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        New Message Board Archives >> 2002 Posts >> Newbie here - being hospitalized tomorrow
        
(Message started by: HLO on Sep 24^th, 2002, 11:14pm)

Title: Newbie here - being hospitalized tomorrow
Post by HLO on Sep 24^th, 2002, 11:14pm

Hey everyone. I am so glad I found this board tonight. I visited my neurologist today and found out he is going to be putting me in the hospital for awhile. I have been diagnosed with Hemicrania Continua. I have had this God awful pain since June 6th of this year. I was in a car accident in December and was having my shoulder operated on that day. When I woke up from surgery I had the most terrible pain on the right side of my head that I have NEVER experienced before. They kept telling me it was a migraine but I have had migraines since I was a child and believe you me, this was far worse and different than any other migraine I have ever had before. (Wrong side and wrong area!) This will be my umpteenth time in the hospital this year. I am really not looking forward to it. I am scared as I have been on so many different medicines, Indocin being one and nothing has helped. I have Crohn's disease and Indocin was too rough on my GI track.

It is really calming to know that there are others out there that are experiencing the same thing and each of us are not alone in our suffering. I have been doing a lot of studying in regards to medications and care, my questions to all of you are related to how you are fairing in your everyday lives? Work, family, friends? I have been on disability from work for the last 3 months. I think I am at risk for losing my job. I can't concentrate as my head is constantly feeling like someone is stabbing it. :'(

How long have each of you been suffering from your illnesses? I see some of you have had periods of relief but the pain has come back. My Dr. is not able to tell me if I will be pain free once we are able to figure out how to slay this ugly beast.

Okay, enough from me. I look forward to hearing from each of you and wish all of you well in your recoveries.

Title: Re: Newbie here - being hospitalized tomorrow
Post by ave on Sep 25^th, 2002, 6:43am

I feel for you. Hope the op goes all right. When you get back tell us more about it.

Title: Re: Newbie here - being hospitalized tomorrow
Post by kaptex on Sep 25^th, 2002, 10:27am

Good luck and best wishes during your hospital stay. Hope everything works out for you. :)

Wishing everyone PFDAN,
Kimberly

Title: Re: Newbie here - being hospitalized tomorrow
Post by domm on Sep 25^th, 2002, 5:57pm

HLO - hope you explored this site and took the cluster quiz. Do these symptoms fit what's happening with you? There is tons of outstanding info on this site and the OUCH site. Tell us more what you get out.
Good luck in the horsepistol tomorrow and I pray you have good docs
domm

Title: Re: Newbie here - being hospitalized tomorrow
Post by 2late on Sep 25^th, 2002, 6:05pm

best of luck to ya HLO!!!! i hope it works out for ya, when you get home post & let us know how you are. ............2late

Title: Re: Newbie here - being hospitalized tomorrow
Post by Bob P on Sep 25^th, 2002, 6:08pm

Best of luck to you.

Hemicrania continua is different from cluster headache (the disease we suffer).

I'm sure you know all about your condition but here is a link anyway:

http://www.upstate.edu/neurology/haas/hphemi.htm

Title: Re: Newbie here - being hospitalized tomorrow
Post by Drk^Angel on Sep 26^th, 2002, 10:51pm

domm... Hemicrania Continua isn't the same as CH, so his answers are going to differ slighty from ours on the cluster quiz.

For those that don't know... Hemicrania Continua is a TAC like clusters with similar symptoms and autonomic features, except that the attacks are non-remitting (continuous) for at least 2 months (according to IHS diagnostic guidelines).

Good luck HLO!

PFDAN.............................. Drk^Angel