Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> 22 years
        
(Message started by: nostrebor on Sep 23^rd, 2002, 6:32pm)

Title: 22 years
Post by nostrebor on Sep 23^rd, 2002, 6:32pm

Hi everyone

I have suffered CH for 22 years
It Started in 1980, for 4 years I was seeing Doctors and neurologists who could not determine what I was suffering from, plenty of medication but to no avail.

For years and years I treated the CH as migraine taking painkillers that had no effect.

I was searching the internet in 1999 when I came across a site (don't remember what one) that described exactly what I was suffering from.

I have not had a CH since early 2000. Now 2 weeks ago it came back. I had almost forgotten the sleepless nights and the pacing and screaming.

I am glad to find a site with so much info and support. I have read lots of your posts and comments and I hope to pass on any info that might be helpful to any of you, although it seems most of you have your own special way of dealing with CH.

Cheers

nostrebor

Title: Re: 22 years
Post by NancyMcFree on Sep 23^rd, 2002, 6:35pm

Welcome aboard. I know this site was changed at one point ... perhaps that was the site you visited. The "old gang" could tell you about that. I am just a newbie here. Welcome though, and sorry you are suffering once again.

Title: Re: 22 years
Post by jonny on Sep 23^rd, 2002, 6:55pm

Chances are Nost that this is the site you found back in the day, this is the only site on the net that is strickly devoted to CH. this message board is all new and looks nothing like it did a few years ago, welcome back.

Sorry to hear you have a need to be here but we are and will always be here for you.

...............................jonny

Title: Re: 22 years
Post by 2late on Sep 23^rd, 2002, 6:55pm

welcome to the board!! sorry to hear the beast is havin' his way with ya after a 2 year break! you'd think the bastard would forget about you after 2 yrs. oh well ..........2late

Title: Re: 22 years
Post by maria on Sep 23^rd, 2002, 7:08pm

Welcome, Nost,
Your 22 years hit home for me. I had episodic clusters for 22 years. Had a 5 year remission, then had my last one 2 1/2 years ago. Hope all goes well for you and that your next remission period is longer than the last one. Maria

Title: Re: 22 years
Post by Jim R on Sep 23^rd, 2002, 7:28pm

Hi Nost,

I too have had CH's for a long time - 23 years and also had a remission - actually 7 years and then BAM - last year. Good luck bro 0 unfortunately, it is the nature of the BEAST. Please get help soon. Best wishes - Jim R

Title: Re: 22 years
Post by Drk^Angel on Sep 23^rd, 2002, 8:51pm

Welcome to the board! Sorry that the beast is using your cranium as a baseball, hitting it so high, that when it falls back to the Earth, it burns up on re-entry with the atmostphere. Welcome to the family!

PFDAN........................ Drk^Angel

Title: Re: 22 years
Post by 2late on Sep 23^rd, 2002, 8:53pm

he's baaaaaaaack!!! ;D ...........2late

Title: Re: 22 years
Post by Charlie on Sep 23^rd, 2002, 10:08pm

Welcome to the asylum. Everyone here knows the deal. It's something we'd all like to pass up. Still, if you stick around, you'll find something here or some way to mitigate this horror.

Glad to have you and new blood is always needed.

Charlie

Title: Re: 22 years
Post by nostrebor on Sep 24^th, 2002, 6:41pm

Thanks everyone for a warm welcome :)

Speak soon

nostrebor