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        New Message Board Archives >> 2002 Posts >> New to the CHMB
        
(Message started by: Slydog on Aug 28^th, 2002, 6:32pm)

Title: New to the CHMB
Post by Slydog on Aug 28^th, 2002, 6:32pm

Hello Everyone!! I am new to the site and I am so glad I found it.....My Dr. is the one who turned me onto it. I have been a clusterhead for 5or6years now.Only got truly diagnosed about 2 years ago and have taken meds to help ward off the Demons. My CH bouts are usually somewhere between Aug. and Dec. and last about two months. I have had good results with Imitrex pills but not much luck with any preventatives. Just started Amitriptyline as a preventative, and Axert as an abortive2 days ago.....sofar 2 PFDAN!!!! I am so glad I found this sight and my heart goes out to all the cronics out there. Wishing you all PFDAN Slydog

Title: Re: New to the CHMB
Post by 2late on Aug 28^th, 2002, 6:41pm

welcome dog!!!! glad u found us!!!!! .............2late

Title: Re: New to the CHMB
Post by SFChris on Aug 28^th, 2002, 6:52pm

Welcome to the madness here - you will very soon have an interesting welcome from Drk_Angel, and you will be an official newbie.

Chris

Title: Re: New to the CHMB
Post by jonny2 on Aug 28^th, 2002, 7:03pm

Slydog,

Do you know how your Doc knows about CHMB?

.................jonny2

Title: Re: New to the CHMB
Post by Kilo on Aug 28^th, 2002, 7:09pm

Welcome, Slydog! Nice to know we have another savvy puppy around here to liven things up.

Gotta echo Jonny's question. I wish I had an MD who knew what CH was, let alone CHMB! >:(

Hope those PFDAN continue!

Kilo

Title: Re: New to the CHMB
Post by Drk^Angel on Aug 28^th, 2002, 9:07pm

Welcome to the board! Sorry that the beast is pissin' up your nose, and throwing acid in your eyes. Welcome to the family!

PFDAN............................. Drk^Angel

Title: Re: New to the CHMB
Post by Slydog on Aug 28^th, 2002, 9:18pm

Jonny2 and Kilo My doc actually seperated clusterheadaches from migraines when I first saw him.He did a search on clusters before I saw him monday and told me I should do the same. He briefly told me about the site. One thing that is way kewl is that he doesn't think I am just looking for meds...HE ACTUALLY BELIEVES ME Slydog

Title: Re: New to the CHMB
Post by paul_b on Aug 28^th, 2002, 11:32pm

We believe and support. WELCOME Okay to vent if the need arises; keeping the BEAST at bay is a challenge.

Title: Re: New to the CHMB
Post by Charlie on Aug 29^th, 2002, 5:05am

Welcome to our ward. Your doctor is one to hang on to. I wonder if his coming here has something to do with his attitude toward medicine? ???

Anyway, stick around and let us know how you're doing. Friesh blood is in short supply. :D

There probably is thing or two here that will help you in one fashion or another. Keep looking around and keep plugging away :)

Charlie

Title: Re: New to the CHMB
Post by NancyMcFree on Aug 29^th, 2002, 5:50am

Welcome to clusterville. You'll find lots of people here to share your pain with. Glad to hear your doc is on top of his/her game. :) :) :)

Title: Re: New to the CHMB
Post by Jim R on Aug 29^th, 2002, 6:21am

Welcome Slydog. Hope you find help and family here. - Jim R

Title: Re: New to the CHMB
Post by echo on Aug 29^th, 2002, 8:54am

Welcome to the family Slydog.

Title: Re: New to the CHMB
Post by nancyc on Aug 29^th, 2002, 9:56am

Hurray for your Doc...that kind is rare..hang on to him...or better yet, send him to SC ;D...Welcome to the family Sly...hey, i like that name..slydog... ;Dnancyc

Title: Re: New to the CHMB
Post by gtar_man on Aug 29^th, 2002, 1:14pm

Congrats on finding a doc "in the know" so early - I was in cycle #2 and neuro #3 before I heard the word "clusterheadache".
Welcome to our world of bozos, misfits, yahoos and just plain folks with headaches. We endure trials that would make those TV "survivors" pack up and go home crying to mama. Jump right in and hang; you're one of us now.

Title: Re: New to the CHMB
Post by daven on Aug 29^th, 2002, 1:43pm

Hi Slydog,
I just joined today, myself. I have been a CH sufferer for 3 years. Got treatment last Nov for the first time. Prednisone for 12 days with amtrip. Was clear of CH until June '02. Started Amtrip and Prednisone again. The Amtriptolene changes when the headaches hit. That meant the CH would come at 5PM instead of 2AM. Much better as at least I don't fear going to sleep. I also use O2 at 6ml for 10 -15 minutes on CH's below 5, Migranol for CH's to 7. Nothing I have tried helps CH's above a 7. When on prednisone above 20mg, I have no CH's.

Title: Re: New to the CHMB
Post by Linda T on Aug 29^th, 2002, 2:07pm

Hi Slydog and welcome aboard. Sounds like you've got things covered so far.

Keep the doc. You're really lucky to have found him.

Wishing you all PFDAN always, Linda T

Title: Re: New to the CHMB
Post by oringkid on Aug 29^th, 2002, 4:47pm

Don't wanna be the one sour note here... I think it is FANDAMNTASTIC that your doc wants to KNOW.

But....amitriptyline? (elavil) that is a VERY old drug to attempt. It never did anything for me.

Heres hoping this doc will take the time to REALLY look at all the stuff on this site.

Doc, if you are looking, check out the buttons to the left.
MUCH better meds out there right now.

But, Slydog, you ARE lucky, at least your doc wants to help.

Good luck and stick around!

Sherry

Title: Re: New to the CHMB
Post by Kilo on Aug 29^th, 2002, 9:35pm

Daven: Have you tried O2 at a higher flow rate to knock out those 7+ headaches? Seems most of the clusterheads who have found success with oxygen use it at 10-12 liters per minute--some even as high as 15. I'm still awaiting delivery of my first O2 setup, and I insisted on a regulator that will deliver 12 lpm.

Nice to meet you, by the way! Welcome to the lunatic hut!

Kilo