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        New Message Board Archives >> 2002 Posts >> Dan Rather: Topomax on the news tonight
        
(Message started by: Not4Hire on Sep 23^rd, 2002, 7:49pm)

Title: Dan Rather: Topomax on the news tonight
Post by Not4Hire on Sep 23^rd, 2002, 7:49pm

Did y'all see the Topomax report on CBS?NBC?ABC?...one o' them......said a new therapy for meegrainers...30 million of 'em......is the use of an anti-seizure drug..... pore ol' gal said she was gettin' up to 8 (count 'em ...eight) migraines a MONTH......and now she hasn't had any. I'm sooooo fuckin' glad our brethren are getting this kind of exposure on PrimeTime......not even a mention of clusters......

.....wonder how many of us *in cycle* have kept count how many headaches we had since Thursday.......

>:( >:( >:( >:( >:(

Title: Re: Dan Rather: Topomax on the news tonight
Post by BobG on Sep 23^rd, 2002, 8:05pm

Even not being mentioned is better than no mention at all.

Seems like it would be a good time to e-mail Dan R. and say thanks. After all, our meds come from migrainers.

And a little hint about cluster headaches in his next headache report would be nice.

Title: Re: Dan Rather: Topomax on the news tonight
Post by Charlie on Sep 23^rd, 2002, 10:16pm

Nice.

Topamax has had mixed reviews here. If I could take it for my seizures, I would. It was the only drug that completely wiped them out. It made me nuts though. What a deal knowing there is a drug that works 100% for me and I can't use it :'( >:(

Charlie

Title: Re: Dan Rather: Topomax on the news tonight
Post by NancyMcFree on Sep 24^th, 2002, 11:17am

Didn't see it Not4Hire but appreciate the fact that you are looking out for us clusterheads every time the "meegrainers" make it to the news !!!!!!! Should we all send our emails to Dan ?????

Title: Re: Dan Rather: Topomax on the news tonight
Post by Marshall_D on Sep 24^th, 2002, 11:52am

You hit the nail on the head, for me...Charlie. The side effects were not worth the limited success I had with Topamax. At some points, I thought I was dying with that med. But glad to here that poor person who suffers with 8 H/A's per month has relief. She should try 90 to 300 per month. Yeah, their shorter. But they definitely make up in pain what they lack in time...

Title: Re: Dan Rather: Topomax on the news tonight
Post by catlind on Sep 24^th, 2002, 3:52pm

Clusters may be shorter, but man everytime I hit the O2 and watch the clock I swear every single minute of the first 15min. worth of O2 is an hour...it feels like 15 hours just to get through that first 15 min. when a kip 8+ hits.

They just don't get that 3-10 headaches a day at extreme pain levels is harder to deal with and they refuse to believe us when we try to educate the medical community >:( I'm getting so sick of the whole thing....Drug Seeking/Migraines/Hormones, yadda yadda yadda, I wish they'd suffer one, just one and then tell me all that shit >:(

Okay I'm done ranting for the moment hehe

Thanks for the update Not4 :)

Cat

Title: Re: Dan Rather: Topomax on the news tonight
Post by echo on Sep 24^th, 2002, 4:15pm

Rant away catlind. Must agree with what everyone has said. I have a migrain daughter that often attempts to "Out Pain" me. If she's at the house and a good one starts to hit -- she leaves -- can't handle being wrong. What irritates me is when she has one of hers she wants quite, dark, compresses, ass kissing, and compassion. Hey -- go the hell home!! At the age she's at I'm no longer responsible.

wow -- where the hell did that come from? Somehow I'm sure I'm going to pay.

Echo - S'ing TFU now!