Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> BUMMED
        
(Message started by: Jim R on Aug 29^th, 2002, 8:14pm)

Title: BUMMED
Post by Jim R on Aug 29^th, 2002, 8:14pm

After three days on my new drug regime of doubled dosage of verapamil (480 mgs/day) and Topamax (200 mgs/day) and three PF days, I get a CH tonight that is boring into my teeth, shooting down my throat, stabbing at my temple, and throbbing behind my eye. I can't seem to completely shake it - even with O2 . I am getting really discouraged. I was holding out a lot of hope for the increased verap. if not for the Topamax. Well, maybe the neuro will try something else when I go on the 3rd... PFDAN's to you all. Jim R

Title: Re: BUMMED
Post by maria on Aug 29^th, 2002, 8:35pm

Jim,

Hang in there, fight the good fight, sorry to hear you are being hit so hard. Maria

Title: Re: BUMMED
Post by Kilo on Aug 29^th, 2002, 8:56pm

Sorry to hear the beast is still harassing you, Jim. I know it's discouraging, but hang on. When verapamil starts to kick in, it sometimes begins by decreasing the frequency of headaches. In other words, if you normally have them every day, they might change to every other day, then every third day, and so on, until they recede altogether. Glad to hear you had some PF days, and I hope you'll soon be free of the beast for the duration.

Kilo

Title: Re: BUMMED
Post by Drk^Angel on Aug 29^th, 2002, 10:14pm

It took a week after increasing my dose of verap before it started to work... Don't give up on it yet...

PFDAN........................ Drk^Angel

Title: Re: BUMMED
Post by Ree on Aug 29^th, 2002, 10:20pm

sorry Jim sounds like it could be over soon... hang in there your in my prayers... ree

Title: Re: BUMMED
Post by paul_b on Aug 29^th, 2002, 11:21pm

Ah pooop >:( Keep up the good fight. There will be many battles in this war with the Beast. Although each of us fights alone, its comforting to know you have us for reenforcement. I'm aware this is your worst one, my came in 97. Strength and PFDAN

Title: Re: BUMMED
Post by NancyMcFree on Aug 30^th, 2002, 4:10am

Hang in there Jim .... maybe it will still work. Crosses and fingers and toes for you buddy. And I'll throw in an extra prayer for you !!!

Title: Re: BUMMED
Post by ChristineL on Aug 30^th, 2002, 5:39am

Jim,

Your in NH right? We are neighbors and this might mean nothing but I also had been having a couple of good days and then that front came through last night and BAM I got nailed also. I don't know if weather is a trigger for you or not but it sure is for me.

Just a thought

Chris L

In rainy, cloudy Maine

Title: Re: BUMMED
Post by echo on Aug 30^th, 2002, 9:41am

Sorry to read you are getting slammed by the beast. Hopefully the meds will kick in soon. Hang in there, you will win the fight.

Title: Re: BUMMED
Post by Jim R on Aug 30^th, 2002, 3:44pm

Thanks everyone. I had to work today (I have the type of job where I don't have to work out of the house every day) and I didn't have a CH! But this Topamax has some strange side effects - when I'm driving and passing a car - man, dizzy and a strange tunnel vision thing happens - probably dangerous...and I feel wiped out and old, but maybe that's from fighting the pain. I hope you're all doing well and are having PFDAN's Chin up everyone (me too!) Jim R

Title: Re: BUMMED
Post by 2late on Aug 30^th, 2002, 4:05pm

sorry 2 hear the beast is gettin' the best of ya,better day's are ahead my friend,have u tried immitrex injections? it's the only abortive that hasn't let me down. ..............2late

Title: Re: BUMMED
Post by Jim R on Aug 30^th, 2002, 4:57pm

no can do the imitrex due to high blood pressue - doc won't let me use it, but do have Amerge, which apparently is a little less potent a vasoconstrictor. Thanks and PFDAN's to ya. Jim R