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Title: Do all CH suffers suffer pretty much the same pain Post by iukid on Aug 26th, 2002, 2:35pm I was wondering if everyone feels pretty much the same amount of pain or if some peope have kipps way higher on average than others and does it haft to do with smoking and exercise and other factors etc... |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Melissa on Aug 26th, 2002, 2:53pm Since I have not felt anyone else's pain, I'd have to say, I have no idea. There is no way of telling if one person's pain is greater than anothers. One person's kip3 might be anothers kip8. I could never begin to judge whether my pain is worse than others, nor would I want too. I guess it's all in how you perceive your own pain... :)Mel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 26th, 2002, 2:58pm on 08/26/02 at 14:53:05, Melissa wrote:
good answer Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by BobG on Aug 26th, 2002, 3:01pm Tough question. Pain tolerance is relative to the person that feels it. A kip 5 to one person may be a 9 to another. And sometime the pain may be only minor behind the eye, but gets worse as it spreads outward to the temple, nose and jaw. Also, the kip scale may be different from one cycle to another as can the length of the cycle. I can only speak for myself, smoking has no affect, good or bad, during an attack. Some people swear by exercise to relieve an attack. For me even thinking about it makes it worse. Cluster pain is a very unique pain. It's just "different" than any other pain I have ever felt. |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Bob P on Aug 26th, 2002, 3:05pm I think not. I've seen too many posts here of someone saying, "I'm sitting at the computer typing with a Kip 10 right now". No fucking way! Absatively no fucking way! |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 26th, 2002, 3:20pm I agree Bob! Shit... If I had anything over a shadow, I wouldn't be sitting over a fuckin keyboard! Why? Because 100% of all my focus would be on trying to get rid of the pain or block the onset of it...... Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 26th, 2002, 4:30pm I personally don't think everyone's clusters are the same, but without feeling what they feel, I cannot give a definate answer one way or another. PFDAN................. Drk^Angel |
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Title: My take on this..... Post by Elizabeth on Aug 26th, 2002, 8:15pm The KIP scale was adjusted for me one night last fall when I had my first true KIP-10... my old 10's became 7's... Pain is relative... a KIP6 might be too much to bear one day, because I'm already exhausted... and the same headache when I'm rested and healthy would be more bearable..... Just MHO.... Liz |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 26th, 2002, 8:18pm LIZ! Where ya been? Ppl been gettin' worried about ya! PFDAN.................. Drk^Angel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by don on Aug 26th, 2002, 8:32pm Sitting at the computer wuith a Kip 10. Possible but the monitor would be airborn from the second story. Key board embedded into the wall. and the scanner would be sanning the ceiling. I get very upset with a Kip 10. |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 26th, 2002, 8:37pm When they say Blue Screen of Death... Don takes it seriously... PFDAN..................... Drk^Angel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 26th, 2002, 8:48pm That was a good one Drk. I personally would not be able to sit at the computer with a kip 10. I can with a kip 8, rocking back and forth and with many typos. For me the computer is an escape, it's a distraction I can get lost in, as long as I don't have to think about anything much. If I'm typing with a kip 8, I'm usually in ramble mode, or as hubby calls it verbal diarrhea. Anything at all to distract. The second it goes to a kip 8.1, I can't sit still to be at the puter. Of course, that's only on the laptop, I don't think I could sit at the desktop with a kip 8, no movement ability would make it very hard. Kip 10 on a puter? No Fucking Way. Kip 10's I start looking for tractor trailers to play chicken with. Course now I got me some O2, things might look up a bit :) Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by don on Aug 26th, 2002, 9:01pm Dem tractor trailers dont stand a fuckin chance! |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 26th, 2002, 9:14pm Ya know... It's no fun to play chicken with tractor trailers... They don't play fair... PFDAN.................... Drk^Angel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 26th, 2002, 9:21pm on 08/26/02 at 21:01:30, don wrote:
I think you're right don. In fact I might try to take on Fort Drum next time I get a kip 10 and they tell me I'm drug seeking LOL. I can see the headlines now "Woman with kip 10 Cluster annhilates 10th mountain division " Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 26th, 2002, 9:29pm We'll call ya RamboCat... PFDAN............... Drk^Angel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Charlie on Aug 26th, 2002, 9:34pm This horror no doubt produces similar pain but we all react differently. I think for many of us it's very localized, intense, with with similar visual facial ,manifestations. The levels no doubt vary. I don't think I'd want to type while having an attack. I couldn't afford the keyboard replacemnets. Charlie |
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Title: Re: Do all CH suffers suffer pretty much the same Post by oringkid on Aug 27th, 2002, 10:41am I'm like Cat in that I can type (badly) with Kip 8 and actually seek out distraction by computer for CH's kip 8 and under. I will play word games to try to redirect my attention till it subsides, but over an 8, forget it. I think I've only had maybe 2 kip 10s ever and during them, I really don't think I was even aware of my surroundings at all. EVERYTHING becomes my head. I have NOTHING but the pain. It's like the pain is a super nova and there is nothing but that super nova. I have no awareness of any other part of my body, there is only one incoherent scream in my head. Sherry |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 27th, 2002, 12:22pm on 08/26/02 at 20:48:09, catlind wrote:
Pain level 8 Time to scream, yell, curse, head bang, rock, whatever work's If you can bang away on a laptop and post with an 8, you're tougher than I am... or you are just a full-blown masochist! :D Playing chicken with a tractor-trailer ( what's that? ;) ) ? Yep, you just thrive in pain, Cat ;D Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Bob P on Aug 27th, 2002, 1:03pm I'm with you Slammy. When I feel that first weird feeling that tells me an attack is coming, I don't do anything from that point on but try to deal with the pain. I'd never think of sitting at the pooter with a Kip anything. I don't get any inbetween in my attacks. They go from 0 to full blown in 5 or ten minutes, last 1/2 hour to 3 hours and then go from full blown to nothing in 2 minutes. |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 27th, 2002, 1:31pm Bob, It seems that we have very similar cycles.... The beast must follow a pattern for us "best coast" CH'ers! :D When a Kip 8 or higher ends, my head will hurt, but it's like a " hit with a bat" pain. Shit, even my hair hurts after an 8 or higher. But even that is euphoric compared to a full bore cluster. Breathing through both nostrils even seems to be a treat afterwards! ;D I'm "aware" of the PF time in between CHs when I am in cycle. The funny thing is, when I am in my remission, I can't remember the pain too much..... funny how the mind works to protect you. If it wasn't for this site, I would completely forget about Clusters until the next cycle started. Oh! and my CLUSTERHEADACHES.COm custom bumper sticker from New England yambag buddy, jonnywithnohphilipwithonel. ;D Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Samiam on Aug 27th, 2002, 1:43pm Not all pain is the same to all people....but I can assure you that any sign that a cluster is starting I don't want any part of the computer.....I had maybe 2-10's this cycle the first one it was all my hubby could do was to hold me tight because I was going out of my mind and would have destroyed everything in site....it's like you go insaine.....I have a 5 minute warning before I get full blown and when it's over it's like 2 sec. from full blown to nothing but a dull ache and a feeling like I just went 10 rounds with Tyson.....Sami |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Bob P on Aug 27th, 2002, 2:13pm Slammy and Sammy, Same here. During a cluster period the left side of my head feels bruised or swollen from the previous attacks. Hair hurting - that happens during an attack for me. I start with an ice pack on my eye/temple/top of head. as the attack progresses the ice pack moves away from my head to where I am holding it an inch off my skull. Just hurts too bad to touch anything. This is where I do nothing but sit in my chair, leaning forward and may blowing my nose once in a while (but that hurts too). Nothing I can do but wait and pray that it will end soon. The guy on the home page is right on - when it's over I can feel it just drain away and the feeling of euphoria sets in. |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Elaine on Aug 27th, 2002, 2:55pm I am with you guys, I can not get on a computer, I can not think muchless work a computer. I want to rock. My pain starts in one side of my nose and travels around my jaw and up to my eye! IF i could rip my face off would be nice when I have one! All i can think of is how to stop it ! Even if it is a shadow! I tried a couple of times to get on the computer I could not stand it ! |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Kilo on Aug 27th, 2002, 9:07pm Hair hurting...do you all know how many times I've tried to explain that concept to bystanders? I can't even touch my hair during a HA, let alone my scalp or the side of my face. My hair is waist-length, and I'm thinking of getting a crew-cut just because the weight of it is too much to bear during anything over a shadow. iukid, as a clusterhead who has given birth AND had a ventilator tube hammered into/ripped out of her throat, I can tell you that pain is relative. Some people on this board might be totally flattened by what I call a Kip 10, and I would be crushed into a pool of jelly if I experienced what JimR described in his recent "unrelenting" post. (Needless to say, the general public would run screaming like little girls at the first sign of a cluster of any level.) I think we can only rate our own pain in comparison to other pain we have suffered. I hadn't had a cluster headache for several years when I experienced the aforementioned ventilator tube adventure, and I actually convinced myself that it was more painful than the worst CH. Until this episode, that is. Now the hammering/ripping thing has been demoted to about the equivalent of a Kip 7. It made a really cool noise, though. ;D Kilo |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 27th, 2002, 9:17pm on 08/27/02 at 13:31:49, Slammy wrote:
What's funny is that being able to breathe through both nostrils is one of the things I look forward to after an attack - I can't stand that congested condition, and when I can breathe right I know things are gonna get better. Slammy quit bein similar to me, it scares me ;) LOL Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 27th, 2002, 9:20pm on 08/27/02 at 13:43:44, Samiam wrote:
Sammy, the number of times that Clark has had to just hold me or keep me somewhere safe because of that edge of panic that hits....that feeling that if you give in to the panic you will never come back and you have to use every ounce of your being to fight to keep sane and not lose control. That's the hardest part for me when I hit 10....I am a control freak, and I fear that one of these times the attack will win and I will go over that line and fall off the edge never to see sanity again. Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Drk^Angel on Aug 27th, 2002, 10:26pm Sanity is overrated... I dumped it off, and left it in the dust many moons ago... PFDAN....................... Drk^Angel |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Charlie on Aug 27th, 2002, 10:26pm Hate to tell you Slammy, but people rarely breath through both nostrils. I'm full of boring shit like this ::) Really bland old Charlie |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Samiam on Aug 28th, 2002, 8:15am I think the worst part of this is that you know that it's really one step at a time, you know that if you can just get through this one, that another will be coming in it's place.....I think knowing that you are going to get it is like play head games with your mind. I love the people that say "maybe you won't get another one tomorrow"....yea right I not only will get another one tomorrow but I will tell you when unless it really wants to screw with me and not only will I get that one but it will throw in another just to show me who's in control.....the fear of losing it and not being able to be in control is just one of the many things that this illness has taken from me during a cycle......I also SWEAR THAT EVERYTIME THIS BEAST LEAVES ME IT TAKES A PART OF ME WITH IT......Sami |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 28th, 2002, 10:19am on 08/27/02 at 22:26:54, Charlie wrote:
Really!? well, fuck me! ;D What, does the air only go through the path with the least resistance? :D That's a good one, Really Fascinating, but old Charlie! ;D Don't worry Cat, there is no similarities between you and I... :P I'm a Rat Bastard and you are a Bitch... remember? ;D Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by Slammy on Aug 28th, 2002, 10:24am on 08/27/02 at 21:07:08, Kilo wrote:
Heheh... do you ever make it out to California? :D Loserib, I think I found your soul (cell?) mate! ;D Slammy 8) |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 28th, 2002, 12:21pm on 08/28/02 at 10:19:57, Slammy wrote:
You would just love for someone to fuck you Slammy ;) ;D As for similarities, you're right, you're a gutter rat and I'm a gutter B.I.T.C.H. ;) Control being key in my life LOL Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by catlind on Aug 28th, 2002, 12:28pm I find it very very interesting to hear of so many of us that have had the symptom of painful hair and heads. At one point, when I went to ER for the ha, the doc touched my temple and I just about dropped him. Because I said even my hair hurts, they decided to check me sed rates (Eurythrocyte Sedimentation Rates - I'm not a medical speller so forgive spelling errors). It measures how long it takes for the red blood cells to settle or something like that. Normal is between 1-20 and mine was 77. I had 3 doctors tell me that the only way my sed rate could be that high was if I had a very serious infection (no fever or anything so that was ruled out) severe inflammation somewhere in my system or Temporal Arteritis. Since they couldn't "see" any inflammation, they put me on prednisone and treated me and diagnosed me for temporal arteritis. It would be interesting to see if anyone else has had a sed rate done on them when they are in the height of an attack. After learning much more about my condition, I can see that the sed rate would be high because of inflammation of the vessels in the head perhaps. I was on 60 mg of prednisone for 2 weeks, then 40 mg for 6 more weeks. Yes it broke my cycle. It also turned me into the good year blimp. I could never figure out why the prednisone worked to stop the headaches, but the neuros were certain I had migraines and the pred didn't help anything. Now I know. Amazing what a little information can do for a person...now if only the F!#%!% neuros and doctors would take some time to learn, future CH'ers might not have to go through months to years of nightmares to get a diagnosis and treatment. Really Rambly (not Rambo today) Cat |
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Title: Re: Do all CH suffers suffer pretty much the same Post by rgenss on Sep 19th, 2002, 10:07am My pain seems to be very much like everyone elses except for the fact that some troopers seem to want to type when they are experiencing a ch. Screw that! When I get one It's usually in the middle of the night and I'm usually 97% debilitated. I am fortunate however that my doctor is a migrane sufferer and he recognized my headaches for what they are. He put me on prednizone and the headaches are mostly gone. When these started about 4 years ago I seriously thought that I had a brain tumor. Anyway I want to let everyone know that Dr. Buckman in KC is the greatest doctor in the area when it comes to headaches. Sorry I'm a bit chatty this morning. It's my first morning in two weeks without headaches or prednizone waking me up. |
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