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Title: I have just had a CH attack...... Post by ZAIRA on Sep 13th, 2002, 3:07pm I am very sad, the beast has visited me again! :'( I have banged my head against the wall, I have a big bump in the middle of my forehead, I have just come back from the first aid ... what should I pretend more in my life??... >:( This beast is really driving me crazy! Zaira :-* P.S. Sorry for this outlet of emotions, but I am really exhausted of my condition... |
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Title: Re: I have just had a CH attack...... Post by Jim R on Sep 13th, 2002, 3:15pm Hang in there Zaira! The beast likes to drive us crazy! Hope, at least, that you're pain free now. I know it's exhausting - I had a KIP 9-10 for 6 hours yesterday and it wiped me out, emotionally and physically. Best wishes for you to remain PF. - Jim R |
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Title: Re: I have just had a CH attack...... Post by echo on Sep 13th, 2002, 3:44pm Soory to read you had such a rough dance. It will pass -- you will win, he will be defeated once again. We're her to listen and respond. Sounds like you need to go ice down your forehead now to minimize the swelling. |
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Title: Re: I have just had a CH attack...... Post by oringkid on Sep 13th, 2002, 3:45pm Zaira, next time, try getting on the bed on your hands and knees and bang your head on the pillow. Or, put your head down while you are on your hands and knees on the bed and rock back and forth as if you were going to do a somersault. The rythym of the rocking helps and you have some pressure on your head but you won't hurt yourself. Sherry |
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Title: Re: I have just had a CH attack...... Post by TomM on Sep 13th, 2002, 3:45pm Do not apologize! You are in pain but we understand. Keep the faith, baby! --TomM-- |
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Title: Re: I have just had a CH attack...... Post by Drk^Angel on Sep 13th, 2002, 3:48pm Sorry to hear that the beast is messin' with ya. Good luck! PFDAN......................... Drk^Angel |
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Title: Re: I have just had a CH attack...... Post by Slammy on Sep 13th, 2002, 4:27pm on 09/13/02 at 15:45:10, oringkid wrote:
That's exactly what I do, Sherry! Except I put the pillow on the floor.. I can't do it on the bed... I'd be on my knees with my fingertips pressing on my temple and eye socket as I rock back and forth.... Wow..... what a visual....LMAO!! ;D Slammy 8) |
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Title: Re: I have just had a CH attack...... Post by oringkid on Sep 13th, 2002, 4:33pm When I get one that wakes me up, I roll my head back and forth (side to side) on the pillow. The worse the pain gets the faster I roll until either it starts going away or I just have to get up and get ice or something. Betcha wouldn't think so much of "those lips" "those eyes" if you ever saw me during or even after a CH LOL!! ;D Sherry |
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Title: Re: I have just had a CH attack...... Post by Slammy on Sep 13th, 2002, 4:38pm You bet I would!! especially if we were using the technique over on the med side!! :o heheh.... the word, "thrashing", keeps popping in my head... ;D Slammy 8) |
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Title: Re: I have just had a CH attack...... Post by Charlie on Sep 13th, 2002, 4:45pm Sorry Zaira: The only thing I can say that if the beast is attacking you, it's time you attacked him. I did it this way: Dr. Wright's Circulatory Feedback This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been very helpful to many. When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand. This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time for this to take hold but when this works, the relief is almost immediate. I learned this from the doctor in a few minutes. He simply told me to concentrate on keeping blood away from the head. He thought the easiest is the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. I like to keep at it a few minutes longer than seems necessary to insure success. This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience. When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance. I wish you the best of luck - Charlie Strand Keep up the good fight kid Charlie |
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Title: Re: I have just had a CH attack...... Post by 2late on Sep 13th, 2002, 7:10pm Zaira, i'm really sorry to hear your having a rough time...know this: better day's are on the way,promise! you are stronger than the beast, you will win and be PF!!! good luck kid!!!! i'll be thinkin' about ya!!! ...............2late |
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Title: Re: I have just had a CH attack...... Post by ShariRae on Sep 13th, 2002, 8:32pm Never be sorry for venting...thats also part of what this board is for. We are a group that knows the exhaustion & frustration better than the rest. Stay strong hon & enjoy the pain free moments as they come and know that soon the cycle will pass.. Huggzzz Shari |
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Title: Re: I have just had a CH attack...... Post by Ted on Sep 13th, 2002, 9:04pm This saddens me seeing you getting hit again Zaira. Stay strong. |
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