Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> I'm new here but my pain is not  
        
(Message started by: robb__30 on Aug 28^th, 2002, 8:41pm)

Title: I'm new here but my pain is not
Post by robb__30 on Aug 28^th, 2002, 8:41pm

I have had them for about 10 years. The first time I had them was shortly after I returned from the war with Iraq. It was incredable. The pain the unbeilevable pain. I had never felt anything like it. 2am in the morning every night for 2 weeks. The throbbing and the pounding of my right eye. I endured it then it was over. I never went to the doctor about it until 4 years later another attack. Even worse than befor 2 times a day everyday at the same time for 2 months. My 3rd week into my attack I told my wife I need to see the doctor befor the headaches drove me to do something stupid. Thats when I first heard of CLUSTER HEADACHES! At first I thought it was a joke. No one that I knew had ever heard of them. I tried so many meds. but nothing worked except O2. It was my life saver from the hellish pain that inflicted me. since then I have had two other attacks that lasted about a month a peice. this last Sunday they returned 8am for one hour. The paceing the rocking then it was gone. Monday 8am again one hour but not as bad. Tuesday no attack and today no attack. I dont want to get false hope. has this happened to anyone. Have an attack be that short. Please let me know!!!!!

Title: Re: I'm new here but my pain is not
Post by Drk^Angel on Aug 28^th, 2002, 8:48pm

Welcome to the board! Sorry that the beast is diggin' into your cranium with a backhoe, then fillin' the hole he dug with TNT and nitro, then lighting a match and blowin' the whole works up. Welcome to the family!

PFDAN......................... Drk^Angel

Title: Re: I'm new here but my pain is not
Post by NancyMcFree on Aug 28^th, 2002, 8:54pm

Hate to tell you but I have been rocking between attacks and just plain shadows (where you have the pain but it never skyrockets) for weeks now. Keep the faith buddy.....to all things there is an end. Just when we don't know. Gp with the flow. Every time you get a break don't think it is the end; but likewise ... every time you have a headache don't think it's the beginning. Just try and live with it for however long it lasts ... thats the best advice I have for you.

Title: Re: I'm new here but my pain is not
Post by paul_b on Aug 28^th, 2002, 11:24pm

Everyone of my cycles for more than 20 yrs had a character of its own. Only commonalty was the pain and often the time when it arrived. O2 and Imitrex help. Sometimes the anxiety of an attack became an issue. Enjoy your moments of calm, the Beast needs to rest too.

Title: Re: I'm new here but my pain is not
Post by carol on Aug 28^th, 2002, 11:25pm

Hi everyone,am I glad to find you guys. I have been a suffer of severe headaches for over one year and have been to every dr to try to find out what was wrong. I now no I have cluster headaches. I need to ask someone a few questions, 1st: the pain I experience affects my left side of my head and temple and also something goes on inside my ear,also my neck hurts really bad. Does this happen to any of you. The dr has me on Topamax and I can tell a world of diffrence, I am praying that this continues to work. I really would like a response from this.

Title: Re: I'm new here but my pain is not
Post by Ted on Aug 28^th, 2002, 11:34pm

Yeah Carol. Sometimes I'm hit on the left side and sometimes on the right. Although it's more common for a clusterhead just to have one side that it always hits on instead of alternating, such as how it is for you having it always on the left. The temporal region is a common place for us to feel it and sometimes it creeps over to the ear. The pain I get in the neck is from stiffness but it's not the pain of the cluster, I don't think. At least with me. You're not alone though, which is why I'm posting this to you.

Title: Re: I'm new here but my pain is not
Post by robb__30 on Aug 28^th, 2002, 11:37pm

This imitrex, I am in the army (stationed at Ft Riley KS.). I went on sick call but I dont think the doctor believes me. He asked me the time old question, on a scale of 1-10 how bad do they get? I told him 10. He looked at me and said , so if you were to have your arm cut off your headache would feel worse. I said , I don't know what it feels like to have my arm cut off but, I would consider cutting my arm off if it got rid of the headaches. I asked him for the imitrex he gave me pergaset(I dont think I spelled that right) the same stuff I have countless times befor with no success. Is this imitrex expensive?

Title: Re: I'm new here but my pain is not
Post by carol on Aug 28^th, 2002, 11:43pm

I know I have been on so many pain meds over the last year at one point I had my liver enzymes so messed up they took me off of everything. I have never had anything so painful. I have taken so many trips to the emergency room to get pain shots just so to get rest. I have been in and out of work over the last year because of the mess. People don't realize it is more than just a headache. It affects your entire way of life. I am just glad to get some relief for a while. Glad to hear you guys are doing o:k now also. I have done so much research on the website and tonight is the first success I have had. I can't tell you how excited I am. Well it is 1:00 here so I have to leave now.I will be on daily and thank you so much for your input. Take care and God bless.

Title: Re: I'm new here but my pain is not
Post by carol on Aug 28^th, 2002, 11:51pm

I am still here. I didn't answer your question.My sister takes imetrex?? I am not sure the cost of it. You may suggest going to a neurologist that is who gave me the diagnosis of cluster headaches. My family dr tried countless of times with no success to treat me for my symptoms. I have been on the Topamax for one week and I can't believe the improvement.

Title: Re: I'm new here but my pain is not
Post by Not4Hire on Aug 29^th, 2002, 12:05am

hey robb...I'd like to add my welcome to this site and my condolences that you needed to find us......glad to hear that you have found o2 and some of the other effective measures.....

I am researching military types that have CH for the OUCH newsletter and I ask that you read the thread: " A request for some help...." which I will "bump" up the MB soon........ i will appreciate any information you can add to our search for a cure, as well as an understanding of the human side of this MOFO- a part of the problem as important as solving this nasty riddle.... "Why me and why NOW?....I had a plateful BEFORE I got a headache......"

Hang in my friend.....we are here to find a way to kick this beast in the ass...... you can help......... best .....Steve