002, 4:37pm :P I don't think you could find that many rooms in my whole town! Now, if ya go to Laughlin, that might be a different story. That is where they have the River Run! And my, wasn't it interesting this year! Sherry |
||
|
Title: Re: Fuck you I love you! Post by Cathi on Oct 2nd, 2002, 4:49pm Been to Laughlin, Sherry- I'm originally from L.A., CA, I've done TOO many midnight runs across the desert to get to one of the desginated spots at which one may empty one's pockets- I've done my donations there! What's the thread, here? Oh, that's right, it's the Slammy- Slammette thing..... have you considered, Slamette- it might be time to change that to uh, well- say.....3000 miles? Cathi |
||
|
Title: Re: Fuck you I love you! Post by Slammy on Oct 2nd, 2002, 6:03pm Quote:
WTF? Now here's a thread killer if I ever saw one ::) Slammy 8) |
||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |