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        New Message Board Archives >> 2002 Posts >> Am I going chronic? (longeish post)
        
(Message started by: ave on Sep 23^rd, 2002, 9:48am)

Title: Am I going chronic? (longeish post)
Post by ave on Sep 23^rd, 2002, 9:48am

Two years ago in october my clusters began making themselves felt once more. You could not truly call them painful, but they were there, no mistake.

They sort of rumbled on in the background, giving me non-painful nudges several times a day to remind me.

In february I did shrooms because the rumbling was getting louder. The psilocybin threw my brains head over heels (so it felt anyway) and I didn't have any regular cluster feelings until somewhere in May. Just some twitches.

June of last year the background rumble started up again and it is still going on today.

Now don't feel sorry for me,
for I HAVE NO PAIN,
(apart from that time I ate some liquorice!).

I just have this pulling feeling in my scalp, those twitches and tightness around the eye, pressure at my temple and beside my nose, etc. Nothing to worry about.

But is has been going on continuously for over a year, almost daily. I must conclude that I have become chronic, for the time being, but at a very low level of cluster intensity.

I realize many of you who are getting hit regularly would gladly trade places with me, and I would not post this, if I didn't think it might be of interest to researchers.
After all, with "non-complaints" like mine you don't go and see a doctor. I only recognize this as cluster activity because I have had the fierce variety several times. Maybe there are many more people with low level twitches and twinges.

I have not found a description of what I am experiencing (but then I may have asked the wrong questions). I wonder if this happens more often.
I also wonder if this is old age rescuing me from heavy clusters. Wondering. Anybody any insights?

Title: Re: Am I going chronic? (longeish post)
Post by Marc on Sep 23^rd, 2002, 1:43pm

Ave,

I don't have any insight, but rather a question - do you feel that it could be long lasting effects of the psilo?

Maybe I'm just reaching.........

Marc

Title: Re: Am I going chronic? (longeish post)
Post by eyes_afire on Sep 23^rd, 2002, 5:53pm

I started the psilo treatment mid-July. Now I'm fortunate enough to have only had 2 mild CH attacks over the past 11 days... that's pretty good. But I know my cycle is not over because I still get significant shadows (eye burning, twitching, watering, pressure, and stuffy left nose) and haven't had 2 painfree weeks. I am also afraid I have turned chronic because this cycle has been going for 1 year (all previous cycles were 6 or 7 months). I don't know what to say except: I hope neither of us become chronic.

Title: Re: Am I going chronic? (longeish post)
Post by Linda T on Oct 1^st, 2002, 1:09pm

Dear Ave: Sorry it's taken me so long to reply to your post. I've been "away" awhile and I'm trying to catch up.

I have feelings very similar to yours. My cycle started in November '01 and it remained pretty fierce until April '02. I, too, am no stranger to kip 10's. However, since April I have had nothing more than the feelings that you describe. Some days slightly "worse" than others, some days nothing at all. Mainly I feel pressure around my right eye and temple. Certainly nothing to complain to anyone about. I have tried to "pattern" it out. Seems I can go a week without any "feeling" and then another 3 weeks with the pressure thing.

I am on Inderal LA. I have tapered down from 120 mgs to 80 mgs. There has been no change in frequency or intensity. In my gut I feel that the Inderal is really not contributing anything but I guess I won't know that for sure.

Good luck and wishing you all PFDAN always, Linda T.

Title: Re: Am I going chronic? (longeish post)
Post by Joke_ten_Dam on Oct 1^st, 2002, 1:57pm

??? I am sorry to hear this Ave. It souns a lesser form of what I have been experiencing all along. I hope it dose not become worse. I myself am still experiencing 3 to 4 scale 6 to 8, attacks every two weeks. I have tryed dezeriel but it makes so littel a diferance that the side affects are not worth taking. On the 22end I will be seeing Dr Haan again to see what he wants me to try next. As for my temporary work it has come to an end after a year. Now I am once more looking for work. This time I am happy to say that I have an intrmediator to speak on my behalf.
Wish you all the best Joke