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        New Message Board Archives >> 2002 Posts >> New to this.
        
(Message started by: jrwjr61 on Sep 25^th, 2002, 8:22am)

Title: New to this.
Post by jrwjr61 on Sep 25^th, 2002, 8:22am

I was just to the Doctor last evening and he seems to think I am experiencing Cluster headaches. I am scheduled to get a Brain MRI today to ensure there is nothing else. After reading much of the info on this site, I do not seem to have the extreme pain of alot of you , although Saturday night was about a 5 on the KIP scale.
Since then I have been getting 5-10 minutes of pain about 4-6 times a day. If I press on the upper portion of the right eye orbital I feel a pain shoot up my forehead and the last inch of my brow area has gone completely numb. Is this the same characteristics that any of you are having? Please let me know so that I can be sure this is a good diagnosis. Until last night I, like most of the world had never heard of cluster headaches.

Title: Re: New to this.
Post by Bob P on Sep 25^th, 2002, 9:57am

Nope.

Since my first cluster, 32 years ago, all of my attacks are pretty much the same.

Cluster period any where from 5 to 15 weeks long.

2 to 3 attacks a day.

Every attack from 0 kip to 10 kip in 5 to 10 minutes.

Each attack 1 to 2 hours (unmedicated).

Each attack from 10 to 0 in 5 minutes.

No tender spots after attacks. Just a dull ache that stays through the cluster period.

Are you haveing any of the required autonomic symptooms required for a CH diagnosis (teary eye, runny nose, drooping eyelid, red eye, etc.)?

Title: Re: New to this.
Post by NancyMcFree on Sep 25^th, 2002, 12:12pm

When you can touch your face and bring on the pain .... its another disease and for the life of me I can't think of the name. Your neurologist would know though. I know when I first was diagnosed this was one of the things they looked in to. Make sure you tell your doctor that you can bring on the pain by touching your face.

Title: Re: New to this.
Post by Bob P on Sep 25^th, 2002, 12:18pm

I think you're going for trigeminal neuralgia. Those are more like electric shock type pains and can be triggered by touching your face or even wind blowing on it.

Here is their web site:
http://www.tna-support.org/

Title: Re: New to this.
Post by NancyMcFree on Sep 25^th, 2002, 12:25pm

That's it BobP. Thanks for remembering the name for me !!!!