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        New Message Board Archives >> 2002 Posts >> Newbie - I am so glad I found other sufferers!!!
        
(Message started by: Fine0626 on Sep 7^th, 2002, 6:48am)

Title: Newbie - I am so glad I found other sufferers!!!
Post by Fine0626 on Sep 7^th, 2002, 6:48am

Hi Everyone, I have been suffering with these headaches for 20 yrs and just found out that I am not crazy! It's a wonderful feeling thank you. I have been to a neurologist several times before and they said I had cluster headaches, but never really explained it to me, other than groups of headaches that last a certain amount of time. I was on Esgic Plus, Fioranol, mostly I would take whatever kind of codiene I could get just so that I could lay down and not sit up to rest, never sleep. The doctor never explain the face pain to me, I knew it was not sinus problems, thought it was TMJ from when I broke my jaw at 19, also thought it was because some of my teeth were bad, so a year and a half ago I had all of my teeth removed, praying it would stop that god awful pain. I was pain free for a year, but this beast has come back full force 12 days ago, everynight at 2am the pain begins, Imitrex and 10mg ambien have given me some minor relief. I am just grateful to this site for finally giving me someone else who truly understands the pain I have been going through. Thank You, Thank You, Thank You!

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Jim R on Sep 7^th, 2002, 6:52am

Welcome Fine - yup, you've got the feeling a lot of us had when we found this board - wow- I'm NOT alone! Sorry the Beast has taken up residence again. I think you'll find a lot of good information here, and a lot of good, caring and helpful people... Again, welcome. Jim R

Title: Re: Newbie - I am so glad I found other sufferers!
Post by catlind on Sep 7^th, 2002, 8:42am

Welcome to Clusterville Fine, sorry you have reason to be here, but glad you have found us. This place is a great support and a wonderful family. Watch out for certain monkey's here though, they are likely to getcha for anything LOL. ;)

Cat

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Jabeen on Sep 7^th, 2002, 8:55am

Hi! I am new as well-when this started for me 5-6 years ago, this site did not exist. I was PF for years and it returned to my chagrin. Bit when I read the horror stories here-I know I am "lucky" by comparison. Theres a lot of great information and support here...seems like 24 hours a day. Good luck-
Jabeen :)

Title: Re: Newbie - I am so glad I found other sufferers!
Post by NancyMcFree on Sep 7^th, 2002, 3:27pm

Welcome to the board ... sorry you had to suffer alone for so long. I think alot of us here have been to the eye doctor, the dentist, the ear nose throat specialists only to find out it is cluster headaches. I still in my mind can't get over that they call this a headache cause I never in my life had a headache like this !!!!!! But, hey, you have now found a place to calll home. You'll find lots of good info here and lots of support. Welcome.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Charlie on Sep 7^th, 2002, 6:14pm

I'm glad you found us. I know how you feel. Even though it's been a long time for me without them, I was still a wreck after reading the guestbook and finding this board. I never knew there were so many with them and several variations on this horror.

By the way, if you keep looking, you will most likely find something to help in some fashion. It happens all the time.

Stick around and let us know how you're doing.

Charlie

Title: Re: Newbie - I am so glad I found other sufferers!
Post by 2late on Sep 7^th, 2002, 8:37pm

welcome 0626! thought i died & went to heaven when i found this site. my wife still think's i'm crazy, that's beside the point! ;D

Title: Re: Newbie - I am so glad I found other sufferers!
Post by pjbgravely on Sep 7^th, 2002, 8:43pm

Hi Fine, You wrote"I have been suffering with these headaches for 20 yrs and just found out that I am not crazy! " Strange becouse I know I am crazy from these headaches. Welcome aboard, sorry you have to be here. We love and hate each other, Don't understand then just read awhile.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by paul_b on Sep 7^th, 2002, 10:08pm

Here to help and listen. It seems there is always someone here who knows just how to make things right when all seems unmanageable.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 7^th, 2002, 10:13pm

Welcome to the board! Sorry that the beast is slamming your cranium into a solid titanium wall to see how many dents he can put in the wall before your head completely falls apart. Welcome to the family!

PFDAN....................... Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 7^th, 2002, 10:35pm

anyone on? I have found some new relief for my clusters from my chiropractor.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by paul_b on Sep 7^th, 2002, 10:41pm

Well, what is it?

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 7^th, 2002, 10:55pm

Well let me start with a little history, I am 29 had these bastard headaches for 6 long years, done the prescrips, dental, eye doctor, neuro, catscans, mri, etc. just like everyone else. My headaches hit 2 times daily 12 hrs. apart. Got some info to go see a chiro. so I went, did xrays, come to find out my top vertebrae is curled over. So I think big deal right? Well let me tell you this cat has made more sense than any other jack ass I've seen. He claims that top vertebrae controls over 90 percent of the nerves for all your organs in your body. Since its out of line, its hitting nerves it shouldn't causing the headaches. Your body works on a 12 hr. time schedule and thats why I'm getting them 12 hrs. apart. He has been treating me with a pro adjuster, it is and electronic machine (computerized) no manual adjustments. You watch the computer screen as he goes down your head and back and this this senses the pulse time on every vetebrae. If its out of whack, he adjusts it with this tool. Totally pain free, and man does it work for me and maybe others. It is called the pro adjuster. Look it up on a web browser for a chiro. nearest you. This is the very most latest thing for clusters and migranes. Very few chiros have it, but if you can find one it is worth the cash. I am going 21 times and is costing me 1600.00. Not bad compared to what I've spent in the past.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Slammy on Sep 8^th, 2002, 3:25am

too bad...... and I really dug your name too....... ;D

Slammy 8)

Title: Re: Newbie - I am so glad I found other sufferers!
Post by oringkid on Sep 9^th, 2002, 6:21pm

Luckily, clusters don't cause stupidity.

bye now.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 9^th, 2002, 6:40pm

whats that supposed to mean?

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Margi on Sep 9^th, 2002, 8:14pm

before everyone jumps on this guy....take a breath.

this guy has found relief for HIS pain. he's not trying to sell anything. so can we avoid just one fight once, maybe? just in honor of the approaching date, if nothing else?

I repeat: he (or she, sorry) has found relief for his/her pain, guys. We all know that there IS no universal cure for clusters.

Clusterfok? the issue of chiropractic has been brought up here a lot in the past...not too many people have found much success with it. And we've had some chiropractors (but never our resident chiropractor, Dr. Doug Wright, who happens to also be a clusterhead!) actually coming here trying to sell their services. It's a sensistive issue here. just so you know.

but I'm really glad you HAVE found some pain relief. I hope it continues to help you.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 9^th, 2002, 9:38pm

Thank you! No I'm not trying to sell anything. Nor am I a doctor. I was just hoping to reach maybe one person out there who is suffering with us, that hasn't had any luck with the drugs and their side effects, may want to try to find something new. I'm not promising anything at all for anyone, BUT it may help. This is a really neat piece of equiptment, there is no manual b.s. involved it is designed specifically for vascular headache sufferers. My doctor is treating one other cluster sufferer (who recommended me to him, and has also had a significant change in his headache patterns and intensity). I really hope this may help someone out there. I'm not stupid or crazy all the time, just wanting relief from this shit.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by oringkid on Sep 10^th, 2002, 9:44am

Ok. I apologize for dismissing this out of hand. Clusterfok, tell how this has worked for you. Are you pain free now? How long have you been pain free from this treatment if so? From what you described, how does an electronic device uncurl your vertebrae? Or is that what it does? If the vertebrae were out of alignment and the nerve bundles rubbing against it, I would think you would have pain in a lot more places. I would also think that the pain would be based on movement as opposed to a circadien rhythm in that case. If our vertebrae are out of alignment and that causes the pain, then why does it peak (mine peak with up to 8 CH attacks a day) and then go away? Does the vertebrae become unaligned and the realign itself on its own?
I would be very interested to know what reasons or answers your chiropracter would give to these questions.
I AM glad that you have found relief. And I REALLY am interested in how your chiro would answer the above questions. It would be great if next time you are there you could ask these things and let us know.
You have to forgive me, as I have a very analytical mind and what he told you (according to what you posted) just doesn't make sense to me. I am perhaps missing something?
Welcome aboard, forgive my earlier rudeness, and please let us know if you find out more about how this works.

Sherry

Title: Re: Newbie - I am so glad I found other sufferers!
Post by TomM on Sep 10^th, 2002, 9:59am

Back to our oringal broadcast....

Welcome, Fine. You can call this home as we all have known the lonliness you experienced until we found this site.

Sorry you have the beast but glad to have you around.
--TomM--

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 10^th, 2002, 11:08am

If your headaches are caused by a misalignment in your spinal column, then you don't have a vascular headache, so realigning your back will not cure a true vascular headache. Perhaps your chiro isn't aware of the mechanics behind a vascular headache, and that is why he claims it as a treatment for them.

PFDAN............................. Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Linda T on Sep 10^th, 2002, 2:54pm

Back to Fine.......Welcome. As you can see some of these threads tend to go all over the place.

Sorry you're having a rough time. You are in the right place. You will find the help, support and relief you need right here. Keep looking around.

Good luck. Wishing you all PFDAN always, Linda T.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Charlie on Sep 10^th, 2002, 9:45pm

Glad someone feels better but I hope people understand that so far we have little luck with gizmos. I'd rather spend money with a neurologist. Chiropractic and the like.........well...it's your money.

If this has has helped in some ethereal way....I'm happy for you though.

That skeptical old Charlie

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 10^th, 2002, 9:51pm

This is to Sherry and others who are more interested in my writings about my visits to my chiro. and the treatments. No I am not pain free yet, I have my hopes set high that maybe some day I will be, but my chiro. claims when I am through with my treatments, the only pain I should have from the nerves that once triggered the clusters is, possibly a stiff neck, which I would take any day over these headaches. This is not an overnight treatment, mine will stretch out for a period of 4 months, possibly more depending how fast my neck settles with the new adjustments. I really dont understand exactly how all this works, but the way I'm gathering it is, from my top vertebrae being out of place, its causing nerves to collide with one another sending the pain to my head. Why the headaches go away for awhile and come back are beyond me, I'll be sure to ask Monday when I go back. I do know when I started my treatments over 2 months ago, I was having from 2-5 a day during my cluster. Now I have had no more than 2 a day, usually 1, sometimes I go a day or 2 with none. What really made me think this was working, besides the significant pain reduction was I have been noticing the last week, when I have a headache, the pain has moved to my temple throbbing like hell, and my teeth hurt alot worse, and my ear hurts worse than any ear infection I've ever had. I inquired on this yesterday when I went in for a treatment, he said the reason is, the more my neck gets back in line, the nerves that were getting the signals before to cause the headaches are not getting the signal as far. Also the nerves that are being affected were also damaged from the misaligned neck and vertebrae, are starting to heal causing the pain to work its way around to the back of my neck. This is why he claims when I'm back to norm in the neck area, the only pressure I'll have is the stiff neck. Wether or not this all makes sense or not to anybody, it really is helping myself and another cluster sufferer in my area. He is experiencing the same feelings in his ear etc. as I am. You can go to www.pro-adjuster.com to see how this piece of equiptment works, and email one of the doctors on that website and ask their opinion about using this for cluster headaches. I'll get my chiros web site for you Mon. and you can even email him about it even if your not in our area, since he has had first hand using this with cluster patients. One last thing, Friday morning I was hit with the demon, my wife drove me in to the chiro, I was having one when he started, as soon as he was done with the treatment, it let up immediatly, so that also gives me hope he's on the right track.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by TomM on Sep 12^th, 2002, 8:13am

Clusterfok--You seem a little bitter. If it works for you, fine. But, I must admit, the more you write, the more obvious it becomes that Oringkid was correct on her first post....

--TomM--

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ted on Sep 12^th, 2002, 8:45am

I don't think Clusterfok seemed bitter at all in his responses.
Clusterfok, I'm glad your cervicogenic headaches (that's what it sounds like you have, as opposed to CH) are getting better.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 12^th, 2002, 8:47am

Clusterfok,
I think, that my neck is out of whack too.
Can you send me $1600.00 so I can have D'rk Angel fix my neck? I feel confident that he can take my clusters away in my next life.
I prefer cash.
Debbie
24 yr sufferer with a kinky neck. :D

Title: Re: Newbie - I am so glad I found other sufferers!
Post by TomM on Sep 12^th, 2002, 9:04am

Kinky, eh? I'm hip! Sorry, I mean your neck.
--TomM--

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Fine0626 on Sep 12^th, 2002, 11:29am

Hello Everyone,
thank you all for your warm welcome, I really appreciate it, unfortunately I finally find someone else who understands my situation and I haven't been able to sit still long enough to be on the puter to talk. After being pain free for so long, I'm no longer seen by my original Neurologist, (doesn't take Ins. anymore) I had to see my GP( who is a complete ass!) I brought all of my charts from neuro to explain CH to him, and he still doesn't listen. OUTRAGEOUS refuses to give Imitrex spray after I tell him imitrex pills have worked but take up to 2 hrs to give relief. He gives me anti-inflammatory's and Esgic Plus which gives abolutely no relief. I did convince him to put me on verapamil 180mg, have only been taking them for 2 days, how long after starting verapamil has anyone seen any improvement ,if any? I am so distraught after my visit with him, and so stressed out have been getting 2-3 major episodes everyday and then lingering face pain the rest of the day for 3 weeks now, trying to juggle pills to relieve pain, not eating, or sleeping these days. Luckily I have a friend who is on Imitrex pills and she has been giving me hers just to sustain me these days, without them I wouldn't know what to do. Couldn't get a new neuro appt. till October 14. pray for me. Thank you.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by TomM on Sep 12^th, 2002, 1:49pm

Fine, baby--I'mma prayin for ya. ;D

Kick your doc to the curb! Obviously he does not understand that a 2 hour wait could mean life or death. :(

Watch the Verap as it plugged me up. A loverly side effect. ;)

--TomM--

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Grimreeper on Sep 13^th, 2002, 5:47pm

I want to start by saying clusterfok is doing nothing but trying to help others that experience such excrutiating pain. I'm sorry to burst your bubble but my husband has also experienced a great deal of relief from this procedure and he had no use for chiropractors before this device. He had been to a chiropractor years ago and swore he would never go back. Being sufferers yourself you all should know how desperate you get and how you are willing to try anything to get some help. This Dr. stated to me at church he thought he could help and if he studied the X-rays and didn't think he could do anything for him he wouldn't waste his time or our money!! My husband, out of desperation agreed to make an appointment. He explained everything to us and has made more sense than anyone has. Think about it, everything runs through the neck, pain signals included. When I asked why they come in cycles if it is a spinal problem, he explained how the body secretes certain natural chemicals, adrenals for example from the adrenal gland. Obstruction of any kind whether in the neck or anywhere cause it to work overtime. It produces and produces until finally shutting down when it simply can't produce the amount needed, in turn causing the onset of a cycle. When the body builds up enough to start generating adequate amounts the cycle ends. I could go on for hours. My point being, maybe you should research this technique before slamming it. We have spent $15,000.00 out of our own pocket trying to get some help. This procedure has definately changed the pattern and intensity of his cycles. They use to be like clockwork, 8 a day was nothing. Imitrex injections helped but limited to 2 injections a day leaves 6 to just somehow deal with. Pacing around the house in the middle of the night not even relizing his feet were bleeding from so many trips across the gravel. Yes, we have been there, and I do feel we are finally getting some help. This is gradual pressure moving the vertbrae not manual manipulation. The electronic part of it senses pressure on the vertibrae pinpointing areas of problem.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Charlie on Sep 13^th, 2002, 6:07pm

If this is working, I'm happy for you.

I have an idea that CH pain has nothing to do with the spine. Help me Ueli. I need some backup.

In any event, you sound good and I guess if it works, no matter how, it works.

Charlie

Title: Re: Newbie - I am so glad I found other sufferers!
Post by 2late on Sep 13^th, 2002, 6:49pm

if a messed up spine has anything to do with ch i know why i suffer, i blew out my back 2 years ago ( i climb telephone poles for a living had a really bad day & fell) i had surgery to remove parts of 2 disks that were smashing nerve roots in my lower back. i have sculliosis(curvature of the spine) all this causes me to have locking episodes of extreme pain about 2 times a day. don't know why i'm whining but you brought it up ;D ................2late

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ueli on Sep 13^th, 2002, 7:11pm

on 09/13/02 at 17:47:53, Grimreeper wrote:

Think about it, everything runs through the neck, pain signals included.

This is certainly true for the pain from a broken leg, but if that pain is influenced by the state of the neck vertebrae is IMHO very doubtful. But Grimreeper, have a look at the trigeminal nerve, click this link to a picture (http://www.clusterheadaches.org/library/general/trigeminal_pic.htm). The trigeminal nerve runs straight from the eye and face to the brain, without making a detour through the neck. Furthermore, during a cluster attack this nerve does not even transmit pain signals. In the trigeminal nucleus some false signals are generated, and these are mapped by the brain as if they were coming from the eye region. (And that's why any cutting or cooking of the trigeminal nerve cannot bring a lasting cure, but only lasting side effects.)
Brain chemical are produce in the brain. When they are distributed throughout the body they are transported by the blood stream, and that is not hampered by some 'misaligned' vertebrae.
If the modulation of neurotransmitters, that lead to cluster cycles and attacks, were caused by some misaligned vertebrae in the neck, the this misalignment must also vary in a daily and seasonally pattern. I'm sorry, such an explanation can only come out of desperation from a scam artist fearing the loss of a customer.

Some people are trying to help others by propagating the most outrageous theories, but for other people it is a duty to debunk such scams, in order to guard their fellow sufferers from harm, and be it only pecuniary.

PFNADs
Ueli

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 13^th, 2002, 7:54pm

well put grim reeper, i'm glad i'm not the only one being shafted by a gizmo, but hey-after todays adjustment and therapy, my forcast says its gonna be a pain free weekend. clusterfok

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Grimreeper on Sep 13^th, 2002, 7:58pm

Well Charlie, Veli to the rescue! You may very well be right, as you said, I stated that. (not the Chiropractor!) I am no Dr. that was just my view. I do know that any question I have asked he has never hesitated in answering with a logical explanation!! It makes no difference to me if you believe in this type of help or not. I don't have to witness your CH's with such helplessness. Some poeple out there might be open minded enough to try something new, when nothing else has worked they may also feel they have nothing to lose. Lord knows we've all given our share to the pharmaceutical companies to treat the symptoms. What is wrong with searching for a cause? If your theory is right, what is your suggestion for treating CH's. We're satisfied with results but still open to other options.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 13^th, 2002, 8:29pm

I'm sorry, but I don't think you're understanding something... You're claiming that chiropractors are the answer because they helped you, but we're saying that you didn't have CH if it was caused because your back was out of alignment. For ppl that suffer your type of headache, then yes it may be a cure, but for ppl that suffer our type of headache, no it isn't.

PFDAN........................ Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Grimreeper on Sep 13^th, 2002, 9:15pm

I most certainly am not claiming Chiropractors are a cure. I am simply stating I think we are closer than we have been. I have researched enlessly for years looking for answers. I don't know where you get all of your information but the last I knew, knowone Knows what causes CH. You, however, seem to think you do, or at least are trying to convince these poeple you do! There are only thoeries, you have one of your own and that is fine but it doesn't nessesarily mean it is right!! You are very set in your beliefs. This seems to make me think you are like most MD's I have encountered, Don't know what to do for them, but know you are right because that is what you have been taught. If you are so confident why can you not tell me what to do for them. Still being open minded, WHAT IS YOUR TREATMENT?

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 9:23pm

Well said, D^rk.
In my case, though, my whole head could be mis-aligned.
What to do??!! ???
Deb

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ted on Sep 13^th, 2002, 9:30pm

Grim, I'm glad to read your husband's, as well as clusterfok's cervicogenic headaches have been greatly reduced with this treatment.

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 9:37pm

OK Drk^, sorry, but Ted said it better. ;)
Deb

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 13^th, 2002, 10:05pm

Me thinks some ppl can't read English too well... If your headaches were caused by a misaligned back, it was not clusters. That's the simple fact... Thank you for playing, here's your parting gifts. A misaligned spine causes it's own type of headache which is not clusters. If it was, then the clusterheads that have tried quackpractors (including me) would have found relief. As Ueli said (before you so rudely brushed him off) the trigeminal nerve is not effected by a misaligned spine. How many more ways do we need to explain that to you?

Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ted on Sep 13^th, 2002, 10:30pm

Drk, what happened to gently suggesting that they might not have CHs and politely leading them to the correct place to find help with their pain? LOL

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 10:44pm

OK topic change...
I have some extra Emerge and Imitrex inject. if anyone would like to trade for some Viagra!
My doctor won't give me any, and I heard that it can bring on some hellacious multiple orgasms.

OK BaRing IT on!
Sexually frustrated from med side-effects-Deb :D

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 10:55pm

OK- never mind, I'm just going to bed.
Frustrated Deb :(

Luv Y'all,
PFDAN and many O's to everyone.
Nite,
Deb

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ted on Sep 13^th, 2002, 10:57pm

Now, when you say your doctor won't give you any, you do mean Viagara, right? ;-)

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 13^th, 2002, 10:57pm

Ted... Been there... Tried that with them... They don't take a hint very well... LOL

PFDAN........................... Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 11:00pm

MY doc is not givin' out nuthin.
Time to find a new doc!

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Drk^Angel on Sep 13^th, 2002, 11:03pm

You're lookin' for the doctor of love 'eh... :P

PFDAN........................ Drk^Angel

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 11:04pm

Maybe a chiropractor! I bet a certain sublexation is the real cause of my frustration...Hhmmmmm.. ???

Title: Re: Newbie - I am so glad I found other sufferers!
Post by debbie4278 on Sep 13^th, 2002, 11:15pm

WAIT!!!!
Maybe it's all the DAMN DOCTORS. with sublexations of their damn brains that's causing my frustration...
Oh good heavens.
So if I go to the chiro, to fix the mis-alignment of my "axis", after I take Viagra, my CH won't be gone ??? ??? ???, and I'll have to buy a shower massage???, still give most of my money to the pharmacist, and still won't get any ??? ??? ???
I don't get it- REALLY!!!!

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 13^th, 2002, 11:28pm

Heres my last thought for the evening, I've done some thinking on this subject, what a better place to look than my old med school dictionary.
The large sensory root and smaller motor root of the trigeminal nerve leave the brainstem at the midlateral surface of pons. The sensory root terminates in the largest of the cranial nerve nuclei which extends from the pons all the way down into the 2nd cervical level of the spinal cord. H :-/HHHHHHHHMMMMMMMMMMMMMMMMMMM

Title: Re: Newbie - I am so glad I found other sufferers!
Post by oringkid on Sep 14^th, 2002, 11:13am

I know there is more than one nerve going through the spinal column. Why aren't they affected? I have nerve pain in my arm and shoulder due to some misalignment or disc problem in my neck. How come it doesn't come the same time every day and seasonally? How do you explain the increased activity of the hypothalamus during a CH attack? The extra tissue found on the hypothalamus in people with CH? And I really want to know how a gadget moved over your body can tell electronically, through the skin and bone,where there is pressure on a certain nerve?

Sherry

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Ted on Sep 14^th, 2002, 11:16am

Thanks clusterfok. Ueli already mentioned that the trigeminal nerve doesn't reach the spine but it was awfully nice of you to double check and post the same thing by quoting your medical text.
"The sensory root terminates in the largest of the cranial nerve nuclei which extends from the pons all the way down into the 2nd cervical level of the spinal cord"

Title: Re: Newbie - I am so glad I found other sufferers!
Post by clusterfok on Sep 14^th, 2002, 1:00pm

Well, I guess its time for me to terminate from this website, its obvious I know nothing about all of this, I think I'll sue my MD and neuro. for misdiagnosis of having CH's for the past 6 years, guess I should have started at the chiro to begin with. It was really nice getting all the needed knowledge from all of you. Clusterfok ;D

Title: Re: Newbie - I am so glad I found other sufferers!
Post by tinax5 on Sep 15^th, 2002, 1:03pm

I'm am also a newbie and would like to say thank god I found this site. I have suffered for over 18yrs. with no help. I thank I will send this link to every Dr. that I have seen that told me I was a druggie or it was in my head. NO way I could have clusters because I was a women. "Just a headache drink more water and sleep more". You will be ok. >:(
I really just wanted to say thank you for the all the great info. and jokes. I havent lol in four months. Except when I went to the ER and was given saline drops by a Army Dr. I still am tring to figure out what I am going to do with them. ??? >:( :(

Title: Re: Newbie - I am so glad I found other sufferers!
Post by Marshall_D on Sep 15^th, 2002, 1:30pm

Whether it be Chiro-practor's, the Big (AND I DO MEAN BIG) "O", or Magic Mushrooms, if it works for the pain, "DO IT, BABY. I don't think many of these things actually help the actual Cluster Cycle. But if it helps the pain, which is a result from the cluster headache, much like the runny nose, tearing in one eye and stiff neck is a result of the actual Cluster in process. By all means, do it.

Me personally, if standing on my head (OUCH), singing show-tunes to my dog helped the pain, I would do it often. ::)

ciao